Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 Thanks Gail, I appreciate everyone's kind words and support. Casey, mom to (DS) and , 19mo. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 Casey, When my Hannah had her surgery, she ended up staying in the hospital for 12 days. She was in ICU for 9 days. Her surgery went well. The problem was she wouldn't breath on her own when they went to pull the breathing tube out. They would try a little everyday and turn down the oxygen a little at a time. Then her vocal cords started to swell and they couldn't pull the tube out at all. So they gave her steroids trying to get the swelling down. Her vocal cords returned to normal and the tube came out! Yay!!! She got her own room and we were out of there in a couple of days. She also had a little complication with the incision they made on her wrist to put the IV. The whold experience for us was not a pleasant one I must say. Having to only see your child every 4 hours at 15 minutes at a time for 9 days was heartbreaking. I am not trying to scare you just want you to be prepared for anything. Like I said, the heart surgery went really well. It was just those darn vocal cords that didn't want to cooperate. : ) I think for Hannah it took her a few days after being home before she went back to herself. She bounced back with flying colors. Without the surgery, she would not be with me today. Before she had the surgery she would not eat or hardly move. Now she won't be still and she eats like a pig. lol.... She is my Hannah Banana............... Pam mom to Hannah and ID who will be 6 tomorrow. OMG stephaniesmom200@... wrote: Hello all, To you who have experience with heart surgery. . . . . how long did it take for your child to be moving around some and back to themselves in terms of mood and emotion? What about physically. . . . how long until you didn't have to be careful about how you picked them up or protect them from siblings (affection) and they were moving the way they had before the surgery? How miserable is likely to be while in the hospital? They are estimating 4-5 days there, does that fit with your experience(s)? I'm trying to get prepared for what I/we are in for as the day is approaching faster than I am ready for. I appreciate whatever input and experiences you all have to share. That is one of the many wonderful things about this group -- common experiences and understanding. Thank you! Casey, mom to (DS) and , 19 mo. http://DSyndrome.com/Multiples Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 Casey, I'm sorry that has to go thru this needed surgery, Tara , so far has no history of surgery, but just wanted to lend you my support and let you know we are " hearing " you as you and your family go thru this................ Gail.........Bobby 7, Jillian 4 3/4, and Tara{Ds} 26 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 My dear sweet 1 1/2 year old daughter is having open-heart surgery in a few weeks. I'm wondering if anyone has any advice to offer. I am not unusually worried but thought the group may have some words of wisdom to share. Thank you, Carol - Mom to 1 1/2 ds, Portland, OR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2009 Report Share Posted December 21, 2009 Hi Carol, my son Tait has the AVSD open heart at 5 1/2 months. Believe me, I will admit I was a wreck. But it helped once I talked with the surgeons, knew what to expect so ask questions. The other thing is that our kiddos are strong, Tait bounced back and flourished after the surgery. Make sure you have a support system in place, help for when you are staying in the hospital during and after. We didn't have that and it was hard. We really found out who are true friends were during this time. So utilize families and friends. Will keep in our prayers. -- Jeanette “Be the change you want to see in the world.” ~ Mahatma Gandhi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2009 Report Share Posted December 21, 2009 My girl had 2 surgeries, ages 3 days and 5 months. The very good news for you is twofold: A: She is 1 ½ before needing surgery – excellent! B: Children w/ds, for some reason, do better following heart surgery, i.e. they recover faster than kids wo/ds. Go figure. One of the few places we get a much needed break. What kind of surgery is she having? You will be in my prayers. Eleanor Green From: [mailto: ] On Behalf Of Carol Middendorp Sent: Saturday, December 19, 2009 1:14 AM Subject: Heart Surgery My dear sweet 1 1/2 year old daughter is having open-heart surgery in a few weeks. I'm wondering if anyone has any advice to offer. I am not unusually worried but thought the group may have some words of wisdom to share. Thank you, Carol - Mom to 1 1/2 ds, Portland, OR Quote Link to comment Share on other sites More sharing options...
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