Sleep disorder

February 3, 2003

I read on the melatonin once that if it quit working to stop it for awhile

and then re-start it, not to just keep increasing it. Forgot where the

article was, been years ago. I did find that giving Evan the

kirkmanlabs.com melatonin with magnesium worked the best. Melatonin by

itself would put him right to sleep but up he would come about 4 hours

later. The magnesium help keep him asleep. I have also heard that if they

are deficient in zinc it could cause sleep problems. Have your tried zinc

supplements?

Betty - possibly Bipolar but undx'd, Effexor, Buspar, Omega 3's

grandma and guardian to

- 11 yo-- Bipolar/ADHD on Depakote, Adderall, Omega 3's

Evan - 8 yo nonverbal autism on 4 mg Risperdal, 1 mg Tenex

- 6 - Bipolar/ADHD/PTSD on Tegretol, Adderall, clonidine .1 mg, Omega

3's

mother to , their mom - Bipolar/ADHD on Topamax

wife to Bob - Effexor and too more many meds to remember

----- Original Message -----

Have done

> the dietary, meletonin did work for a while, clonodine did not help

> and we just are at our wits end. The doctors just don't know. Just

> asking out their has anyone had these issues and any suggestions

> (parents always seem to know best). Thanks, sleepy parents

February 3, 2003

Hi.

Do we have sleeping issues? Do donuts have holes? Oh my goodness -- we

have a child who won't sleep. In fact, right now she's still in bed, and

is missing school, because she was up until well after 1:00 this morning.

She just turned 11.

You've done all that we've done. We also did Benadryl for a while. It

worked, but only for a while. We tried Melatonin, but the psychiatrist we

work with says Melatonin will only work if our daughter's circadian rhythm

is off. It's not. It's because of anxiety. We give her Luvox and

Buspar -- both of which are supposed to be mildly sedating. NOT!

I'm tired as a result. My relationship with my hubby is affected. It feels

like we're in a vacuum. What ticks me off is when doctors suggest she

doesn't need as much sleep as we think she does. Then they seem to not hear

me when I tell them that if we leave our daughter alone to set her own

schedule she sleeps from 10 to 12 hours (just like her Mom!).

Sorry I don't have any answers. Sorry to rant like this, too. Hope someone

offers some new suggestions.

Missy

sleep disorder

Hi, we are new to the group but have been around the block. Our son

is 8 years old and he has had horrible sleep patterns since 3 1/2

years old. Takes over 3 hours to fall asleep, wakes up a couple days

a week between 1am - 3am and is up the rest of the day. Have done

the dietary, meletonin did work for a while, clonodine did not help

and we just are at our wits end. The doctors just don't know. Just

asking out their has anyone had these issues and any suggestions

(parents always seem to know best). Thanks, sleepy parents

February 4, 2003

Karac is 10 and has sleeping problems at home, but no sleeping problems at my

house; I am grandmother. I have the room pitch dark; the window unit on

constant blowing noise, and I have the room cold; so he can sleep on heavy

covers. I have tried to tell his mother that his room is too light and too

noisy, but she doesn't pay any attention to me. I give him a bath at 7:00;

turn on Aristocats, and he is asleep by 8:00. She puts him to bed at 9:00 or

10:00 and he goes to sleep but is up for the rest of the night at about 3:00

or 4:00. I'm the mother-in-law; what do I know? smile. Pat K

February 4, 2003

> sleep disorder

>

> Hi, we are new to the group but have been around the block. Our son

> is 8 years old and he has had horrible sleep patterns since 3 1/2

> years old. Takes over 3 hours to fall asleep, wakes up a couple days

> a week between 1am - 3am and is up the rest of the day. Have done

> the dietary, meletonin did work for a while, clonodine did not help

> and we just are at our wits end. The doctors just don't know. Just

> asking out their has anyone had these issues and any suggestions

> (parents always seem to know best). Thanks, sleepy parents

I am new to this group as well, and I guess I have been around the block

awhile too. My son is 7 1/2. When he was 3, I went through the same thing

with him. I know how you feel! He wasn't sleeping but a few hours a night. I

friend of mines' doctor (and mine ok'd it) recommended a supplement of (all

natural) sleeping/relaxing herbs called Sedaplus. I highly recommend it, it

worked wonders for us and my son started sleeping through the night!! We

don't have this issue with him now, however, but if we have to fly anywhere,

it helps him relax through the plane ride. Since this time, my son started

the gfcf diet, (eliminated other allergic foods as well), takes supplements,

enzymes. I believe all this has really helped him as well. I also know if my

son doesn't get enough calcium and magnesium, he won't sleep well. Anyway, I

buy the Sedaplus online ,and it's pretty inexpensive. If you would like the

website where I get it, I will be happy to post it.

