Education

[Guest guest]

Have you tried Bari MD? You can watch archived events over the internet. www.barimd.com Wonderful presentations from our very own (Jeanne and Abbe) Beth Taschuk RD St. Luke Hospitals Kentucky dorothymclaughlin1 <dmclaughlin@...> wrote: Can someone please inform me of any educational program for dietitians focusing on bariatrics? (or for nursing or physical therapists?)I know that there is the ASBS, but the conferences seem to be

across the US. I am located in central NY. Thanks!! __________________________________________________

[Guest guest]

Go Nina!!

Hang in there

Mandi x

[Guest guest]

Nina, I called an early AR for , at that meeting the ST said he was stopping direct therapy after the Summer term and OT is set to do the same therefore they had to change the statement, took forever to do it though as they know change of statement means, challenge and ultimately tribunal.

What basis did yu give them for changing the statement?

Vicky

[Guest guest]

Nina,

Why do you think they are refusing to change the boys' statements?

If you go media, one of your stops should be Ian Hyslop at the Private

Eye. He loves to see justice prevail!

nina lteif schrieb:

>

>

> JUST WANTED TO SHARE THIS. I RECIEVED A LETTER TODAY AFTER MONTHS OF

> LEA WASTING TIME , THEY ARE NOT GOING TO CHANGE MY BOYS STATEMENTS

> EVEN AFTER BEEN SEEN BY THREE PROFESSIONALS.WHAT A JOKE ? THEY ARE NOT

> EVEN PREPARED TO DO REASSESSMENT ANY WAY ANOTHER FIGHT , APPEAL AND

> TRIBUNAL NOW I FEEL. SURREY COUNTY COUNCIL ARE SERIOUSLY GONNA WISH

> THEY HAD NEVER HEARD MY NAME, ITS SERIOUS ARSE KICKING TIME WITH

> EDUCATION AND ALL THIS FARSE OF A SYSTEM. OH AND WE HAVE THE COURT

> CASE FRIDAY , INITIAL HEARING , HOPING JUSTICE WILL PREVAIL AND I HAVE

> THE MEDIA THERE, AND I AM SURE IT WILL BE COVERED NATIONAL TOO. I ALSO

> MET WITH MP MICHEAL GOVE AND HAVE ANOTHER MEETING , HES THE SHADOW

> SECRETARY TO ED BALLS .ANYWAY FINGERS CROSSED COS I AM ON A PATH NOW

> WHERE ITS GONNA GET VERY INTERSETING, CALL ME RODGER COOK X NINA

>

>

> ------------------------------------------------------------------------

>

>

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17:56:00

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[Guest guest]

Ok and good luck Nina! xxx

>

> JUST WANTED TO SHARE THIS. I RECIEVED A LETTER TODAY AFTER MONTHS OF LEA

WASTING TIME , THEY ARE NOT GOING TO CHANGE MY BOYS STATEMENTS EVEN AFTER BEEN

SEEN BY THREE PROFESSIONALS.WHAT A JOKE ? THEY ARE NOT EVEN PREPARED TO DO 

REASSESSMENT ANY WAY ANOTHER FIGHT , APPEAL AND TRIBUNAL NOW I FEEL. SURREY

COUNTY COUNCIL ARE SERIOUSLY GONNA WISH THEY HAD NEVER HEARD MY NAME, ITS

SERIOUS ARSE KICKING TIME WITH EDUCATION AND ALL THIS FARSE OF A SYSTEM. OH AND

WE HAVE THE COURT CASE FRIDAY , INITIAL HEARING , HOPING JUSTICE WILL PREVAIL

AND I HAVE THE MEDIA THERE, AND I AM SURE IT WILL BE COVERED NATIONAL TOO. I

ALSO MET WITH MP MICHEAL GOVE AND HAVE ANOTHER MEETING , HES THE SHADOW

SECRETARY TO ED BALLS .ANYWAY FINGERS CROSSED COS I AM ON A PATH NOW WHERE ITS

GONNA GET VERY INTERSETING, CALL ME RODGER COOK X NINA

>

[Guest guest]

Aah Nina

....and so it goes on...never ending all this. So angry for you that the

statements haven't changed. Good luck with the court case on Friday. Have signed

your petition. Keep fighting for your gorgeous boys because as we know all too

sadly, noone else will fight their corner.

