Guest guest Posted April 15, 2011 Report Share Posted April 15, 2011 Hi , It's really tough to figure out what's going on at school and to gauge the amount of sitting, listening and being quiet your child can handle or that you feel is appropriate. Here's Kayla's story: Kayla my daughter, 19 with DS, was included in 2nd thru 7th grade and things went really well. Her teachers were upbeat and she was pulled out for reading, math, speech and P.E. This made for a pretty varried/interesting day. She was learning, reading and was growing in all areas. When she went into 8th grade, things changed. Class was a lot of sitting and listening (they wouldn't adapt the work, they let her aide go, they said they would hire another soon) so she was really bored. She started acting out, would just shut down and regressed in all areas. It was a mess. We wasted two more years trying to work with that school,(I brought in materials, asked then to implement the reading program from Elementary School, etc....) finally ended up moving to a different school then a year later, her Senior Year, to another District and County. Last year her new District placed her in a self-contained class and Kayla stopped looking anyone in the eye, regressed academically and regressed in her speech. The District said she would get more one-on-one tutoring and attention in that class. Not true. It was a terrible decision. We are just now getting Kayla back. We hired an advocate, fought the District to create our own Transition Program that includes reading tutoring, group speech, going to private speech and a one-on-one aide that attends three Community College classes with her. She is talking more, interactive and energetic. For her it was the program that caused her behavior. (Looking back I realize we should have asked for a Behaviorist andfough for another one-on-one aide.) We have now been working with a Behaviorist from Regional Center for a few months and it's so helpful. He has taught me how to teach Kayla rewards and consequences and made life so much more manageable and fun. Am sure part of the reason it's working is her age and maturity level. She is at an eight to ten year old level in her understanding so grasps concepts better now. When she was younger, I really think she was not able to communicate her feelings or to communicate to me what was happening at school. She needed an aide to help her understand what was going on and to communicate homework, what was going on in class and at school to us so that we could spend extra time working on projects and studying at home. Looking back, I realize she needed so much more support than what was given. (We were trying to get it for her, but it took so long and Kayla was the one who paid the price.) I hope Kayla's story will inspire you to investigate and go with your gut feelings about how your son is being treated and acting in school. Make sure he has the supports he needs to be engaged in learning, that he is being treated with respect (by staff and students) , that he is progressing, and that his day is enjoyable. (Especially pay attention to how teachers treat your son. Kayla was so miserable being around teachers that didn't want her in their class. Her ceramics teacher was the worst. I went with her to that ceramics class every day for three months, 11th Grade, and could not convince that miserable teacher that Kayla deserved to be there so we finally dropped the class. The teacher never said anything to us, it was just her attitude. Because I was there I could make the call. Is was not worth the grief.) Hope you can find the combination that works for your son and that sharing our experience helps in some small way. Let me know how it's going. Will be praying for you. Take care, Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2011 Report Share Posted April 15, 2011 Hi Kim, Thank you so much for sharing your story about Kayla - how heartbreaking to hear how much she slid back when all of her supports were pulled away from her, and then probably going to a new school, and lack of self-esteem, etc. I am glad to hear that she is finally gaining some ground again! My daughter is 9, and in 2nd grade. She is in the reg class most of the day, but she still has the special ed classroom to go to to learn subjects like TouchMath, her OT and Speech, and anything else she needs to work extra on - the spec ed teacher in there knows her so well by now, and knows how to motivate her - i often ask her for advice, and she is open to ideas, so I think for now Olivia has it made, but things will change...hearing your story makes me aware of that. Continue to let us know how she does! Patty > > Hi , > It's really tough to figure out what's going on at school and to gauge the > amount of sitting, listening and being quiet your child can handle or that > you feel is appropriate. > > Here's Kayla's story: > Kayla my daughter, 19 with DS, was included in 2nd thru 7th grade and > things went really well. Her teachers were upbeat and she was pulled out for > reading, math, speech and P.E. This made for a pretty varried/interesting day. > She was learning, reading and was growing in all areas. When she went > into 8th grade, things changed. Class was a lot of sitting and listening (they > wouldn't adapt the work, they let her aide go, they said they would hire > another soon) so she was really bored. She started acting out, would just > shut down and regressed in all areas. It was a mess. We wasted two more years > trying to work with that school,(I brought in materials, asked then to > implement the reading program from Elementary School, etc....) finally ended > up moving to a different school then a year later, her Senior Year, to > another District and County. Last year her new District placed her in a > self-contained class and Kayla stopped looking anyone in the eye, regressed > academically and regressed in her speech. The District said she would get more > one-on-one tutoring and attention in that class. Not true. It was a terrible > decision. We are just now getting Kayla back. We hired an advocate, fought > the District to create our own Transition Program that includes reading > tutoring, group speech, going to private speech and a one-on-one aide that > attends three Community College classes with her. She is talking more, > interactive and energetic. For her it was the program that caused her behavior. > (Looking back I realize we should have asked for a Behaviorist andfough for > another one-on-one aide.) We have now been working with a Behaviorist from > Regional Center for a few months and it's so helpful. He has taught me how > to teach Kayla rewards and consequences and made life so much more > manageable and fun. Am sure part of the reason it's working is her age and maturity > level. She is at an eight to ten year old level in her understanding so > grasps concepts better now. When she was younger, I really think she was not > able to communicate her feelings or to communicate to me what was happening > at school. She needed an aide to help her understand what was going on and > to communicate homework, what was going on in class and at school to us so > that we could spend extra time working on projects and studying at home. > Looking back, I realize she needed so much more support than what was given. > (We were trying to get it for her, but it took so long and Kayla was the > one who paid the price.) > > I hope Kayla's story will inspire you to investigate and go with your gut > feelings about how your son is being treated and acting in school. Make sure > he has the supports he needs to be engaged in learning, that he is being > treated with respect (by staff and students) , that he is progressing, and > that his day is enjoyable. (Especially pay attention to how teachers treat > your son. Kayla was so miserable being around teachers that didn't want her > in their class. Her ceramics teacher was the worst. I went with her to that > ceramics class every day for three months, 11th Grade, and could not > convince that miserable teacher that Kayla deserved to be there so we finally > dropped the class. The teacher never said anything to us, it was just her > attitude. Because I was there I could make the call. Is was not worth the > grief.) > > Hope you can find the combination that works for your son and that sharing > our experience helps in some small way. > Let me know how it's going. Will be praying for you. > Take care, > Kim > > > > Quote Link to comment Share on other sites More sharing options...
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