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Update on Jace Carr

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Jace had airway surgery on Tuesday.  They ballooned open his airway as it was

too narrow.  They performed a supraglotoplasty (taking extra tissue off of the

glotis).  They also found that one of the branches going from the airway to his

lungs is coming off of his trachea.  Since heart surgery was already scheduled

for last Friday they decided to keep him intubated and sedated rather than

extubate and then have to reintubate within a few days.  They took him into

cardiac surgery at 7:30am on Friday and called us to talk to the surgeon about

an hour and a half later.  They cancelled his surgery due to his IV in his arm

infiltrating and swelling up.  They thought the swelling was bad enough that if

he was put on heart bipass and it swelled more he could lose his arm.  Then they

decided to extubate him and the plan was to send him home and return in two

weeks for cardiac surgery.  Well that plan has not worked out.  Jace is not

eating by

mouth due to breathing too fast.  So now they are trying to decide whether to

place a NJ or NG tube or not.  We should know more on Monday what the new plan

is.  We are still in ICU.

 

Sue and Rich 

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