Guest guest Posted October 6, 2011 Report Share Posted October 6, 2011 , A lot of people use gummy bear vitamins. They make adult brands that are pretty easy on your stomach. I get a chewable vitamin from sprouts that has more in it. It sometimes makes me queasy if I don’t take it with something so it may not be for you. It’s weird. Some pills clearly work fine for me and others are like I never swallowed them. Neither compazine nor zofran worked until one day I was so frustrated, I stuck a zofran tablet under my tongue. 20 minutes later, nausea much better. So I had my Dr. order zofran rapid dissolve. Same with Centrum silver. I felt so much better when I started taking chewable vitamins—much more energy. It’s great that you have a supportive compounding pharmacist. Where do you get your dom? When I was taking it, I got mine from a compounding pharmacy for the first month—120 pills for $135. After that I used inhouse pharmacy.biz. On my last order, I bought a thousand pills for about $130. Huge price difference. Crystal is great isn’t she Sharon From: [mailto: ] On Behalf Of jadacaden@...Sent: Wednesday, October 05, 2011 9:14 PM Subject: RE: On another note Sharon,Thank you for the info, tips and recipes. Its amazing that you just pointed something out that I have been trying to explain to my hubby. I am on phenerghan, levisin, bentyl, domperidone and miralax, forgot zofran. I've been asking if I can't absorb food or digest them, then logically how am I digesting pills? They are poisoning me. So now I have a compounding pharmacist who believes in holistic healing. He is working on 1st getting my meds SL, phen and zofran so far and then a nutritional supplement that I can also do SL. This man is amazing, I adore him. Your right, the very things I've avoided my whole life are ironically the ones now that I have to eat. Told my hubby that's why I am having a hard time because I don't know how to eat unhealthy things lol. I am part of a small forum and follow Crystal Salterri (not sure last name, but she wrote living well with GP), so since my phen is kicking in tonight, Im going to give yours a try. These forums are truly whats saving my life. I am absolutely clueless half the time. Thank you for reaching out. You guys honestly will never know how everything you say, helps me piece things together. :)Counting Our Blessings, --- Original Message ---From: Sharon D <daviszoo@...>Sent: October 5, 2011 10/5/11 Subject: RE: On another note , Glad to meet you too I’ve mainly focused on various kinds of banana sorbets with my machine. I have used it to puree food but have found that I can get a lot more calories down when it’s liquid, like CIB. I have cheated and used a couple of frozen strawberries or frozen blueberries with the banana to vary the flavor and color. So far it’s worked ok. There’s also flavoring (artificial) like carmel that I’m interested in trying. I think frozen helps me to get past the nausea and I love it because I can eat just a little and stuff it back in the freezer when I’m done. I have nutella but don’t do well with the nuts unfortunately. I can also eat yogurt. My rule of thumb is how can I get the most calories in, in the least amount of food mass that doesn’t make me sick. You kind of have to throw out all the good nutrition rules that apply to others, and just go for calories. The foods we are allowed to eat are probably the worst and least healthiest foods available. Do try the same food/recipe (in small amounts) for several different days before you give up completely on it. Even your safe foods (the ones you can tolerate), may not go down well some days, but be fine on others. Have you tried butternut squash? That’s a GP friendly food that can be baked, blended and put into ice cube trays. You can then microwave a cube for a quick meal. Doesn’t need any flavoring and freezes well. You can also do pear or peach sorbets if you blend, strain and freeze, or make them into popsickles. Also, try to get chewable or rapid dissolve vitamins and supplements. Our stomachs tend to just leave pills sitting in the gut and they’re not absorbed well. Are you on any GP forums? It might be helpful to join one if you haven’t. You’ll get lots of GP specific advice there and loads of moral support I’m on Inspire.com. They have specialized groups for many medical problems including ours. AGMD GI Motility disorders is the largest motility support group in Inspire.com, and it’s really, really wonderful. http://www.inspire.com/groups/agmd-gi-motility/. You can get a ton of information and meet good friends there that are going through similar experiences. Feel free to contact me off forum if you want to talk more about it I’m sure you