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RE: US Health Care Update and Action Alert-Warning opinion expressed may disagree with yours

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I wrote to Mc expressing my disagreement with her opinions.? She has

the super coverage we tax payers provide her with and it's disappointing that

she doesn't believe we all deserve it.

I honestly can't understand why people fear the government, but trust profit

driven, money grubbing corporations who's only real priority is making $$$.? If

anyone can explain that to me, I'd appreciate it.

Kathy, Liam's mom (11)

US Health Care Update and Action Alert

For the past several months, IMDSA has been monitoring the proposed US Health

Care Reform. The way the current wording is, in this proposed bill it is not

certain that individuals with developmental delays, medical conditions, or

genetic conditions would receive health care, the therapy services that they

currently receive, or adult and elder care such as assisted living or nursing

care.

Our first priority is always our families. With many of our families living in

the US, we realize that this is a deep concern for you. We want to assure you

that we are in contact with many of the legislators and we do not plan to allow

this bill to pass with its current wording.

This coming Wed, Sep 16th, a press conference will be given in Washington DC

with many concerned families along with Congresswoman Mc . In

the press package that will go along with this press conference, we ask for

families to include stories of their loved ones and how this bill would affect

their loved ones in its current vague wording. This story needs to be by

American families and must be no more than one page in Word and a picture needs

to be included on the page. Because of our quickly approaching deadline, all

stories must be received no later than this Sunday afternoon.

Please send your attached story to my email address at Kristy@... with the

subject line Health Care Story.

I know that many of you have questions regarding this bill. We have those same

questions. We will keep you updated as we receive new information.

Thank you,

Kristy Colvin

IMDSA President

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

International Mosaic Down Syndrome Association

PH: 979-828-4177

Toll Free: 1-888-MDS-LINK

http://www.imdsa.org

http://www.mosaicmoments.today.com

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Share on other sites

Am I confused again or missing something? Isn't Congresswoman

Mc- the mom with a child with DS and on our side?

Shirley

US Health Care Update and Action Alert

For the past several months, IMDSA has been monitoring the proposed US Health

Care Reform. The way the current wording is, in this proposed bill it is not

certain that individuals with developmental delays, medical conditions, or

genetic conditions would receive health care, the therapy services that they

currently receive, or adult and elder care such as assisted living or nursing

care.

Our first priority is always our families. With many of our families living in

the US, we realize that this is a deep concern for you. We want to assure you

that we are in contact with many of the legislators and we do not plan to allow

this bill to pass with its current wording.

This coming Wed, Sep 16th, a press conference will be given in Washington DC

with many concerned families along with Congresswoman Mc . In

the press package that will go along with this press conference, we ask for

families to include stories of their loved ones and how this bill would affect

their loved ones in its current vague wording. This story needs to be by

American families and must be no more than one page in Word and a picture needs

to be included on the page. Because of our quickly approaching deadline, all

stories must be received no later than this Sunday afternoon.

Please send your attached story to my email address at Kristy@... with

the subject line Health Care Story.

I know that many of you have questions regarding this bill. We have those same

questions. We will keep you updated as we receive new information.

Thank you,

Kristy Colvin

IMDSA President

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

International Mosaic Down Syndrome Association

PH: 979-828-4177

Toll Free: 1-888-MDS-LINK

http://www.imdsa.org

http://www.mosaicmoments.today.com

Link to comment
Share on other sites

Hi Kathy

I can understand your concern and confusion. It isn't that the Congresswoman is

against Health Care reform, this is not the case at all. The problem is, the way

that the proposed bill is written, individuals with any genetic or medical

condition are not protected. The current wording is very vague and leaves many

things open to happen. It isn't that the idea of Health Care reform that has

people worried, it is the wording in the bill that worries so many.

I hope that helps explain it. Please feel free to ask any questions.

Kristy Colvin

IMDSA President

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

International Mosaic Down Syndrome Association

PH: 979-828-4177

Toll Free: 1-888-MDS-LINK

http://www.imdsa.org

http://www.mosaicmoments.today.com

From: mom2lfm@... <mom2lfm@...>

Subject: Re: US Health Care Update and Action Alert-Warning opinion

expressed may disagree with yours

kristy@...,

Date: Saturday, September 12, 2009, 5:41 PM

I wrote to Mc expressing my disagreement with her opinions.  She has

the super coverage we tax payers provide her with and it's disappointing that

she doesn't believe we all deserve it.

 

I honestly can't understand why people fear the government, but trust profit

driven, money grubbing corporations who's only real priority is making $$$.  If

anyone can explain that to me, I'd appreciate it.

 

Kathy, Liam's mom (11)

US Health Care Update and Action Alert

 

For the past several months, IMDSA has been monitoring the proposed US Health

Care Reform. The way the current wording is, in this proposed bill it is not

certain that individuals with developmental delays, medical conditions, or

genetic conditions would receive health care, the therapy services that they

currently receive, or adult and elder care such as assisted living or nursing

care.

Our first priority is always our families. With many of our families living in

the US, we realize that this is a deep concern for you. We want to assure you

that we are in contact with many of the legislators and we do not plan to allow

this bill to pass with its current wording.

This coming Wed, Sep 16th, a press conference will be given in Washington DC

with many concerned families along with Congresswoman Mc . In

the press package that will go along with this press conference, we ask for

families to include stories of their loved ones and how this bill would affect

their loved ones in its current vague wording. This story needs to be by

American families and must be no more than one page in Word and a picture needs

to be included on the page. Because of our quickly approaching deadline, all

stories must be received no later than this Sunday afternoon.

Please send your attached story to my email address at Kristyimdsa (DOT) org with

the subject line Health Care Story.

I know that many of you have questions regarding this bill. We have those same

questions. We will keep you updated as we receive new information.

Thank you,

Kristy Colvin

IMDSA President

~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~

International Mosaic Down Syndrome Association

PH: 979-828-4177

Toll Free: 1-888-MDS-LINK

http://www.imdsa. org

http://www.mosaicmo ments.today. com

Link to comment
Share on other sites

I'm with you, Kathy! We are the only industrialized nation that does not

have national health insurance. We have the most expensive health care in

the world, rank 37th in health care delivery, and our infant mortality rate

ranks with third-world nations. The insurance corporations are even telling

our physicians how to practice medicine. Government is what we do together

as a nation. It is not some foreign entity.

granny

On Sat, Sep 12, 2009 at 5:41 PM, <Mom2lfm@...> wrote:

>

>

>

>

> I wrote to Mc expressing my disagreement with her opinions.?

> She has the super coverage we tax payers provide her with and it's

> disappointing that she doesn't believe we all deserve it.

>

> I honestly can't understand why people fear the government, but trust

> profit driven, money grubbing corporations who's only real priority is

> making $$$.? If anyone can explain that to me, I'd appreciate it.

>

> Kathy, Liam's mom (11)

>

> US Health Care Update and Action Alert

>

> For the past several months, IMDSA has been monitoring the proposed US

> Health Care Reform. The way the current wording is, in this proposed bill it

> is not certain that individuals with developmental delays, medical

> conditions, or genetic conditions would receive health care, the therapy

> services that they currently receive, or adult and elder care such as

> assisted living or nursing care.

>

> Our first priority is always our families. With many of our families living

> in the US, we realize that this is a deep concern for you. We want to assure

> you that we are in contact with many of the legislators and we do not plan

> to allow this bill to pass with its current wording.

>

> This coming Wed, Sep 16th, a press conference will be given in Washington

> DC with many concerned families along with Congresswoman Mc

> . In the press package that will go along with this press conference,

> we ask for families to include stories of their loved ones and how this bill

> would affect their loved ones in its current vague wording. This story needs

> to be by American families and must be no more than one page in Word and a

> picture needs to be included on the page. Because of our quickly approaching

> deadline, all stories must be received no later than this Sunday afternoon.

>

> Please send your attached story to my email address at

Kristy@...<Kristy%40imdsa.org>with the subject line Health Care Story.

>

> I know that many of you have questions regarding this bill. We have those

> same questions. We will keep you updated as we receive new information.

>

> Thank you,

>

> Kristy Colvin

> IMDSA President

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> International Mosaic Down Syndrome Association

> PH: 979-828-4177

> Toll Free: 1-888-MDS-LINK

> http://www.imdsa.org

> http://www.mosaicmoments.today.com

>

>

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Share on other sites

Do you remember how it took four days to get water to katrina victims?

How are they gonna run health care. Look at the state of Medicare and

medicaide and Social Security with a 53 trillon dollar deficit. Who

is gonna pay for all of this? We are borrowing and printing 100

billion dollars a week. I don't know about everyone else but I don't

want to leave my kids bankrupt!

Loree

US Health Care Update and Action Alert

& gt;

& gt; For the past several months, IMDSA has been monitoring the

proposed US

& gt; Health Care Reform. The way the current wording is, in this

proposed bill it

& gt; is not certain that individuals with developmental delays, medical

& gt; conditions, or genetic conditions would receive health care, the

therapy

& gt; services that they currently receive, or adult and elder care such

as

& gt; assisted living or nursing care.

& gt;

& gt; Our first priority is always our families. With many of our

families living

& gt; in the US, we realize that this is a deep concern for you. We want

to assure

& gt; you that we are in contact with many of the legislators and we do

not plan

& gt; to allow this bill to pass with its current wording.

& gt;

& g

t; This coming Wed, Sep 16th, a press conference will be given in

Washington

& gt; DC with many concerned families along with Congresswoman

Mc

& gt; . In the press package that will go along with this press

conference,

& gt; we ask for families to include stories of their loved ones and how

this bill

& gt; would affect their loved ones in its current vague wording. This

story needs

& gt; to be by American families and must be no more than one page in

Word and a

& gt; picture needs to be included on the page. Because of our quickly

approaching

& gt; deadline, all stories must be received no later than this Sunday

afternoon.

& gt;

& gt; Please send your attached story to my email address at

Kristy@... & lt;Kristy%40imdsa.org & gt;with the subject line Health

Care Story.

& gt;

& gt; I know that many of you have questions regarding this bill. We

have those

& gt; same questions. We will keep you updated as we receive new

information.

& gt;

& gt; Thank you,

& gt;

& gt; Kristy Colvin

& gt; IMDSA President

& gt; ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

& gt; International Mosaic Down Syndrome Association

& gt; PH: 979-828-4177

& gt; Toll Free: 1-888-MDS-LINK

& gt; http://www.imdsa.org

& gt; http://www.mosaicmoments.today.com

& gt;

& gt;

Link to comment
Share on other sites

Some of us are already on the bottom of the food chain with no health insurance

and medical issues. Something has to change. I make good money but as a

consultant with no health benefits. I pay my taxes for roads and welfare and

social security and everything else.

 

My last quote for individual health insurance was 350 dollars a month. With

employers cutting health benefits and raising prices, with hospitals pushing

nurses so hard - everyone is struggling and the cost is only going up. Something

has to change.

 

Yes I'm scared about more taxes but we've paid for wars for a safer world. Why

not health care for a healthier America?

Hollie

& gt;

& gt;

& gt;

& gt;

& gt; I wrote to Mc expressing my disagreement with her

opinions.?

& gt; She has the super coverage we tax payers provide her with and it's

0D

& gt; disappointing that she doesn't believe we all deserve it.

