Question

[Guest guest]

Dear Peggy,

Thank you. I know what was in the vaccines she gave. She admitted to

me after the fact, once my son was diagnosed at two, that three of the

four shots he received that day contained thimerosal. She said, " Yes,

but.. " and then she giggled as she continued to say, " It's safe. " He

got 62.5 mcg that day and his total was 237. 5, I believe, over the

first fifteen months of his life. He was always underweight, so I

think that made a difference as well. This was

confirmed at Dr. Cave's clinic.

Thanks again,

Haven

[Guest guest]

I wonder if anyone knows any remedies for

someone confinedto a wheel chair due to

old sports injuries ..

would ozone or homozon help any?

appreciate any feedback,

kathelee@...

[Guest guest]

massage, exercise for stimulation if there is no sever of spinal nerves. Cranio

Sacral Therapy is excellent with few contra indications.

Kathelee <kathelee@...> wrote:I wonder if anyone knows any remedies for

someone confinedto a wheel chair due to

old sports injuries ..

would ozone or homozon help any?

appreciate any feedback,

kathelee@...

[Guest guest]

> Kathelee <kathelee@...> wrote:I wonder if anyone knows any

> remedies for

> someone confinedto a wheel chair due to

> old sports injuries ..

> would ozone or homozon help any?

> appreciate any feedback,

> kathelee@...

Google Scenar and LazrPulsr. Both can do wonders to help regenerate nerve

tissue.

Nenah

Nenah Sylver, PhD

http://www.nenahsylver.com

* The Handbook of Rife Frequency Healing

* The Holistic Handbook of Sauna Therapy

* products and services for wellness

[Guest guest]

Re: re: question

> nothing comes up for lazr pulsr

> Is there any online groups for this please

Therapeutic-Laser_Therapy

[Guest guest]

> I wonder if anyone knows any remedies for someone confinedto a wheel

> chair due to old sports injuries .. would ozone or homozon help any?

> appreciate any feedback, kathelee@...

Lymphosizing is probably the best general purpose way to rehabilitate

someone like this - but they will need someone to help them until they

are able to sustain the bouncing themselves.

[Guest guest]

Hi Kathelee. This is such a broad question. I personally would like to have

more information about this person. How serious is the injury? Is it in the

knees or spine or???

Is there paralysis?

Nerve damage?

Joint damage?

Muscle or tendon damage?

And what have they done so far.

There are so many options. Are they in pain?

Far infrared is profoundly healing for tissues and joints and is a great pain

reliever.

Bromelain is a wonderful anti inflammatory, as is EMU oil and also msm.

Colostrum helps rebuild joints fantastically.

The Chi machine does wonders for paralysed people who cannot exercise, or

disabled people who cannot exercise.

Homozon is great if the bowel is slow, but really should be used after the

person has made the right dietary changes to try to get results without success.

Ozone can be helpful for almost anyone. . .

Sunshine helps most everything. . .except sunburn. Chuckle.

Lots of clean live water. . .

I guess the suggestions could go on and on, But without more information about

what the person has already done it is pretty much a guessing game.

Blessings

Donna

http://www.excellentthings.com

re: question

I wonder if anyone knows any remedies for

someone confinedto a wheel chair due to

old sports injuries ..

would ozone or homozon help any?

appreciate any feedback,

kathelee@...

[Guest guest]

thanks

Re: re: question

massage, exercise for stimulation if there is no sever of spinal nerves.

Cranio Sacral Therapy is excellent with few contra indications.

Kathelee <kathelee@...> wrote:I wonder if anyone knows any remedies

for

someone confinedto a wheel chair due to

old sports injuries ..

would ozone or homozon help any?

appreciate any feedback,

kathelee@...

[Guest guest]

thanks i'll find out more he's an ex football player and coach

who can't walk and went to Duke university they can't find anything

wrong with him ?