are feeling overwhelmed with this new diagnosis. Hugs, Sharon From: [mailto: ] On Behalf Of jadacaden@...Sent: Wednesday, October 05, 2011 7:48 PM Subject: RE: On another note Sharon,Wow while I am sorry you also have GP, I am grateful to meet you in this community. My hubby got very scared when he seen my reaction to my mango smoothie and we didn't have a nut bag so we didn't strain. I had a little setback tonight, so he put me bk on gatorade for tonight. I just got way to excited even with everyone's warning to go slow and didn't follow our GP guidelines. Tomorrow will be different. The only really ok staple I can do is coconut milk and oddly nutella. Recently I found I tolerated yogurt quite well. So for tomorrow I am thinking a little yogurt, frozen banana with a small amout of nutella (I can only tolerate about a spoonfull). Its just so frustrating because I have tried sooooo many things and have had to rule everything out. ARGHHH! The hardest thing to realize is you have to try thing's to see if you can eat it, then you get sick and don't want to try anything else. (Im sure you know what I mean)But I am very aware of what will happen to me if I don't keep trying, so that I will do. I want to live well and not let this define me. Like my momma said, I didn't get sick overnight so won't get better overnight. Problem is I am still going through the 5 stages of coping. Everyday brings me closer, so I know before long my list will be long. I feel blessed to have the VM as a tool to help me. Do you have any other recipes you tolerate well that you might share? Also, my mother in law grabbed me some ice trays and a nutbag today so I know that will help. :)Thank you so much, being newly diagnosed sometimes makes me feel lost. Learning better choices everyday thanks to all of you guys.Counting Our Blessings,Please know while I may not can walk on my own, my praying knees are just find and your all in my prayers daily. --- Original Message ---_ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2011 Report Share Posted October 6, 2011 Oh I love her, she is so informative and I look forward to F.A.Q. Fridays every week. I get my Dom about a mile up the road at Vital Care Compounding. 120 for 10.00. This man is a genius. He supports drs but has spent years all over the world researching. You go in and he takes you back and he asks a ton of questions, then from that he for asked me to give him a few days. People line up to see him. He breaks everything down to get to the root of everything, for example my hair began falling out due to all this and breaking. So he is adding something to my drops to help even that. He likes using herbs over medications. He is helping everything, not just focusing on the GP. I took him a picture from April and said I just want to be that healthy again, he says no problem. People have come off of all meds with his help. Oh, and since my mom has heart disease, he is adding a drop for that, some preventive things. Oh I wish you could meet him. He is now in his 60s, and bluntly told me I will not charge for nothing but cost, I have money working over 40 years, now I just want to help. When my drops are ready and I go in to get them, he will tell me everything he added and what it does, let me even research it myself and if I find anything I am afraid of, he will remake it all free of charge.Most people that see him, leave that day with something, but my case is a little more extreme. Im telling you girl if I said GP hasnt done anything positive for me, Id be lying cause Ive met some pretty amazing people. From: Sharon D <daviszoo@...>Subject: RE: On another noteTo: Date: Thursday, October 6, 2011, 3:45 AM , A lot of people use gummy bear vitamins. They make adult brands that are pretty easy on your stomach. I get a chewable vitamin from sprouts that has more in it. It sometimes makes me queasy if I don’t take it with something so it may not be for you. It’s weird. Some pills clearly work fine for me and others are like I never swallowed them. Neither compazine nor zofran worked until one day I was so frustrated, I stuck a zofran tablet under my tongue. 