Question

[Guest guest]

In a message dated 12/12/2005 9:32:44 PM Pacific Standard Time,

momtoboywholoveshisgoats@... writes:

Maybe you could ask the nurse to tell you if has any " rolling "

veins & see what she would reccommend or even the Dr. could help you

with this one.

Thanks, !

Sandi

[Guest guest]

>

> Hello. I am new to the group and I've been sort of gearing up to

start

> the Body for Life program. I'm leaving for vacation in a few days

and I

> know I won't be able to get regular exercise there so I'm waiting

to

> start after I get back.

Annie,

Hey, you and I are in the same boat! I am also leaving for vacation

in a few days and am starting the challenge when I get back after

the Christmas weekend.

I tend to be a bit of a planner, which sometimes delays me ever

starting anything. Other things I can be very spontaneous about. I

have been trying to turn The Challenge into something I am just

going to start, whether my weights are all correctly stacked and

organized or not!

Good luck on the Challenge, Annie! I know you can do it!

[Guest guest]

Dr marry Megson, Richmond, VA.

Worth the time, money & travel.

-S GA

question

Dear Families:

A friend has asked me to post this question.

She has a son on the autism spectrum in High School.

Who have you found knowledgeable and helpful when it comes to adolescent , medication, behavioral, OCD issues for someone on the autism spectrum?

We as parents are each others best resources.

Thanks for all your help,

Heidi Fernandez Parent and Advocate "Knowledge is Power"

[Guest guest]

Dr marry Megson, Richmond, VA.

Worth the time, money & travel.

-S GA

question

Dear Families:

A friend has asked me to post this question.

She has a son on the autism spectrum in High School.

Who have you found knowledgeable and helpful when it comes to adolescent , medication, behavioral, OCD issues for someone on the autism spectrum?

We as parents are each others best resources.

Thanks for all your help,

Heidi Fernandez Parent and Advocate "Knowledge is Power"

[Guest guest]

Dr marry Megson, Richmond, VA.

Worth the time, money & travel.

-S GA

question

Dear Families:

A friend has asked me to post this question.

She has a son on the autism spectrum in High School.

Who have you found knowledgeable and helpful when it comes to adolescent , medication, behavioral, OCD issues for someone on the autism spectrum?

We as parents are each others best resources.

Thanks for all your help,

Heidi Fernandez Parent and Advocate "Knowledge is Power"

[Guest guest]

Hi :

Can you please send me more information on Dr Megson.

Thanks,

Heidi Fernandez Parent and Advocate "Knowledge is Power"

--------- question

Dear Families:

A friend has asked me to post this question.

She has a son on the autism spectrum in High School.

Who have you found knowledgeable and helpful when it comes to adolescent , medication, behavioral, OCD issues for someone on the autism spectrum?

We as parents are each others best resources.

Thanks for all your help,

Heidi Fernandez Parent and Advocate "Knowledge is Power"

[Guest guest]

Hi :

Can you please send me more information on Dr Megson.

Thanks,

Heidi Fernandez Parent and Advocate "Knowledge is Power"

--------- question

Dear Families:

A friend has asked me to post this question.

She has a son on the autism spectrum in High School.

Who have you found knowledgeable and helpful when it comes to adolescent , medication, behavioral, OCD issues for someone on the autism spectrum?

We as parents are each others best resources.

Thanks for all your help,

Heidi Fernandez Parent and Advocate "Knowledge is Power"

[Guest guest]

My spell check went a little nuts with her name

her website is www.megson.com

if you Google her name, you will find more information on her theories and protocols. My son is now 13- we have used her for years- I could not be happier, and I dread when she retires!

question

Dear Families:

A friend has asked me to post this question.

She has a son on the autism spectrum in High School.

Who have you found knowledgeable and helpful when it comes to adolescent , medication, behavioral, OCD issues for someone on the autism spectrum?

We as parents are each others best resources.

Thanks for all your help,

Heidi Fernandez Parent and Advocate "Knowledge is Power"

[Guest guest]

My spell check went a little nuts with her name

her website is www.megson.com

if you Google her name, you will find more information on her theories and protocols. My son is now 13- we have used her for years- I could not be happier, and I dread when she retires!

question

Dear Families:

A friend has asked me to post this question.

She has a son on the autism spectrum in High School.

Who have you found knowledgeable and helpful when it comes to adolescent , medication, behavioral, OCD issues for someone on the autism spectrum?

We as parents are each others best resources.

Thanks for all your help,

Heidi Fernandez Parent and Advocate "Knowledge is Power"

[Guest guest]

My spell check went a little nuts with her name

her website is www.megson.com

if you Google her name, you will find more information on her theories and protocols. My son is now 13- we have used her for years- I could not be happier, and I dread when she retires!

question

Dear Families:

A friend has asked me to post this question.