I hate football and those kind of sports...they are brutal

and i saw on tv one guy took four hours to get up after

years of playing football

is it really worth it?

re: question

I wonder if anyone knows any remedies for

someone confinedto a wheel chair due to

old sports injuries ..

would ozone or homozon help any?

appreciate any feedback,

kathelee@...

[Guest guest]

-

There is an old 5000 year old Chinese Nei Gong exercise - Gently Slapping.

Yes! Slapping. Try not to laugh. Start at the soles of your feet, top and

bottom, gently slap them with both hands, one hand on top of your foot, and

the other on the sole of your foot; then work your way up the legs, top and

bottom, then go to the sides of your legs starting at your ankles, and slap

your legs all the way up the sides to your hips.

Then do the same thing from your pubic bone slapping all the way up over

your chest with both hands on the front all the way up to your neck. If you

can without straining, (no pun intended) start at the bottom of your behind

and slap all the way up until you can't go any further to mid back; take

both your hands over your shoulders (right and left) and slap all the way up

to the top of your shoulders up the back of your neck and head and the sides

of your head, up around the top of the crown of your head, and down your

forehead, all over your face and around your ears down the front of your

chin and neck.

Now, do the same thing on both hands and arms all the way up to your

shoulders. Start the same thing on top of one hand all the way up to the

top of your shoulders, then the bottom of your hand all the way up to the

top of your shoulders. Make sure you get both sides of your arm. Then do

the other hand both top and bottom and sides.

The idea here is to cover as much of your body as possible, gently slapping

or gently tapping with your entire palm(s) of your hand and fingers to get

the lymph and blood moving. Do this upon waking, before going to sleep, and

once during the day.

Every time you do this Nei Gong exercise, drink some hot water, like as in

coffee hot. This is to help eliminate what you just released into the body's

system, and get it out out of the body. Very important!

You will feel great! No kidding. This is an excellent Eastern exercise

that anyone can do, especially if you are wheelchair bound. If you can't

reach your back or any other part of your body, simply imagine you are

slapping this part. It will work just the same. Or maybe you can have a

friend help.

-- re: question

> I wonder if anyone knows any remedies for someone confinedto a wheel

> chair due to old sports injuries .. would ozone or homozon help any?

> appreciate any feedback, kathelee@...

Lymphosizing is probably the best general purpose way to rehabilitate

someone like this - but they will need someone to help them until they

are able to sustain the bouncing themselves.

[Guest guest]

Ursula:

I was thinking about you this weekend. I was reading my handy " ons "

internal medicine book (a little light reading) and it was mentioned that a

reverse CD4/CD8 ratio indicates infectious mononucleosis/EBV. I believe you

mentioned Les has that reverse ratio so I wanted to throw that out there at

you.

(mom to , age 6-1/2, dairy intolerant-related GERD -- currently

has polysaccharide antibody def, previously had transient IgG, IgA, t-cell &

other defs... and also to Kate, age 2-1/2, more dairy intolerant but very

healthy!)

[Guest guest]

the first ones mention are t-cell tests. the 3 4 and 50 are complement

tests. both are part of the immune system just different components. Do

you know what the CD4 and CD8 counts run in your family?

Ursula Holleman

mom to (12 yrs old) and Macey (10 yr. old with CVID, Diabetes

Insipidus, colonic inertia)

http://members.cox.net/maceyh

Immune Deficiency Foundation - Peer Contact for GA

http://www.primaryimmune.org

IDF Patient/Family Handbook

http://www.primaryimmune.org/pubs/book_pats/book_pats.htm

/

[Guest guest]

thanks. When I was battling chronic EBV about 2 years ago he was

tested. The full 5 serotype test. IgG and IgM levels. plus the

antinuclear. All were negative. Macey's IgM EBV test is also negative

(since her IgG will always show positive because of the passive antibodies

passed through IVIG). Dr. Myers at Duke has said that the inverted ratio is

seen in CVID so they use it as a diagnostic marker.

