Talking to a reporter today

[Guest guest]

They had an article in my paper yesteday about an illness called

Sarcoidosis, an inflammatory disease that can affect any organ of the

body, although it is most often found in the lungs. Funny thing it

sounds like many of our problems. It talks about how the cause is

unknown, but researchers believe there may be several. Infection or

exposure to a fungus or allergen are among the theories.

I will post the article if I can. The thing that bothered me is it is

pretty much a death sentence and doing inhalers which I know don't work

for me. I called the reporter to ask her if these people have been

told to avoid fragrances, etc and if they think it could be from mold.

I wasn't really looking for a story, just wanted the reporter to tell

these people about the fragrances. It is like the man downstairs, I

have such trouble breathing his fragrances and he uses oxygen.

I also told her about Dr. Shoemaker and how people are going to him

from all over the world. So she said she wanted to talk to me later in

a week of two-- so we will see.

[Guest guest]

On " the aspergillus website " they have extensive documentation of

various mycoses.. (these diseases where fungi start growing inside the

body) They even have videos of them being removed..

These kinds of diseases have been known for a long time and they are

often very dangerous...

Of do a search for 'mycoses' on Medline.. thousands of hits...

They are hard to find, I bet...

[Guest guest]

Yes, but the pain in my lungs has greatly lessened in the last year- a

summer spent going to the beach allot helped, now the only thing that

really hurts my lungs are scented candels, heating, mold spore,

toxins , besides that I am not bad, breathing fresh outdoor air still

makes a hugh difference

--- In , " ldelp84227 " <ldelp84227@a...>

wrote:

>

> Do you guys have pain in the lungs all the time? My doesn't hurt

all

> day but it does hurt really bad when I am near fragrance, cooking,

> any irritants and of course mold or antique furniture. And when it

> does hurt my mucus membranes are going crazy. But when I was in the

> moldy home it hurt all day long.

>

>

[Guest guest]

My lung pain is related to my asthma. It manifests that way mainly now.

Sometimes

shortness of breath. And I get the sinus thing too. The diflucan helps with

both, so maybe

it is mold related.

> > They had an article in my paper yesteday about an illness called

> > Sarcoidosis, an inflammatory disease that can affect any organ of

> the

> > body, although it is most often found in the lungs. Funny thing it

> > sounds like many of our problems. It talks about how the cause is

> > unknown, but researchers believe there may be several. Infection

> or

> > exposure to a fungus or allergen are among the theories.

> >

> > I will post the article if I can. The thing that bothered me is it

> is

> > pretty much a death sentence and doing inhalers which I know don't

> work

> > for me. I called the reporter to ask her if these people have

> been

> > told to avoid fragrances, etc and if they think it could be from

> mold.

> > I wasn't really looking for a story, just wanted the reporter to

> tell

> > these people about the fragrances. It is like the man downstairs,

> I

> > have such trouble breathing his fragrances and he uses oxygen.

> >

> > I also told her about Dr. Shoemaker and how people are going to him

> > from all over the world. So she said she wanted to talk to me

> later in

> > a week of two-- so we will see.