Joy Thread.

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The replies mostly were very helpful.

I feel a need to defend myself though!

I do have A LOT of Joy in my life from my faith in GOD. I do have A LOT of love

for my daughter with DS.

Her DS though is a daily trial that wears on the joy, my faith, and our family.

She is an amazing person. She would be a girl version of my second son if her

body was healthy. I cry when I see her frustration at not being able to 'do'

what she wants to do and thinks of doing. I cry when she can not get the words

out that she wants to say. Her internal frustration is difficult for me to

watch. Her occasional aggression, that comes from the frustration, is difficult

to watch. Is she happy a lot of the time. Of course! Is our family without

any joy. NO! We have a lot of JOY; but our joy does not come from DS. Our joy

comes from the LORD and DS is a daily strain on it. I wrote the threads because

DS is taking a toll on our family and on her. I care and love her deeply.

Deeply enough to wish she had a healthy body so that she could express all that

she has and is inside. I know DS can not be helped, but I would do anything and

give anything to give her a body that functioned.

You are an amazing group of people, and over all I really was touched deeply by

your sharing and stories. Over all, they were helpful.

Blessings,

Carin