Lots of love

Helen xx

>

> What a joke, recieved a letter today they won't change the boys statements.I

am at war. Also got the court case friday so fingers crossed, I have the media

there. Parden my french I intend to kick some arse. Anyway will keep you posted.

It never rains it pours, and fighting for everything is something uis parents

never have to stop even though its tougher and tougher.I had a meeting with

MP Gove shadow to Ed Balls, please sign my petition if you haven't

already as hes going to be discussing it in parliament, SEN transport. Thanks

guysxxx

>

[Guest guest]

also Nina, they WILL change it. They just don't that for certain (whereas you

do) and you don't know when they will. But you know more at present than they

do. It may not seem like it but you have the upper hand. xx

>

> What a joke, recieved a letter today they won't change the boys statements.I

am at war. Also got the court case friday so fingers crossed, I have the media

there. Parden my french I intend to kick some arse. Anyway will keep you posted.

It never rains it pours, and fighting for everything is something uis parents

never have to stop even though its tougher and tougher.I had a meeting with

MP Gove shadow to Ed Balls, please sign my petition if you haven't

already as hes going to be discussing it in parliament, SEN transport. Thanks

guysxxx

>

[Guest guest]

Hi Nina

Lots of luck with it all.

Luv Caroline

xx

Thinking of you

[Guest guest]

Nina

 

Have you asked them to identify the gap between what they need your boys to be able to do before they change the statement?  At the moment I imagine they have not quantified their concerns or their perceived deficiencies..

 

Ask them What are the milestones you expect of children of my sons ages?

 

If they cannot quantify it you have an extra angle to play with them.

 

It is easier for them to do nothing.... don't we all know this one

 

 

Tracey

On Sat, May 23, 2009 at 8:56 PM, stephaniesirr <mark.grabiec@...> wrote:

also Nina, they WILL change it. They just don't that for certain (whereas you do) and you don't know when they will. But you know more at present than they do. It may not seem like it but you have the upper hand. xx

>> What a joke, recieved a letter today they won't change the boys statements.I am at war. Also got the court case friday so fingers crossed, I have the media there. Parden my french I intend to kick some arse. Anyway will keep you posted. It never rains it pours, and fighting for everything is something uis parents never have to stop even though its tougher and tougher.I had a meeting with MP Gove shadow to Ed Balls, please sign my petition if you haven't already as hes going to be discussing it in parliament, SEN transport. Thanks guysxxx

>

[Guest guest]

Hello -

Anika (DS) is in 1st grade and she's my first of 2 girls. I really want to do

what's right for her regarding her education and, since she's my first, I'm more

winging it than planning it. In general, she's doing really well - primarily

reading being her strength. She's in a Special Day program at her school but we

may move to a school district that is mainstreamed with pull out instead of

segregated (at this time she's " mainstreamed " 33% of her day - recess, lunch,

and assembly).

I just went to the DownsED conference last week and was reading Gaffney's

website. Ms. Gaffney's parents had her tutored since 1st grade, exercising

everyday, and " As much as possible, her parents would attempt to get information

from the classroom teachers on assignments and lesson plans to help become

more familiar with the material, " practice ahead of time, " or reinforce

concepts. Her parents requested an additional set of books to use at home for

this purpose. This enabled her parents to practice and reinforce lesson concepts

on " no homework " nights. This also enabled her parents to work ahead on some

concepts. " (http://www.karengaffneyfoundation.com/academics1_4.shtml) I'm

feeling like I'm not exactly on the ball here.

If your kiddo is in 1st grade or older - what are you doing to supplement the

education she's receiving in school? How do you fit it in (my daughter goes to

bed around 6:30 and gets up around 6 - except weekends when she gets up about

530!)? How do you keep your kiddo - and you - from burning out? What about

working in chores, playdates or other fun/family things? Do you feel strongly

about mainstreaming kids versus special day programs?

Or, if you'd just like me to read your book on how to be the world's most

perfect parent, I'm game! Kidding aside, I do want to do more than I currently

am doing and am not sure exactly how.

Thanks!

Tabatha

Mom-o-2

Anika (ds) aged 6 and Sevilla aged 4

[Guest guest]

My attitude is to step back and let the combination of your child and

the education system work. I don't think that it matters whether a

child is in a special program, mainstreamed, or included provided that

the teachers really want your child and get significant personal

satisfaction from her/his success.

