Re: question about B12 doses

[Guest guest]

Hi

We just did our first b12 shot last night! We went over to the US to

see Dr Usman and she prescribed the B12 from coastal. is 5 and

21kg. The B12 was shipped direct from the US and each syringe contains

1.6ML of the B12. The strength is 25MG/ML. We are doing shots every

4th day (off days for TD-DMPS). What is the volume in your syringe??

On our container it says

METHYLCOBALAMIN 25MG/ML INJECTABLE

1.6ML

Inject the contents of one syringe (0.1ml,2500mcg) subcutaneously every

4th day.

Being a novice, I don't know whether the 1.6ML volume is unique to

or standard.

This is complicated!

Tina

PS We had to do the injection when was asleep as he screamed when

we tried it awake!

question about B12 doses

Hello everybody, I found out about your group from the CK2 group.

I find it very practice to have a European group, because we are

having some extras troubles, living in our " undeveloped countries "

(we have our European culture that we are so proud of, but we don't

have DAN! Culture!!!)

Like everybody else, I would like to thanks Paola for making our

life easier.

Now for my question:

I ordered the B12 shouts from Switzerland, it is the 2.5 mg/0.1mL

per syringe.

Now I saw from dr. MC post in CK2, that it should be 64.5mcg per Kg.

My son is 3 years old, about 15 kg.

So per Dr MC recommendations, he should have 1mg only...

What should I do with the 2.5mg`s syringes? Should I " push " only

half of the liquid? Should I trough out the rest?

How did you Europeans peoples doing for having it compounding by the

child

weight??

Thanks

Liora from France

[Guest guest]

Double check how much the syringe actually CONTAINS. Ours reads 25mg/ml, as the STRENGTH, then "inject the contents of one syringe(1250 mcg or 0.05 ml) as directed"...etc. Yours may well be the same, in which case you're fine. HTH.

question about B12 doses

Hello everybody, I found out about your group from the CK2 group.I find it very practice to have a European group, because we are having some extras troubles, living in our "undeveloped countries" (we have our European culture that we are so proud of, but we don't have DAN! Culture!!!)Like everybody else, I would like to thanks Paola for making our life easier. Now for my question:I ordered the B12 shouts from Switzerland, it is the 2.5 mg/0.1mLper syringe.Now I saw from dr. MC post in CK2, that it should be 64.5mcg per Kg. My son is 3 years old, about 15 kg.So per Dr MC recommendations, he should have 1mg only...What should I do with the 2.5mg`s syringes? Should I "push" only half of the liquid? Should I trough out the rest?How did you Europeans peoples doing for having it compounding by the childweight??ThanksLiora from France

[Guest guest]

I did not wet got my syringes, but I already ordered them and they

are maybe on the way to France. The pharmacy didn't ask me what

dose, so I assumed there was a " one size " (how stupid assumption...)

I hope they did not send it wet, so I will call them tomorrow to ask

about this.

Are the syringes that you got with 1250 mcg for 0.05 ml are from the

Switzerland pharmacy?

Can we ask them to compound by special doses?

Thanks

Liora

> Double check how much the syringe actually CONTAINS. Ours reads

25mg/ml, as the STRENGTH, then " inject the contents of one syringe

(1250 mcg or 0.05 ml) as directed " ...etc. Yours may well be the

same, in which case you're fine. HTH.

> question about B12 doses

>

>

>

> Hello everybody, I found out about your group from the CK2 group.

> I find it very practice to have a European group, because we are

> having some extras troubles, living in our " undeveloped

countries "

> (we have our European culture that we are so proud of, but we

don't

> have DAN! Culture!!!)

>

> Like everybody else, I would like to thanks Paola for making our

> life easier.

>

> Now for my question:

>

> I ordered the B12 shouts from Switzerland, it is the 2.5 mg/0.1mL

> per syringe.

> Now I saw from dr. MC post in CK2, that it should be 64.5mcg per

Kg.

> My son is 3 years old, about 15 kg.

> So per Dr MC recommendations, he should have 1mg only...

> What should I do with the 2.5mg`s syringes? Should I " push " only

> half of the liquid? Should I trough out the rest?

>

> How did you Europeans peoples doing for having it compounding by

the

> child

> weight??

>

> Thanks

>

> Liora from France

>

>

>

>

>

>

[Guest guest]

Our syringes are also marked 25mg/ml.

Our old prescription called for 0.05ml in each syringe. As my son

has been doing so well on the b-12 shots, the latest batch is double

that amount in each syringe, ie 0.1ml. I'm currently giving a shot

every day, though Pfeiffer have prescribed it every other day.

Where do the Swiss b-12 shots come from? Are they from Coastal

Compounding? (That's where we get ours)

Sharon

> Double check how much the syringe actually CONTAINS. Ours reads

25mg/ml, as the STRENGTH, then " inject the contents of one syringe

(1250 mcg or 0.05 ml) as directed " ...etc. Yours may well be the same,

in which case you're fine. HTH.