& gt;

& gt; I honestly can't understand why people fear the government, but

trust

& gt; profit driven, money grubbing corporations who's only real

priority is

& gt; making $$$.? If anyone can explain that to me, I'd appreciate it.

& gt;

& gt; Kathy, Liam's mom (11)

& gt;

& gt; US Health Care Update and Action Alert

& gt;

& gt; For the past several months, IMDSA has been monitoring the

proposed US

& gt; Health Care Reform. The way the current wording is, in this

proposed bill it

& gt; is not certain that individuals with developmental delays, medical

& gt; conditions, or genetic conditions would receive health care, the

therapy

& gt; services that they currently receive, or adult and elder care such

as

& gt; assisted living or nursing care.

& gt;

& gt; Our first priority is always our families. With many of our

families living

& gt; in the US, we realize that this is a deep concern for you. We want

to assure

& gt; you that we are in contact with many of the legislators and we do

not plan

& gt; to allow this bill to pass with its current wording.

& gt;

& g

t; This coming Wed, Sep 16th, a press conference will be given in

Washington

& gt; DC with many concerned families along with Congresswoman

Mc

& gt; . In the press package that will go along with this press

conference,

& gt; we ask for families to include stories of their loved ones and how

this bill

& gt; would affect their loved ones in its current vague wording. This

story needs

& gt; to be by American families and must be no more than one page in

Word and a

& gt; picture needs to be included on the page. Because of our quickly

approaching

& gt; deadline, all stories must be received no later than this Sunday

afternoon.

& gt;

& gt; Please send your attached story to my email address at

Kristyimdsa (DOT) org & lt;Kristy%40imdsa. org & gt;with the subject line Health

Care Story.

& gt;

& gt; I know that many of you have questions regarding this bill. We

have those

& gt; same questions. We will keep you updated as we receive new

information.

& gt;

& gt; Thank you,

& gt;

& gt; Kristy Colvin

& gt; IMDSA President

& gt; ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~

& gt; International Mosaic Down Syndrome Association

& gt; PH: 979-828-4177

& gt; Toll Free: 1-888-MDS-LINK

& gt; http://www.imdsa. org

& gt; http://www.mosaicmo ments.today. com

& gt;

& gt;

Link to comment
Share on other sites

Veterans health, Medicare and Medicaid are run better than private

insurance. Also, the President has made it quite clear how national health

will be run without adding a dime to the deficit. Katrina was quite a few

hurricanes ago and FEMA did a whole lot better after that. I thought they

did very well for my island when Ike hit.

granny

On Sun, Sep 13, 2009 at 9:20 AM, <loree5@...> wrote:

> Do you remember how it took four days to get water to katrina victims? How

> are they gonna run health care. Look at the state of Medicare and medicaide

> and Social Security with a 53 trillon dollar deficit. Who is gonna pay for

> all of this? We are borrowing and printing 100 billion dollars a week. I

> don't know about everyone else but I don't want to leave my kids bankrupt!

>

> Loree

>

> US Health Care Update and Action Alert

>

> & gt;

>

> & gt; For the past several months, IMDSA has been monitoring the proposed US

>

> & gt; Health Care Reform. The way the current wording is, in this proposed

> bill it

>

> & gt; is not certain that individuals with developmental delays, medical

>

> & gt; conditions, or genetic conditions would receive health care, the

> therapy

>

> & gt; services that they currently receive, or adult and elder care such as

>

> & gt; assisted living or nursing care.

>

> & gt;

>

> & gt; Our first priority is always our families. With many of our families

> living

>

> & gt; in the US, we realize that this is a deep concern for you. We want to

> assure

>

> & gt; you that we are in contact with many of the legislators and we do not

> plan

>

> & gt; to allow this bill to pass with its current wording.

>

> & gt;

>

> & g

> t; This coming Wed, Sep 16th, a press conference will be given in

> Washington

>

> & gt; DC with many concerned families along with Congresswoman

> Mc

>

> & gt; . In the press package that will go along with this press

> conference,

>

> & gt; we ask for families to include stories of their loved ones and how

> this bill

>

> & gt; would affect their loved ones in its current vague wording. This story

> needs

>

> & gt; to be by American families and must be no more than one page in Word

> and a

>

> & gt; picture needs to be included on the page. Because of our quickly

> approaching

>

> & gt; deadline, all stories must be received no later than this Sunday

> afternoon.

>

> & gt;

>

> & gt; Please send your attached story to my email address at

> Kristy@... & lt;Kristy%40imdsa.org & gt;with the subject line Health

> Care Story.

>

> & gt;

>

> & gt; I know that many of you have questions regarding this bill. We have

> those

>

> & gt; same questions. We will keep you updated as we receive new

> information.

>

> & gt;

>

> & gt; Thank you,

>

> & gt;

>

> & gt; Kristy Colvin

>

> & gt; IMDSA President

>

> & gt; ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

> & gt; International Mosaic Down Syndrome Association

>

> & gt; PH: 979-828-4177

>

> & gt; Toll Free: 1-888-MDS-LINK

>

> & gt; http://www.imdsa.org

>

> & gt; http://www.mosaicmoments.today.com

>

> & gt;

>

> & gt;

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Share on other sites

Well she's not on my side.? She has super healthcare that she doesn't contribute

to.? I pay a nice chunk of money so Liam can see specialists for his healthcare

issues.? I guess she wants me to continue to do so.? Money is tight right now

and she irks me when she talks about healthcare for her family -- that we pay

for!

Kathy, Liam's mo (11,DS, Diabetes, asthma)

Re: US Health Care Update and Action Alert-Warning opinion

expressed may disagree with yours

Am I confused again or missing something? Isn't Congresswoman

Mc- the mom with a child with DS and on our side?

Shirley

US Health Care Update and Action Alert

For the past several months, IMDSA has been monitoring the proposed US Health

Care Reform. The way the current wording is, in this proposed bill it is not

certain that individuals with developmental delays, medical conditions, or

genetic conditions would receive health care, the therapy services that they

currently receive, or adult and elder care such as assisted living or nursing

care.

Our first priority is always our families. With many of our families living in

the US, we realize that this is a deep concern for you. We want to assure you

that we are in contact with many of the legislators and we do not plan to allow

this bill to pass with its current wording.

This coming Wed, Sep 16th, a press conference will be given in Washington DC

with many concerned families along with Congresswoman Mc . In

the press package that will go along with this press conference, we ask for

families to include stories of their loved ones and how this bill would affect

their loved ones in its current vague wording. This story needs to be by

American families and must be no more than one page in Word and a picture needs

to be included on the page. Because of our quickly approaching deadline, all

stories must be received no later than this Sunday afternoon.

Please send your attached story to my email address at Kristy@... with the

subject line Health Care Story.

I know that many of you have questions regarding this bill. We have those same

questions. We will keep you updated as we receive new information.

Thank you,

Kristy Colvin

IMDSA President

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

International Mosaic Down Syndrome Association

PH: 979-828-4177

Toll Free: 1-888-MDS-LINK

http://www.imdsa.org

http://www.mosaicmoments.today.com

Link to comment
Share on other sites

Kristy,

I'm afraid that's one of the many nasty rumors spread by the lobbies that not

want universal healthcare to pass.? There are no exclusions for such conditions.

Kathy, Liam's mom

US Health Care Update and Action Alert

For the past several months, IMDSA has been monitoring the proposed US Health

Care Reform. The way the current wording is, in this proposed bill it is not

certain that individuals with developmental delays, medical conditions, or

genetic conditions would receive health care, the therapy services that they

currently receive, or adult and elder care such as assisted living or nursing

care.

Our first priority is always our families. With many of our families living in

the US, we realize that this is a deep concern for you. We want to assure you

that we are in contact with many of the legislators and we do not plan to allow

this bill to pass with its current wording.

This coming Wed, Sep 16th, a press conference will be given in Washington DC

with many concerned families along with Congresswoman Mc . In

the press package that will go along with this press conference, we ask for

families to include stories of their loved ones and how this bill would affect

their loved ones in its current vague wording. This story needs to be by

American families and must be no more than one page in Word and a picture needs

to be included on the page. Because of our quickly approaching deadline, all

stories must be received no later than this Sunday afternoon.

Please send your attached story to my email address at Kristyimdsa (DOT) org with

the subject line Health Care Story.

I know that many of you have questions regarding this bill. We have those same

questions. We will keep you updated as we receive new information.

Thank you,

Kristy Colvin

IMDSA President

~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~

International Mosaic Down Syndrome Association

PH: 979-828-4177

Toll Free: 1-888-MDS-LINK

http://www.imdsa. org

http://www.mosaicmo ments.today. com

Link to comment
Share on other sites

Kathy

I have read the bill. I am not being swayed by anyone. Here is a link to the

bill. As you read it you can see where it contradicts in many areas and leaves a

lot of vague wording to enable many things to happen.

http://waysandmeans.house.gov/media/pdf/111/AAHCA09001xml.pdf

Kristy Colvin

IMDSA President

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

International Mosaic Down Syndrome Association

PH: 979-828-4177

Toll Free: 1-888-MDS-LINK

http://www.imdsa.org

http://www.mosaicmoments.today.com

From: mom2lfm@... <mom2lfm@...>

Subject: Re: US Health Care Update and Action Alert-Warning opinion

expressed may disagree with yours

kristy@...,

Date: Saturday, September 12, 2009, 5:41 PM

I wrote to Mc expressing my disagreement with her opinions.  She has

the super coverage we tax payers provide her with and it's disappointing that

she doesn't believe we all deserve it.

 

I honestly can't understand why people fear the government, but trust profit

driven, money grubbing corporations who's only real priority is making $$$.  If

anyone can explain that to me, I'd appreciate it.

 

Kathy, Liam's mom (11)

US Health Care Update and Action Alert

 

For the past several months, IMDSA has been monitoring the proposed US Health

Care Reform. The way the current wording is, in this proposed bill it is not

certain that individuals with developmental delays, medical conditions, or

genetic conditions would receive health care, the therapy services that they

currently receive, or adult and elder care such as assisted living or nursing

care.

Our first priority is always our families. With many of our families living in

the US, we realize that this is a deep concern for you. We want to assure you

that we are in contact with many of the legislators and we do not plan to allow

this bill to pass with its current wording.

This coming Wed, Sep 16th, a press conference will be given in Washington DC

with many concerned families along with Congresswoman Mc . In

the press package that will go along with this press conference, we ask for

families to include stories of their loved ones and how this bill would affect

their loved ones in its current vague wording. This story needs to be by

American families and must be no more than one page in Word and a picture needs

to be included on the page. Because of our quickly approaching deadline, all

stories must be received no later than this Sunday afternoon.

Please send your attached story to my email address at Kristyimdsa (DOT) org with

the subject line Health Care Story.

I know that many of you have questions regarding this bill. We have those same

questions. We will keep you updated as we receive new information.

Thank you,

Kristy Colvin

IMDSA President

~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~

International Mosaic Down Syndrome Association

PH: 979-828-4177

Toll Free: 1-888-MDS-LINK

http://www.imdsa. org

http://www.mosaicmo ments.today. com

Link to comment
Share on other sites

First of all that was one mis-managed agency.? If Medicare and Medicaid are so

mis-managed? how come we have some senior citizens been made terrified that they

will loose it?? The cost will be handled when we eliminate the huge overhead and

bonuses paid currently being paid to insurance company executives.? All that

money will be turned into healthcare.? Millions of dollars are paid in bonuses,

overhead, advertising?and the lobbying (campain contributions!!!!) efforts

they're currently spending to stay in business.? This (alone) is not creating

the deficit.? We all know what's doing that, but I don't want to stir that pot.

