Guest guest Posted April 16, 1999 Report Share Posted April 16, 1999 Hello , Welcome to our group. Sorry to hear that you have been diagnosed with RA. I know how it is to have excruciating hip pain as I have it too. My OA Dr. has me on Relafen 500mgs. as I can't take surfar drugs. Bill, my husband, was diagnosed yesthday with OA and he is taking Celebrex 200mgs. He has it in his hips, and back. Celebrex has a WEB site. www.Celebrex.com if you would like to check it out. I have 800 number for Relafen 1-800-886-4865. I called that number and gave them my address and they sent me booklet called " Postive Steps " with some other information. I used to take ibuprofen but that didn't help. Then I took Napoxen and that didn't help. I left off taking that because it made me VERY sensitive to sun light. I used to get terrible headaches and have to wear my sun glasses in house. Since I no longer taking medication I am okay but it took 2 weeks before I felt better. There are alot of other nice people on here that can help you too. They have helped me. I used to just read messages and try and learn everything I could but now I try and help if I can. I do alot of research on WEB but not through juno. I use my husband's account on Servetech. We only have one computer so makes it hard but when he is not on working I come on. God Bless, Kay Rochester,NY ___________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com/getjuno.html or call Juno at (800) 654-JUNO [654-5866] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 1999 Report Share Posted April 16, 1999 Hello Jan, Thank you for explaining how Serzone works as no one ever told. I take it twice a day and YES, it does help. I don't know what I would do with out it. I have taken it since last Oct. when my primary care dr. told me I had some kind of arthristis but he didn't know what. That is when I began to hunt for a RA specialist and I found a good one. Dr. Tammi Shlotzhauer, M.D., she is head of Rheumatology Dept. of Unity Health in Rochester, NY. I called in Dec. and she was booked full. There was cancelation and I was given appointment for Feb. If not I would of had to wait till April and I didn't want to do that pain I was in. I have OA in my back, hips, and hands. I also have heel spurs. I am now taking Relafen 500mgs in AM as I can't take sulfar medication. It is helping! I still have my bad days but I feel much better. I pray you will continue to improve. God Bless, Kay Rochester, NY >Message: 9 > Date: Thu, 15 Apr 1999 17:54:26 -0400 > From: Jan Kirsten <jkirsten@...> >Subject: To Connie - Serzone and Pain Cycle > >Hi Connie and others, > >I have been on Serzone for 3-4 years now and maybe I can explain >something about how it >works and the business of anti-depressants and pain. > >First, I guess I've been assuming you all know about the pain cycle, >but maybe that's not >true. A person in chronic pain uses up their serotonin stores in their >body, and >especially in their brain. Lack of serotonin results in a couple of >things, foremost of >which are lack of sleep, depression, and increased pain. I haven't >been over this in >several years, but if memory serves me correctly, it is also during >sleep stage IV that >serotonin is most effeciently replaced. This is also the time when >bodily repair >functions operate. > >If you get caught in a chronic pain cycle, you use up the serotonin by >being in pain, and >because you're in pain, you can't replace the serotonin. You spiral >into more pain with >depression thrown in for good measure. This is not a matter of >depressed psychologically >because you hurt. It is a physiological reaction to the reduced >serotonin levels in your >brain, which in turn prevent you even further from getting the sleep >you need to improve >the pain, etc. ad infinitim. > >This is where the Serzone comes in (and other anti-depressants). They >very specifically >increase serotonin availability to the brain. They modulate some other >neurotransmitters >as well depending on the anti-depressant, but serotonin is the one >common to all used for >pain. The increase in serotonin is what allows you to sleep, and when >you first go on it, >you need to do a gradual build up to the right dosage to get the >sleep. When you start >too high, you get a serious serotonin rush that has you into very >vivid, hallucinatory, >often nightmarish dreams. You start low and do a build-up of 25-50 mg >every 3 days or so >until you are sleeping well. > >The side benefit is that as your serotonin stores are replaced, the >depression fades >away. NOTE: It is the pain being treated, NOT the depression. That is >why the dosages for >pain treatment are usually