> question about B12 doses

>

>

>

> Hello everybody, I found out about your group from the CK2 group.

> I find it very practice to have a European group, because we are

> having some extras troubles, living in our " undeveloped

countries "

> (we have our European culture that we are so proud of, but we

don't

> have DAN! Culture!!!)

>

> Like everybody else, I would like to thanks Paola for making our

> life easier.

>

> Now for my question:

>

> I ordered the B12 shouts from Switzerland, it is the 2.5 mg/0.1mL

> per syringe.

> Now I saw from dr. MC post in CK2, that it should be 64.5mcg per

Kg.

> My son is 3 years old, about 15 kg.

> So per Dr MC recommendations, he should have 1mg only...

> What should I do with the 2.5mg`s syringes? Should I " push " only

> half of the liquid? Should I trough out the rest?

>

> How did you Europeans peoples doing for having it compounding by

the

> child

> weight??

>

> Thanks

>

> Liora from France

>

>

>

>

>

>

[Guest guest]

I just called the swiss pharmacy and they told me that those are the

0.1mg syringes, so 2500mg of B12. For the moment they can't have

others doses. (I need the 1250mg ones)

So my question is: am-I about to " push " only half of the liquid and

then throw out the rest, or can I put the rest in the fridge to use

it two days later?

Thanks

Liora

> > Double check how much the syringe actually CONTAINS. Ours reads

> 25mg/ml, as the STRENGTH, then " inject the contents of one syringe

> (1250 mcg or 0.05 ml) as directed " ...etc. Yours may well be the

same,

> in which case you're fine. HTH.

> > question about B12 doses

> >

> >

> >

> > Hello everybody, I found out about your group from the CK2

group.

> > I find it very practice to have a European group, because we

are

> > having some extras troubles, living in our " undeveloped

> countries "

> > (we have our European culture that we are so proud of, but we

> don't

> > have DAN! Culture!!!)

> >

> > Like everybody else, I would like to thanks Paola for making

our

> > life easier.

> >

> > Now for my question:

> >

> > I ordered the B12 shouts from Switzerland, it is the 2.5

mg/0.1mL

> > per syringe.

> > Now I saw from dr. MC post in CK2, that it should be 64.5mcg

per

> Kg.

> > My son is 3 years old, about 15 kg.

> > So per Dr MC recommendations, he should have 1mg only...

> > What should I do with the 2.5mg`s syringes? Should I " push "

only

> > half of the liquid? Should I trough out the rest?

> >

> > How did you Europeans peoples doing for having it compounding

by

> the

> > child

> > weight??

> >

> > Thanks

> >

> > Liora from France

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi Tina,

I've just got my B12 from Switzerland and the packaging states 25mg/ml each syringe contains 2500mcg MB12/vol= 0.1 ml.

I too noticed Dr M recomending 64.5mcg/kg every 3 days which would mean only 1600mcg for my 25kg son - I'm a little confused also! I'm also worried about injecting it ! I am considering doing it when hes asleep but am worried he'll wake up, move suddenly and it'll all go pear-shaped!! How did you manage , I could do with some tips as I've never injected anything before!!!

With many thanks

RE: question about B12 doses

HiWe just did our first b12 shot last night! We went over to the US tosee Dr Usman and she prescribed the B12 from coastal. is 5 and21kg. The B12 was shipped direct from the US and each syringe contains1.6ML of the B12. The strength is 25MG/ML. We are doing shots every4th day (off days for TD-DMPS). What is the volume in your syringe??On our container it saysMETHYLCOBALAMIN 25MG/ML INJECTABLE1.6MLInject the contents of one syringe (0.1ml,2500mcg) subcutaneously every4th day.Being a novice, I don't know whether the 1.6ML volume is unique to or standard. This is complicated!TinaPS We had to do the injection when was asleep as he screamed whenwe tried it awake!-----Original Message-----From: Liora Crespin [mailto:crespin.michael@...] Sent: 05 December 2004 08:51Desperate4DMPSEurope Subject: question about B12 dosesHello everybody, I found out about your group from the CK2 group.I find it very practice to have a European group, because we are having some extras troubles, living in our "undeveloped countries" (we have our European culture that we are so proud of, but we don't have DAN! Culture!!!)Like everybody else, I would like to thanks Paola for making our life easier. Now for my question:I ordered the B12 shouts from Switzerland, it is the 2.5 mg/0.1mLper syringe.Now I saw from dr. MC post in CK2, that it should be 64.5mcg per Kg. My son is 3 years old, about 15 kg.So per Dr MC recommendations, he should have 1mg only...What should I do with the 2.5mg`s syringes? Should I "push" only half of the liquid? Should I trough out the rest?How did you Europeans peoples doing for having it compounding by the childweight??ThanksLiora from France