US Health Care Update and Action Alert

& gt;

& gt; For the past several months, IMDSA has been monitoring the

proposed US

& gt; Health Care Reform. The way the current wording is, in this

proposed bill it

& gt; is not certain that individuals with developmental delays, medical

& gt; conditions, or genetic conditions would receive health care, the

therapy

& gt; services that they currently receive, or adult and elder care such

as

& gt; assisted living or nursing care.

& gt;

& gt; Our first priority is always our families. With many of our

families living

& gt; in the US, we realize that this is a deep concern for you. We want

to assure

& gt; you that we are in contact with many of the legislators and we do

not plan

& gt; to allow this bill to pass with its current wording.

& gt;

& g

t; This coming Wed, Sep 16th, a press conference will be given in

Washington

& gt; DC with many concerned families along with Congresswoman

Mc

& gt; . In the press package that will go along with this press

conference,

& gt; we ask for families to include stories of their loved ones and how

this bill

& gt; would affect their loved ones in its current vague wording. This

story needs

& gt; to be by American families and must be no more than one page in

Word and a

& gt; picture needs to be included on the page. Because of our quickly

approaching

& gt; deadline, all stories must be received no later than this Sunday

afternoon.

& gt;

& gt; Please send your attached story to my email address at

Kristy@... & lt;Kristy%40imdsa.org & gt;with the subject line Health

Care Story.

& gt;

& gt; I know that many of you have questions regarding this bill. We

have those

& gt; same questions. We will keep you updated as we receive new

information.

& gt;

& gt; Thank you,

& gt;

& gt; Kristy Colvin

& gt; IMDSA President

& gt; ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

& gt; International Mosaic Down Syndrome Association

& gt; PH: 979-828-4177

& gt; Toll Free: 1-888-MDS-LINK

& gt; http://www.imdsa.org

& gt; http://www.mosaicmoments.today.com

& gt;

& gt;

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Hollie,?

350's not all that bad.? I pay an extra $240 to put Liam on my Blue Cross Blue

Shield.? He's entitled to Medicaid which helps with prescriptions, but

specialists don't take it.

Kathy, Liam's mom

US Health Care Update and Action Alert

& gt;

& gt; For the past several months, IMDSA has been monitoring the

proposed US

& gt; Health Care Reform. The way the current wording is, in this

proposed bill it

& gt; is not certain that individuals with developmental delays, medical

& gt; conditions, or genetic conditions would receive health care, the

therapy

& gt; services that they currently receive, or adult and elder care such

as

& gt; assisted living or nursing care.

& gt;

& gt; Our first priority is always our families. With many of our

families living

& gt; in the US, we realize that this is a deep concern for you. We want

to assure

& gt; you that we are in contact with many of the legislators and we do

not plan

& gt; to allow this bill to pass with its current wording.

& gt;

& g

t; This coming Wed, Sep 16th, a press conference will be given in

Washington

& gt; DC with many concerned families along with Congresswoman

Mc

& gt; . In the press package that will go along with this press

conference,

& gt; we ask for families to include stories of their loved ones and how

this bill

& gt; would affect their loved ones in its current vague wording. This

story needs

& gt; to be by American families and must be no more than one page in

Word and a

& gt; picture needs to be included on the page. Because of our quickly

approaching

& gt; deadline, all stories must be received no later than this Sunday

afternoon.

& gt;

& gt; Please send your attached story to my email address at

Kristyimdsa (DOT) org & lt;Kristy%40imdsa. org & gt;with the subject line Health

Care Story.

& gt;

& gt; I know that many of you have questions regarding this bill. We

have those

& gt; same questions. We will keep you updated as we receive new

information.

& gt;

& gt; Thank you,

& gt;

& gt; Kristy Colvin

& gt; IMDSA President

& gt; ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~

& gt; International Mosaic Down Syndrome Association

& gt; PH: 979-828-4177

& gt; Toll Free: 1-888-MDS-LINK

& gt; http://www.imdsa. org

& gt; http://www.mosaicmo ments.today. com

& gt;

& gt;

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Kristy,

There are at least 6 flavors of the bill floating.? I'm talking about HR3200.

Kathy, Liam's mom

US Health Care Update and Action Alert

For the past several months, IMDSA has been monitoring the proposed US Health

Care Reform. The way the current wording is, in this proposed bill it is not

certain that individuals with developmental delays, medical conditions, or

genetic conditions would receive health care, the therapy services that they

currently receive, or adult and elder care such as assisted living or nursing

care.

Our first priority is always our families. With many of our families living in

the US, we realize that this is a deep concern for you. We want to assure you

that we are in contact with many of the legislators and we do not plan to allow

this bill to pass with its current wording.

This coming Wed, Sep 16th, a press conference will be given in Washington DC

with many concerned families along with Congresswoman Mc . In

the press package that will go along with this press conference, we ask for

families to include stories of their loved ones and how this bill would affect

their loved ones in its current vague wording. This story needs to be by

American families and must be no more than one page in Word and a picture needs

to be included on the page. Because of our quickly approaching deadline, all

stories must be received no later than this Sunday afternoon.

Please send your attached story to my email address at Kristyimdsa (DOT) org with

the subject line Health Care Story.

I know that many of you have questions regarding this bill. We have those same

questions. We will keep you updated as we receive new information.

Thank you,

Kristy Colvin

IMDSA President

~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~

International Mosaic Down Syndrome Association

PH: 979-828-4177

Toll Free: 1-888-MDS-LINK

http://www.imdsa. org

http://www.mosaicmo ments.today. com

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I still say open Federal Employees Health Benefit Plan up to all citizens --

it's private insurance companies (several of them) that have negotiated (much

better rates with the federal government than they do with private citizens or

companies).? Let the citizens pay the same rates as federal employees for the

same coverage.? Those who can't afford it (based on income) can be subsidized.

Cari

?

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I guess this is ultimately what I have the biggest problem with right

now... I have read a LOT of HR3200, and there are plenty of

contradictions within this one bill. And, there are more bills to be

discussed, merged, voted on, etc.(just within the House, and there

are/will be more in the Senate), so while we as a country are bickering

about details, we really don't have much more than a bunch of ideas in

front of us.

I do think health care is in need of reform. I think there are plenty

of ways that it could be done. However, for something this huge, I hate

the thought that our Representatives and Senators are discussing/will be

voting on hundreds of pages of legislation that has been hastily thrown

together, have contradictory language, and that really, they haven't

read thoroughly or understand completely. In reading this thread, it

shows exactly what the problem is... there is no single bill that

everyone can examine, take the time to get clarification, and

discuss.... one person reads that a group is not specifically included

(protected), it means they may automatically be excluded, another person

reads the same text and assumes that everyone will be included, unless

specified otherwise. Who knows what this means exactly, and who is

going to interpret this down the road? Of course, even a well proposed

bill of any kind could have interpretation issues after the fact, but

many of those issues do not hold someone's life/health in the balance.

My point is, not one of us, and probably not most of our

Representatives, know what they mean on so many of these sections

because it's happening too fast. Slow down, do a good job, and give us

health care reform that we can be proud of. Give us ONE bill that is

going to be voted on, and let people read that for themselves, and if

they find vague or inconsistent language, objectional

coverages/omissions, whatever, then they would have the opportunity to

bring it to their Representative's/Senator's attention. Right now, all

anyone can really do is respond to what others say, which I think is

really hurting all of us.

My 2 cents,

, mom to (13), (11 DS), and Sammy (10)

Mom2lfm@... wrote:

>

>

>

> Kristy,

>

> There are at least 6 flavors of the bill floating.? I'm talking about

> HR3200.

>

> Kathy, Liam's mom

>

> US Health Care Update and Action Alert

>

> For the past several months, IMDSA has been monitoring the proposed US

> Health Care Reform. The way the current wording is, in this proposed

> bill it is not certain that individuals with developmental delays,

> medical conditions, or genetic conditions would receive health care,

> the therapy services that they currently receive, or adult and elder

> care such as assisted living or nursing care.

>

> Our first priority is always our families. With many of our families

> living in the US, we realize that this is a deep concern for you. We

> want to assure you that we are in contact with many of the legislators

> and we do not plan to allow this bill to pass with its current wording.

>

> This coming Wed, Sep 16th, a press conference will be given in

> Washington DC with many concerned families along with Congresswoman

> Mc . In the press package that will go along with

> this press conference, we ask for families to include stories of their

> loved ones and how this bill would affect their loved ones in its

> current vague wording. This story needs to be by American families and

> must be no more than one page in Word and a picture needs to be

> included on the page. Because of our quickly approaching deadline, all

> stories must be received no later than this Sunday afternoon.

>

> Please send your attached story to my email address at Kristyimdsa (DOT)

> org with the subject line Health Care Story.

>

> I know that many of you have questions regarding this bill. We have

> those same questions. We will keep you updated as we receive new

> information.

>

> Thank you,

>

> Kristy Colvin

> IMDSA President

> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~

> International Mosaic Down Syndrome Association

> PH: 979-828-4177

> Toll Free: 1-888-MDS-LINK

> http://www.imdsa. org

> http://www.mosaicmo ments.today. com

>

>

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Do you imagine for a moment that the government won't be telling physicians

how to practice medicine?

Re: US Health Care Update and Action Alert-Warning

opinion expressed may disagree with yours

> I'm with you, Kathy! We are the only industrialized nation that does not

> have national health insurance. We have the most expensive health care in

> the world, rank 37th in health care delivery, and our infant mortality

> rate

> ranks with third-world nations. The insurance corporations are even

> telling

> our physicians how to practice medicine. Government is what we do together

> as a nation. It is not some foreign entity.

>

> granny

>

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Kathy (Liam's mom) asked, " I honestly can't understand why people fear the

government, but trust profit driven, money grubbing corporations who's only

real priority is making $$$.? If anyone can explain that to me, I'd

appreciate it.

I will do my best to give you my opinion, hoping that you can listen with an

open mind to an alternate view. I have been kind of stressing about the

best way to explain it, so if I come off as harsh, please know I did not

mean it to sound that way. Email is notorious for not conveying emotions

correctly, and I can't always see my writing the way someone else does. I

apologize in advance if I have offended anyone. Please know my rant is only

an expression of my most humble opinion, which can sound not so humble at

times. Even though I may not be able to sway anyone's point of view my way,

at least you might understand WHY I think this way.

To tie it into the list, I have some real concerns about Phoebe's and even

Nolan's future when Steve or I are not around. I already know that Nolan is

going to have to work longer and harder than we ever did because of the

massive amount of taxes he will have to pay for the massive amount of debt

our government has gotten up to. He will have much less disposable income

than we did. I do not know if there will even be enough good paying jobs

for him to work at all. I hope and pray he will be able to care for his

sister, but I am not positive of that. We are most worried about Phoebe

should something happen to us because if jobs and pay are scarce for him,

what about someone with disabilities? I do not want her in a state run

institution that will not care for her like we do. It is precisely that

worry that keeps me working to help people wake up and see what is happening

here.

It is not that I fear the government. I don't trust the government.

