Guest guest Posted August 11, 2003 Report Share Posted August 11, 2003 Lili, I have heard of that, but I am not experiencing it. Maybe because I was " only " obese for fifteen years, not my entire adult life and not at all as a child. Many other people have mentioned it at one time or another. Marta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2003 Report Share Posted August 11, 2003 > ya know how surgery is a risk for overweight people?? isnt any > surgery a risk for anyone no matter what size they are?? i was > reading an article and thats why im asking > > vicki Of course, it is a risk. Most people have a less than one percent chance of dying from surgery, though. Marta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 I'm thinking that my > weight was my friend for so long that it bothers me about it going away. Do > I sound crazy? > > Lillie ---------------------------- Lillie I don't think your crazy at all...I have heard of others with simular feelings. Me personally I never was bothered by my Fat leaving...in fact that part thrilled me. But...I would sometimes get to feeling a bit uncomfortable with the fact that I was losing weight with little to no apparent effort on my part. Thoughts along the lines of wondering if the weightloss would stop at the right time or would I become toooo thin and sick. Our brains have been programmed to believe that if we are eating AND losing weight something must be wrong with our health. Almost feelings of guilt because it seemed tooooo easy, I wasn't suffering enough to get the results of losing weight. Any how it wasn't " strong " feelings of unease...but it did occasionally pop up...Then I would just BEAT those feelings and thoughts down and let my logical side Rule. Great Topic Lillie...I hope you get a few different prospectives. Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2003 Report Share Posted August 15, 2003 In a message dated 8/12/2003 12:38:14 AM Central Daylight Time, plwboy2@... writes: > ya know how surgery is a risk for overweight people?? isnt any > surgery a risk for anyone no matter what size they are?? i was > reading an article and thats why im asking > > vicki > vicki, Anything has risks...Even crossing the road. The percentage is low and you must balance the risk with the risks of remaining morbidly obese. I knew there was a risk when I had surgery, but the benefits of a successful surgery were way more than any risks I took. I also picked the best surgeon(IMO)for my situation. in Bama My story- http://hometown.aol.com/mdl1031/myhomepage/profile.html Pictures- http://f2.pg.photos./Melleedawn Surgery- RNY to DS revision on12/6 -377.5 12/17 - 346.5 ( minus 31lbs) 02/12-330.0 (minus 47.5 lbs) 05/12- 304.8 (minus 72.7 lbs)-BMI now 48 06/22- 290.8 (minus 86.7)BMI 46. 08/11- 285.4 (minus 92.1) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2003 Report Share Posted August 28, 2003 Geeeezzzzz, Dennis.... Rooster combs? Where in the world do people come up with stuff like that? I was told I would only be getting three injections. I shall ask about the " five " . How would I know if I was allergic to hyaluronan? I've never heard of that before. Why would I have taken it? All those side effects are " too much information " .... ) My Rheumatologist told me that only about fifty percent that try it get relief. I hope I'm one of them. Have you ever tried it? Rooster combs????????????????? ) I guess it's better than chicken lips... ) xxoo Mi. Carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Carmen sweety, That is what I was going to have done with my right knee in 1998. After several xrays though, it was decided that my knee was too far gone for those injections to work. Also I had been getting Coritsone shots in the knee since 1987, so we had " saved " the knee as long as possible. It was then that I had the knee totally replaced. I have never been sorry. I'm wondering why he said the Cortisone shots wouldn't work? Well, he must know, and I truly hope that these " rooster comb " injections help you Carmen. I know your knees have been bothering you for quite some time now. Don't worry too much about the " rooster comb " thing. Meds are made from many " strange and different " things. I've heard that Premarin is made from horse pee. Am very much looking forward to meeting with you once more Carmen! Your friend, tricia ***************************************************************************** * -- question I went for my two month Rheumatologist appointment today and moaned and groaned about how my knees hurt. Since my lab work came back spectacular and I have no inflammation, he said a Cortisone shot will not work and wants to try Hyalgan. It's a once a week injection that will oil or lubricate the thing in my knee that has thinned. Can't think of the word. .... something with a " V " . It seems pretty expensive...