There is much more to life than academics or inclusive (age appropriate)

social contacts.

Yes, many of the " poster children " had immense resources spent on them.

Most were already among the elite with DS in that they had much more

than average capability and have achieved in specific, but important

areas. Each of our children is different and each is valuable whether

they are " poster children " or perhaps more handicapped from the

beginning than Gaffney. WE ARE NOT INTO COMPETITIVE CHILD RAISING

!!!!

My observation is that satisfactory adult outcomes do not correlate with

how hard you have pushed your child, but rather on how you have taught

them to be proud of who they are. Setting the bar too high prepares

both parents and the child for failure.

If you have lots of money, you can spend it on your child in elementary

school. I would recommend saving for potential post-high school

training to help your child (whatever level she/he is at) to live as

independent and happy a life as they can. It is just like normal kids.

Private schools are OK if you have lots of money, but if that means you

don't have enough for college, you have made a big mistake.

Remember that you have a life and is isn't just taking care of your

handicapped daughter. My wife and I decided from the beginning not to

let this be the end of our personal lives and development. Over the

years I had a remarkable career, but I did find extra time for the

things Jan needed. My wife went to med school when Jan was 10. The

payback for that was that when Jan went through her awful life

threatening years, her Mom was there and trained to help. There were

times when Jan would have died, had it not been for Mom's intervention

in her care.

We raised our child with the expectation that she would go on to her own

life as an adult. That is where she is today and that is where most of

her peers are. The few who are " poster children/adults " are doing just

fine in their 30's, but so are those who simply had ordinary caring

parents who didn't have the resources to make their child a public example.

See that your child (Anika) is happy and developing, even if more

slowly than those without down syndrome. See that they are praised

enough to be proud of themselves. Put your energy into the places where

you can provide something that the school and other programs cannot. We

included Jan intensively in our lives, hiking, swimming, skiing, and in

just doing the same chores her brothers had. I stepped in when programs

weren't available such as being her coach in Special Olympics when there

wouldn't have been a program if I didn't.

Work WITH the people whose job is to train and support your child in a

teamwork fashion and not in a confrontational one. We had a major

blow-out in Jan's care in the past week. It will be taken care of

because there is no blame, but rather a need for different handling in

the future. Mistakes happen, but you don't have to get mad.

Yes, some people won't appreciate your child when they should. Try to

fix that or if necessary withdraw your child. I always felt that Jan

was a gift to the world. If you didn't want that gift for some reason,

you were not entitled to have it. It is the other person's loss and not

Jan's.

Rick ... dad to 36 year old Jan who does have down syndrome and is an

individual, just as your child is!

[Guest guest]

Rick.  I think I love you.    anonymous

From: Rick Dill <rdill@...>

Subject: re: Education

" " < >

Date: Thursday, November 12, 2009, 10:38 PM

 

My attitude is to step back and let the combination of your child and

the education system work. I don't think that it matters whether a

child is in a special program, mainstreamed, or included provided that

the teachers really want your child and get significant personal

satisfaction from her/his success.

There is much more to life than academics or inclusive (age appropriate)

social contacts.

Yes, many of the " poster children " had immense resources spent on them.

Most were already among the elite with DS in that they had much more

than average capability and have achieved in specific, but important

areas. Each of our children is different and each is valuable whether

they are " poster children " or perhaps more handicapped from the

beginning than Gaffney. WE ARE NOT INTO COMPETITIVE CHILD RAISING

!!!!

My observation is that satisfactory adult outcomes do not correlate with

how hard you have pushed your child, but rather on how you have taught

them to be proud of who they are. Setting the bar too high prepares

both parents and the child for failure.

If you have lots of money, you can spend it on your child in elementary

school. I would recommend saving for potential post-high school

training to help your child (whatever level she/he is at) to live as

independent and happy a life as they can. It is just like normal kids.

Private schools are OK if you have lots of money, but if that means you

don't have enough for college, you have made a big mistake.

Remember that you have a life and is isn't just taking care of your

handicapped daughter. My wife and I decided from the beginning not to

let this be the end of our personal lives and development. Over the

years I had a remarkable career, but I did find extra time for the

things Jan needed. My wife went to med school when Jan was 10. The

payback for that was that when Jan went through her awful life

threatening years, her Mom was there and trained to help. There were

times when Jan would have died, had it not been for Mom's intervention

in her care.