Ursula Holleman

mom to (12 yrs old) and Macey (10 yr. old with CVID, Diabetes

Insipidus, colonic inertia)

http://members.cox.net/maceyh

Immune Deficiency Foundation - Peer Contact for GA

http://www.primaryimmune.org

IDF Patient/Family Handbook

http://www.primaryimmune.org/pubs/book_pats/book_pats.htm

/

[Guest guest]

Hi all,

Today is my first day on the program. I successfully

completed a challenge about 2 years ago. I had good

results. Not great, but definately good.

Unfortunately, I habe not been anle to stick to a

challenge since then. I have tried at least 10 times.

I have also tried WW, SBD, .... the list goes on and

on.

Anyway, I am turning 30 on Friday (which will be my

free day) I am determined to finish this challenge.

BFL is the ONLY thing I have ever stuck with. Wish me

luck!

My question is for all of you who have been successful

with BFL. Did you follow the program exactly?

If not, what did you do differently? I'd really like

to hear how many people who do extra cardio or only

eat 5 meals instead of 6 and do not take a free day.

I followed it by the book, including my free day. Free

days were free days. I ate LOADS. Everything. I know

it probably slowed my results, but I needed free day

to stay on track during the week. I looked forward to

my free day all week.

Whenever I attended a party or something during the

week it did not bother me to pass up a bowl of ice

cream because I knew that I could eat a gallon of ice

cream on the weekend without going off my diet. Id

just wait till the weekend!

Has anyone had great results eating lots on free day?

Thanks, Looking forward to your responses.

Tammy

__________________________________________________

[Guest guest]

Tammy if I eat loads on my free day, I don't see results. I have 1 free

meal during the week, and that's it. Also if I stay on the lean- out

foods that has on her website I do a lot better.

I also have to drink TONS of water or I don't see results.

Hope this helps!

Pam

[Guest guest]

An insane free day will definitely slow (and in some cases stall) your

progress, BUT, if it's the only way you can manage 6 great days out of

7 and you saw good progress, then I say do what works for you. BUT, I

am about to post a ... post (lol) on my free day this week. If you've

never had a look at the numbers, you might want to read it

Phoenix

[Guest guest]

In a message dated 8/1/2005 11:55:34 AM Central Standard Time,

uahollem1@... writes:

> Dr. Myers at Duke has said that the inverted ratio is

> seen in CVID so they use it as a diagnostic marker

Hmmm... interesting. Wouldn't you say that adds a t-cell component to the

disorder?

's CD4/CD8 was fine, but her CD19 and CD3/CD8+ ratios are both lower

than normal. Not hugely though, and her absolutes were fine, so the ID doc said

it didn't mean anything (then why have a normal to compare it to?). The CD19

(B-cell) actually makes sense considering her ab issue, but I'm not sure what

the other one could mean. If at some point we do another workup (with a new

practice), I guess I want to see those #s checked again.

Meanwhile, what a great summer! Wish it could go on forever.

(mom to , age 6-1/2, dairy intolerant-related GERD -- currently

has polysaccharide antibody def, previously had transient IgG, IgA, t-cell &

other defs... and also to Kate, age 2-1/2, more dairy intolerant but very

healthy!)

[Guest guest]

If you'd like my story and what I did during my program, visit my blog

and scroll down a bit - i posted all my results and such

http://fuzzyelfone.blogspot.com/

tammy benton wrote:

> Hi all,

> Today is my first day on the program. I successfully

> completed a challenge about 2 years ago. I had good

> results. Not great, but definately good.

> Unfortunately, I habe not been anle to stick to a

> challenge since then. I have tried at least 10 times.

> I have also tried WW, SBD, .... the list goes on and

> on.

> Anyway, I am turning 30 on Friday (which will be my

> free day) I am determined to finish this challenge.

> BFL is the ONLY thing I have ever stuck with. Wish me

> luck!