20 minutes later, nausea much better. So I had my Dr. order zofran rapid dissolve. Same with Centrum silver. I felt so much better when I started taking chewable vitamins—much more energy. It’s great that you have a supportive compounding pharmacist. Where do you get your dom? When I was taking it, I got mine from a compounding pharmacy for the first month—120 pills for $135. After that I used inhouse pharmacy.biz. On my last order, I bought a thousand pills for about $130. Huge price difference. Crystal is great isn’t she Sharon From: [mailto: ] On Behalf Of jadacaden@...Sent: Wednesday, October 05, 2011 9:14 PM Subject: RE: On another note Sharon,Thank you for the info, tips and recipes. Its amazing that you just pointed something out that I have been trying to explain to my hubby. I am on phenerghan, levisin, bentyl, domperidone and miralax, forgot zofran. I've been asking if I can't absorb food or digest them, then logically how am I digesting pills? They are poisoning me. So now I have a compounding pharmacist who believes in holistic healing. He is working on 1st getting my meds SL, phen and zofran so far and then a nutritional supplement that I can also do SL. This man is amazing, I adore him. Your right, the very things I've avoided my whole life are ironically the ones now that I have to eat. Told my hubby that's why I am having a hard time because I don't know how to eat unhealthy things lol. I am part of a small forum and follow Crystal Salterri (not sure last name, but she wrote living well with GP), so since my phen is kicking in tonight, Im going to give yours a try. These forums are truly whats saving my life. I am absolutely clueless half the time. Thank you for reaching out. You guys honestly will never know how everything you say, helps me piece things together. :)Counting Our Blessings, --- Original Message ---From: Sharon D <daviszoo@...>Sent: October 5, 2011 10/5/11 Subject: RE: On another note , Glad to meet you too I’ve mainly focused on various kinds of banana sorbets with my machine. I have used it to puree food but have found that I can get a lot more calories down when it’s liquid, like CIB. I have cheated and used a couple of frozen strawberries or frozen blueberries with the banana to vary the flavor and color. So far it’s worked ok. There’s also flavoring (artificial) like carmel that I’m interested in trying. I think frozen helps me to get past the nausea and I love it because I can eat just a little and stuff it back in the freezer when I’m done. I have nutella but don’t do well with the nuts unfortunately. I can also eat yogurt. My rule of thumb is how can I get the most calories in, in the least amount of food mass that doesn’t make me sick. You kind of have to throw out all the good nutrition rules that apply to others, and just go for calories. The foods we are allowed to eat are probably the worst and least healthiest foods available. Do try the same food/recipe (in small amounts) for several different days before you give up completely on it. Even your safe foods (the ones you can tolerate), may not go down well some days, but be fine on others. Have you tried butternut squash? That’s a GP friendly food that can be baked, blended and put into ice cube trays. You can then microwave a cube for a quick meal. Doesn’t need any flavoring and freezes well. You can also do pear or peach sorbets if you blend, strain and freeze, or make them into popsickles. Also, try to get chewable or rapid dissolve vitamins and supplements. Our stomachs tend to just leave pills sitting in the gut and they’re not absorbed well. Are you on any GP forums? It might be helpful to join one if you haven’t. You’ll get lots of GP specific advice there and loads of moral support I’m on Inspire.com. They have specialized groups for many medical problems including ours. AGMD GI Motility disorders is the largest motility support group in Inspire.com, and it’s really, really wonderful. http://www.inspire.com/groups/agmd-gi-motility/. You can get a ton of information and meet good friends there that are going through similar experiences. Feel free to contact me off forum if you want to talk more about it I’m sure you are feeling overwhelmed with this new diagnosis. Hugs, Sharon From: [mailto: ] On Behalf Of jadacaden@...Sent: Wednesday, October 05, 2011 7:48 PM Subject: RE: On another note Sharon,Wow while I am sorry you also have GP, I am grateful to meet you in this community. My hubby got very scared when he seen my reaction to my mango smoothie and we didn't have a nut bag so we didn't strain. I had a little setback tonight, so he put me bk on gatorade for tonight. I just got way to excited even with everyone's warning to go slow and didn't follow our GP guidelines. Tomorrow will be different. The only really ok staple I can do is coconut milk and oddly nutella. Recently I found I tolerated yogurt quite well. So for tomorrow I am thinking a little yogurt, frozen banana with a small amout of nutella (I can only tolerate about a spoonfull). Its just so frustrating because I have tried sooooo many things and have had to rule everything out. ARGHHH! The hardest thing to realize is you have to try thing's to see if you can eat it, then you get sick and don't want to try anything else. (Im sure