$500.00 and I'm hoping that's for the three injections not just one. Has anyone ever heard of it or tried it? I'm counting on Caroline and Jen to give me their input. You guys know everything!!! ) xxoo Mi. Carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Hi Tricia, My Rheumatologist tried Cortisone shots in both knees and it did piddlely pooh! He told me yesterday that Cortisone will not work on me as I have no inflammation there, only that thinning of the something or another starting with a " V " . Soooooooo he asked if I'd like to try that other thing. I said no at first because I am a chicken (not a rooster) regarding trying new medications. Then I thought....why not?!!! My knees couldn't hurt any worse and it just might help. I'll let you all know if it does. xxoo Brrrawwwwkkkk....I mean, Carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 No you cant....coconut is sometimes subbed for pko but you have to run it back through the lye calculator..not sure what other adjustments you have to make but I do know that palm and pko are not alike at all. Shana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 Hi, I was told you can't as the sap values are different. But you can use Coconut oil. Am I right or wrong soapy experts ? hugs, . Question Does any one here know if I can subsitute palm oil for palm kernal oil? I have a recipe that is calling for palm kernal and all I have is palm oil. Thanks in advance! Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 No, Palm oil is the veggie alternative to tallow and lard, not PKO. PKO is very similiar to coconut oil but with slightly different properties and a different SAP. Question Does any one here know if I can subsitute palm oil for palm kernal oil? I have a recipe that is calling for palm kernal and all I have is palm oil. Thanks in advance! Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 Thanks for all your help. Looks like I will have to purchase more PKO. Thanks again! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 Hi , We did not need a full medical work-up. All we did was take our son to his developmental pediatrician (different than his normal ped for illness and well-checks). She is the one that diagnosed him. If you are not even up for that before the IEP meeting, I would start by dissecting what you think your son's needs are. DS or Autism or both it doesn't matter they should be addressing all of his needs on his IEP. Have your current therapists help you decide what needs should be addressed on his IEP (maybe they will even attend the first meeting with you---mine did) and then they can give tips to the school on how they have best found to work with your son. You can always come up with the diagnosis of autism at a later date and change the IEP around but my guess is, if it is a good IEP addressing your son's needs, it won't need many modifications other then the diagnosis added. It may open up an autism program at the school to you if that is an option in your school district. A side note to this which might be helpful to many of you out there is to push to get the letters/notes from your MD's (that have addressed the autism issue) on what they see as needing to be in place added to any evaluations. When my son had his multi-factored (MFE) this past May, I insisted that the behavioral consultant that we worked with along with the developmental ped and the autism specialist's notes and recommendations all be included as an addendum to his evaluations. They all, by the way were recommending lots of speech therapy as well as ABA and extended school year. I believe that this helps the school take notice of the child's needs if you have more professional documentation. I am working very hard to advocate for my son but many times feel that I am either chasing my tail in the meetings or banging my head on a brick wall!!!! Very frustrated as I had a meeting today.....I still do NOT have a signed IEP in place. Could anyone tell me their situation for including toileting on the IEP??? The school is telling me that they won't put it as a goal because it is a bodily function and they are not able to control whether he goes or not....any thoughts out there??? Thanks and good luck to you karen At 05:26 PM 9/24/03 -0400, you wrote: >Hi all I was just reading past e-mail and it was stated that a full >medical workup is warranted on the diagnosis of autism.. I asked our ped. >about this and she said we would still follow the D/S recommendation as >far as any workups. Of course this duel diagnosis is uncommon >ground. Can someone please advise me on what tests to request and what >should we be on the look-out for?? I have so many questions for >everyone, Especially Laurie since she has just walked through this with >Mic. as far as the preschool goes. Noah will be 3 in Nov. It will be >months before we get plugged in everywhere and a more specific diagnosis >as to how the autism is affecting Noah. Until then I don't feel I can >take on the school in an iep to make sure he gets what he needs. I really >need as much info on this any can offer. Thanks for anything you can >share. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2003 Report Share Posted September 25, 2003 Hi : First, I think what we usually tell people is if they expect autism, they should do a head-to-toe evaluation of the child for any other physical issues. Sometimes chronic pain or discomfort brings about what looks like it could be autism. Check hearing, celiac testing, thyroid, blood sugar, all the usual stuff. If your pediatrician has been diligent with this, then you already have an idea of what is going on with him medically. So you would look for anything that may be different. T his might include a sleep study if your child is not sleeping well or may have sleep apnea. AS for tests specific to autism... Anyone who is evaluating your child for autism will know what tools to use as a test. things like the CARS (childhood autism rating scale) or GARS (gillam autism rating scale) are common tools. There are no blood tests or specific tests that rule out whether or not your child has autism If your child has experienced a regression in skills, and is determined to be otherwise healthy, but have autism, then you may want to consider a prolonged EEG. This is also recommended for children with out Down syndrome who have autism onset with a regression in skills. Sometimes there are small seizures that occur that are not otherwise seen. In this instance, sometimes different types of seizure medications make a world of difference for the child. I hope this is helpful to you. Joan At 05:26 PM 9/24/2003 -0400, you wrote: >Hi all I was just reading past e-mail and it was stated that a full >medical workup is warranted on the diagnosis of autism.. I asked our ped. >about this and she said we would still follow the D/S recommendation as >far as any workups. Of course this duel diagnosis is uncommon >ground. Can someone please advise me on what tests to request and what >should we be on the look-out for?? I have so many questions for >everyone, Especially Laurie since she has just walked through this with >Mic. as far as the preschool goes. Noah will be 3 in Nov. It will be >months before we get plugged in everywhere and a more specific diagnosis >as to how the autism is affecting Noah. Until then I don't feel I can >take on the school in an iep to make sure he gets what he needs. I really >need as much info on this any can offer. Thanks for anything you can >share. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2003 Report Share Posted September 25, 2003 Hi , I hear you. On the IEP goal for the toileting issue. I too, would not sign the IEP until it is included. Bodily function, true but there are other issues including that needs to be addressed as a goal towards self-help skills to become independent. This will also decrease behavior issues. You stick to your rights on this. The IEP is to address ALL the child's unique needs (FAPE). Do not let a school system tell you differently. Do you have an OT assigned for this related service? This should be requested on the IEP for it. Your gut says they are wrong and they are. There are many other issues that will have to be addressed with toilet training issues. Like does your child have any sensory issues? When you need a doctor's note to address if there are any dress codes and child needs to wear loose fitted clothing any underlying medical issues, etc. When using school transportation child should not be on the bus for a long period of time as your your child is being scheduled trained which needs to be addressed. A visual strategy to accompany along with the toilet training process. All must be in writing on the IEP. This is just a few to point out that I can think of for now. I hope you receive more responses. Good luck. Irma,15,DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2003 Report Share Posted September 25, 2003 Hi Irma, I have argued the toileting issue with my school district for one year now. They refuse to put it on and I won't let the issue die so we keep revisiting it. I decided that since he is schedule trained that if they weren't going to include it on the IEP, then they could choose to stick to the schedule or they could clean him and everything he goes on up every day. I have just about had it with the school....their only response is.... " he is not " developmentally there " yet " and " we don't see that ever at school " .......I know a lot of you out there can empathize with this one.......I am quite sure my son is not 2 different people between the home and school environment and they are making it out to be that this is the case. Very frustrating meeting yesterday that went absolutely nowhere for almost 2 & 1/2 hours and add to that I have a new pupil service director that talks to me as if I am the one on the IEP and is very condescending....yesterday she thanked me for being such an active advocate for my child......I was enraged!!!! Sorry to vent. Thanks for the input....I had a feeling I was on the right track but can't get the school to budge. At 03:34 PM 9/25/03 +0000, you wrote: >Hi , >I hear you. On the IEP goal for the toileting issue. I too, would >not sign the IEP until it is included. Bodily function, true but >there are other issues including that needs to be addressed as a >goal towards self-help skills to become independent. This will also >decrease behavior issues. You stick to your rights on this. >The IEP is to