I used to trust them, and sometimes I still do, but the current crisis has

brought to light just how ineffective our government has been lately.

A depressed economic environment often reveals a number of fraudulent or

broken systems, and it is not just the government. It is what we do about

it that is important.

So we know now that allot of things are broken in our government, the

biggest, but by no means the only, things being Medicare and social

security. The depressing part is, rather than see its own big problems that

need fixing, the government only blames and point's fingers at other

industry's problems (banking, auto, housing, and now medical and health

insurance companies) as a reason for us to feed more money into an

ineffective system. While, in fact it is the government that is creating

allot of the problems in the first place!! (It is my prediction that the

tech industry will be next in line to blame. Certainly the internet is in

the government's sight.)

Once you step back and start connecting the dots, you will start to realize

these government crisis's are only well crafted excuses to feed the beast.

There is a pattern here, which if we refuse to acknowledge, there might be

some real trouble very soon. I don't WANT to get to that point, which is

why I am trying to help people change it.

I hope and pray that I am not the only one who sees how ludicrous it is,

that a broken down government, with so many programs running amuck with

fraud, can actually turn to a private industry, one that is running because

they are making a profit, to heap the blame upon that industry instead. And

then we believe them and open our children's piggy bank to drop every last

cent into this ineffective monster government that keeps asking for more and

more money! Even our children's inheritance will be pillaged by the

government at astonishing rates leaving little for them to even bury us.

I am not saying the government does not need our money to run, because

obviously they do, but they also need to start showing some fiscal

responsibility before they keep asking for more and more money. I know that

is what my parents did when I was an irresponsible wreck with uncontrolled

spending. They certainly did not keep giving me credit cards with more and

more credit available on them.

Let's be real honest here. Does anyone think a greedy health insurance

company would be able to carry a trillion dollar debt and still be in

business? How about 12 trillion? I just find it hard to believe they would

even stay in business with those kinds of red ink numbers, but our

government does.

Do you know why our government can do that? Only because they print more

money to simply pay the interest on our bills to our foreign creditors. Not

only have we paid China with worthless money, we are going to slap a 35% tax

on their imports to us because our unions demanded it! Obama signed that

order just this week. China is not going to put up with that for much

longer. They already have said openly they HATE us, and now we are going to

punch them in the mouth. This is going to end badly.

Our government hides behind that worthless paper money hoping we won't

notice. It has even become common knowledge that the government is printing

money without silver or gold to back it up, and they don't even try to hide

it anymore. AND WE DO NOT GET UPSET or even the slightest bit worried over

what they are doing?!? People are only distracted by the fact that Bush Jr.

did it, but have no care in the world when this administration does the

same. Do we really think there is going to be a different outcome? Isn't

the definition of insanity to do the same thing over and over again,

expecting different results?

The government keeps getting more and more lines of credit to only pay the

INTREST on the original lines of credit they first accrued. There are

people in jail for LIFE (Madoff) for doing the same thing. However, we let

our government do it, while we blame good competent companies for being evil

and greedy for making a profit to sustain their businesses and continue to

run. HOW DARE THEY PROVIDE WORK FOR MILLIONS OF PEOPLE AND MAKE MONEY TO

EXPAND AND COMPETE? HOW DARE THEY PROVIDE A GOOD SERVICE TO MILLIONS OF

INSURED PEOPLE? HOW DARE THEY BE SUCCESSFUL! How dare we trust profit

driven, money grubbing corporations who's only real priority is making $$$?

I am not sure if anyone is aware of the motive why the government run heath

plan is not slated to go into effect until 2013. You have got to wonder if

it is because when things start to go down the tubes with this monstrosity

of a health care plan should it pass, the current administration will be

long gone to live out their cushy lives on a cushy government pension.

Bernie Madoff gets a life term in Jail for doing the same thing.

For the next three years, the only way the government can sustain this type

of behavior is to look around for the next finger it can point to for who is

at fault for the next crisis. Do you know how dangerous and unsustainable

this is? I keep hearing that if we continue like this, in the very near

future things may be much more desperate. I am not trying to scare anyone,

but weather you believe me or not, now is a good time to make sure you have

some thought of how you family will weather should a financial crisis

happen. How will you pay for prescriptions, bread, diapers with inflated

prices that are doubled or even tripled? Just be prepared to work with some

tough decisions because salaries will not be increasing to compensate for

those higher prices.

So many government initiatives started off sounding really good and then

became overrun with corruption and greed. They've all ended up costing us

exponentially more than first promised, and they have not been able to help

the problem they were supposed to remedy. Everything from education, to

energy independence, to stimulus and bailouts has all been a disappointment

in what was promised to happen. Our children are not smarter or safer, we

still import too much oil while worrying about our reserves, our auto

companies still went bankrupt, and our unemployment continues to rise.

Still the government keeps telling us they can still fix every other problem

that seems to arise?? There has to be a point where we begin to loose faith

in at least some of those broken promises.

How can we trust that a government will take care of us when they listen to

lobbyists hired by big corporations to secure government contracts over

listening to us? Then they take our tax dollars and hand it over to those

corporations in bed with the government to enact poorly run legislation

without much over-sight. Because, after all, the government only has our

best interest at heart and they will always do the right thing.. Right?

Do not believe for one minute that there is not a greedy profit motive when

the government is involved. It only means the government decides what

companies get your money rather than you deciding, and those companies pay

millions of dollars to be the first on the governments list. Many of those

companies are actually run by politicians or the spouses of those

politicians and yet we happily smile because they only have our best

interests in mind. REALLY?

The corporations that have been putting millions forward to defend obamacare

are the ones that are going to be given the privilege of receiving our tax

dollars for their profit. Obama's health plan is also a Trojan horse to

have the unions (who also have lobbyists) benefit from unionizing health

workers. One of the reasons SEIU is fighting fiercely for the president's

plan. I don't say this because I do not like the president, and I am not a

racist. Many people like unions and support unions, but I do not. I

believe unions have outlived their usefulness. I have seen what they have

done to nurses in other states, and I did not like it.

Here is an article followed by some comments from others that helped me

understand profits a bit better, and why we need to support a company that

is making a profit in this economic crisis. (I will highlight the important

points, but it wont show up on the list post, sorry)

Profits Are Not the Problem

<http://davidkretzmann.com> Kretzmann.com

In recent years profits have gotten a bad name from many people and

politicians. Profits are said to take advantage of others, encourage greed,

among a variety of other allegations. These concerns can be legitimate but

often miss a crucial point.

Profit represents the reward for taking a risk. You wouldn't start a

business if you knew you weren't going to make more than you would spend

creating that business, would you? But if you can increase your income more

than your expenditures through that business, you'll feel much more inclined

to continue with the operation. Obviously, people cannot survive operating

a business at a loss.

Profits do not come without work and risk. It is only possible to make a

profit if you can offer a product or a service that people want, in an

efficient manner. No matter how greedy you may be, in a free market you

cannot survive without efficiently producing a product that has market

demand. You cannot force people to work for you, you cannot force people to

invest in your business, and you cannot force people to purchase your

product. Your greed is limited to free and voluntary exchange. Unless you

are the government.

Profits have been especially dissed when it comes to health care. It is

easy to blame the insurance corporations and many missteps that the current

system carries, but people fail to realize that it has been government

intervention into the market that has increased prices and decreased

accessibility. The more that government regulates, controls, and

manipulates health care, the less access individuals will have to health

care because of the higher costs.

An excellent example is when the Kefauver Amendment of 1962 was added

on to the Federal Food, Drug and Cosmetic Act of 1938, providing the FDA

with greatly expanded regulatory powers, including the ability to deny

approval of drugs that they felt weren't fully effective.

The FDA's regulatory process to bring new drugs into the market is very

costly in terms of money and time, making it exceedingly difficult for

businesses other than large pharmaceutical corporations to survive in the

drug market. Dr. J. Ruwart estimates that no less than 50% of new

drugs have been blocked from the market due to this process.

Because of the 1962 amendments, the FDA can determine and change the

requirements to bring new drugs from the laboratory and into the

marketplace. In 1962, the development phase of drugs took approximately 4.5

years. A good amount of time for a business to invest money in a product

that might never get the chance to sell on the market, right? Today the

development time is 15 years. With such brutal development and marketing

procedures for drugs, it should be no surprise that drug prices are rising.

These regulatory proceedings limit the supply of new drugs, raise the price

of existing drugs, and limit patient access overall to drugs. In other

words, the demand for these drugs does not disappear, but the supply is

often heavily limited. Thus, prices go up.

With the drug market essentially limited to the few businesses who can

afford to comply with the expensive FDA regulations, competition has taken a

beating. Drugs often represent a more affordable method for prevention,

treatment, and a general tool to lower medical costs. However, the FDA has

so greatly limited potentially life-saving drugs that medical costs continue

to rapidly expand.

If it was the patients, not central bureaucrats, who worked with their

doctors to decide whether or not certain drugs were logical for their own

situation, competition in the drug industry would flourish, prices would

fall, and accessibility would increase. We need to understand that

government intervention comes with a price by benefiting larger corporations

and limiting the competitive ability of smaller businesses.

I am not discounting the effects of greed and the want/need for profits that

is inherent in some individuals. But the answer to these problems is not

more government intervention or centralization of the markets. The trouble

that we face in health care and many other industries is precisely too

little competition, a trend that government has consistently worsened. Just

look at the drug market: it has become such a bureaucratized process that it

ends up helping the larger corporations, hurting small businesses, and

pinching the consumer in terms of choice and cost.

The power of the individual is the power of choice: the ability to choose

your own insurance plan (without being forced into an employer or government

option), and to choose which drugs and medical treatment make sense to you,

not to federal bureaucrats. The more power that you transfer from the

individual to the government, the more you will see lobbyist activity,

corporatism, and inefficiency increase.

We are constantly trying to force a one-size-fits-all system on the

country (whether it be HMOs or " public options " ), neglecting the fact that

we are all very unique as individuals and might have better ideas for

ourselves, even if politicians turn " bipartisan " to force legislation on the

people.

The key point is that demonizing profits in support of a government plan

completely misses the underlying problem: limited competition. You do not

need government to encourage competition, you need freedom of the

individual, freedom of choice, and freedom of competition to create a

prosperous, healthy, and accessible market.

It is amusing that so many people are hopping on the bandwagon that

government operating at a loss is somehow more noble than for-profit

businesses. The whole reason that government can operate at a loss is

because they borrow from foreign nations, print and devalue the currency,

and forcefully tax private productivity.

As much as people would like to believe it, government cannot defy the laws

of economics and common sense over the long run. They may be able to

operate Medicare, Medicaid, and countless other programs with trillion

dollar deficits for a time, but it will come crashing down just as it would

for any irresponsible business that chooses to spend more money on

unprofitable activities.

We need not look any further than the drug industry to see how disastrous a

powerful, unelected, and centralized bureaucracy can be. The FDA has powers

intended to help the people, but its very policies to help people have

likely caused far more deaths and suffering by preventing and limiting new

drugs, raising the price of current drugs, and decreasing accessibility to

drugs because of the higher prices.

True, revolutionary, and sustainable change can only come through the

individual. Profits themselves are not the problem; discouraging competition

for those profits is the problem. Government provides a de facto monopoly

to large corporations when it gets as involved as the FDA in private

affairs, laying the foundation for a system that can never fully serve the

individual. For full individual service, the individual must be in full

control.