you know what I mean)But I am very aware of what will happen to me if I don't keep trying, so that I will do. I want to live well and not let this define me. Like my momma said, I didn't get sick overnight so won't get better overnight. Problem is I am still going through the 5 stages of coping. Everyday brings me closer, so I know before long my list will be long. I feel blessed to have the VM as a tool to help me. Do you have any other recipes you tolerate well that you might share? Also, my mother in law grabbed me some ice trays and a nutbag today so I know that will help. :)Thank you so much, being newly diagnosed sometimes makes me feel lost. Learning better choices everyday thanks to all of you guys.Counting Our Blessings,Please know while I may not can walk on my own, my praying knees are just find and your all in my prayers daily. --- Original Message ---_ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2011 Report Share Posted October 6, 2011 Oh , what a wonderful man. How I wish there were someone like him around here. Ann On Oct 6, 2011 3:11 AM, " Barkley " <jadacaden@...> wrote:> Oh I love her, she is so informative and I look forward to F.A.Q. Fridays every week. I get my Dom about a mile up the road at Vital Care Compounding. 120 for 10.00. This man is a genius. He supports drs but has spent years all over the world researching. You go in and he takes you back and he asks a ton of questions, then from that he for asked me to give him a few days. People line up to see him. He breaks everything down to get to the root of everything, for example my hair began falling out due to all this and breaking. So he is adding something to my drops to help even that. He likes using herbs over medications. He is helping everything, not just focusing on the GP. I took him a picture from April and said I just want to be that healthy again, he says no problem. People have come off of all meds with his help. Oh, and since my mom has heart disease, he is adding a drop for that, some preventive things. Oh I wish you could meet him. He is now in > his 60s, and bluntly told me I will not charge for nothing but cost, I have money working over 40 years, now I just want to help. When my drops are ready and I go in to get them, he will tell me everything he added and what it does, let me even research it myself and if I find anything I am afraid of, he will remake it all free of charge.Most people that see him, leave that day with something, but my case is a little more extreme. Im telling you girl if I said GP hasnt done anything positive for me, Id be lying cause Ive met some pretty amazing people. > > > > From: Sharon D <daviszoo@...>> Subject: RE: On another note > > Date: Thursday, October 6, 2011, 3:45 AM> > > > > > > > > > > > > > > > > > > > > > > > > > > , A lot of people use gummy bear vitamins. They make adult brands that are pretty easy on your stomach. I get a chewable vitamin from sprouts that has more in it. It sometimes makes me queasy if I don’t take it with something so it may not be for you. It’s weird. Some pills clearly work fine for me and others are like I never swallowed them. Neither compazine nor zofran worked until one day I was so frustrated, I stuck a zofran tablet under my tongue. 20 minutes later, nausea much better. So I had my Dr. order zofran rapid dissolve. Same with Centrum silver. I felt so much better when I started taking chewable vitamins—much more energy. It’s great that you have a supportive compounding pharmacist. Where do you get your dom? When I was taking it, I got mine from a compounding pharmacy for the first month—120 pills for $135. After that I used inhouse pharmacy.biz. On my last order, I bought a thousand > pills for about $130. Huge price difference. Crystal is great isn’t she Sharon From: [mailto: ] On Behalf Of jadacaden@... > Sent: Wednesday, October 05, 2011 9:14 PM> > Subject: RE: On another note Sharon, > Thank you for the info, tips and recipes. Its amazing that you just pointed something out that I have been trying to explain to my hubby. I am on phenerghan, levisin, bentyl, domperidone and miralax, forgot zofran. I've been asking if I can't absorb food or digest them, then logically how am I digesting pills? They are poisoning me. So now I have a compounding pharmacist who believes in holistic healing. He is working on 1st getting my meds SL, phen and zofran so far and then a nutritional supplement that I can also do SL. This man is amazing, I adore him. > Your right, the very things I've avoided my whole life are ironically the ones now that I have to eat. Told my hubby that's why I am having a hard time because I don't know how to eat unhealthy things lol. I am part of a small forum and follow Crystal Salterri (not sure last name, but she wrote living well with GP), so since my phen is kicking in tonight, Im going to give yours a try. These forums are truly whats saving my life. I am absolutely clueless half the time. > Thank you for reaching out. You guys honestly will never know how everything you say, helps me piece things together. > > Counting Our Blessings,> > > --- Original Message --- > > From: Sharon D <daviszoo@...