February 4, 2003

Mine is almost 8 also. She has never gone to sleep early (unless she is

sick), but is a good sleeper.

Our problem for almost a year now is that she won't sleep in her room. So

while we do sleep, we don't have any privacy (she sleeps on a bed in our

room...had to put a bed in there because I kept finding her curled up on the

floor, no blanket or pillow, in the morning.

Hope someone has some ideas for you...I've had no luck with getting her back

in her room.

Penny

sleep disorder

Hi, we are new to the group but have been around the block. Our son

is 8 years old and he has had horrible sleep patterns since 3 1/2

years old. Takes over 3 hours to fall asleep, wakes up a couple days

a week between 1am - 3am and is up the rest of the day. Have done

the dietary, meletonin did work for a while, clonodine did not help

and we just are at our wits end. The doctors just don't know. Just

asking out their has anyone had these issues and any suggestions

(parents always seem to know best). Thanks, sleepy parents

February 5, 2003

>I'm the mother-in-law; what do I know? smile. Pat K>>

Actually, I learned quite a bit from my first mother in law. She was a

mother to be before my own came back to being my mother. And she did not

cast me aside when her son went after his second wife but adopted my new

husband as a son in law and our daughter as a grandchild. Showed the same

care for the second discarded wife also. Her darling boy finally settled

down with the 3rd wife or maybe she kept a better eye on him but that is

another story. My present husband of 32 years had a birth mom who dumped

him as a baby off on a farm family--never even adopted him out so he would

have legal parents who cared for him, so of course, she was not much of a

role model.

In time, maybe Karac's mom will get the idea.

Betty - possibly Bipolar but undx'd, Effexor, Buspar, Omega 3's

grandma and guardian to

- 11 yo-- Bipolar/ADHD on Depakote, Adderall, Omega 3's

Evan - 8 yo nonverbal autism on 4 mg Risperdal, 1 mg Tenex

- 6 - Bipolar/ADHD/PTSD on Tegretol, Adderall, clonidine .1 mg, Omega

3's

mother to , their mom - Bipolar/ADHD on Topamax

wife to Bob - Effexor and too more many meds to remember

February 5, 2003

You had a very nice mother-in-law, and my guess is you were a very nice

daughter-in-law. I always enjoy your emails. Pat K

February 9, 2003

Debbie,

I get the Sedaplus from www.naturalhealthconsult.com

It is a capsule. My son doesn't swallow pills so we empty it out and

mix it with black cherry juice (it helps mask the taste.) I will warn

you though, if you empty it out, it doesn't smell very good (to me

anyway.) My son is used to taking supplements this way, so it doesn't

bother him. I really hope this helps you all!! Please keep me posted

on how your doing. Take care,

>

> , thank you for your post. Could you please tell me where you

buy the Sedaplus from. We would like to try it for our son. Is is

liquid or a pill you have to swallow. Can you chew it or crush it.

Thanks again for responding to our post. Sometimes it's the parents,

not the doctors who know how to help. Best wishes to you and your

family. Debbie (sleep disorder) wags122003@y...

October 14, 2009

Hi everyone. My name is and I am mom to Ivan, 5 with DS, and

Angelina, 4 with CP. My question is regarding Ivan's problems sleeping at

night. I should clarify, it's MY problem with his sleeping patterns, he's just

fine with it! Ivan sleeps less than 6 hours a night and very intermittently.

He goes to bed at 8:00 p.m. every night. He goes to bed awake and I don't sleep

with him or lay down with him. He goes to sleep fairly quickly, in 20 minutes

or less, but he only sleeps soundly for 20 or 30 minutes at a time. Then he

starts tossing and turning and he wakes up completely in 45 minutes to an hour.