> My question is for all of you who have been successful

> with BFL. Did you follow the program exactly?

> If not, what did you do differently? I'd really like

> to hear how many people who do extra cardio or only

> eat 5 meals instead of 6 and do not take a free day.

> I followed it by the book, including my free day. Free

> days were free days. I ate LOADS. Everything. I know

> it probably slowed my results, but I needed free day

> to stay on track during the week. I looked forward to

> my free day all week.

> Whenever I attended a party or something during the

> week it did not bother me to pass up a bowl of ice

> cream because I knew that I could eat a gallon of ice

> cream on the weekend without going off my diet. Id

> just wait till the weekend!

> Has anyone had great results eating lots on free day?

>

> Thanks, Looking forward to your responses.

> Tammy

>

> __________________________________________________

>

[Guest guest]

This is interesting....Chris' CD4/CD8 was inverted at the time of his CVID

diagnosis. I don't think it has been re-tested since. They also thought

the last big illness chris had before his diagnosis was MONO, very severe

mono. But when the infection disease Dr. saw the inversion, she sent us

immediately for an HIV test and to an oncologist...(I started smoking again

that day!!!...but have since quit Needless to say, no HIV, but instead

CVID. What I don't know is if the numbers are still inverted...Is that

something they normally monitor regularly??

Kim (Mom to 8 - CVID; Nick 10 and 6

Re: question

> In a message dated 8/1/2005 11:55:34 AM Central Standard Time,

> uahollem1@... writes:

>

>

>> Dr. Myers at Duke has said that the inverted ratio is

>> seen in CVID so they use it as a diagnostic marker

>

> Hmmm... interesting. Wouldn't you say that adds a t-cell component to the

> disorder?

>

> 's CD4/CD8 was fine, but her CD19 and CD3/CD8+ ratios are both lower

> than normal. Not hugely though, and her absolutes were fine, so the ID doc

> said

> it didn't mean anything (then why have a normal to compare it to?). The

> CD19

> (B-cell) actually makes sense considering her ab issue, but I'm not sure

> what

> the other one could mean. If at some point we do another workup (with a

> new

> practice), I guess I want to see those #s checked again.

>

> Meanwhile, what a great summer! Wish it could go on forever.

>

> (mom to , age 6-1/2, dairy intolerant-related GERD -- currently

> has polysaccharide antibody def, previously had transient IgG, IgA, t-cell

> &

> other defs... and also to Kate, age 2-1/2, more dairy intolerant but very

> healthy!)

>

>

>

[Guest guest]

Cheryl - were any labs drawn to know if she has normal levels of her

vaccinations? These are sometimes called function tests and they usually

draw levels to see if the Prevnar and MMR vaccinations produced a sufficient

amount of antibody protection.

Also I would have an appointment with an immunologist. An allergist might

be board certified in immunology but that doesn't mean that they are a

practicing physician in it or have any clinical experience. Our first doc

was an allergist because that was the closest thing around and our ped had

no other patients with this disease so she sent us there. She knew he was

" board certified " but he didn't know squat (and he'd be the first to tell

you that). He had us thinking all kinds of things. Eventually we were sent

on to an immunologist who ordered the right testing and Macey was diagnosed.

I've always liked IgA numbers above 40 or so. Different labs will tell you

different levels. Macey's recent labs showed her IgA to be " low " but it was

58. 58 is a great number to me and when I questioned our Pediatric

Immunologist about it she couldn't figure out where that lab came up with

its numbers.

Hope that helps.