She has a son on the autism spectrum in High School.

Who have you found knowledgeable and helpful when it comes to adolescent , medication, behavioral, OCD issues for someone on the autism spectrum?

We as parents are each others best resources.

Thanks for all your help,

Heidi Fernandez Parent and Advocate "Knowledge is Power"

[Guest guest]

Meg, my boys get a lot of mystery fevers....... fewer now that they are on

IVIG...but they still get them. It can drive me crazy sometimes.

Hope she feels better soon.

+JMJ+

Peace Be With You,

><>Pattie

Piedmont Triad, NC

Mom to , age 11 & healthy; age 9, Shwachman-Diamond Syndrome; and

ph age 8, Shwachman-Diamond Syndrome.

[Guest guest]

Meg - Macey would do this when she was younger (around 4 or 5) and at the

same time she was also having some off and on problems with joint aches and

fatigue. They worked her up for JRA and MS but nothing turned up. Some

symptoms of each but nothing conclusive. She took Naproxen for about a year

and by 8 yrs old she was pretty clear of the low fevers. She still has some

joint/fatigue issues but no low grade fevers. Then again at 10 yrs old

she's not as underfoot so I'm not as apt to check the temp.

Ursula Holleman

mom to (12 yrs old) and Macey (10 yr. old with CVID, Diabetes

Insipidus, colonic inertia)

http://members.cox.net/maceyh

Immune Deficiency Foundation - Peer Contact for GA

http://www.primaryimmune.org

IDF Patient/Family Handbook

http://www.primaryimmune.org/pubs/book_pats/book_pats.htm

/

[Guest guest]

Mystery Fevers is what we called them, too. Rebekah was 2 and seemed to

cycle through fevers every 4 days or so. Some would last a few hours. Some

would hang on for days. Almost never was there any other symptom, except

very red cheeks. I have no clue what it means, but since she began

treatment, we haven't seen them.

Pam

mom to 4

Rebekah, 6, CVID and ??

question

Hi! I have a question for all of you. Have any of your kids gotten

a fever (100-101+ F), out of nowhere, have it hang around for a

short time (anywhere from a day or two to 2 weeks), then go away

with no other obvious symptoms? Annie does this on a " regular "

basis, but I haven't tracked when all she's done it the last 2+

years.

Yesterday, she did something REALLY wierd, and i was sorta wigging

out. She got home from school and had her snack. I looked at her

and she was flushed, feverish, and said she was really cold, wrapped

up in her blanket and was really lethargic. Got a second wind about

an hour later, played like crazy with her 14yo brother, then just

before dinner, the same thing happened again, but this time, she

could barely keep her eyes open. She is my party animal, and is

ALWAYS the last one to go to sleep at night. She was out cold in

about 5 minutes tops last night, earlier than school bedtime. She

seemed fine today, but would get flushed every once in a while, slow

down for a bit (wrap up on the couch or something like that), then

get back to playing.

I am just wondering if anyone has had these mystery fevers before.

Thanks for the input!

Meg

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to:

/messages

[Guest guest]

Meg:

I would probably be a little concerned, considering she's becoming

" lethargic " during these episodes. The ped always said it wasn't so much the

fever but

the behavior that is concerning -- if a kid has a fever but is playing like

normal, you can feel relatively confident it's nothing bad. Maybe run her over

for a finger stick CBC during an episode?

has had lower grade fevers that we didn't really officially figure out,

but I've always chalked them up to some random virus that didn't have many

obvious symptoms. But they were not over 101 or anything. She will often get low

grade fever, be low-energy and have what look like vesicles on the roof of

her mouth, but apparently these are a type of swollen gland (according to MY

doc, an adult doc), NOT blisters. They go away within a few days.

I personally had a FUO situation (fever of unknown origin) many many years

ago. I was as high as 102.5 with NO other symptoms... my doc checked me for

everything under the sun including some exotic stuff because I had been in

Jamaica

during the prior year. NOTHING. This lasted a couple years! Just random, here

and there. Finally my dentist found a " pocket " (they never used the term

abscess but I wonder) up in my gums above a previous (almost 20 yrs previous)

root

canal job. When I had that thing taken out (it was like a sac with stuff in

it, it showed up on dental x-ray), my fevers were gone for good.

Just wanted to mention that for everyone to store away mentally!

(mom to , age 6-1/2, dairy intolerant-related GERD -- currently

has polysaccharide antibody def, previously had transient IgG, IgA, t-cell &

other defs... and also to Kate, age 3!, more dairy intolerant but very healthy!)

