Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 Please forgive me for meantioning this but my two boys......The age appropriate son has normal genitalia and my youngest severe autistic has huge genitalia! I always ask the doctors why and they do not give an answer I hope you all dont think I am a pervert its just strange! That would explain why my oldest daughter and my youngest son are more rapidly body and mind is different. Now my own personal feelings of fear. I hope no one takes this wrong but I feel its a sick joke of nature to make one physically ahead of time and mentally behind! charlene -- Re: puberty My daughter showed the first signs of puberty at age 5 so she was diagnosed with precocious puberty.. it has been an extrememly slow process and now at the age of 8 still has not begun menustrating. The docs tell me anything happening at age 8 or beyond is normal. I was also told that it is common for kids with neurological problems to also have extremely early puberty. Lyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 Has he been tested for Fragile-X. This can be a characteristic. Geraldine. >Message: 8 > Date: Sun, 1 Sep 2002 21:14:21 -0600 (Mountain Daylight Time) > From: " cheezer " <cheezer@...> >Subject: Re: Re: puberty > > Please forgive me for meantioning this but my two boys......The age >appropriate son has normal genitalia and my youngest severe autistic has >huge genitalia! I always ask the doctors why and they do not give an answer > I hope you all dont think I am a pervert its just strange! That would >explain why my oldest daughter and my youngest son are more rapidly body and >mind is different. > Now my own personal feelings of fear. I hope no one takes this wrong >but I feel its a sick joke of nature to make one physically ahead of time >and mentally behind! charlene > >-- Re: puberty > >My daughter showed the first signs of puberty at age 5 so she was >diagnosed with precocious puberty.. it has been an extrememly slow >process and now at the age of 8 still has not begun menustrating. >The docs tell me anything happening at age 8 or beyond is normal. I >was also told that it is common for kids with neurological problems >to also have extremely early puberty. > >Lyn > > __________________________________________________________________ The NEW Netscape 7.0 browser is now available. Upgrade now! http://channels.netscape.com/ns/browsers/download.jsp Get your own FREE, personal Netscape Mail account today at http://webmail.netscape.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 When I first seen a genetisis in Mount Laurel NJ she measured his head seen if his joints were flexible which they were and looked at genetalia. She also did this to my daughter. Both kids had huge heads, flexible joints and big genetalia. So she measured me head which was larger then standard and checked my joints which were very flexible and she thought Fragile X. I got blood taken from me and . We skipped since it would of been another referal. Four months later came back negative. I had 29 repeats and had 29 repeats. charlene -- RE:puberty Has he been tested for Fragile-X. This can be a characteristic. Geraldine. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2003 Report Share Posted January 24, 2003 Thanks for your insight, Sondra. This is such a sensitive topic, I admire your willingness to talk about it. I do think that my daughter is way behind others her age, so it would be like a 4 or five year old having a period. That is also why I will be looking into birth control options, because there is no way I want my daughter to experience a pregnancy. I realize this is controversial to many folks, but as her mother I will do my best to protect her from that part of life. Vickie Re: Daughter just hit puberty...help! you to might be to delay this but not sure if healthy to do so I to think maybe to investigate this more for a child so young, but as you to share for her to be so young it to be scary as she to be anywhere from 2 - 4 years or more behind her peers in emotional , social things and for this is to be like a 4 - 7 year old to be to have a monthly so can be to see maybe why to be seeking answers but in true many of us who to be girls with autism have been to go through this and in early years yes a night mare but in the end most of us to have learned to some degrees how to care for this part of self as we matured. For many it caused a major sensory overload with not only the hormones and cramps but the napkins and such to be in places that we have not had in life and now has to be there and the actual monthly to be to make us to be to feel ill from the sensory of seeing this to be to happen to us so many will avoid to look at it so hard to keep self cared for properly when hard to look , secondly we tend to be to keep grabbing the areas so move things as this to drive us crazy , and we to often lack knowing we to not be to broadcast this to everyone and may announce to the whole class we need to go to the bathroom because we are on our monthly LOL I to know it to be to sound like a night mare for parents but truly we are most oblivious