We raised our child with the expectation that she would go on to her own

life as an adult. That is where she is today and that is where most of

her peers are. The few who are " poster children/adults " are doing just

fine in their 30's, but so are those who simply had ordinary caring

parents who didn't have the resources to make their child a public example.

See that your child (Anika) is happy and developing, even if more

slowly than those without down syndrome. See that they are praised

enough to be proud of themselves. Put your energy into the places where

you can provide something that the school and other programs cannot. We

included Jan intensively in our lives, hiking, swimming, skiing, and in

just doing the same chores her brothers had. I stepped in when programs

weren't available such as being her coach in Special Olympics when there

wouldn't have been a program if I didn't.

Work WITH the people whose job is to train and support your child in a

teamwork fashion and not in a confrontational one. We had a major

blow-out in Jan's care in the past week. It will be taken care of

because there is no blame, but rather a need for different handling in

the future. Mistakes happen, but you don't have to get mad.

Yes, some people won't appreciate your child when they should. Try to

fix that or if necessary withdraw your child. I always felt that Jan

was a gift to the world. If you didn't want that gift for some reason,

you were not entitled to have it. It is the other person's loss and not

Jan's.

Rick ... dad to 36 year old Jan who does have down syndrome and is an

individual, just as your child is!

[Guest guest]

Rick...I could not have said that any better. All of our kids are different and

you put all those areas into perspective.

Thanks,

Mattern

From: rdill@...

Date: Thu, 12 Nov 2009 21:38:34 -0800

Subject: re: Education

My attitude is to step back and let the combination of your child and

the education system work. I don't think that it matters whether a

child is in a special program, mainstreamed, or included provided that

the teachers really want your child and get significant personal

satisfaction from her/his success.

There is much more to life than academics or inclusive (age appropriate)

social contacts.

Yes, many of the " poster children " had immense resources spent on them.

Most were already among the elite with DS in that they had much more

than average capability and have achieved in specific, but important

areas. Each of our children is different and each is valuable whether

they are " poster children " or perhaps more handicapped from the

beginning than Gaffney. WE ARE NOT INTO COMPETITIVE CHILD RAISING

!!!!

My observation is that satisfactory adult outcomes do not correlate with

how hard you have pushed your child, but rather on how you have taught

them to be proud of who they are. Setting the bar too high prepares

both parents and the child for failure.

If you have lots of money, you can spend it on your child in elementary

school. I would recommend saving for potential post-high school

training to help your child (whatever level she/he is at) to live as

independent and happy a life as they can. It is just like normal kids.

Private schools are OK if you have lots of money, but if that means you

don't have enough for college, you have made a big mistake.

Remember that you have a life and is isn't just taking care of your

handicapped daughter. My wife and I decided from the beginning not to

let this be the end of our personal lives and development. Over the

years I had a remarkable career, but I did find extra time for the

things Jan needed. My wife went to med school when Jan was 10. The

payback for that was that when Jan went through her awful life

threatening years, her Mom was there and trained to help. There were

times when Jan would have died, had it not been for Mom's intervention

in her care.

We raised our child with the expectation that she would go on to her own

life as an adult. That is where she is today and that is where most of

her peers are. The few who are " poster children/adults " are doing just

fine in their 30's, but so are those who simply had ordinary caring

parents who didn't have the resources to make their child a public example.

See that your child (Anika) is happy and developing, even if more

slowly than those without down syndrome. See that they are praised

enough to be proud of themselves. Put your energy into the places where

you can provide something that the school and other programs cannot. We

included Jan intensively in our lives, hiking, swimming, skiing, and in

just doing the same chores her brothers had. I stepped in when programs

weren't available such as being her coach in Special Olympics when there

wouldn't have been a program if I didn't.

Work WITH the people whose job is to train and support your child in a

teamwork fashion and not in a confrontational one. We had a major

blow-out in Jan's care in the past week. It will be taken care of

because there is no blame, but rather a need for different handling in

the future. Mistakes happen, but you don't have to get mad.

Yes, some people won't appreciate your child when they should. Try to

fix that or if necessary withdraw your child. I always felt that Jan

was a gift to the world. If you didn't want that gift for some reason,

you were not entitled to have it. It is the other person's loss and not

Jan's.

Rick ... dad to 36 year old Jan who does have down syndrome and is an

individual, just as your child is!

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