[Guest guest]

Hi. I am new to this group, but my 2 y/o son also gets these " mystery

fevers " of 100-101 degrees, usually lasting just a few hours or so

with no other symptoms. He gets IVIG infusions every 3 weeks

for " undefined " Hypogammaglobulinemia and the incidence of these

fevers has declined, but he does still get them occasionally. Before

the infusions this was happening every 2 to 3 days(even when on

antibiotics.

Kris

[Guest guest]

Hi,

Yes, my son gets these all the time. THey usually range from about 99.5-100.5.

He's had them for years. Sometimes there will be some other really mild

symptoms if you really look for them and other times it's just fever with no

other symptoms.

Mom to Grace 8 (THI, IgA def, Antigen proliferation defect, pneumococcal

antibody deficiency, mild asthma, chronic constipation)

Mom to Caelan 6 (IgG, IgM, IgA def, Antigen proliferation defect, pneumococcal

antibody def, asthma, Eosinophilic esophagitis, severe food allergy)

Mom to Ian 6/4/05 (GERD, otherwise incredibly healthy so far!)

[Guest guest]

Welcome, Kris... my boys had unexplained fevers a lot prior to IVIG...... they

still get them, but not as frequently as before.

+JMJ+

Peace Be With You,

><>Pattie

Piedmont Triad, NC

Mom to , age 11 & healthy; age 9, Shwachman-Diamond Syndrome; and

ph age 8, Shwachman-Diamond Syndrome.

[Guest guest]

It's a Chinese spice (opens your sinuses right up!)

I personally would leave it out, as I'm a spice wimp!

Ann

question

Hello....

I need some help. I'm going to make Teriyaki Chicken from the EFL

book (Page 177) and I don't know what powdered wasabi is. Please

help, I need it for tonight.

TIA,

[Guest guest]

Wasabi is a green Japanese horseradish that you can find in the Asian

section of your supermarket. It comes in a paste and powder. It¹s can be

very hot so be careful with it, but it¹s really good.

Laurie ­ San Diego

On 2/8/06 2:09 PM, " erinschmaren " <esjmgebhardt42@...> wrote:

> Hello....

>

> I need some help. I'm going to make Teriyaki Chicken from the EFL

> book (Page 177) and I don't know what powdered wasabi is. Please

> help, I need it for tonight.

> TIA,

>

>

>

[Guest guest]

Thanks!

>

> > Hello....

> >

> > I need some help. I'm going to make Teriyaki Chicken from the

EFL

> > book (Page 177) and I don't know what powdered wasabi is. Please

> > help, I need it for tonight.

> > TIA,

> >

> >

> >

>

>

>

>

[Guest guest]

That's fine. A lot of people split it up. It definitely doesn't hurt

to have your " free " food day on a day where you're also doing cardio.

On 2/9/06, <jonathansmom2003@...> wrote:

> I work out M to Sat and make Saturday my free 'food' day because this

> is when we normally dine out or hang out with friends. I follow the

> nutrition program Sunday to Friday.

>

> Do you think this is bad? On my free days I do pretty good...dinner

> it's my off BFL meal and so is dessert...

>

> Thoughts?

[Guest guest]

I just have to say that i finally read through all the stuff on your website,

and you crack me up! You remind me so much of myself: the eating disorder, the

struggles with food, the obsessions...thank you so much for your information and

for letting us see that we're not the only crazy ones out there!

---------------------------------

Brings words and photos together (easily) with

PhotoMail - it's free and works with .

[Guest guest]

In a message dated 17/02/2006 14:54:35 GMT Standard Time, moppett1@... writes:

Personally but this is only MY opinion. I would run like heck!

<<<Me too except I can only jog LOL

Mandi x

[Guest guest]

Personally but this is only MY opinion. I would run like heck!

Dr. Singh in the States alledges that the measles alone can cause a lot of damage all by itself.

question

I have a friend that is worried about the MMR vaccine for her young daughter. She has had the DTP already with no trouble but she is needing advice as to which Vaccine of MMR to use which company is safer and or if they should be single injections and not 3 together.

Any advice would be appreciated

kind regards]

Chriso

[Guest guest]

In a message dated 17/02/2006 20:38:09 GMT Standard Time, mark.grabiec@... writes:

Autism is not simply chromosomes, we know that's not the sole reason and can't be, although chromosomes, in my cloudy memory, can make a child more "male" which might exacerbate autism. But not create it.

>>>>Yes, 47XYY chromosome means child is 'more male'. 1:850 boys are 47XYY, 90% of them are undiagnosed.

We know about Sam because I had amniocentesis for age!

Mandi x