>> Sent: October 5, 2011 10/5/11> > Subject: RE: On another note> > > > ,> > > > Glad to meet you too I’ve mainly focused on various kinds of banana sorbets with my machine. I have used it to puree food but have found that I can get a lot more calories down when it’s liquid, like CIB. I have cheated and used a couple of frozen strawberries or frozen blueberries with the banana to vary the flavor and color. So far it’s worked ok. There’s also flavoring (artificial) like carmel that I’m interested in trying. I think frozen helps me to get past the nausea and I love it because I can eat just a little and stuff it back in the freezer when I’m done. I have nutella but don’t do well with the nuts unfortunately. I can also eat yogurt. My rule of thumb is how can I get the most calories in, in the least amount of food mass that doesn’t make me sick. You kind of have to throw out all the good nutrition rules that apply to others, and just go for calories. The foods we are allowed to eat are probably > the worst and least healthiest foods available. Do try the same food/recipe (in small amounts) for several different days before you give up completely on it. Even your safe foods (the ones you can tolerate), may not go down well some days, but be fine on others. Have you tried butternut squash? That’s a GP friendly food that can be baked, blended and put into ice cube trays. You can then microwave a cube for a quick meal. Doesn’t need any flavoring and freezes well. You can also do pear or peach sorbets if you blend, strain and freeze, or make them into popsickles. Also, try to get chewable or rapid dissolve vitamins and supplements. Our stomachs tend to just leave pills sitting in the gut and they’re not absorbed well. > > > > Are you on any GP forums? It might be helpful to join one if you haven’t. You’ll get lots of GP specific advice there and loads of moral support I’m on Inspire.com. They have specialized groups for many medical problems including ours. AGMD GI Motility disorders is the largest motility support group in Inspire.com, and it’s really, really wonderful. http://www.inspire.com/groups/agmd-gi-motility/. You can get a ton of information and meet good friends there that are going through similar experiences. > > > > Feel free to contact me off forum if you want to talk more about it I’m sure you are feeling overwhelmed with this new diagnosis.> > > > Hugs, Sharon> > > > From: [mailto: ] On Behalf Of jadacaden@... > Sent: Wednesday, October 05, 2011 7:48 PM> > Subject: RE: On another note> > > > > > Sharon,> Wow while I am sorry you also have GP, I am grateful to meet you in this community. My hubby got very scared when he seen my reaction to my mango smoothie and we didn't have a nut bag so we didn't strain. I had a little setback tonight, so he put me bk on gatorade for tonight. I just got way to excited even with everyone's warning to go slow and didn't follow our GP guidelines. Tomorrow will be different. The only really ok staple I can do is coconut milk and oddly nutella. Recently I found I tolerated yogurt quite well. So for tomorrow I am thinking a little yogurt, frozen banana with a small amout of nutella (I can only tolerate about a spoonfull). Its just so frustrating because I have tried sooooo many things and have had to rule everything out. ARGHHH! The hardest thing to realize is you have to try thing's to see if you can eat it, then you get sick and don't want to try anything else. (Im sure you know what I mean) > But I am very aware of what will happen to me if I don't keep trying, so that I will do. I want to live well and not let this define me. Like my momma said, I didn't get sick overnight so won't get better overnight. Problem is I am still going through the 5 stages of coping. Everyday brings me closer, so I know before long my list will be long. I feel blessed to have the VM as a tool to help me. > Do you have any other recipes you tolerate well that you might share? Also, my mother in law grabbed me some ice trays and a nutbag today so I know that will help. > Thank you so much, being newly diagnosed sometimes makes me feel lost. Learning better choices everyday thanks to all of you guys. > > Counting Our Blessings,> > Please know while I may not can walk on my own, my praying knees are just find and your all in my prayers daily. > --- Original Message ---> > _ > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2011 Report Share Posted October 6, 2011 I know, once I started learning of everyone else's ailments on this group, and everyone's helped me sooo much, I told my hubby tonight that I wished we could all be neighbors and everyone could meet him just once. Ahhhh the things that make me happy, I am such a mushy mush. --- Original Message --- From: Ann Brandenberger <mrsbberger@...