to it at this age in sense of social graces and understanding of it, but it to be to get better more so around late teens to early adult years some faster , some slower. For me it was around I to think 17 maybe 18 before I to understand it wasn't something to blurt out and such , but in true never understood why they were and never had ability to form a question well enough to ask. I to learned the cause and reasons after I to be to get pregnant at age 24 almost 25 with my first child, then I to understand it. When I to be to be a mom I to be maybe in true about age 13 or so socially and emotionally in some areas of development but other parts of me was far past my age. Yet in time I to learned to be a good mom too. At first my daughter was like a doll baby to me but as she to grow and demands to be more so I to learned to have a strong bond to her and she to be my priority in life and then more children's to keep coming and then I to get smart and say no more of these children's because they to be to hard to care for with so many. Again in time I to learned to manage them all to various degrees. So I to be sharing it will be hard at times yes, very hard, but keep in mind that they to be to need to catch up in areas of development when it to be of social and emotional ages compared to intellectual and physical areas. This is the challenge and the difficult part for parents. Next is worrying of early pregnancy? Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2003 Report Share Posted January 24, 2003 Just remember that if your special needs daughter gets pg its not her fault its the male who victimized her no matter what people say! charlene -- Re: puberty Thanks for your insight, Sondra. This is such a sensitive topic, I admire your willingness to talk about it. I do think that my daughter is way behind others her age, so it would be like a 4 or five year old having a period. That is also why I will be looking into birth control options, because there is no way I want my daughter to experience a pregnancy. I realize this is controversial to many folks, but as her mother I will do my best to protect her from that part of life. Vickie Re: Daughter just hit puberty...help! you to might be to delay this but not sure if healthy to do so I to think maybe to investigate this more for a child so young, but as you to share for her to be so young it to be scary as she to be anywhere from 2 - 4 years or more behind her peers in emotional , social things and for this is to be like a 4 - 7 year old to be to have a monthly so can be to see maybe why to be seeking answers but in true many of us who to be girls with autism have been to go through this and in early years yes a night mare but in the end most of us to have learned to some degrees how to care for this part of self as we matured. For many it caused a major sensory overload with not only the hormones and cramps but the napkins and such to be in places that we have not had in life and now has to be there and the actual monthly to be to make us to be to feel ill from the sensory of seeing this to be to happen to us so many will avoid to look at it so hard to keep self cared for properly when hard to look , secondly we tend to be to keep grabbing the areas so move things as this to drive us crazy , and we to often lack knowing we to not be to broadcast this to everyone and may announce to the whole class we need to go to the bathroom because we are on our monthly LOL I to know it to be to sound like a night mare for parents but truly we are most oblivious to it at this age in sense of social graces and understanding of it, but it to be to get better more so around late teens to early adult years some faster , some slower. For me it was around I to think 17 maybe 18 before I to understand it wasn't something to blurt out and such , but in true never understood why they were and never had ability to form a question well enough to ask. I to learned the cause and reasons after I to be to get pregnant at age 24 almost 25 with my first child, then I to understand it. When I to be to be a mom I to be maybe in true about age 13 or so socially and emotionally in some areas of development but other parts of me was far past my age. Yet in time I to learned to be a good mom too. At first my daughter was like a doll baby to me but as she to grow and demands to be more so I to learned to have a strong bond to her and she to be my priority in life and then more children's to keep coming and then I to get smart and say no more of these children's because they to be to hard to care for with so many. Again in time I to learned to manage them all to various degrees. So I to be sharing it will be hard at times yes, very hard, but keep in mind that they to be to need to catch up in areas of development when it to be of social and emotional ages compared to intellectual and physical areas. This is the challenge and the difficult part for parents. Next is worrying of early pregnancy? Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2003 Report Share Posted January 24, 2003 Vickie I to be okay with to discuss this I to be to feel now it is natural parts of life and feel safe to discuss this here for others to maybe get some insight but each must weigh I to be only one person so my thinkings and experiences is only from my own sharing and not from what other girls to experience for each to be different. I to add this though if you to be to know about a week before you daughter to have her monthly it might be good to begin to give some reliever designed for girls to comfort bloating and cramps to lessen the Childs pains and frustrations about 3 or so days before it to come and , continue until mid cycle or such as day two or three of the periods or until the child to be to seem to not need it anymore. Another things one might look into is the watch minder watch has set in alarms to cue children's of things and maybe this can be way to train them to change self and take care of needs by having watch to cue her to do so. This watch to have a visual screen that prints out what it is cuing you to do. So you child might be to need to understand how to read. I to had one for my son but he to be so smart he to be to reprogram the watch to meet hims needs instead of what we to want for him to do/ Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 from Dale, Mom to Katy, CVID, age 20 Laurie, yes, we know that puberty causes changes in the body that affect the immune system. Katy was 11 when she first began symptoms of PID. Her period started at age 11 and we were initially told that she just had headaches and fatigue and muscles aches because she was " adjusting " to starting her period. Ha! Then the gut stuff started, etc. Also, I don't think that 11 is " early " for puberty. Most of Katy's friends started right around there. I asked Katy what was normal since she just finished a child development class and she said she remembers 11-15 to be the normal range, but it can start as early as 7. We've also been told that puberty is a time that some kids outgrow their PID, although I haven't actually seen it! But, yes, you may be seeing a " change " as the immune system adjusts to puberty -- it can be a change either direction -- good or bad. And, hang in there. It's going to be a LONG day at the office. I'm glad you can work from home. Hope you can sneak a nap on your lunch break! In His service, Dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 In a message dated 8/19/2004 1:50:18 PM Eastern Daylight Time, dale@... writes: We've also been told that puberty is a time that some kids outgrow their PID, although I haven't actually seen it! But, yes, you may be seeing a " change " as the immune system adjusts to puberty -- it can be a change either direction -- good or bad. Puberty is when Brittany's immune system went BAD. She had many red flags when she was little. When she hit puberty it went crazy. She started her period at age 12 and that is normal. I don't think 11 is early either. I started at that age. They say usually you follow your mother on when you start and we were pretty close I must say. Janet, mom to Brittany, CVID, age 13 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2004 Report Share Posted August 21, 2004 Ashton is 11 and is the exact opposite. She is not developing at all yet. In fact, the orthodontist said her tooth development is off. They don't know if it is from all the medications, or if it is just her. Her little sister is 8 and their mouths are about the same in development. I know, everyone is different. The doctor said that she will not worry about her development until she is 12. Then, they will run some blood work. So much fun. There are so many girls at 8 and 9 that are developing in my 8 year olds class. It is scary. Ashton jokes about it, but she notices that she is different. L. Ashton 11 CVID, Asthma, dyslexia Marina 8 Asthma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2007 Report Share Posted August 3, 2007 , I am usually pretty quiet on this list but I decided to reply to your post. Masturbation is not a bad thing and he should not be made to feel bad about it. It is preferable to him having sex at too young an age. I would give him two places where it is acceptable and safe to do this; such as the bathroom with the door locked and his bedroom with the door locked. Please don't make him feel bad about such a natural part of life. [i would reccomend keeping some tissues in his room as well as a trash can.] As far as having sex, I would tell him that you do not want him having sex and although it feels good it is a bad idea because there is a lot of responsibilty that goes along with sex. Have you talked to him about pregnancy and std's? I think now is the time. I would tell him that masturbation feels just as good as sex but without the complications. I would also make sure he is educated on the use of a condom and supply him with some; once again stating that you are not giving him permission to have sex but if he decides to do it anyway he will be somewhat protected. I know this may sound crude but our children's lives are at stake. Get a cucumber and teach him how to put a condom on the cucumber and the proper way to take it off. Since he is Asperger's