Ursula Holleman

mom to (12 yrs old) and Macey (10 yr. old with CVID, Diabetes

Insipidus, colonic inertia)

http://members.cox.net/maceyh

Immune Deficiency Foundation - Peer Contact for GA

http://www.primaryimmune.org

IDF Patient/Family Handbook

http://www.primaryimmune.org/pubs/book_pats/book_pats.htm

/

[Guest guest]

It sounds like he has some clue. Her numbers while low are functional if he

said the other results were good. Now treatment would depend on her

clinical status. There are patients who have IgG in the 300's who are

stable medically and don't seek treatment. Probably more than we know

because they never get tested. But if she's low and staying infected then

treatment should be sought. If he won't pursue the matter it might require

another opinion. Her number being what it is and her function being good

she would be termed Hypogammaglobulinemic and hopefully will not progress

any further.

Ursula Holleman

mom to (12 yrs old) and Macey (10 yr. old with CVID, Diabetes

Insipidus, colonic inertia)

http://members.cox.net/maceyh

Immune Deficiency Foundation - Peer Contact for GA

http://www.primaryimmune.org

IDF Patient/Family Handbook

http://www.primaryimmune.org/pubs/book_pats/book_pats.htm

/

[Guest guest]

Thanks again Ursula.

Aly is clinically doing well, although summer is

usually a healthy time for her. She can eat when and

what she wants, she can sleep late, and no one is

coughing and sneezing on her. Once school starts we

generally are not as healthy. The last two winters we

have struggled with chronic pneumonia, which is what

led to the blood work last spring. Her ped feels as

though she would benefit from prophylactic antibiotics

during the winter and I imagine she will end up on

Amox., which is fine with me. Anything to give her a

little advantage.

Thanks again, Cheryl

--- Ursula Holleman <uahollem1@...> wrote:

---------------------------------

It sounds like he has some clue. Her numbers while

low are functional if he

said the other results were good. Now treatment would

depend on her

clinical status. There are patients who have IgG in

the 300's who are

stable medically and don't seek treatment. Probably

more than we know

because they never get tested. But if she's low and

staying infected then

treatment should be sought. If he won't pursue the

matter it might require

another opinion. Her number being what it is and her

function being good

she would be termed Hypogammaglobulinemic and

hopefully will not progress

any further.

Ursula Holleman

mom to (12 yrs old) and Macey (10 yr. old with

CVID, Diabetes

Insipidus, colonic inertia)

http://members.cox.net/maceyh

Immune Deficiency Foundation - Peer Contact for GA

http://www.primaryimmune.org

IDF Patient/Family Handbook

http://www.primaryimmune.org/pubs/book_pats/book_pats.htm

/

This forum is open to parents and caregivers of

children diagnosed with a Primary Immune Deficiency.

Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken

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To unsubscribe -unsubscribegroups (DOT)

To search group archives go to:

/messages

[Guest guest]

Hey Jen,

The memory thing happens to all of us in varying degrees. Next time you have blood work done ask them to check your ammonia levels, the higher it is, the worse your short time memory is. I spend a lot of time in various rooms wondering what in hell I was going to do there but at least I don't get lost driving home from the grocery store like some people I could name. Write things down, anything & everything. Start a a diary 'cause half the stuff you do now you won't remember tomorrow or even this afternoon. Kathy Boo re posted an article called Brain Fog last week, read it - it says it all.

I can't address the add but I'm on effexor - I'm sleeping a lot but that's the fatigue - normal with HCV. I had to hire a kid to mow my lawn & I can't even keep my cheque book in order, I'm just taking the banks addition on faith.

Having HCV is like having a low grade flu, achy all over & blech are normal at least in my life. You might have your doctor check your viral load but it won't necessarily be elevated - viral loads aren't that good a marker for viral activity. It comes & goes with me, I can never tell from one day to the next how much energy I'm going to have, whether I'll be on the couch all day or out weeding the garden, you just have to(excuse me for this) go with the flow & don't expect too much of yourself.

SuZie Jen <diegowench@...> wrote:

Hey. I have been wondering - I have really been feeling like crap lately. The arthritis is kicking in big time, and I cannot concentrate etc., I take concerta (time released ritalin) for my add, but it isn't helping at all - all I want to do is sleep. I am forgetting stuff (short term not long term) which is bad because I have a borderline photographic memory. I don't know what in the heck is going on. I am almost maxed out on my AD (zoloft), which I tend to do with all the ADs that they try me on. Plus I just feel achy all over and just blech. Should I be worried about this?