address ALL the child's unique needs (FAPE). Do not >let a school system tell you differently. Do you have an OT assigned >for this related service? This should be requested on the IEP for >it. Your gut says they are wrong and they are. > >There are many other issues that will have to be addressed with >toilet training issues. Like does your child have any sensory >issues? When you need a doctor's note to address if there are any >dress codes and child needs to wear loose fitted clothing any >underlying medical issues, etc. When using school transportation >child should not be on the bus for a long period of time as your >your child is being scheduled trained which needs to be addressed. A >visual strategy to accompany along with the toilet training process. >All must be in writing on the IEP. This is just a few to point out >that I can think of for now. I hope you receive more responses. Good >luck. > >Irma,15,DS/ASD > > > > > >-------------------------------------------------- >Checkout our homepage for information, bookmarks, and photos >of our kids. Share favorite bookmarks, ideas, and other information by >including them. Don't forget, messages are a permanent record of the >archives for our list. >-------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2003 Report Share Posted September 28, 2003 ,] s IEP Goal for toileting is for him to assist in the steps to use the toilet, taking his pants down and pulling them up. It is not specifically for him to be successful on the toilet just to understand what he should be doing. So far he has been successful 2x!!! We were all really happy. Good luck. Caryn >From: " M. " <kmh@...> >Reply- > >Subject: Re: question >Date: Wed, 24 Sep 2003 20:25:06 -0400 > >Hi , > >We did not need a full medical work-up. All we did was take our son to his >developmental pediatrician (different than his normal ped for illness and >well-checks). She is the one that diagnosed him. If you are not even up >for that before the IEP meeting, I would start by dissecting what you think >your son's needs are. DS or Autism or both it doesn't matter they should >be addressing all of his needs on his IEP. Have your current therapists >help you decide what needs should be addressed on his IEP (maybe they will >even attend the first meeting with you---mine did) and then they can give >tips to the school on how they have best found to work with your son. You >can always come up with the diagnosis of autism at a later date and change >the IEP around but my guess is, if it is a good IEP addressing your son's >needs, it won't need many modifications other then the diagnosis added. It >may open up an autism program at the school to you if that is an option in >your school district. > >A side note to this which might be helpful to many of you out there is to >push to get the letters/notes from your MD's (that have addressed the >autism issue) on what they see as needing to be in place added to any >evaluations. When my son had his multi-factored (MFE) this past May, I >insisted that the behavioral consultant that we worked with along with the >developmental ped and the autism specialist's notes and recommendations all >be included as an addendum to his evaluations. They all, by the way were >recommending lots of speech therapy as well as ABA and extended school >year. I believe that this helps the school take notice of the child's >needs if you have more professional documentation. > >I am working very hard to advocate for my son but many times feel that I am >either chasing my tail in the meetings or banging my head on a brick >wall!!!! Very frustrated as I had a meeting today.....I still do NOT have >a signed IEP in place. Could anyone tell me their situation for including >toileting on the IEP??? The school is telling me that they won't put it as >a goal because it is a bodily function and they are not able to control >whether he goes or not....any thoughts out there??? > >Thanks and good luck to you > >karen > > > >At 05:26 PM 9/24/03 -0400, you wrote: > >Hi all I was just reading past e-mail and it was stated that a full > >medical workup is warranted on the diagnosis of autism.. I asked our >ped. > >about this and she said we would still follow the D/S recommendation as > >far as any workups. Of course this duel diagnosis is uncommon > >ground. Can someone please advise me on what tests to request and what > >should we be on the look-out for?? I have so many questions for > >everyone, Especially Laurie since she has just walked through this with > >Mic. as far as the preschool goes. Noah will be 3 in Nov. It will be > >months before we get plugged in everywhere and a more specific diagnosis > >as to how the autism is affecting Noah. Until then I don't feel I can > >take on the school in an iep to make sure he gets what he needs. I >really > >need as much info on this any can offer. Thanks for anything you can > >share. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2003 Report Share Posted October 11, 2003 Acually this was symstem of my stills too caraline,but the heart rate has been good for awhile mine too was constant 120 for about 7 months.Funny tho mine raced too 180 well thats what they clocked it at anyway im sure it was acually beating faster before the nurse came in to check.This acually happened when i was first given prednisone,maybe a shock to the system hastnt happened since.Take care too bad u havta go back in hospital but hope they can help you. d.Canada Question Hi all, I was wondering if anyone who has or is coming down in dosage of Prednisolone has experienced a racing heart beat or ectopics - palpitations or 'missed' beats. I've been having these problems, with a pulse of over 100 at rest and feeling shaky and anxious, for about 10 days and have now been put on beta blockers. These have helped straight away. The GP thinks it may be to do with the reducing dose of pred, but I have found nothing in the research I've done that suggests that this is common. I will speak to my rheumy next week, but I was wondering if anyone else has had similar problems. Hope you're all having a good day. Love Caroline 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2003 Report Share Posted October 12, 2003 Thanks for replying . I have my doubts about it being connected to the pred as I've been OK on it for some weeks and had no heart problems. Anyway, next weeks tests may throw some light on the subject. Unfortunately, although the first beta blocker helped, the subsequent 3 have not, so I may need to call the duty doc today to ask if I should up the dose. Have a nice Sunday! C 2 On Saturday, October 11, 2003, at 08:05 PM, Docken wrote: > Acually this was symstem of my stills too caraline,but the heart rate > has been good for awhile mine too was constant 120 for about 7 > months.Funny tho mine raced too 180 well thats what they clocked it at > anyway im sure it was acually beating faster before the nurse came in > to check.This acually happened when i was first given prednisone,maybe > a shock to the system hastnt happened since.Take care too bad u havta > go back in hospital but hope they can help you. d.Canada   >  Question > > >  Hi all, > >  I was wondering if anyone who has or is coming down in dosage of >  Prednisolone has experienced a racing heart beat or ectopics - >  palpitations or 'missed' beats. I've been having these problems, > with a >  pulse of over 100 at rest and feeling shaky and anxious, for about 10 >  days and have now been put on beta blockers. These have helped > straight >  away. The GP thinks it may be to do with the reducing dose of pred, > but >  I have found nothing in the research I've done that suggests that > this >  is common. I will speak to my rheumy next week, but I was wondering > if >  anyone else has had similar problems. > >  Hope you're all having a good day. > >  Love > >  Caroline 2 > > >        Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 Nola, I have heard of it. But know nothing about it. I am also wanting to learn a little about this procedure and its long term effects. If anyone knows about this procedure, please educate all of us. thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 here are some links about vertebral body stapling. it is being done in phila, pa at the shriners hospital by dr. betz: http://www.spineuniverse.com/displayarticle.php/article1895.html http://www.shrinershq.org/whatsnewarch/archives01/viewpoint8-01.html i don't think that it's been recommended for infantile although they do have a few young patients one of which also had growing rods put in. yikes! recent published article by dr. betz on adolescent scoliosis treated in this way: Spine. 2003 Oct 15;28(20):S255-65. Related Articles, Links Click here to read An innovative technique of vertebral body stapling for the treatment of patients with adolescent idiopathic scoliosis: a feasibility, safety, and utility study. Betz RR, Kim J, D' LP, Mulcahey MJ, Balsara RK, Clements DH. Shriners Hospitals for Children, Philadelphia. SUMMARY: STUDY DESIGN Retrospective review.OBJECTIVES To report the feasibility, safety, and utility of vertebral body stapling without fusion as an alternative treatment for adolescent idiopathic scoliosis.SUMMARY OF BACKGROUND DATA The success rate of brace treatment of adolescent idiopathic scoliosis ranges from 50% to 82%. However, poor self-image and brace compliance are issues for the patient. An alternative method of treatment such as a motion-preserving vertebral body stapling to provide curve stability would be desirable.METHODS We retrospectively reviewed 21 patients (27 curves) with adolescent idiopathic scoliosis treated with vertebral body stapling. Patients were immature as defined by Risser sign </=2.RESULTS The concept of vertebral body stapling of the convex side of a patient with adolescent idiopathic scoliosis is feasible. The procedure was safe, with no major complications and three minor complications. One patient had an intraoperative segmental vein bleed resulting in an increased estimated blood loss of 1500 cc as compared to the average estimated blood loss of 247 cc for all patients. One patient had a chylothorax and one pancreatitis. No patient has had a staple dislodge or move during