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Thank you, Kathy. My fights are more with 1.) Tim's father, 2.) the school

system and 3.) his therapists, who refuse to identify his problems and treat

them correctly. I may take Tim to Boston for a psychiatric evaluation (of

course I'm broke right now to top it all off) - maybe then I can bring those

results back to this rural area and get better treatment plans going. As it

is, he is being treated more like a troubled teen, which he certainly is -

but when I ask for the REASON for his behaviour, they poo-poo me as an

overly soft, enabling parent. Yet my other two children (one with diagnosed

OCD, btw, only because I brought her in for evaluation!) do not act like

this, so I keep asking how my parenting could be so terrible for Tim and OK

for and . No answer, just the same old " enforce consequences and

he will learn. " But he doesn't.

--

>From: Kathy Hammes <kathyh@...>

>Reply-

>

>Subject: Re: Raquel/answer and NEW QUESTION

>Date: Tue, 06 Mar 2001 08:35:02 -1000

>

>HI :

>

>You are describing very typical OCD symptoms. Fear of harm is very typical

>of violent obsessions, this harm can be to self or to one's loved ones. It

>can be a result of OCD hyperresponsibility where errors in thinking make

>the sufferer believe that an omission on their part will lead to harm. We

>have found the best thing for this is using paradoxical humor.

>

>When Steve thinks he has done something which will kill him or me I just

>tell him, " Honey it is only thanks to the 1-900 psychic hotline that you

>and I are able to communicate from beyond the grave! " It is good to warn

>your child that you will be using this approach as it can seem a bit

>abrupt. However it is very powerful as it makes OCD seem less invincible.

>Kids do this naturally as they joke about scary monsters and people to feel

>safer.

>

>Manipulative and oppositional is how our kids appear. Abject fear is

>behind their behavior, not meanness. It is very helpful to externalize OCD

>as something you and your children are teaming up against rather than

>letting symptoms of the disorder drive a wedge between you. This can be

>very hard to do especially during a tough meltdown. Good luck, take care,

>aloha, kathy (h)

>kathyh@...

>

>At 09:48 AM 03/06/2001 -0500, you wrote:

> >Yes, all 3 of my kids have OCD symptoms (though I have a lot of trouble

> >getting diagnoses!) and all 3 have violent and/or disgusting and/or

>violent

> >obssessive images and thoughts. These are called, according to my

>daughter's

> >counselor, " intrusive thoughts " and are part of OCD.

> >

> >My daughter's thoughts cause her a lot of fear - she sees pictures of our

> >beloved cat getting killed, especially if she tries to resist her

>compulsive

> >rituals.

> >

> >Question for everyone - my son, aged 12, has refused to go to school so

> >often that I have had to go to court for a Child in Need of Support

>Petition

> >- otherwise the school was threatening to get one. He can be manipulative

> >and is very oppositional, but lately he has told me of many OCD symptoms.

>He

> >said in a conversation recently that he has had the idea many times that

>if

> >he goes to school we all will be killed. He says he " hears, " " Stay home

>or

> >everybody gets killed. " Is this believable to anyone out there? I don't

>know

> >what to think!

> >--

>

>

_________________________________________________________________

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" Irland Shields "

As another mom of three kids with OCD++, I know exactly what you

mean!! One of the biggest frustrations I had was to trying to get the

correct treatment for my kids. We were told too often that we needed

parenting skills - resulting in one time me teaching the worker how

to really parent ocd kids, and another time the doc cut the # of

sessions short since it was a waste of his time when we obviously knew

what to do!!

We have had years of conflict between my son tom, now 17.5, and his

father. His dad's ocd+ is barely under control. They both can set each

other off which can take ME days to recover from! About 2 years ago I

made an ultimatum and carried through with it. It made a big

difference for us. We put tom in care for a year so that we could get

the rest of the family treated without his ocd controlling the

household. Tom's ocd was severe, and his compulsions were violent.

Since returning things are going amazingly well....

Tom was diagnosed (by me, btw) in the spring of grade 7. For grade

8, Tom didnt attend until after March. He still passed the year, btw.

He stopped school again in grade 10 when the school asked that he not

return since his violent obsessions were getting dangerous. He is now

attending a wonderful public alternative program which offers high

school credits, on an individual basis, and only during the mornings.

He is on the honour role!

My advice is to follow your instinct. You know what your kids need -

go out and get it!!

take care, wendy in canada

=============================================================>

> Thank you, Kathy. My fights are more with 1.) Tim's father, 2.) the

school system and 3.) his therapists, who refuse to identify his

problems and treat them correctly. I may take Tim to Boston for a

psychiatric evaluation (of course I'm broke right now to top it all

off) - maybe then I can bring those results back to this rural area

and get better treatment plans going. As it is, he is being treated

more like a troubled teen, which he certainly is - but when I ask for

the REASON for his behaviour, they poo-poo me as an overly soft,

enabling parent. Yet my other two children (one with diagnosed

> OCD, btw, only because I brought her in for evaluation!) do not act

like this, so I keep asking how my parenting could be so terrible for

Tim and OK for and . No answer, just the same old " enforce

consequences and he will learn. " But he doesn't.