> Sent: October 6, 2011 10/6/11 Subject: RE: On another note  Oh , what a wonderful man. How I wish there were someone like him around here. Ann On Oct 6, 2011 3:11 AM, " Barkley " <jadacaden@...> wrote:> Oh I love her, she is so informative and I look forward to F.A.Q. Fridays every week. I get my Dom about  a mile up the road at Vital Care Compounding. 120 for 10.00. This man is a genius. He supports drs but has spent years all over the world researching. You go in and he takes you back and he asks a ton of questions, then from that he for asked me to give him a few days. People line up to see him. He breaks everything down to get to the root of everything, for example my hair began falling out due to all this and breaking. So he is adding something to my drops to help even that. He likes using herbs over medications. He is helping everything, not just focusing on the GP. I took him a picture from April and said I just want to be that healthy again, he says no problem. People have come off of all meds with his help. Oh, and since my mom has heart disease, he is adding a drop for that, some preventive things. Oh I wish you could meet him. He is now in > his 60s, and bluntly told me I will not charge for nothing but cost, I have money working over 40 years, now I just want to help. When my drops are ready and I go in to get them, he will tell me everything he added and what it does, let me even research it myself and if I find anything I am afraid of, he will remake it all free of charge.Most people that see him, leave that day with something, but my case is a little more extreme. Im telling you girl if I said GP hasnt done anything positive for me, Id be lying cause Ive met some pretty amazing people.  > > > > From: Sharon D <daviszoo@...> > Subject: RE: On another note > > Date: Thursday, October 6, 2011, 3:45 AM > > > > > > > > > > > > > > > > >  > > > > > > > > > > ,  A lot of people use gummy bear vitamins. They make adult brands that are pretty easy on your stomach. I get a chewable vitamin from sprouts that has more in it. It sometimes makes me queasy if I don’t take it with something so it may not be for you. It’s weird. Some pills clearly work fine for me and others are like I never swallowed them. Neither compazine nor zofran worked until one day I was so frustrated, I stuck a zofran tablet under my tongue. 20 minutes later, nausea much better. So I had my Dr. order zofran rapid dissolve. Same with Centrum silver. I felt so much better when I started taking chewable vitamins—much more energy. It’s great that you have a supportive compounding pharmacist. Where do you get your dom? When I was taking it, I got mine from a compounding pharmacy for the first month—120 pills for $135. After that I used inhouse pharmacy.biz. On my last order, I bought a thousand > pills for about $130. Huge price difference.  Crystal is great isn’t she  Sharon  From: [mailto: ] On Behalf Of jadacaden@... > Sent: Wednesday, October 05, 2011 9:14 PM > > Subject: RE: On another note   Sharon, > Thank you for the info, tips and recipes. Its amazing that you just pointed something out that I have been trying to explain to my hubby. I am on phenerghan, levisin, bentyl, domperidone and miralax, forgot zofran. I've been asking if I can't absorb food or digest them, then logically how am I digesting pills? They are poisoning me. So now I have a compounding pharmacist who believes in holistic healing. He is working on 1st getting my meds SL, phen and zofran so far and then a nutritional supplement that I can also do SL. This man is amazing, I adore him. > Your right, the very things I've avoided my whole life are ironically the ones now that I have to eat. Told my hubby that's why I am having a hard time because I don't know how to eat unhealthy things lol. I am part of a small forum and follow Crystal Salterri (not sure last name, but she wrote living well with GP), so since my phen is kicking in tonight, Im going to give yours a try. These forums are truly whats saving my life. I am absolutely clueless half the time. > Thank you for reaching out. You guys honestly will never know how everything you say, helps me piece things together. > > Counting Our Blessings, > > > --- Original Message --- > > From: Sharon D <daviszoo@...