Government intervention has good intentions; all I am saying is that we must

understand the consequences of those interventions. Supply of medical care

has been concentrated and limited, demand and cost continues to rise, and we

are thus brought to today's situation.

#1) On August 19, 2009 at 2:46 AM:

Amen. Profits are like a feedback system. If you are profitable you are

doing a good thing. You are providing value and you are being efficient. The

government does not need to make a profit and thus has little motivation for

being efficient, or providing the best product or value.

As you said it is important that you keep competition fair though.

#2) On August 19, 2009 4:39 AM:

Great article! The public is continually duped into accepting broad brush

character assassination intended to influence public opinion for political

purposes.

No one ever seems to point out that the very people who label someone else

as greedy are, in fact, often guilty of the same behavior themselves.

Taxpayers are called greedy if they want to keep their own money, but

politicians who want to take it from them and spend it themselves are not.

Or, large corporations, as in drug, oil or Insurance companies are called

greedy when prices go up and their profits increase but not when prices go

down and they lose money.

It's Ok to lose money, but it is apparently greedy to make it, unless, of

course, you and I are the ones making the profit.

Nolan-6

Phoebe Ds & Cf-4

Lipstick

_____

From: [mailto: ] On Behalf

Of Mom2lfm@...

Sent: Saturday, September 12, 2009 5:42 PM

kristy@...;

Subject: Re: US Health Care Update and Action Alert-Warning

opinion expressed may disagree with yours

I wrote to Mc expressing my disagreement with her opinions.? She

has the super coverage we tax payers provide her with and it's disappointing

that she doesn't believe we all deserve it.

I honestly can't understand why people fear the government, but trust profit

driven, money grubbing corporations who's only real priority is making $$$.?

If anyone can explain that to me, I'd appreciate it.

Kathy, Liam's mom (11)

US Health Care Update and Action Alert

For the past several months, IMDSA has been monitoring the proposed US

Health Care Reform. The way the current wording is, in this proposed bill it

is not certain that individuals with developmental delays, medical

conditions, or genetic conditions would receive health care, the therapy

services that they currently receive, or adult and elder care such as

assisted living or nursing care.

Our first priority is always our families. With many of our families living

in the US, we realize that this is a deep concern for you. We want to assure

you that we are in contact with many of the legislators and we do not plan

to allow this bill to pass with its current wording.

This coming Wed, Sep 16th, a press conference will be given in Washington DC

with many concerned families along with Congresswoman Mc .

In the press package that will go along with this press conference, we ask

for families to include stories of their loved ones and how this bill would

affect their loved ones in its current vague wording. This story needs to be

by American families and must be no more than one page in Word and a picture

needs to be included on the page. Because of our quickly approaching

deadline, all stories must be received no later than this Sunday afternoon.

Please send your attached story to my email address at Kristyimdsa (DOT)

<mailto:Kristy%40imdsa.org> org with the subject line Health Care Story.

I know that many of you have questions regarding this bill. We have those

same questions. We will keep you updated as we receive new information.

Thank you,

Kristy Colvin

IMDSA President

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

International Mosaic Down Syndrome Association

PH: 979-828-4177

Toll Free: 1-888-MDS-LINK

http://www.imdsa. <http://www.imdsa.org> org

http://www.mosaicmo <http://www.mosaicmoments.today.com> ments.today.com

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Those are EXCELLENT points !

Nolan-6

Phoebe Ds & Cf-4

Lipstick

_____

From: [mailto: ] On Behalf

Of Kerrigan

Sent: Sunday, September 13, 2009 10:49 PM

Mom2lfm@...

Cc: kristy@...;

Subject: Re: US Health Care Update and Action Alert-Warning

opinion expressed may disagree with yours

I guess this is ultimately what I have the biggest problem with right

now... I have read a LOT of HR3200, and there are plenty of

contradictions within this one bill. And, there are more bills to be

discussed, merged, voted on, etc.(just within the House, and there

are/will be more in the Senate), so while we as a country are bickering

about details, we really don't have much more than a bunch of ideas in

front of us.

I do think health care is in need of reform. I think there are plenty

of ways that it could be done. However, for something this huge, I hate

the thought that our Representatives and Senators are discussing/will be

voting on hundreds of pages of legislation that has been hastily thrown

together, have contradictory language, and that really, they haven't

read thoroughly or understand completely. In reading this thread, it

shows exactly what the problem is... there is no single bill that

everyone can examine, take the time to get clarification, and

discuss.... one person reads that a group is not specifically included

(protected), it means they may automatically be excluded, another person

reads the same text and assumes that everyone will be included, unless

specified otherwise. Who knows what this means exactly, and who is

going to interpret this down the road? Of course, even a well proposed

bill of any kind could have interpretation issues after the fact, but

many of those issues do not hold someone's life/health in the balance.

My point is, not one of us, and probably not most of our

Representatives, know what they mean on so many of these sections

because it's happening too fast. Slow down, do a good job, and give us

health care reform that we can be proud of. Give us ONE bill that is

going to be voted on, and let people read that for themselves, and if

they find vague or inconsistent language, objectional

coverages/omissions, whatever, then they would have the opportunity to

bring it to their Representative's/Senator's attention. Right now, all

anyone can really do is respond to what others say, which I think is

really hurting all of us.

My 2 cents,

, mom to (13), (11 DS), and Sammy (10)

Mom2lfmaol (DOT) <mailto:Mom2lfm%40aol.com> com wrote:

>

>

>

> Kristy,

>

> There are at least 6 flavors of the bill floating.? I'm talking about

> HR3200.

>

> Kathy, Liam's mom

>

> US Health Care Update and Action Alert

>

> For the past several months, IMDSA has been monitoring the proposed US

> Health Care Reform. The way the current wording is, in this proposed

> bill it is not certain that individuals with developmental delays,

> medical conditions, or genetic conditions would receive health care,

> the therapy services that they currently receive, or adult and elder

> care such as assisted living or nursing care.

>

> Our first priority is always our families. With many of our families

> living in the US, we realize that this is a deep concern for you. We

> want to assure you that we are in contact with many of the legislators

> and we do not plan to allow this bill to pass with its current wording.

>

> This coming Wed, Sep 16th, a press conference will be given in

> Washington DC with many concerned families along with Congresswoman

> Mc . In the press package that will go along with

> this press conference, we ask for families to include stories of their

> loved ones and how this bill would affect their loved ones in its

> current vague wording. This story needs to be by American families and

> must be no more than one page in Word and a picture needs to be

> included on the page. Because of our quickly approaching deadline, all

> stories must be received no later than this Sunday afternoon.

>

> Please send your attached story to my email address at Kristyimdsa (DOT)

> org with the subject line Health Care Story.

>

> I know that many of you have questions regarding this bill. We have

> those same questions. We will keep you updated as we receive new

> information.

>

> Thank you,

>

> Kristy Colvin

> IMDSA President

> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~

> International Mosaic Down Syndrome Association

> PH: 979-828-4177

> Toll Free: 1-888-MDS-LINK

> http://www.imdsa. org

> http://www.mosaicmo ments.today. com

>

>

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The specialists do not take Medicaid. That should be a HUGE red flag for

you. That will not get any better once you are stuck with yet another

poorly run government health plan.

BTW, just because the bill does not specifically say anything about

rationing your health care does not mean it won't happen. The British

system is one that many aspects of the bill is fashioned under and it

happens there with alarming results. It happens in Canada too. All the

other countries with universal health care do not have near the amount of

citizens the United States has, so it is unfair to try to compare smaller

countries to ours. They also do not have anywhere near the amount of

undocumented workers we do. Again, the bill does not specifically say that

undocumented workers will not be covered, but that does not mean it will not

happen. In fact it already puts a strain on our system. Unless the bill

contains specific language not allowing undocumented workers to be covered,

it will continue to be a problem, and I seriously doubt that the government

is going to start cutting off care to that group of people.

It is all but impossible to reduce the costs without doing it, not to

mention you are adding a huge number of uninsured patients into that system

too. All the experts have analyzed the situation and the wording in the

bill, and they agree that is what will happen.

These are NOT LOBBYIST. They are the same experts that predicted the

failure of the stimulus to curb unemployment and predicted the failure of

the auto bailouts to prevent the auto companies from going bankrupt, so I

tend to believe them over the snake oil salesmen that are pushing the

monster health plan down our throats.

Nolan-6

Phoebe Ds & Cf-4

Lipstick

_____

From: [mailto: ] On Behalf

Of Mom2lfm@...

Sent: Sunday, September 13, 2009 5:03 PM

holliej@...;

Subject: Re: US Health Care Update and Action Alert-Warning

opinion expressed may disagree with yours

Hollie,?

350's not all that bad.? I pay an extra $240 to put Liam on my Blue Cross

Blue Shield.? He's entitled to Medicaid which helps with prescriptions, but

specialists don't take it.

Kathy, Liam's mom

US Health Care Update and Action Alert

& gt;

& gt; For the past several months, IMDSA has been monitoring the

proposed US

& gt; Health Care Reform. The way the current wording is, in this

proposed bill it

& gt; is not certain that individuals with developmental delays, medical

& gt; conditions, or genetic conditions would receive health care, the

therapy

& gt; services that they currently receive, or adult and elder care such

as

& gt; assisted living or nursing care.

& gt;

& gt; Our first priority is always our families. With many of our

families living

& gt; in the US, we realize that this is a deep concern for you. We want

to assure

& gt; you that we are in contact with many of the legislators and we do

not plan

& gt; to allow this bill to pass with its current wording.

& gt;

& g

t; This coming Wed, Sep 16th, a press conference will be given in

Washington

& gt; DC with many concerned families along with Congresswoman

Mc

& gt; . In the press package that will go along with this press

conference,

& gt; we ask for families to include stories of their loved ones and how

this bill

& gt; would affect their loved ones in its current vague wording. This

story needs

& gt; to be by American families and must be no more than one page in

Word and a

& gt; picture needs to be included on the page. Because of our quickly

approaching

& gt; deadline, all stories must be received no later than this Sunday

afternoon.

& gt;

& gt; Please send your attached story to my email address at

Kristyimdsa (DOT) org & lt;Kristy%40imdsa. org & gt;with the subject line Health

Care Story.

& gt;

& gt; I know that many of you have questions regarding this bill. We

have those

& gt; same questions. We will keep you updated as we receive new

information.

& gt;

& gt; Thank you,

& gt;

& gt; Kristy Colvin

& gt; IMDSA President

& gt; ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~

& gt; International Mosaic Down Syndrome Association

& gt; PH: 979-828-4177

& gt; Toll Free: 1-888-MDS-LINK

& gt; http://www.imdsa. org

& gt; http://www.mosaicmo ments.today. com

& gt;

& gt;

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Share on other sites

I hate to break it to you, but those millions in bonuses and those millions

in advertising dollars and lobbyists are not going to be somehow magically

used to pay for healthcare. There is no legislation in the healthcare bill

that will be able to recoup private insurance's money from paying their CEOS

any bonuses in order to use it to fix the health care issues. Besides the

fact that those million dollar bonuses are mostly stock options in the very

same company they manage.

The government has no right to that money, and even if they manage to

prevent the private companies from spending it, does not mean it gets

shuffled to pay for health care! It just means it does not get spent. If

you want to jump all over someone else about what is or is not in the bill,

please do not make up something that is not in their either.

