sorry...

[Guest guest]

Sorry to hear you guys aren't able to take over & get him casting

care first in hopes of correction.. Maybethe info. you present her

with will give her a different opinion.. Good luck w/it all! Take

care. ~Joy

>

> We didn't win our custody case. We did get nearly impossible

> unsupervised visitation monthly with Jessie. The trip and hotel

> usually runs us around $500 so we won't be able to do much

visiting

> unless gas prices go down. We got to spend three hours with him

> before we ventured home. The judge did mention that as soon as

> Jessie is cleared by his doctor that Jessie could travel in the

car

> to come to our home for a week to six week visit. Her attorney

> believes that is impossible due to Jessie being in a brace and it

> causing to much stress on his curvature.

> Our attorney did a poor job presenting our case. Funny we paid

$800

> and didn't get an attorney who would present all our documents. I

> didn't even get to use the information for the Metha Serial

Casting

> since I was not a professional. Jessie's mother rather have VEPTR

> surgery. What it boils down to is that since Jessie's mother did

> finally get him a brace before court and has a huge handful of

> people helping her take care of Jessie, she gets to keep custody.

> I worry about Jessie as when we did get to spend time with Jessie

he

> seemed to be very smart but only makes grunting noises. He tends

to

> hide behind curtains and stands in the corner mostly. I am afraid

> that something bad will happen as Jessie likes to go down the

slide

> on his swing set head first and his mother in her wheelchair is

not

> able to reach him to get him to go down feet first. I am afraid if

> Jessie wanted to could get away from his mother. I guess the court

> is awaiting for something bad to happen.

> I will always envy all of you who are able to take your little

> angels for serial casting as opposed to surgery. We will still

> continue to try to convince his mother that the serial casting is

> surely worth a try, but I fear Jessie is reaching an age to where

it

> may not make a difference. He is approching the 20 month age mark

> soon. Right now I am at a lost as to what to do. We are going to

try

> to send his mother, once again, all the information on Metha

Serial

> Casting in hopes she will understand the method and give it a try.

> I do want to thank each and every one of you for the support and

> information on understanding Scoliosis. I will stay active here.

We

> will be constantly monitoring Jessie's progression. They can get

> Jessie down in the 20 degree mark with his brace and he is to wear

> it 22 hours a day. His back did look a lot straighter. I just know

> in my heart the casting would do a better job at straightening him

> out. Unfortunately we do not have much say in what would be best

for

> Jessie.

> I will post Jessie's x-rays as well as the only picture we have of

> his brace. He has grown some. Wish I had better news.

> Jackie in Ohio

>

[Guest guest]

sorry guys-the response to Diane's post aboutmy website whoas was

suppose to go private-however...if anyone can help out please do!

Sometimes free is NOT a good thing ;O

Deb