you also need to tell him he cannot have sex with just any girl because if she is too young or too old it would be against the law etc.. It is a lot even for a "normal teenager". Perhaps there are some books on the subject you can get for him. Best of luck to you! Jeanette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2007 Report Share Posted August 4, 2007 You need to make sure you start the process of guardianship NOW that will take place when he is a legal adult. You need to do this because it appears that unless there is a huge change in his impulsivity he may end up as a legal adult charged with sexual abuse of a minor and/or other inappropriate sexual behavior. While YOU know that he is a child, in 4 short years he will be a legal adult. In fact, the first time that someone complains about his behavior at age 14 (today, tomorrow, etc), he will be looking at being charged as a juvenile sexual predator/offender. He could be charged as an adult as some of the states are getting pretty tough on sexual crime and charging 13 yr olds as adults. These charges are almost never expunged and can follow him around for the rest of his life. In addition, if that happens at your day care, you can be held liable. You need to have documentation and good legal advice ASAP (like Monday). Is your son labeled as disabled through social security? If not, you might want to investigate this also. The bottom line is that he will need legal protection now and in the future. And yes, you and a behavioral therapist, neurologist, etc. need to get a program of behavior modification and/or started ASAP. I think you have a great amount of courage and integrity to bring up this very common problem. Priscilla in Kansas Park yourself in front of a world of choices in alternative vehicles.Visit the Auto Green Center. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2011 Report Share Posted July 13, 2011 Hi Everyone, My 10.5 year old daughter w/ Down Syndrome is entering puberty. We are having a rough time with her attitude and obedience. If any of you have had this can you please tell me what helped and how long it lasts. :-) Thank You, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2011 Report Share Posted July 13, 2011 Hi I have a 10 and a 15 year old and both girls have d.s. And are like night and day! Let's talk! Sent from my BlackBerry® on the MetroPCS Network Puberty Hi Everyone, My 10.5 year old daughter w/ Down Syndrome is entering puberty. We are having a rough time with her attitude and obedience. If any of you have had this can you please tell me what helped and how long it lasts. :-) Thank You, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2011 Report Share Posted July 13, 2011 Mine is going to be 11 next month and we are seeing 'tude and moods too. Would love to hear how others have handles it. It seems to help to allow her as much freedom as possible. Not freedom to misbehave, Just freedom Sent from my iPhone On Jul 13, 2011, at 3:32 PM, sudsystuff@... wrote: > Hi I have a 10 and a 15 year old and both girls have d.s. And are like night and day! Let's talk! > Sent from my BlackBerry® on the MetroPCS Network > > Puberty > > Hi Everyone, > > My 10.5 year old daughter w/ Down Syndrome is entering puberty. We are > having a rough time with her attitude and obedience. If any of you have had > this can you please tell me what helped and how long it lasts. :-) > > Thank You, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2011 Report Share Posted July 14, 2011 My Breezy will turn 19 on Saturday. She is usually not too defiant unless she is really tired. Be sure that your girls especially get lots of rest and down time around " that time of the month. " For the past three or four years I have found that because so many of the choices when it comes to her life are made by me with my decision that I have attempted to make her simple choices her own; which shoes do you want to wear, where would you like to go for Sunday dinner? I usually give her one or two options so that she does not have to make a long thought process out of it based on trying to first think of the options. Long ago I found that giving her too much to think thru or too much to choose from made her feel overwhelmed and who of us haven't felt that way and wanted to scream? I use a calendar a lot too, marking things so that there are no surprises in her routine. She has an on going IEP goal to make transitions without getting miffed. She always wants to complete one task before leaving it to go to another and in public school with class changes and out of the room things to attend it makes it hard. In her class the Para keeps a monthly calendar and it's funny all the girls hit right around the same time each month, talk about hormones! The funny part is that my other four girls are harder to deal with with their mood swings and tempers than Breezy and none of them have the extra chromosome. Take a deep breath and smile, it will work out with time and patience. God Bless, Gwen Quote Link to comment Share on other sites More sharing options...
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