much, much smaller than when serzone is >used for primary >depression. > >The most critical thing in all of these chronic pain situations is to >get the pain >stopped ASAP, because that's when the cycle starts and you go >spiraling into the gates of >hell. It is extremely important to get the pain stopped, even if it >requires narcotics to >do so. For most cases, just the anti-depressant support for the >serotonin uptake is >sufficient. But if you head into a major flare and can find no normal >means (eg. NSAIDS) >to stop the pain, then something like Vicodin or stronger is >definitely in order. > >This is my past seven years experience in dealing with chronic pain >and using the >serotonin modulaters to deal with it. I've had some rough times since, >but I was in the >pain cycle continuously for a good two years to begin with, that >nothing in the past four >years can compare with. I truly came to believe that my core must be >essentially sane, >because I know the pain was so intense for so long that I should have >wound up in the >mental ward. I mean that in absolute, 100% seriousness. > >So the best to you all and good luck with your anti-depressant >ventures in combatting >these myriad disorders. > >Jan K > >Connie Hache wrote: > >> ------------------------------------------------------------ >> I also take Serzone, so we have something else in common. :-) It >has helped >> me a lot. At first I argued with my doctor.......I felt like >depression was >> some kind of " character flaw " , but have since then learned that it >definitely >> DOES accompany these arthritic diseases. I don't think people are >depressed >> because they are feeling sorry for themselves, either. It's >different than >> that....hard to explain, but I'm willing to bet that the chemical >workings >> become out of whack. My doctor also says it helps the muscles to >relax or >> whatever, and therefore I sleep through the night better now. ___________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com/getjuno.html or call Juno at (800) 654-JUNO [654-5866] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 1999 Report Share Posted November 9, 1999 I did not receive a digest for Monday - what happened? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2000 Report Share Posted February 3, 2000 Hi All, Hope everyone is doing OK. I need a recomendation for a salad dressing. Please send me a recipe or a brand name I have access to a very good health food grocery but all the lables confuse me. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2000 Report Share Posted February 3, 2000 Hi Somethere in one of our official books it gives a recipe for salad dressing which is basically olive oil, lemon juice and mustard powder. I've gotten kinda lazy and just use the olive oil and lemon juice. Aikya Re: Digest Number 176 > From: JRoesle@... > > Hi All, > Hope everyone is doing OK. I need a recomendation for a salad dressing. > Please send me a recipe or a brand name I have access to a very good health > food grocery but all the lables confuse me. Thanks, > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2000 Report Share Posted February 3, 2000 In a message dated 02/03/2000 9:16:06 PM Eastern Standard Time, JRoesle@... writes: << I need a recomendation for a salad dressing. Please send me a recipe or a brand name >> Try equal parts of oil (olive, walnut, flaxseed), line or lemon juice, wheat-free tamari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2000 Report Share Posted February 4, 2000 Please remove me from your email list. I have tried to unsubscribe, but keep receiving the emails. Re: Digest Number 176 From: Eso@... In a message dated 02/03/2000 9:16:06 PM Eastern Standard Time, JRoesle@... writes: << I need a recomendation for a salad dressing. Please send me a recipe or a brand name >> Try equal parts of oil (olive, walnut, flaxseed), line or lemon juice, wheat-free tamari _____ <http://adforce.imgis.com/?adlink|2.0|2|82042|1|1|misc=1215;loc=300;> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2000 Report Share Posted February 4, 2000 Please remove me from your email list. Re: Digest Number 176 From: " aikya " <aikya@...