This goes on all night every night. Sometimes he's ready to get up at 2:00 a.m.

and play but he never sleeps past 6:00 a.m. I have videotaped him sleeping 4

times. He has also had 2 sleep studies at Arkansas Children's Hospital. The

first study showed very little apnea but many episodes of obstructive hypopnea.

Based on that, his ENT performed the P3 soft palate surgery. The second sleep

study showed little apnea and little obstructive hypopnea but much restlessness

which is what we experience at home. The ENT told me to give him OTC Melatonin

and we go back the end of this month to talk to the " sleep team " . He doesn't

drink caffeine, he doesn't watch tv before bed, we follow all the " good sleep

guidelines " and always have, but he still doesn't get good rest. Has anyone

else experienced this and if so have you found a good remedy?

Sleepless in Arkansas,

October 14, 2009

is a restless sleeper, and has had to tonsils and adenoids

removed, which didn't seem to help much. We're fairly certain from

observations and the ENT that she has mild sleep apnea, but it's not

severe enough to try and to a CPAP or similar, so we live with it.

However, when wakes up, she gets herself back to sleep pretty

quickly, so besides the bumping of her headboard (that I hear because

I'm a mom, LOL) when she's tossing, and her nightly conversations in her

sleep, we're just dealing for now. I can't imagine what you are going

through... I'm tired enough from hearing her, and she does get

significantly more sleep than your son.

Now, hubby has been having trouble with walking up and not being able to

go back to sleep, so he tried the OTC melatonin, and it works great for

him! He tried a couple different dosages until he found the right one,

and he loves his newfound sleep. Although he thinks he still wakes up

occasionally, he doens't wake up fully, and goes right back to sleep,

which is what he needed. No side effects. I would certainly try the

melatonin with your son, and perhaps the " sleep team " will have some

good suggestions too. at this age would just wander in to our

room when she woke up (2 am?, usual first time) and it was getting old,

as she was getting big!

, mom to (13), (11 DS), and Sammy (10)

t21mom@... wrote:

>

> Hi everyone. My name is and I am mom to Ivan, 5 with DS, and

> Angelina, 4 with CP. My question is regarding Ivan's problems sleeping

> at night. I should clarify, it's MY problem with his sleeping

> patterns, he's just fine with it! Ivan sleeps less than 6 hours a

> night and very intermittently. He goes to bed at 8:00 p.m. every

> night. He goes to bed awake and I don't sleep with him or lay down

> with him. He goes to sleep fairly quickly, in 20 minutes or less, but

> he only sleeps soundly for 20 or 30 minutes at a time. Then he starts

> tossing and turning and he wakes up completely in 45 minutes to an

> hour. This goes on all night every night. Sometimes he's ready to get

> up at 2:00 a.m. and play but he never sleeps past 6:00 a.m. I have

> videotaped him sleeping 4 times. He has also had 2 sleep studies at

> Arkansas Children's Hospital. The first study showed very little apnea

> but many episodes of obstructive hypopnea. Based on that, his ENT

> performed the P3 soft palate surgery. The second sleep study showed

> little apnea and little obstructive hypopnea but much restlessness

> which is what we experience at home. The ENT told me to give him OTC

> Melatonin and we go back the end of this month to talk to the " sleep

> team " . He doesn't drink caffeine, he doesn't watch tv before bed, we

> follow all the " good sleep guidelines " and always have, but he still

> doesn't get good rest. Has anyone else experienced this and if so have

> you found a good remedy?

>

> Sleepless in Arkansas,

>

October 14, 2009

Thanks . Ivan has had his tonsils and adenoids removed and sinus

surgery as well. All of that helped his chronic illnesses, but not his

sleep issues. After months of trying the Supernanny tricks like taking

him by the hand and taking him back to bed without saying a word, I

finally put a baby gate in front of his bedroom door. Then he just

stood at the gate yelling Mommy! I really think ignoring him would work

and he would eventually go back to bed, probably without even crying,

but I don't want him to wake up his sister down the hall. And that

doesn't resolve helping get more rest as well. He is very alert during

the day, but my happy, lovable, little boy has started to become a real

behavior problem at preschool over the last few months and I can't help

but think it is related to fatigue. He has never acknowledged pain in

his life, with fever, when his thumbnail was entirely ripped off, after

soft palate surgery he was sitting in recovery eating a graham cracker

and drinking a Sprite! So I don't think he would, or possibly could,

let us know if he felt fatigued or bad in any way.