Therefore do not be anxious about tomorrow, for tomorrow will be anxious for itself. Sufficient for the day is its own trouble. 6:34

__________________________________________________

[Guest guest]

suzie:

I guess I am spoiled - I felt like this prior to tx, but haven't felt this bad in years. I guess I got used to having a low energy level, but feeling pretty ok. I had blood work yesterday, my doc is so funny - he did an acute hep panel (I was like - hey I have been chronic for probably 9 years!!!) but whatever, they also did a metabolic function/chem panel/thyroid function - I asked them to fax me with the results, so I have them on hand (thanks guys - for giving me the nerve to do that). I worked in the medical field for a long time - and have no problem with that kind of stuff, but I really guess I didn't want to deal with any of this and pushed it to be back of my mind. I have huge files on all of the other stuff that goes wrong - especially with the kids... but this I guess I really didn't want to deal with.

I read the book, front to back, and the only thing I really appreciated was the breakdown of the lab tests, so I have it on my bedside table - think I need to get the newer version.

suzie <suzieandsandy@...> wrote:

Hey Jen,

The memory thing happens to all of us in varying degrees. Next time you have blood work done ask them to check your ammonia levels, the higher it is, the worse your short time memory is. I spend a lot of time in various rooms wondering what in hell I was going to do there but at least I don't get lost driving home from the grocery store like some people I could name. Write things down, anything & everything. Start a a diary 'cause half the stuff you do now you won't remember tomorrow or even this afternoon. Kathy Boo re posted an article called Brain Fog last week, read it - it says it all.

I can't address the add but I'm on effexor - I'm sleeping a lot but that's the fatigue - normal with HCV. I had to hire a kid to mow my lawn & I can't even keep my cheque book in order, I'm just taking the banks addition on faith.

Having HCV is like having a low grade flu, achy all over & blech are normal at least in my life. You might have your doctor check your viral load but it won't necessarily be elevated - viral loads aren't that good a marker for viral activity. It comes & goes with me, I can never tell from one day to the next how much energy I'm going to have, whether I'll be on the couch all day or out weeding the garden, you just have to(excuse me for this) go with the flow & don't expect too much of yourself.

SuZie Jen <diegowench@...> wrote:

Hey. I have been wondering - I have really been feeling like crap lately. The arthritis is kicking in big time, and I cannot concentrate etc., I take concerta (time released ritalin) for my add, but it isn't helping at all - all I want to do is sleep. I am forgetting stuff (short term not long term) which is bad because I have a borderline photographic memory. I don't know what in the heck is going on. I am almost maxed out on my AD (zoloft), which I tend to do with all the ADs that they try me on. Plus I just feel achy all over and just blech. Should I be worried about this?

Therefore do not be anxious about tomorrow, for tomorrow will be anxious for itself. Sufficient for the day is its own trouble. 6:34

__________________________________________________

[Guest guest]

Are you on treatment Jen?Sounds like treatment sides unless you are getting a flare up.

Gail

http://deveauxkennels.tk

mailto:gaila@...

Question

Hey. I have been wondering - I have really been feeling like crap lately. The arthritis is kicking in big time, and I cannot concentrate etc., I take concerta (time released ritalin) for my add, but it isn't helping at all - all I want to do is sleep. I am forgetting stuff (short term not long term) which is bad because I have a borderline photographic memory. I don't know what in the heck is going on. I am almost maxed out on my AD (zoloft), which I tend to do with all the ADs that they try me on. Plus I just feel achy all over and just blech. Should I be worried about this?

Therefore do not be anxious about tomorrow, for tomorrow will be anxious for itself. Sufficient for the day is its own trouble. 6:34

__________________________________________________