> Hi Somethere in one of our official books it gives a recipe for salad dressing which is basically olive oil, lemon juice and mustard powder. I've gotten kinda lazy and just use the olive oil and lemon juice. Aikya Re: Digest Number 176 > From: JRoesle@... > > Hi All, > Hope everyone is doing OK. I need a recomendation for a salad dressing. > Please send me a recipe or a brand name I have access to a very good health > food grocery but all the lables confuse me. Thanks, > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2000 Report Share Posted February 4, 2000 Please remove me from your email list. Re: Digest Number 176 From: JRoesle@... Hi All, Hope everyone is doing OK. I need a recomendation for a salad dressing. Please send me a recipe or a brand name I have access to a very good health food grocery but all the lables confuse me. Thanks, _____ <http://adforce.imgis.com/?adlink|2.0|2|82042|1|1|misc=1212;loc=300;> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2000 Report Share Posted February 4, 2000 , If you are a Type O, I would suggest making your own. Finding something without some type of vinegar is almost impossible. I have purchased Dr. D'Adamo's second book, " Cook Right 4 Your Type " . On page 326 is an Olive Oil & Lemon Dressing, using lemon juice to give it the sour aspect. You can modify it as you wish, adding whatever herbs and spices are ok for Type O. I use basil, chervil, garlic powder, arrowroot, oregano, etc. I also use lecithin, which helps it to stick together better. You can also use it as a sauce for fish (yummy on salmon) or vegies. I haven't tried it on meat!! Happy Food!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2000 Report Share Posted February 4, 2000 You have to remove yourself. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2000 Report Share Posted February 28, 2000 Hi all, I have not written lately, am always listening....Chacne (6 yrs) woke up yesterday crying that his lower legs were hurting. It went on about all day. This morning, again, the same thing. He is fine if he is sitting or laying, but when he walks he is walking on his tippy-toes and his knees are bent outward. He says he cannot walk with his heel down b/c it hurt. Is this something others experience due to CMT? He told me that his legs have hurt there before, but never to this point. I am not sending him to school today, and am worried. He has a doctors appointment March 15 with a new dr. b/c the one he has now just says there is nothing that can be done, that it will progress..da da da....you know the story. So anyway what do I do until March 15. Yesterday when we left the house we had to carry him to the car b/c he was in so much pain getting down the stairs. amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2000 Report Share Posted May 17, 2000 Colton's case conference is Thursday May 18th at 1:00 p.m. Would appreciate your prayers. How is doing? Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2000 Report Share Posted June 6, 2000 Dear All: Thanks for all the kind words and thoughts. Everyone should stick together and become the " squeaky wheel " so the Dragon can be totally slayed. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2000 Report Share Posted June 7, 2000 Marty, You are exactly correct. All of you are what helps me keep what sanity I have left. Love you all, Virginia byteme wrote: > Dear All: > Thanks for all the kind words and thoughts. Everyone should stick > together and become the " squeaky wheel " so the Dragon can be totally > slayed. Marty > > ------------------------------------------------------------------------ > Old school buds here: > 1/4057/0/_/619765/_/960339440/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 MY DAUGHTER HAS VERBAL APRAXIA , I HAVE BEEN HEARING SO MANY POSITIVE THINGS ABOUT PROEFA. CAN YOU PLEASE GIVE ME MORE INFORMATION ABOUT IT AND WHERE CAN I PURCHASE IT, THANK YOU , CHERYL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 , I will be eager to hear the tummy tuck goes, mine us scheduled fir the last week if July. My surgeon has said that it's no worse that the open hernia surgery. I've had two of those and while they aren't painless, they aren't unbearable either. You're more sore than in pain. Are you having any other procedure done at the same time? I'm having the hernia repaired for the third time along with the tummy tuck. Same location, just slightly different side that the first two. You'll do fine, and have a wonderfully flat tummy to show off. Keep us updated, in Chapel Hill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 Morning Bonnie..just wanted to say hi and good morning...just passing this on to you..ill be gone all day...seeing my internist today and i have other apppts also..hope you have a great day you and perry the little sweety...and yes im feeling so much better...kinds makes me think i dont want to do tx again..which is one of the reasons i dont want to wait till im feeling sooo good again and than start...the sooner th ebetter i htink for me that is...i wonder if im gonna have to wait????well sweety so much to say and such little time..its 5:05 am, and im gonna go back to bed for an hour