, Mom to Ivan (5 DS), and Angelina (4 CP)

Kerrigan wrote:

>

> is a restless sleeper, and has had to tonsils and adenoids

> removed, which didn't seem to help much. We're fairly certain from

> observations and the ENT that she has mild sleep apnea, but it's not

> severe enough to try and to a CPAP or similar, so we live with it.

> However, when wakes up, she gets herself back to sleep pretty

> quickly, so besides the bumping of her headboard (that I hear because

> I'm a mom, LOL) when she's tossing, and her nightly conversations in her

> sleep, we're just dealing for now. I can't imagine what you are going

> through... I'm tired enough from hearing her, and she does get

> significantly more sleep than your son.

>

> Now, hubby has been having trouble with walking up and not being able to

> go back to sleep, so he tried the OTC melatonin, and it works great for

> him! He tried a couple different dosages until he found the right one,

> and he loves his newfound sleep. Although he thinks he still wakes up

> occasionally, he doens't wake up fully, and goes right back to sleep,

> which is what he needed. No side effects. I would certainly try the

> melatonin with your son, and perhaps the " sleep team " will have some

> good suggestions too. at this age would just wander in to our

> room when she woke up (2 am?, usual first time) and it was getting old,

> as she was getting big!

>

> , mom to (13), (11 DS), and Sammy (10)

>

> t21mom@... <mailto:t21mom%40rocketmail.com> wrote:

> >

> > Hi everyone. My name is and I am mom to Ivan, 5 with DS, and

> > Angelina, 4 with CP. My question is regarding Ivan's problems sleeping

> > at night. I should clarify, it's MY problem with his sleeping

> > patterns, he's just fine with it! Ivan sleeps less than 6 hours a

> > night and very intermittently. He goes to bed at 8:00 p.m. every

> > night. He goes to bed awake and I don't sleep with him or lay down

> > with him. He goes to sleep fairly quickly, in 20 minutes or less, but

> > he only sleeps soundly for 20 or 30 minutes at a time. Then he starts

> > tossing and turning and he wakes up completely in 45 minutes to an

> > hour. This goes on all night every night. Sometimes he's ready to get

> > up at 2:00 a.m. and play but he never sleeps past 6:00 a.m. I have

> > videotaped him sleeping 4 times. He has also had 2 sleep studies at

> > Arkansas Children's Hospital. The first study showed very little apnea

> > but many episodes of obstructive hypopnea. Based on that, his ENT

> > performed the P3 soft palate surgery. The second sleep study showed

> > little apnea and little obstructive hypopnea but much restlessness

> > which is what we experience at home. The ENT told me to give him OTC

> > Melatonin and we go back the end of this month to talk to the " sleep

> > team " . He doesn't drink caffeine, he doesn't watch tv before bed, we

> > follow all the " good sleep guidelines " and always have, but he still

> > doesn't get good rest. Has anyone else experienced this and if so have

> > you found a good remedy?

> >

> > Sleepless in Arkansas,

> >

>

October 14, 2009

I was given a suggestion by our Developmental Disability county people here

about sleep issues.

You keep your child up to at least midnight for about 3-5 nights. You wake them

at the time you need to get them up in the morning. ex: 630am

You have to keep them awake during the day so when they go to sleep they are so

tired that will actually hit rem sleep for deep long sleep.

After the 3-5 days, depending on how it's going, you back up the bedtime to

11:45pm and keep adjusting by 15mins every 3-5 days until the child gets to a

good bedtime for them and their body learns to sleep.

Just a thought of something to try.

leslie-kerrigan@...

CC:

From: everybreathhasareason@...

Date: Wed, 14 Oct 2009 14:55:58 -0500

Subject: Re: Sleep disorder