[Guest guest]

Hi Abbie,

For what you're saying it looks like ours are double the size of yours with each containing 2500mcg.

question about B12 doses

Hello everybody, I found out about your group from the CK2 group.I find it very practice to have a European group, because we are having some extras troubles, living in our "undeveloped countries" (we have our European culture that we are so proud of, but we don't have DAN! Culture!!!)Like everybody else, I would like to thanks Paola for making our life easier. Now for my question:I ordered the B12 shouts from Switzerland, it is the 2.5 mg/0.1mLper syringe.Now I saw from dr. MC post in CK2, that it should be 64.5mcg per Kg. My son is 3 years old, about 15 kg.So per Dr MC recommendations, he should have 1mg only...What should I do with the 2.5mg`s syringes? Should I "push" only half of the liquid? Should I trough out the rest?How did you Europeans peoples doing for having it compounding by the childweight??ThanksLiora from France

[Guest guest]

Hi Sharon,

Yes, the swiss B12 is from coastal and is 2500mcg in 0.1ml.

question about B12 doses> > > > Hello everybody, I found out about your group from the CK2 group.> I find it very practice to have a European group, because we are > having some extras troubles, living in our "undeveloped countries" > (we have our European culture that we are so proud of, but we don't > have DAN! Culture!!!)> > Like everybody else, I would like to thanks Paola for making our > life easier. > > Now for my question:> > I ordered the B12 shouts from Switzerland, it is the 2.5 mg/0.1mL> per syringe.> Now I saw from dr. MC post in CK2, that it should be 64.5mcg per Kg. > My son is 3 years old, about 15 kg.> So per Dr MC recommendations, he should have 1mg only...> What should I do with the 2.5mg`s syringes? Should I "push" only > half of the liquid? Should I trough out the rest?> > How did you Europeans peoples doing for having it compounding by the > child> weight??> > Thanks> > Liora from France> > > > > >

[Guest guest]

Hi , With regard to giving the B12 injections, I too was very nervous at first, but with encouragement from biomedical friends, got on with it and now feel like a pro! We are also seeing good results. has had lots of injections/blood draws over the years, always with Emla cream (which freezes the site) and has made for a painless injection, as long as he sits still. For years, we held him down for blood draws (me and two nurses) and eventually he calmed and accepted it and now can sit still himself (he's nine). For years, I did things like wrap up a huge present and sit it next to him during his blood draws as a reinforcer for him getting through it. This will only work, of course, if the child is about ready to go through it, otherwise you'll have a meltdown about the injection and also about the fact that you don't get the present if you don't go through with it. Not good! All of this preparatory work has made a difference to the way in which we were to prepare him for the B12 and the fact that he accepted it quite quickly. We took it very slowly and explained what we were going to do and the need for him to sit very still. Dad held him firmly and I let him see what we were going to do and reassured him that it wouldn't hurt. This is how it works for us: I now get Emla cream prescribed to me from my supportive GP I put it on (large blob) in the fleshy bit, top of the back leg. I then wrap the top of the leg in clingfilm (!) for an hour, while it goes to work and it freezes that part of the leg. (You can get special plasters for Emla Cream to keep it in place for 75p each, while you get used to doing this). After an hour, I take off the clingfilm and wipe the remainder of the cream (now translucent) off with an antiseptic wipe. You need to be sure you know exactly where to inject, because it's hard to see once the Emla cream is gone. I nip his leg and push in the teeny needle. He doesn't feel a thing. Once the injection is done, I wipe again with the antiseptic wipe and cover with cotton wool and a strip to hold it in place. I make a big deal of him staying still like a soldier and being such a star as I do this. Dad held him securely for the first few times. Now he accepts it and although he's nervous, he will stay very still and enjoy lots of social praise for sitting so still and having his injection. I hope that using the Emla cream for an hour beforehand is actually a good way of doing this. I don't think regular use of it has any disadvantages, but am open to being told that this is not a good idea from anyone who might know better than me! The advantage is, that if your child is ready to do it this way, you can avoid doing it during their sleep. However, I think there are advantages to doing it either way and you just have to work out what's best for your child and your family at any given time. Hope this is helpful, best of luck, Pamela RE: question about B12 dosesHiWe just did our first b12 shot last night! We went over to the US tosee Dr Usman and she prescribed the B12 from coastal. is 5 and21kg. The B12 was shipped direct from the US and each syringe contains1.6ML of the B12. The strength is 25MG/ML. We are doing shots every4th day (off days for TD-DMPS). What is the volume in your syringe??On our container it saysMETHYLCOBALAMIN 25MG/ML INJECTABLE1.6MLInject the contents of one syringe (0.1ml,2500mcg) subcutaneously every4th day.Being a novice, I don't know whether the 1.6ML volume is unique to or standard. This is complicated!TinaPS We had to do the injection when was asleep as he screamed whenwe tried it awake!-----Original Message-----From: Liora Crespin [mailto:crespin.michael@...] Sent: 05 December 2004 08:51Desperate4DMPSEurope Subject: question about B12 dosesHello everybody, I found out about your group from the CK2 group.I find it very practice to have a European group, because we are having some extras troubles, living in our "undeveloped countries" (we have our European culture that we are so proud of, but we don't have DAN! Culture!!!)Like everybody else, I would like to thanks Paola for making our life easier. Now for my question:I ordered the B12 shouts from Switzerland, it is the 2.5 mg/0.1mLper syringe.Now I saw from dr. MC post in CK2, that it should be 64.5mcg per Kg. My son is 3 years old, about 15 kg.So per Dr MC recommendations, he should have 1mg only...What should I do with the 2.5mg`s syringes? Should I "push" only half of the liquid? Should I trough out the rest?How did you Europeans peoples doing for having it compounding by the childweight??ThanksLiora from France