> > Sent: October 5, 2011 10/5/11 > > Subject: RE: On another note > >  > > , > >  > > Glad to meet you too  I’ve mainly focused on various kinds of banana sorbets with my machine. I have used it to puree food but have found that I can get a lot more calories down when it’s liquid, like CIB. I have cheated and used a couple of frozen strawberries or frozen blueberries with the banana to vary the f Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2011 Report Share Posted October 6, 2011 You are truly blessed. It isn't easy to find natural "healers" like this guy and when you find them, they are a treasure! I learned from the www.StopTheThyroidMadness.com website that going to compounding pharmacists is the best way to find doctors or naturopaths most likely to RX alternative treatments. Blessings,Lea Ann SavageSatellite Beach, FL(321) 773-7088 (home)(321-961-9219 (cell)))><'>www.VitamixLady.comwww..com<))>< On Oct 6, 2011, at 5:11 AM, Barkley wrote: Oh I love her, she is so informative and I look forward to F.A.Q. Fridays every week. I get my Dom about a mile up the road at Vital Care Compounding. 120 for 10.00. This man is a genius. He supports drs but has spent years all over the world researching. You go in and he takes you back and he asks a ton of questions, then from that he for asked me to give him a few days. People line up to see him. He breaks everything down to get to the root of everything, for example my hair began falling out due to all this and breaking. So he is adding something to my drops to help even that. He likes using herbs over medications. He is helping everything, not just focusing on the GP. I took him a picture from April and said I just want to be that healthy again, he says no problem. People have come off of all meds with his help. Oh, and since my mom has heart disease, he is adding a drop for that, some preventive things. Oh I wish you could meet him. He is now in his 60s, and bluntly told me I will not charge for nothing but cost, I have money working over 40 years, now I just want to help. When my drops are ready and I go in to get them, he will tell me everything he added and what it does, let me even research it myself and if I find anything I am afraid of, he will remake it all free of charge.Most people that see him, leave that day with something, but my case is a little more extreme. Im telling you girl if I said GP hasnt done anything positive for me, Id be lying cause Ive met some pretty amazing people. From: Sharon D <daviszoo@...>Subject: RE: On another noteTo: Date: Thursday, October 6, 2011, 3:45 AM , A lot of people use gummy bear vitamins. They make adult brands that are pretty easy on your stomach. I get a chewable vitamin from sprouts that has more in it. It sometimes makes me queasy if I don’t take it with something so it may not be for you. It’s weird. Some pills clearly work fine for me and others are like I never swallowed them. Neither compazine nor zofran worked until one day I was so frustrated, I stuck a zofran tablet under my tongue. 20 minutes later, nausea much better. So I had my Dr. order zofran rapid dissolve. Same with Centrum silver. I felt so much better when I started taking chewable vitamins—much more energy. It’s great that you have a supportive compounding pharmacist. Where do you get your dom? When I was taking it, I got mine from a compounding pharmacy for the first month—120 pills for $135. After that I used inhouse pharmacy.biz. On my last order, I bought a thousand pills for about $130. Huge price difference. Crystal is great isn’t she Sharon From: [mailto: ] On Behalf Of jadacaden@...Sent: Wednesday, October 05, 2011 9:14 PM Subject: RE: On another note Sharon,Thank you for the info, tips and recipes. Its amazing that you just pointed something out that I have been trying to explain to my hubby. I am on phenerghan, levisin, bentyl, domperidone and miralax, forgot zofran. I've been asking if I can't absorb food or digest them, then logically how am I digesting pills? They are poisoning me. So now I have a compounding pharmacist who believes in holistic healing. He is working on 1st getting my meds SL, phen and zofran so far and then a nutritional supplement that I can also do SL. This man is amazing, I adore him. Your right, the very things I've avoided my whole life are ironically the ones now that I have to eat. Told my hubby that's why I am having a hard time because I don't know how to eat unhealthy things lol. I am part of a small forum and follow Crystal Salterri (not sure last name, but she wrote living well with GP), so since my phen is kicking in tonight, Im going to give yours a try. These forums are truly whats saving my life. I am absolutely clueless half the time. Thank you for reaching out. You guys honestly will never know how everything you say, helps me piece things together. :)Counting Our Blessings, --- Original Message ---From: Sharon D <daviszoo@...