and than hit it...be well my dear sweet friend..in Light & Hope Felisha((((((((HUGGS))))))))))))) wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 OOPPSSSSSSSSS!!!!!that messege was meant to be forwarded to my friend bonnie...sorry for this silly mistake...be well all ...Felisha wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2002 Report Share Posted October 13, 2002 In a message dated 10/13/2002 4:15:47 AM Eastern Standard Time, writes: > MY MOVING HELL DIATRIBE > > Hi , I have a terrible cold with cough that is kicking my ass. I feel like hell and am as mean as a snake. Reading you diatribe made me laugh my wheels off. I pictured you zooming down the road to the new house with the witches music from " the wizard of oz, " playing in the back ground. I know it wasn't funny to you, but your story was written so well, it was a great " pick me up " for me. You are my kind of people. Too bad we're not neighbors. I bet we'd have a blast together. Hopefully things are getting somewhat orderly now. We moved in May and I'm still waiting to get the first picture hung. Oh well, maybe before the new year. Take care, Vickie in Atl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2002 Report Share Posted October 26, 2002 My experiences echo Kim's. Desens didn't reduce the polyps - neither did cortisonne tabs much - only surgery. Only then do the drugs work... But only time will tell if it reduces the rate at which the polyps grow back. So far things aren't working well, so I'm trying a completely new tack - raw food diet. I'm sick of taking tablets of any persuasion! Meanwhile I'll continue with all my bottles of pills and hope that the diet will take the load of this silly immune system. Six months after surgery (fourth) I don't have a sense of smell - unless I take prednisolone. My sense of smell returned off and on for a couple of weeks after surgery (which took longer to heal and was more painful this time, to the surprise of the surgeon). I had to go off aspirin for several weeks before the surgery, so had to be desensed again soon after. Doctors won't operate if you're taking aspirin. all the best, Beverley Author of " The Chimaera Conspiracy " , new Australian YA action-packed sci-fi mystery novel. http://chimaera.topcities.com available from http://greaterglider.com and " Getting Started with Homeschooling " and " Learning in the Absence of Education " available from http://members.ozemail.com.au/~beverleypaine/homeschool Unschool~Kidz! http://exeat.com/education/unschoolkidz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2003 Report Share Posted November 24, 2003 , WHat you described was the same for my daughter . Our surgeon (Dr. ANderson, Salt Lake City UT) also recommended that I massage Vit E oil into her incisions (after the first week) to minimize scarring. Cheri Vahl blepharophimosis Digest Number 176 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2003 Report Share Posted November 25, 2003 Hello! My daughter has had 2 surgeries for her BPES. Our plastic surgeon says it really doesn't matter what you use to massage the scars. VIt E ( or whatever ) is just used to reduce the friction and really is not absorbed. He says it's the massaging that helps remove the older skin cells and encourage new ones to be produced which decreases the scarring. At least this was my understanding. My daughter actually did it herself using vit E. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 See thats what I get for reading the group on digest. Everything blurs together in one message. You Cathe freaks are crazy...just kidding. Thats awesome Donna that you can do those. And Carolyn of course is awesome no matter what. Today is my off day just because work is killing me and I have to go out of town in ten minutes. EEKS!!!!! a -- _______________________________________________ Find what you are looking for with the Lycos Yellow Pages http://r.lycos.com/r/yp_emailfooter/http://yellowpages.lycos.com/default.asp?SRC\ =lycos10 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 At 06:03 PM 10/22/2004, a Frey wrote: >And Carolyn of course is awesome no matter what. oh you are so sweet paula i havent been so awesome for the past week though -- have fallen off of the wagon this week has been hell on earth as i prepared to be descended upon by my husbands large family this weekend. i fear that im gaining back the weight that ive lost in the last few previous weeks! ugh! i wont be able to get a workout in until monday. i hope that i last that long! i feel huge and very unfit!! -carolyn. Quote Link to comment Share on other sites More sharing options...
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