> --

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Thank you so much - it helps to know there is a similar situation out

there. I have a meeting with the psychiatrist in 2 weeks and am going to

demand that he be tested for OCD - and that if it is found (which it SHOULD

be), appropriate treatment be provided. The crisis worker the other day was

concentrating more on Tim's " bad " behaviour (not going to school, being

oppositional) and " consequences " such as the Juvenile Court probation

officer thing, which I have set in motion because I think it might lead (in

a roundabout way) through the beaurocracy back to a diagnosis and

appropriate help!!!! When I mentioned OCD he said, " Well, I wouldn't be

surprised if he's obssessive, if not really OCD. " Well, why wouldn't my

feelings that he may have OCD maybe - just maybe - be exactly right? At

least worth testing? (And I'm really playing the game to be polite here

because I KNOW he has hoarding problems, symmetry problems, having to have

things in groups of 4, violent intrusive thoughts, sexual intrusive

thoughts, etc.) It's frustrating - I feel I am often treated with disrespect

by these clinicians who, after all, don't already live with the disorder!!!

--

>From: wb4@...

>Reply-

>

>Subject: Re: consequences

>Date: Wed, 07 Mar 2001 01:58:40 -0000

>

> " Irland Shields "

>

> As another mom of three kids with OCD++, I know exactly what you

>mean!! One of the biggest frustrations I had was to trying to get the

>correct treatment for my kids. We were told too often that we needed

>parenting skills - resulting in one time me teaching the worker how

>to really parent ocd kids, and another time the doc cut the # of

>sessions short since it was a waste of his time when we obviously knew

>what to do!!

>

> We have had years of conflict between my son tom, now 17.5, and his

>father. His dad's ocd+ is barely under control. They both can set each

>other off which can take ME days to recover from! About 2 years ago I

>made an ultimatum and carried through with it. It made a big

>difference for us. We put tom in care for a year so that we could get

>the rest of the family treated without his ocd controlling the

>household. Tom's ocd was severe, and his compulsions were violent.

>Since returning things are going amazingly well....

>

> Tom was diagnosed (by me, btw) in the spring of grade 7. For grade

>8, Tom didnt attend until after March. He still passed the year, btw.

>He stopped school again in grade 10 when the school asked that he not

>return since his violent obsessions were getting dangerous. He is now

>attending a wonderful public alternative program which offers high

>school credits, on an individual basis, and only during the mornings.

>He is on the honour role!

>

>My advice is to follow your instinct. You know what your kids need -

>go out and get it!!

>

>take care, wendy in canada

>=============================================================>

> > Thank you, Kathy. My fights are more with 1.) Tim's father, 2.) the

>school system and 3.) his therapists, who refuse to identify his

>problems and treat them correctly. I may take Tim to Boston for a

>psychiatric evaluation (of course I'm broke right now to top it all

>off) - maybe then I can bring those results back to this rural area

>and get better treatment plans going. As it is, he is being treated

>more like a troubled teen, which he certainly is - but when I ask for

>the REASON for his behaviour, they poo-poo me as an overly soft,

>enabling parent. Yet my other two children (one with diagnosed

> > OCD, btw, only because I brought her in for evaluation!) do not act

>like this, so I keep asking how my parenting could be so terrible for

>Tim and OK for and . No answer, just the same old " enforce

>consequences and he will learn. " But he doesn't.

> > --

>

_________________________________________________________________

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  • 10 years later...
Guest guest

Since the discussion on consequences the other day, yesterday I carried

through on my threat we will leave!

For some time now, Trent has been saying f off, though not very clear and

sometimes I am not sure if he isn't just making another sound which he does.

Yesterday, we went out for the day and his behaviour though not bad wasn't

good either not a big deal and nothing I would make a fuss about in public.

That is until his treat at Mcs - he has a thing about reading the

paper but yesterday for some reason wanted them all. He had a large stack

of papers in front of him and got up to get more while I was in line, told

him if he took anymore we would leave, fair enough. He sat back down and

very loudly with an arm action said 'f off' - that loud and scary the little

girl at the next table started crying. With that, I went back to him told

him I wasn't happy with that behaviour and as such we were leaving and I

walked out of the store. Mr. Determined was staying but had put all the

papers away except for one which he was reading. I went back inside and

told him I was going and to come now, again I left the store - again he

stayed put but was on his best behaviour. Figured we were at a stalemate,

so went back and ordered an ice-cream cone for me and sat at the opposite

end of the restaurant, he soon came up to me and sat down. The message got

through I was far from happy and he left with me when I had finished eating.

Got back to the car, he knew he was in big trouble as he hopped in the back

seat - Trent never gives up the front seat for anyone. All the way home (45

min drive), I had a nice chatty person beside me, closer to home we stopped

at the supermarket where again he listened and did what he was told. Before

I cooked tea, I needed to finish defrosting the freezer as I had had it off

all day, Trent came and helped me, even this morning he has been more

helpful and chattier than usual.

I have walked out of a cafe/restaurant on him before, as such he normally

waits until I have ordered before doing something which he knows I will not

like. I have threatened to leave even if we have ordered, guessing I just

may have to do that to prove to him I will.

When he was a bus traveller, every now and again I would get the bus driver

to leave without him, as he would get slower and slower of a morning, seems

to enjoy having people wait for him. After being home with me and missing

out on school, which was his favourite place to be he would be ready and

waiting for several days after.

Keep smiling

Jan, mother of Trent 26yo w/Ds from the LandDownUnder

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