the follow-up period (mean 11 months, range 3-36 months), and no adverse effects specifically from the staples have been identified. Utility (defined as curve stability) was evaluated in 10 patients with stapling with greater than 1-year follow-up (mean 22.6 months) and preoperative curve <50 degrees. Progression of >/=6 degrees or beyond 50 degrees was considered a failure of treatment. Of these 10 patients, 6 (60%) remained stable or improved and 4 (40%) progressed. One of 10 (10%) in the stapling group had progressed beyond 50 degrees and went on to fusion. Six patients required stapling of a second curve, three as part of the primary surgery, and three as a second stage, because a second untreated curve progressed. The results need to be considered with caution, as the follow-up is still short.CONCLUSIONS The data demonstrate that vertebral body stapling for the treatment of scoliosis in the adolescent was feasible and safe in this group of 21 patients. In the short-term, stapling appears to have utility in stabilizing curves of progressive adolescent idiopathic scoliosis. hope this answers some questions about this procedure. deshea north of boston, ma mom to lucas 26 mo otherwise happy and healthy child with scoliosis (was 68o and 34o in june and now 34o and 22o in nov) in boston brace during the day and charleston at night http://homepage.mac.com/desheaharris/ > Nola, > I have heard of it. But know nothing about it. I am also wanting to learn a > little about this procedure and its long term effects. If anyone knows about > this procedure, please educate all of us. > > thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 " an increased estimated blood loss of 1500 cc , chylothorax and one pancreatitis " ....... These are considered MINOR?????? Am I way off here?? Ive never had a child in major back surgery, so I dont mean to be rude, but ..... those dont seem like " minor complications " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 I added your links to the LINKS page. Hope thats okay.... > > Nola, > > I have heard of it. But know nothing about it. I am also wanting > to learn a > > little about this procedure and its long term effects. If anyone > knows about > > this procedure, please educate all of us. > > > > thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 Great idea thanks and Deshea. I agree...........the more informed we are of all types of treatment, the better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 no problem whatsoever. i want everyone to be informed about the options that are out there surgically since some of the orthos push surgery and talk about cutting edge techniques, but they definitely do not know the long term effects especially on infants. coming informed to these appts is very important. i'm not saying that some surgical techniques should not be taken seriously by parents, but you have to know the risks involved. deshea > > > Nola, > > > I have heard of it. But know nothing about it. I am also wanting > > to learn a > > > little about this procedure and its long term effects. If anyone > > knows about > > > this procedure, please educate all of us. > > > > > > thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 Thanks for the replies about the vertebral stapling surgery. My daughter has a 30º lumbar curve and has been successfully brace for this since she turned 2 (she has been wearing it 2 3/4 years and so she's 4.5 years old now). She was diagnosed at age 18 months, at which time her curve was 20º and she was currently undergoing treatment for developmental dysplasia of the hip. She had a pelvic osteotomy to correct this and wore a spica cast for 8 weeks following the surgery. At that time, I thought her curve had worsened and this was confirmed by x-ray six weeks after the cast came off. Her scoliosis is idiopathic. Her curve corrects quite well while the brace is on, though right now I can't remember the numbers (it is between 10-20º with the brace on). We see Dr. Lubicky at Shriners in Chicago. Our next appointment is at the end of February, and we are to have our daughter out of her brace for at least 6 hours prior to the appointment. We'll then have x-rays, and based on those, Dr. Lubicky is going to decide if she is okay to have part time bracing. However, if the x-rays are not favorable, he wants to start considering her for the vertebral stapling surgery. From what I understand, he and the doctor at the Philadelphia Shriners would be doing the surgery together if we decided to go this route. Though to be honest, right now I think her back isn't looking as good when the brace is off, so I am not holding my breath that we'll be able to do part time bracing. Thanks for the links, it was very interesting to read about, though I do wish the articles were newer, because I know Dr. Lubicky said he has performed more of these procedures than those studies indicated have been done, and more of them have been performed on children closer to my daughter's age. Nola Quote Link to comment Share on other sites More sharing options...
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