[Guest guest]

Hi

Please find below the instructions we

received from Dr Usman office.

Subcutaneous Injections

Select the site for injection (we were

shown the fatty bit towards the top of the buttock!!) and cleanse the site with

an antiseptic pad by moving the pad in an outward, circular motion, using

enough pressure to add friction to the process. Allow the skin to dry.

Remove the cap of the needle. Using the antiseptic technique, clean

and gently squeeze and elevate the skin at the site with your hand.

Position the needle at a 45 degree angle

to the skin, with the tip of the needle about 2inches above the surface of the

skin. Quickly and firmly thrust the

needle through the skin and into the subcutaneous tissue. Release the skin. Place your thumb on the plunger and

slowly inject the medicine into the subcutaneous tissue. Pull the needle out gently and rapidly

at the same angle used to insert.

Hold an antiseptic pad over the area until all the bleeding stops.

I tried one out on myself first (without

medicine!!) and to be honest, it didn’t hurt at all (I have a nice area

of fat around the target area!).

Feeling more confident I tried on while he was awake and he clearly

did feel it and jumped before I got the medicine in (he is less well padded

with fat!). We waited til he was asleep and tried again, this time

successfully. He said ‘ow’ and went straight back to sleep. No recall the next

morning thank goodness.

I’m glad the first one is over –

even though I used a number of syringes up!!

I hope that helps, if you are worried, a

visit to the nurse is probably a good idea as Nevin

suggested. We at least had a demo

at Dr Usman’s office.

Tina

Re:

question about B12 doses

Hi Tina,

I've just got my B12 from

Switzerland and the packaging states 25mg/ml each syringe contains 2500mcg

MB12/vol= 0.1 ml.

I too noticed Dr M recomending

64.5mcg/kg every 3 days which would mean only 1600mcg for my 25kg son - I'm a

little confused also! I'm also worried about injecting it ! I am considering

doing it when hes asleep but am worried he'll wake up, move suddenly and it'll

all go pear-shaped!! How did you manage , I could do with some tips as I've

never injected anything before!!!

With many thanks

question about B12

doses

Hello everybody, I found out about your group from

the CK2 group.

I find it very practice to have a European group,

because we are

having some extras troubles, living in our

" undeveloped countries "

(we have our European culture that we are so proud

of, but we don't

have DAN! Culture!!!)

Like everybody else, I would like to thanks Paola

for making our

life easier.

Now for my question:

I ordered the B12 shouts from Switzerland, it is

the 2.5 mg/0.1mL

per syringe.

Now I saw from dr. MC post in CK2, that it should

be 64.5mcg per Kg.

My son is 3 years old, about 15 kg.

So per Dr MC recommendations, he should have 1mg

only...

What should I do with the 2.5mg`s syringes? Should

I " push " only

half of the liquid? Should I trough out the rest?

How did you Europeans peoples doing for having it

compounding by the

child

weight??

Thanks

Liora from France

[Guest guest]

Blast!! What a pain. I wish I knew the best way forward for you.

question about B12 doses

Hello everybody, I found out about your group from the CK2 group.I find it very practice to have a European group, because we are having some extras troubles, living in our "undeveloped countries" (we have our European culture that we are so proud of, but we don't have DAN! Culture!!!)Like everybody else, I would like to thanks Paola for making our life easier. Now for my question:I ordered the B12 shouts from Switzerland, it is the 2.5 mg/0.1mLper syringe.Now I saw from dr. MC post in CK2, that it should be 64.5mcg per Kg. My son is 3 years old, about 15 kg.So per Dr MC recommendations, he should have 1mg only...What should I do with the 2.5mg`s syringes? Should I "push" only half of the liquid? Should I trough out the rest?How did you Europeans peoples doing for having it compounding by the childweight??ThanksLiora from France