RE: using force Re: Feeding issues Re: Thanksgiving

[Guest guest]

What is it with KKI lately? We had Jess up for a routine check last summer

but they messed up the scheduling so she didn't even get to see Capone.

We're still waiting for the audiology report and that was done by someone

different than she had been seeing or we had expected. Seems like the care

was better when the place was physically run down than it is now that the

buildings are all renovated!

Judi

From: [mailto: ] On Behalf

Of Kiersten

Sent: Tuesday, December 01, 2009 12:39 AM

Eleanor;

Subject: using force Re: Feeding issues Re: Thanksgiving

I cannot say for sure, but that was one of the reasons some of the people at

Mt. Washington left KKI. That is what they told me, anyway. They said that

at KKI, force and LONG sessions of " wear them down " were what KKI did. I

would never had accepted that. Of course, I do not know that as a fact, it

was heresay. At Mt. Washington, there were time limits on the feeding

session. Reasonable. Alden had breakfast, snack, lunch, snack on an

outpatient basis... every day, 5 days a week, for 4 months the first time.

Wow... we all really stuck it out. But there was no force. I really learned

a lot.

We had one therapist come into our home prior to this when Alden was still

G-tube fed mostly. He must have been about 3 years of age? She tried to

force feed him. I stopped that immediately. He refluxed ALL over her, too. I

was ticked off (but didn't show it... just stated my beliefs and

reemphasized his diagnosis of reflux and the care we were to take.) She did

NOT last long at all.

If feeding issues of any type are a problem with our kids, I think it is

well worth our time to look into and visit the nearest feeding clinic,

especially if you can get insurance to cover it. I think, once you interview

the facility and do some observation, one would know if they were on the

right track and it can be so helpful. So much of what I learned transfers to

other areas that need discipline. It really was, as I felt along the

journey, a common sense, natural consequence with much reward when

successful program.

> >

> >From: Mom2lfm@... <mailto:Mom2lfm%40aol.com>

> <Mom2lfm@... <mailto:Mom2lfm%40aol.com> >

> >Subject: Re: Thanksgiving

> >Loree5@... <mailto:Loree5%40aol.com> ,

<mailto:%40>

> >Date: Sunday, November 29, 2009, 4:37 PM

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> >Liam gets in 'food ruts' all the time. During

> Thanksgiving dinner he decided not to eat. His Aunt

> reached over, picked up his food and fed him.

> Something I wouldn't do, but it worked. It turned out

> to be more of a question of attention, than texture or

> taste. I think sometimes it's a control thing.

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> >

> >Kathy, Liam's mom (11,ds,diabetes, asthma)

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> > Thanksgiving

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> >Hello Everyone,

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> >

> >I am reading peoples posts about mis-diagnosis, use of

> meds etc. I work in

> >

> >the psych field and see this so often. It is very hard

> especially with

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> >children, and children with complex needs to get a good

> assessment and

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> >appropriate medication. I am sure that you as parents

> did the best you

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> >could to get good assessments (I have read your posts

> for years and know

> >

> >that you did)...... it is also true that in the field

> of psych things just

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> >are never clear cut black and white.....even if the

> meds a person are on

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> >work wonderful today they may not tomorrow for a

> multitude of reasons. *I

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> >am glad that your childs' providers are now listening

> to you and working

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> >with you and your child. That relationship ie of open

> listening and regard

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> >for each others perspectives is what is most

> important... ..I will now get

> >

> >off my soap box......somehow this whole thread struck a

> chord in me!!!*

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> >*

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> >*

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> >*I agree that these long weekends are wonderful.

> Meghan (13 DS) and

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> > (15 NDA) and I have been having lovely, lazy

> time. Meghan is doing

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> >well. She spent 4 days in the hospital late summer for

> complications that

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> >came from of all things hand, foot and mouth virus....I

> guess it is a fairly

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> >mild deal when younger children get it however she was

> very sick. Part of

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> >the virus is to get yucky sores in your mouth and

> throat...well she had

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> >that.....and because she has issues with taste and

> texture there was NO WAY

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> >that she would use the lidocaine wash so that the sores

> wouldn't hurt.....so

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> >her mouth hurt...she stopped eating or drinking...got

> severley dehydrated.. a

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> >bowel obstruction. .got a urinary tract infection that

> proceeded to a severe

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> >kidney infection... .and on and on and on......she was

> down for three weeks

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> >and finally got better enough to start school a week

> late.....now she is

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> >great! An interesting note is that we had started

> several months earlier

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> >with a new pediatrician group....when Meghan was first

> ill I tried to get

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> >them to work with me...no luck...however I found a

> wonderful Indian Doctor

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> >who runs his own pediatric Urgent Care.....what a

> gift....when she finally

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> >had to be admitted to the hospital her original

> pediatric group were the

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> >ones who were the Docs on call there.....They were

> stunned..... and actually

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> >took the time to ask what had happened when I

> approached their office in the

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> >early stages of her illness..... so I told them and

> they did listen and their

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> >care of her and their willingness to listen to me was

> great from then

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> >on......*

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> >*

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> >*

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> >*Meghan still likes to call herself a " boy " ....she

> soooo wishes she could

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> >grow a mustache!! I have just remained nonchalant with

> it all and it is not

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> >a primary issue. What I am struggling now with her (and

> could use some

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> >advise/support. .your wisdom) is that b/c of her taste

> and texture issues she

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> >has a limited diet...chicken nuggets, french fries, hot

> dog buns, macaroni

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> >and cheese caffeine free coke (although honestly she

> knows the difference

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> >and gets in a real coke if she ever can).......She has

> gained weight and so

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> >while I try and am unsuccessful in getting her to vary

> her diet she LOVES

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> >sports and exercise so I am really trying to provide

> her with opportunities

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> >every day for that.....Rick I think of your bicycle for

> TV and wish you

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> >would market your invention!!! I would like to know if

> others have had this

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> >taste, texture issue and how you dealt with it.*

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> >*Well I have gone on quite long... I wish you all the

> best this Holiday

> >

> >Season and I appreciate the Community of this list.*

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> >**

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