As a matter of fact, if the government manages to curb any bonuses or

lobbyists money that insurance companies might spend, it will only cause

much less revenue for the government. If those companies or ceo's stop

making their millions, they also stop paying taxes.

A great example of that would be if you could just ask New York or

California why their governments are going broke. They have levied so many

regulations and so many taxes on wealthy individuals and corporations, that

the companies and individuals have packed up and left. They have curbed the

spending of allot of big businesses so much that big business has walked

away. Remember silicone valley, it is more like desert valley now.

However, states like Texas know how to treat big business with moderate

taxes while keeping union regulators out as much as possible. Ask

Dell or HP how they like it here in Texas. Texas is thriving with a budget

surplus and we have some of the biggest strain with illegal aliens here, but

somehow we are not utterly broke like California.

Nolan-6

Phoebe Ds & Cf-4

Lipstick

_____

From: [mailto: ] On Behalf

Of Mom2lfm@...

Sent: Sunday, September 13, 2009 5:00 PM

Loree5@...; gem.bordages@...;

Subject: Re: US Health Care Update and Action Alert-Warning

opinion expressed may disagree with yours

First of all that was one mis-managed agency.? If Medicare and Medicaid are

so mis-managed? how come we have some senior citizens been made terrified

that they will loose it?? The cost will be handled when we eliminate the

huge overhead and bonuses paid currently being paid to insurance company

executives.? All that money will be turned into healthcare.? Millions of

dollars are paid in bonuses, overhead, advertising?and the lobbying (campain

contributions!!!!) efforts they're currently spending to stay in business.?

This (alone) is not creating the deficit.? We all know what's doing that,

but I don't want to stir that pot.

US Health Care Update and Action Alert

& gt;

& gt; For the past several months, IMDSA has been monitoring the

proposed US

& gt; Health Care Reform. The way the current wording is, in this

proposed bill it

& gt; is not certain that individuals with developmental delays, medical

& gt; conditions, or genetic conditions would receive health care, the

therapy

& gt; services that they currently receive, or adult and elder care such

as

& gt; assisted living or nursing care.

& gt;

& gt; Our first priority is always our families. With many of our

families living

& gt; in the US, we realize that this is a deep concern for you. We want

to assure

& gt; you that we are in contact with many of the legislators and we do

not plan

& gt; to allow this bill to pass with its current wording.

& gt;

& g

t; This coming Wed, Sep 16th, a press conference will be given in

Washington

& gt; DC with many concerned families along with Congresswoman

Mc

& gt; . In the press package that will go along with this press

conference,

& gt; we ask for families to include stories of their loved ones and how

this bill

& gt; would affect their loved ones in its current vague wording. This

story needs

& gt; to be by American families and must be no more than one page in

Word and a

& gt; picture needs to be included on the page. Because of our quickly

approaching

& gt; deadline, all stories must be received no later than this Sunday

afternoon.

& gt;

& gt; Please send your attached story to my email address at

Kristyimdsa (DOT) <mailto:Kristy%40imdsa.org> org & lt;Kristy%40imdsa.org & gt;with

the subject line Health

Care Story.

& gt;

& gt; I know that many of you have questions regarding this bill. We

have those

& gt; same questions. We will keep you updated as we receive new

information.

& gt;

& gt; Thank you,

& gt;

& gt; Kristy Colvin

& gt; IMDSA President

& gt; ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

& gt; International Mosaic Down Syndrome Association

& gt; PH: 979-828-4177

& gt; Toll Free: 1-888-MDS-LINK

& gt; http://www.imdsa. <http://www.imdsa.org> org

& gt; http://www.mosaicmo <http://www.mosaicmoments.today.com>

ments.today.com

& gt;

& gt;

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Share on other sites

I am sorry Granny, but I have to disagree with you there. Medicaid is

increasingly being denied by doctor after doctor, and you can hardly get

dental coverage any longer. With Medicaid, you have to have a specialized

care coordinator assigned to you that visits your home on a regular basis

just to navigate the maze of bureaucracy that follows it because it is too

complex for the normal person to figure out. Some private insurance

companies have been turned down by doctors, but there is always the next

company waiting in line to offer a better service for a better price. There

is not another Medicaid waiting in line to offer a better service when

specialists and other doctors refuse to accept their payments.

Medicare is also utterly broke, but will have to continue. I do not see one

private insurance company that is dealing with that horrible problem. I

will include an article below about the fact that Medicare will be broke and

unable to pay out benefits in eight years.

Veteran's health is horrendous. I have been to the veteran's hospital in

Houston, it is wretched. I know doctors and nurses that have worked in the

veteran's hospital system, and there are very few positive stories about it.

Most of these doctors and nurses were enlisted and had received funds to pay

for their medical school so they were under contract to work for the veteran

hospital system for a specified amount of time. They ran from those jobs

when their time was up. It is not better than private insurance by any

stretch of the imagination.

The whole line about the president not signing any legislation that

contributes one dime to the deficit? He is kind of right. President Obama

does not have to sign any of the legislation anyway. The president does not

sign legislation into law. Once it is approved by the senate, it is law.

So in a sense he is not lying about that, but he is manipulating the truth.

Besides the fact that the healthcare bill is not slated to go into effect

until 2013. When we are figuring out that we cannot sustain this bill

without contributing to the deficit, Obama will be long gone.

All the other social programs that have been enacted and promised to cost so

much less than they do now, were all empty promises. Why should we believe

a bigger and badder program will be any different? Let's not forget that

the CBO and other economists have said that it is impossible to not add to

the deficit with this plan as well.

moneywatch.com <http://moneywatch.bnet.com> / Cash Flow

<http://moneywatch.bnet.com/saving-money/> / Devil in the

<http://moneywatch.bnet.com/saving-money/blog/devil-details/> Details

Could You Die Faster? Medicare's Broke.

By Kathy Kristof <http://moneywatch.bnet.com/search/?q=Kathy+Kristof> | May

15, 2009

The wolf really is at the door.

For years Social Security and Medicare have been saying that they're running

out of money. But, until now, the date of insolvency was years away.

The just-released Social Security trustees

<http://www.ssa.gov/OACT/TRSUM/index.html> report says that Medicare will

be spending more than it brings in this year. In less than a decade, the

system will have run through all of its savings and be incapable of paying

bills.

Social Security is slightly better off. By 2037-about the same time as GenX

and GenY will want to punch out of the working world-Social Security won't

have the money to pay full benefits.

When the systems stop running surpluses - that's now - it's also bad for

taxpayers because the government has borrowed all the money out of the

so-called " trust fund " to finance current operations. When those I.O.U. have

to be repaid, there is less money for roads, parks, the military and every

other service the government provides.

The check's not in the mail.

What happens to beneficiaries when Social Security and Medicare run out of

dough? I called Bruce Schobel, president-elect of the American Academy of

Actuaries and one of the nation's top experts, to find out. The answer isn't

pretty.

The systems would continue collecting taxes, so they wouldn't be completely

insolvent. Social Security, for example, would find itself about 25% short

of having enough to pay all benefits. But the system couldn't simply pay

less.

" They don't have authority to pay partial benefits, so they would have to

delay sending out checks until they had the money, " said Schobel. " At first

that would mean that checks would be a couple of days late. But, they'd get

consistently later and later. "

No cash, no health care

The same would happen with Medicare. But instead of consumers getting

stiffed, it would be doctors and hospitals. It's no stretch to imagine sick

seniors being turned away at the door. No cash, no service. Be sick

somewhere else.

If the Obama administration doesn't fix Medicare-and quick-millions of

retirees may have to buy private health coverage or promise to pay their

doctors themselves. That's not GenX's problem. That's going to hit current

retirees and the Baby Boom first.

Tough Rx

Fixing Medicare is no easy task. Americans either must pay exorbitant taxes

to finance the existing system, or they need to find ways to significantly

cut costs. That requires more dramatic solutions than even what the Obama

administration is discussing.

In fact, many experts believe that the only way to get Medicare to balance

is to address a thicket of thorny mortality questions. Do we, as a nation,

forestall death at all costs? The vast majority of health care dollars are

spent in the last few months of life.

Do we restrict how much government money each person can spend on medicine,

telling those faced with life-threatening diseases to chose between death

and bankruptcy?

Do we demand healthy choices for public support? In other words, if you

smoke, overeat or drink to excess, should the government refuse to pay your

medical bills?

Or do you restrict the system's costs in other ways?

Should the government simply become a backstop for catastrophic care,

telling seniors that they need to handle the basics-the cost of doctors

visits and prescriptions, for instance-on their own? If the goverment pays

for care, should it be able to recover the cost from the recipient's estate

before heirs get their share?

Never retire

Schobel expects Congress and the Obama administration to come up with a

solution before Social Security can't pay benefits, but he admits that these

problems have been brewing for decades without a serious move to fix them.

The fixes for Social Security are far simpler than for Medicare, but they're

also not popular. The actuary group offers a game

<http://www.actuary.org/socsec.asp> (it's instructive, but not particularly

fun) on its web site to help consumers understand the choices, which boil

down to these:

* Hike the retirement age. " Normal " retirement age is already rising

to 67 for those born in 1960. In future, you might not be able to collect

full retirement benefits until you're 70.

* Raise taxes by either hiking the tax rate, which already eats up

15.2% of wages to fund both Social Security and Medicare, or by making more

income subject to tax. Right now, Social Security taxes are collected on

your first $106,800 in wages. After that, you only pay Medicare tax.

* Cut costs and that means cutting benefits. We've already discussed

some of the ways to cut costs for Medicare. For Social Security there are

two basic options-reduce monthly payments or " means-test " benefits to cut

out the rich (who, incidentally, paid the most into the system). Or both.

What now?

Maybe there are other solutions. It's time to be part of the debate.

Is there a sliding scale to the value of life? Is health care a right, or a

privilege? At what point can the government say that keeping a citizen alive

costs too much? Should health care be handled like hotels-the best going

only to those who can afford it?

What do you think? Do we raise taxes, cut benefits, or simply let future

generations twist in the wind? Every minute that this problem festers, the

options get worse.

Nolan-6

Phoebe Ds & Cf-4

Lipstick

_____

From: [mailto: ] On Behalf

Of Gem Bordages

Sent: Sunday, September 13, 2009 2:46 PM

Subject: Re: US Health Care Update and Action Alert-Warning

opinion expressed may disagree with yours

Veterans health, Medicare and Medicaid are run better than private

insurance. Also, the President has made it quite clear how national health

will be run without adding a dime to the deficit. Katrina was quite a few

hurricanes ago and FEMA did a whole lot better after that. I thought they

did very well for my island when Ike hit.

granny

On Sun, Sep 13, 2009 at 9:20 AM, <loree5@... <mailto:loree5%40aol.com> >

wrote:

> Do you remember how it took four days to get water to katrina victims? How

> are they gonna run health care. Look at the state of Medicare and

medicaide

> and Social Security with a 53 trillon dollar deficit. Who is gonna pay for

> all of this? We are borrowing and printing 100 billion dollars a week. I

> don't know about everyone else but I don't want to leave my kids bankrupt!