>Sent: October 5, 2011 10/5/11 Subject: RE: On another note , Glad to meet you too I’ve mainly focused on various kinds of banana sorbets with my machine. I have used it to puree food but have found that I can get a lot more calories down when it’s liquid, like CIB. I have cheated and used a couple of frozen strawberries or frozen blueberries with the banana to vary the flavor and color. So far it’s worked ok. There’s also flavoring (artificial) like carmel that I’m interested in trying. I think frozen helps me to get past the nausea and I love it because I can eat just a little and stuff it back in the freezer when I’m done. I have nutella but don’t do well with the nuts unfortunately. I can also eat yogurt. My rule of thumb is how can I get the most calories in, in the least amount of food mass that doesn’t make me sick. You kind of have to throw out all the good nutrition rules that apply to others, and just go for calories. The foods we are allowed to eat are probably the worst and least healthiest foods available. Do try the same food/recipe (in small amounts) for several different days before you give up completely on it. Even your safe foods (the ones you can tolerate), may not go down well some days, but be fine on others. Have you tried butternut squash? That’s a GP friendly food that can be baked, blended and put into ice cube trays. You can then microwave a cube for a quick meal. Doesn’t need any flavoring and freezes well. You can also do pear or peach sorbets if you blend, strain and freeze, or make them into popsickles. Also, try to get chewable or rapid dissolve vitamins and supplements. Our stomachs tend to just leave pills sitting in the gut and they’re not absorbed well. Are you on any GP forums? It might be helpful to join one if you haven’t. You’ll get lots of GP specific advice there and loads of moral support I’m on Inspire.com. They have specialized groups for many medical problems including ours. AGMD GI Motility disorders is the largest motility support group in Inspire.com, and it’s really, really wonderful. http://www.inspire.com/groups/agmd-gi-motility/. You can get a ton of information and meet good friends there that are going through similar experiences. Feel free to contact me off forum if you want to talk more about it I’m sure you are feeling overwhelmed with this new diagnosis. Hugs, Sharon From: [mailto: ] On Behalf Of jadacaden@...Sent: Wednesday, October 05, 2011 7:48 PM Subject: RE: On another note Sharon,Wow while I am sorry you also have GP, I am grateful to meet you in this community. My hubby got very scared when he seen my reaction to my mango smoothie and we didn't have a nut bag so we didn't strain. I had a little setback tonight, so he put me bk on gatorade for tonight. I just got way to excited even with everyone's warning to go slow and didn't follow our GP guidelines. Tomorrow will be different. The only really ok staple I can do is coconut milk and oddly nutella. Recently I found I tolerated yogurt quite well. So for tomorrow I am thinking a little yogurt, frozen banana with a small amout of nutella (I can only tolerate about a spoonfull). Its just so frustrating because I have tried sooooo many things and have had to rule everything out. ARGHHH! The hardest thing to realize is you have to try thing's to see if you can eat it, then you get sick and don't want to try anything else. (Im sure you know what I mean)But I am very aware of what will happen to me if I don't keep trying, so that I will do. I want to live well and not let this define me. Like my momma said, I didn't get sick overnight so won't get better overnight. Problem is I am still going through the 5 stages of coping. Everyday brings me closer, so I know before long my list will be long. I feel blessed to have the VM as a tool to help me. Do you have any other recipes you tolerate well that you might share? Also, my mother in law grabbed me some ice trays and a nutbag today so I know that will help. :)Thank you so much, being newly diagnosed sometimes makes me feel lost. Learning better choices everyday thanks to all of you guys.Counting Our Blessings,Please know while I may not can walk on my own, my praying knees are just find and your all in my prayers daily. --- Original Message ---_ Quote Link to comment Share on other sites More sharing options...
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