>

> Loree

>

> US Health Care Update and Action Alert

>

> & gt;

>

> & gt; For the past several months, IMDSA has been monitoring the proposed

US

>

> & gt; Health Care Reform. The way the current wording is, in this proposed

> bill it

>

> & gt; is not certain that individuals with developmental delays, medical

>

> & gt; conditions, or genetic conditions would receive health care, the

> therapy

>

> & gt; services that they currently receive, or adult and elder care such as

>

> & gt; assisted living or nursing care.

>

> & gt;

>

> & gt; Our first priority is always our families. With many of our families

> living

>

> & gt; in the US, we realize that this is a deep concern for you. We want to

> assure

>

> & gt; you that we are in contact with many of the legislators and we do not

> plan

>

> & gt; to allow this bill to pass with its current wording.

>

> & gt;

>

> & g

> t; This coming Wed, Sep 16th, a press conference will be given in

> Washington

>

> & gt; DC with many concerned families along with Congresswoman

> Mc

>

> & gt; . In the press package that will go along with this press

> conference,

>

> & gt; we ask for families to include stories of their loved ones and how

> this bill

>

> & gt; would affect their loved ones in its current vague wording. This

story

> needs

>

> & gt; to be by American families and must be no more than one page in Word

> and a

>

> & gt; picture needs to be included on the page. Because of our quickly

> approaching

>

> & gt; deadline, all stories must be received no later than this Sunday

> afternoon.

>

> & gt;

>

> & gt; Please send your attached story to my email address at

> Kristyimdsa (DOT) <mailto:Kristy%40imdsa.org>

org & lt;Kristy%40imdsa.org & gt;with the subject line Health

> Care Story.

>

> & gt;

>

> & gt; I know that many of you have questions regarding this bill. We have

> those

>

> & gt; same questions. We will keep you updated as we receive new

> information.

>

> & gt;

>

> & gt; Thank you,

>

> & gt;

>

> & gt; Kristy Colvin

>

> & gt; IMDSA President

>

> & gt; ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

> & gt; International Mosaic Down Syndrome Association

>

> & gt; PH: 979-828-4177

>

> & gt; Toll Free: 1-888-MDS-LINK

>

> & gt; http://www.imdsa. <http://www.imdsa.org> org

>

> & gt; http://www.mosaicmo <http://www.mosaicmoments.today.com>

ments.today.com

>

> & gt;

>

> & gt;

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Share on other sites

I am sorry this sent to the wrong group. I was just sharing this with some

friends.

Nolan-6

Phoebe Ds & Cf-4

Lipstick

_____

From: Dinkins-Borkowski [mailto:julie@...]

Sent: Monday, September 14, 2009 4:55 AM

' Dinkins-Borkowski'

Subject: RE: US Health Care Update and Action Alert-Warning

opinion expressed may disagree with yours

Here is another Rant to share with my princess friends. Sometimes the

neurons in my brain fire at the right time and I am able to write something

fairly coherent.

This is a woman on another group who was bashing the evil greedy insurance

companies and praising the government for taking care of us all. You can

read my response and use it and abuse it in other forms as you see fit!

Nolan-6

Phoebe Ds & Cf-4

Lipstick

_____

From: Dinkins-Borkowski [mailto:julie@...]

Sent: Monday, September 14, 2009 1:49 AM

'Mom2lfm@...'; 'kristy@...'; ' '

Subject: RE: US Health Care Update and Action Alert-Warning

opinion expressed may disagree with yours

Kathy (Liam's mom) asked, " I honestly can't understand why people fear the

government, but trust profit driven, money grubbing corporations who's only

real priority is making $$$.? If anyone can explain that to me, I'd

appreciate it.

I will do my best to give you my opinion, hoping that you can listen with an

open mind to an alternate view. I have been kind of stressing about the

best way to explain it, so if I come off as harsh, please know I did not

mean it to sound that way. Email is notorious for not conveying emotions

correctly, and I can't always see my writing the way someone else does. I

apologize in advance if I have offended anyone. Please know my rant is only

an expression of my most humble opinion, which can sound not so humble at

times. Even though I may not be able to sway anyone's point of view my way,

at least you might understand WHY I think this way.

To tie it into the list, I have some real concerns about Phoebe's and even

Nolan's future when Steve or I are not around. I already know that Nolan is

going to have to work longer and harder than we ever did because of the

massive amount of taxes he will have to pay for the massive amount of debt

our government has gotten up to. He will have much less disposable income

than we did. I do not know if there will even be enough good paying jobs

for him to work at all. I hope and pray he will be able to care for his

sister, but I am not positive of that. We are most worried about Phoebe

should something happen to us because if jobs and pay are scarce for him,

what about someone with disabilities? I do not want her in a state run

institution that will not care for her like we do. It is precisely that

worry that keeps me working to help people wake up and see what is happening

here.

It is not that I fear the government. I don't trust the government.

I used to trust them, and sometimes I still do, but the current crisis has

brought to light just how ineffective our government has been lately.

A depressed economic environment often reveals a number of fraudulent or

broken systems, and it is not just the government. It is what we do about

it that is important.

So we know now that allot of things are broken in our government, the

biggest, but by no means the only, things being Medicare and social

security. The depressing part is, rather than see its own big problems that

need fixing, the government only blames and point's fingers at other

industry's problems (banking, auto, housing, and now medical and health

insurance companies) as a reason for us to feed more money into an

ineffective system. While, in fact it is the government that is creating

allot of the problems in the first place!! (It is my prediction that the

tech industry will be next in line to blame. Certainly the internet is in

the government's sight.)

Once you step back and start connecting the dots, you will start to realize

these government crisis's are only well crafted excuses to feed the beast.

There is a pattern here, which if we refuse to acknowledge, there might be

some real trouble very soon. I don't WANT to get to that point, which is

why I am trying to help people change it.

I hope and pray that I am not the only one who sees how ludicrous it is,

that a broken down government, with so many programs running amuck with

fraud, can actually turn to a private industry, one that is running because

they are making a profit, to heap the blame upon that industry instead. And

then we believe them and open our children's piggy bank to drop every last

cent into this ineffective monster government that keeps asking for more and

more money! Even our children's inheritance will be pillaged by the

government at astonishing rates leaving little for them to even bury us.

I am not saying the government does not need our money to run, because

obviously they do, but they also need to start showing some fiscal

responsibility before they keep asking for more and more money. I know that

is what my parents did when I was an irresponsible wreck with uncontrolled

spending. They certainly did not keep giving me credit cards with more and

more credit available on them.

Let's be real honest here. Does anyone think a greedy health insurance

company would be able to carry a trillion dollar debt and still be in

business? How about 12 trillion? I just find it hard to believe they would

even stay in business with those kinds of red ink numbers, but our

government does.

Do you know why our government can do that? Only because they print more

money to simply pay the interest on our bills to our foreign creditors. Not

only have we paid China with worthless money, we are going to slap a 35% tax

on their imports to us because our unions demanded it! Obama signed that

order just this week. China is not going to put up with that for much

longer. They already have said openly they HATE us, and now we are going to

punch them in the mouth. This is going to end badly.

Our government hides behind that worthless paper money hoping we won't

notice. It has even become common knowledge that the government is printing

money without silver or gold to back it up, and they don't even try to hide

it anymore. AND WE DO NOT GET UPSET or even the slightest bit worried over

what they are doing?!? People are only distracted by the fact that Bush Jr.

did it, but have no care in the world when this administration does the

same. Do we really think there is going to be a different outcome? Isn't

the definition of insanity to do the same thing over and over again,

expecting different results?

The government keeps getting more and more lines of credit to only pay the

INTREST on the original lines of credit they first accrued. There are

people in jail for LIFE (Madoff) for doing the same thing. However, we let

our government do it, while we blame good competent companies for being evil

and greedy for making a profit to sustain their businesses and continue to

run. HOW DARE THEY PROVIDE WORK FOR MILLIONS OF PEOPLE AND MAKE MONEY TO

EXPAND AND COMPETE? HOW DARE THEY PROVIDE A GOOD SERVICE TO MILLIONS OF

INSURED PEOPLE? HOW DARE THEY BE SUCCESSFUL! How dare we trust profit

driven, money grubbing corporations who's only real priority is making $$$?

I am not sure if anyone is aware of the motive why the government run heath

plan is not slated to go into effect until 2013. You have got to wonder if

it is because when things start to go down the tubes with this monstrosity

of a health care plan should it pass, the current administration will be

long gone to live out their cushy lives on a cushy government pension.

Bernie Madoff gets a life term in Jail for doing the same thing.

For the next three years, the only way the government can sustain this type

of behavior is to look around for the next finger it can point to for who is

at fault for the next crisis. Do you know how dangerous and unsustainable

this is? I keep hearing that if we continue like this, in the very near

future things may be much more desperate. I am not trying to scare anyone,

but weather you believe me or not, now is a good time to make sure you have

some thought of how you family will weather should a financial crisis

happen. How will you pay for prescriptions, bread, diapers with inflated

prices that are doubled or even tripled? Just be prepared to work with some

tough decisions because salaries will not be increasing to compensate for

those higher prices.

So many government initiatives started off sounding really good and then

became overrun with corruption and greed. They've all ended up costing us

exponentially more than first promised, and they have not been able to help

the problem they were supposed to remedy. Everything from education, to

energy independence, to stimulus and bailouts has all been a disappointment

in what was promised to happen. Our children are not smarter or safer, we

still import too much oil while worrying about our reserves, our auto

companies still went bankrupt, and our unemployment continues to rise.

Still the government keeps telling us they can still fix every other problem

that seems to arise?? There has to be a point where we begin to loose faith

in at least some of those broken promises.

How can we trust that a government will take care of us when they listen to

lobbyists hired by big corporations to secure government contracts over

listening to us? Then they take our tax dollars and hand it over to those

corporations in bed with the government to enact poorly run legislation

without much over-sight. Because, after all, the government only has our

best interest at heart and they will always do the right thing.. Right?

Do not believe for one minute that there is not a greedy profit motive when

the government is involved. It only means the government decides what

companies get your money rather than you deciding, and those companies pay

millions of dollars to be the first on the governments list. Many of those

companies are actually run by politicians or the spouses of those

politicians and yet we happily smile because they only have our best

interests in mind. REALLY?

The corporations that have been putting millions forward to defend obamacare

are the ones that are going to be given the privilege of receiving our tax

dollars for their profit. Obama's health plan is also a Trojan horse to

have the unions (who also have lobbyists) benefit from unionizing health

workers. One of the reasons SEIU is fighting fiercely for the president's

plan. I don't say this because I do not like the president, and I am not a

racist. Many people like unions and support unions, but I do not. I

believe unions have outlived their usefulness. I have seen what they have

done to nurses in other states, and I did not like it.

Here is an article followed by some comments from others that helped me

understand profits a bit better, and why we need to support a company that

is making a profit in this economic crisis. (I will highlight the important

points, but it wont show up on the list post, sorry)

Profits Are Not the Problem

<http://davidkretzmann.com> Kretzmann.com

In recent years profits have gotten a bad name from many people and

politicians. Profits are said to take advantage of others, encourage greed,

among a variety of other allegations. These concerns can be legitimate but

often miss a crucial point.

Profit represents the reward for taking a risk. You wouldn't start a

business if you knew you weren't going to make more than you would spend

creating that business, would you? But if you can increase your income more

than your expenditures through that business, you'll feel much more inclined

to continue with the operation. Obviously, people cannot survive operating

a business at a loss.

Profits do not come without work and risk. It is only possible to make a

profit if you can offer a product or a service that people want, in an

efficient manner. No matter how greedy you may be, in a free market you

cannot survive without efficiently producing a product that has market

demand. You cannot force people to work for you, you cannot force people to

invest in your business, and you cannot force people to purchase your

product. Your greed is limited to free and voluntary exchange. Unless you

are the government.

Profits have been especially dissed when it comes to health care. It is

easy to blame the insurance corporations and many missteps that the current

system carries, but people fail to realize that it has been government

intervention into the market that has increased prices and decreased

accessibility. The more that government regulates, controls, and

manipulates health care, the less access individuals will have to health

care because of the higher costs.

An excellent example is when the Kefauver Amendment of 1962 was added

on to the Federal Food, Drug and Cosmetic Act of 1938, providing the FDA

with greatly expanded regulatory powers, including the ability to deny

approval of drugs that they felt weren't fully effective.

The FDA's regulatory process to bring new drugs into the market is very

costly in terms of money and time, making it exceedingly difficult for

businesses other than large pharmaceutical corporations to survive in the

drug market. Dr. J. Ruwart estimates that no less than 50% of new

drugs have been blocked from the market due to this process.

Because of the 1962 amendments, the FDA can determine and change the

requirements to bring new drugs from the laboratory and into the

marketplace. In 1962, the development phase of drugs took approximately 4.5

years. A good amount of time for a business to invest money in a product

that might never get the chance to sell on the market, right? Today the

development time is 15 years. With such brutal development and marketing

procedures for drugs, it should be no surprise that drug prices are rising.

These regulatory proceedings limit the supply of new drugs, raise the price

of existing drugs, and limit patient access overall to drugs. In other

words, the demand for these drugs does not disappear, but the supply is

often heavily limited. Thus, prices go up.

With the drug market essentially limited to the few businesses who can

afford to comply with the expensive FDA regulations, competition has taken a

beating. Drugs often represent a more affordable method for prevention,

treatment, and a general tool to lower medical costs. However, the FDA has

so greatly limited potentially life-saving drugs that medical costs continue

to rapidly expand.

If it was the patients, not central bureaucrats, who worked with their

doctors to decide whether or not certain drugs were logical for their own

situation, competition in the drug industry would flourish, prices would

fall, and accessibility would increase. We need to understand that

government intervention comes with a price by benefiting larger corporations

and limiting the competitive ability of smaller businesses.

I am not discounting the effects of greed and the want/need for profits that

is inherent in some individuals. But the answer to these problems is not

more government intervention or centralization of the markets. The trouble

that we face in health care and many other industries is precisely too

little competition, a trend that government has consistently worsened. Just

look at the drug market: it has become such a bureaucratized process that it

ends up helping the larger corporations, hurting small businesses, and

pinching the consumer in terms of choice and cost.

The power of the individual is the power of choice: the ability to choose

your own insurance plan (without being forced into an employer or government

option), and to choose which drugs and medical treatment make sense to you,

not to federal bureaucrats. The more power that you transfer from the

individual to the government, the more you will see lobbyist activity,

corporatism, and inefficiency increase.

We are constantly trying to force a one-size-fits-all system on the

country (whether it be HMOs or " public options " ), neglecting the fact that

we are all very unique as individuals and might have better ideas for

ourselves, even if politicians turn " bipartisan " to force legislation on the

people.

The key point is that demonizing profits in support of a government plan

completely misses the underlying problem: limited competition. You do not

need government to encourage competition, you need freedom of the

individual, freedom of choice, and freedom of competition to create a

prosperous, healthy, and accessible market.

It is amusing that so many people are hopping on the bandwagon that

government operating at a loss is somehow more noble than for-profit

businesses. The whole reason that government can operate at a loss is

because they borrow from foreign nations, print and devalue the currency,

and forcefully tax private productivity.

As much as people would like to believe it, government cannot defy the laws

of economics and common sense over the long run. They may be able to

operate Medicare, Medicaid, and countless other programs with trillion

dollar deficits for a time, but it will come crashing down just as it would

for any irresponsible business that chooses to spend more money on

unprofitable activities.

We need not look any further than the drug industry to see how disastrous a

powerful, unelected, and centralized bureaucracy can be. The FDA has powers

intended to help the people, but its very policies to help people have

likely caused far more deaths and suffering by preventing and limiting new

drugs, raising the price of current drugs, and decreasing accessibility to

drugs because of the higher prices.

True, revolutionary, and sustainable change can only come through the

individual. Profits themselves are not the problem; discouraging competition

for those profits is the problem. Government provides a de facto monopoly

to large corporations when it gets as involved as the FDA in private

affairs, laying the foundation for a system that can never fully serve the

individual. For full individual service, the individual must be in full

control.

Government intervention has good intentions; all I am saying is that we must

understand the consequences of those interventions. Supply of medical care

has been concentrated and limited, demand and cost continues to rise, and we

are thus brought to today's situation.

#1) On August 19, 2009 at 2:46 AM:

Amen. Profits are like a feedback system. If you are profitable you are

doing a good thing. You are providing value and you are being efficient. The

government does not need to make a profit and thus has little motivation for

being efficient, or providing the best product or value.

As you said it is important that you keep competition fair though.

#2) On August 19, 2009 4:39 AM:

Great article! The public is continually duped into accepting broad brush

character assassination intended to influence public opinion for political

purposes.

No one ever seems to point out that the very people who label someone else

as greedy are, in fact, often guilty of the same behavior themselves.

Taxpayers are called greedy if they want to keep their own money, but

politicians who want to take it from them and spend it themselves are not.

Or, large corporations, as in drug, oil or Insurance companies are called

greedy when prices go up and their profits increase but not when prices go

down and they lose money.

It's Ok to lose money, but it is apparently greedy to make it, unless, of

course, you and I are the ones making the profit.

Nolan-6

Phoebe Ds & Cf-4

Lipstick

_____

From: [mailto: ] On Behalf

Of Mom2lfm@...

Sent: Saturday, September 12, 2009 5:42 PM

kristy@...;

Subject: Re: US Health Care Update and Action Alert-Warning

opinion expressed may disagree with yours

I wrote to Mc expressing my disagreement with her opinions.? She

has the super coverage we tax payers provide her with and it's disappointing

that she doesn't believe we all deserve it.

I honestly can't understand why people fear the government, but trust profit

driven, money grubbing corporations who's only real priority is making $$$.?

If anyone can explain that to me, I'd appreciate it.

Kathy, Liam's mom (11)

US Health Care Update and Action Alert

For the past several months, IMDSA has been monitoring the proposed US

Health Care Reform. The way the current wording is, in this proposed bill it

is not certain that individuals with developmental delays, medical

conditions, or genetic conditions would receive health care, the therapy

services that they currently receive, or adult and elder care such as

assisted living or nursing care.

Our first priority is always our families. With many of our families living

in the US, we realize that this is a deep concern for you. We want to assure

you that we are in contact with many of the legislators and we do not plan

to allow this bill to pass with its current wording.

This coming Wed, Sep 16th, a press conference will be given in Washington DC

with many concerned families along with Congresswoman Mc .

In the press package that will go along with this press conference, we ask

for families to include stories of their loved ones and how this bill would

affect their loved ones in its current vague wording. This story needs to be

by American families and must be no more than one page in Word and a picture

needs to be included on the page. Because of our quickly approaching

deadline, all stories must be received no later than this Sunday afternoon.

Please send your attached story to my email address at Kristyimdsa (DOT)

<mailto:Kristy%40imdsa.org> org with the subject line Health Care Story.

I know that many of you have questions regarding this bill. We have those

same questions. We will keep you updated as we receive new information.

Thank you,

Kristy Colvin

IMDSA President

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

International Mosaic Down Syndrome Association

PH: 979-828-4177

Toll Free: 1-888-MDS-LINK

http://www.imdsa. <http://www.imdsa.org> org

http://www.mosaicmo <http://www.mosaicmoments.today.com> ments.today.com

Link to comment
Share on other sites

Okay my two cents!!

is on straight Medical assistance/Medicaid and we have had no problems what

so ever with seeing a doctor or a specialist we have not been turned away for

any type of service at all. The only rejection or problem that I have had is to

get MA/Medicaid to pay for a piece of assistive technology that is not on their

approval list (working on that with an advocate on the DD assistive technology

board) MA/Medicaid would rather pay for a set up that costs $10,000 instead of

$500 just because Apple is not a MA/Medicaid vendor. That is the only problem

that I have had (instead it is coming out of our waiver, oh well). I should

also state that I do live in Minnesota and the program here is top notch - my

entire family is on some form of medicaid and the only other problem that we

have had is finding a dentist for my husband and myself that took some work but

we did find one.

mom to 10 (DS and a long list of other labels)

Abbey and a 4 my identical girls =)

US Health Care Update and Action Alert

>

> & gt;

>

> & gt; For the past several months, IMDSA has been monitoring the proposed

US

>

> & gt; Health Care Reform. The way the current wording is, in this proposed

> bill it

>

> & gt; is not certain that individuals with developmental delays, medical

>

> & gt; conditions, or genetic conditions would receive health care, the

> therapy

>

> & gt; services that they currently receive, or adult and elder care such as

>

> & gt; assisted living or nursing care.

>

> & gt;

>

> & gt; Our first priority is always our families. With many of our families

> living

>

> & gt; in the US, we realize that this is a deep concern for you. We want to

> assure

>

> & gt; you that we are in contact with many of the legislators and we do not

> plan

>

> & gt; to allow this bill to pass with its current wording.

>

> & gt;

>

> & g

> t; This coming Wed, Sep 16th, a press conference will be given in

> Washington

>

> & gt; DC with many concerned families along with Congresswoman

> Mc

>

> & gt; . In the press package that will go along with this press

> conference,

>

> & gt; we ask for families to include stories of their loved ones and how

> this bill

>

> & gt; would affect their loved ones in its current vague wording. This

story

> needs

>

> & gt; to be by American families and must be no more than one page in Word

> and a

>

> & gt; picture needs to be included on the page. Because of our quickly

> approaching

>

> & gt; deadline, all stories must be received no later than this Sunday

> afternoon.

>

> & gt;

>

> & gt; Please send your attached story to my email address at

> Kristyimdsa (DOT) <mailto:Kristy%40imdsa.org>

org & lt;Kristy%40imdsa.org & gt;with the subject line Health

> Care Story.

>

> & gt;

>

> & gt; I know that many of you have questions regarding this bill. We have

> those

>

> & gt; same questions. We will keep you updated as we receive new

> information.

>

> & gt;

>

> & gt; Thank you,

>

> & gt;

>

> & gt; Kristy Colvin

>

> & gt; IMDSA President

>

> & gt; ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

> & gt; International Mosaic Down Syndrome Association

>

> & gt; PH: 979-828-4177

>

> & gt; Toll Free: 1-888-MDS-LINK

>

> & gt; http://www.imdsa. <http://www.imdsa.org> org

>

> & gt; http://www.mosaicmo <http://www.mosaicmoments.today.com>

ments.today.com

>

> & gt;

>

> & gt;

Link to comment
Share on other sites

Isn't Medicaid state run? That probably accounts for differences.

Overall, I think reform is a good idea, but there needs to be a lot more

specificity to the actual bill (and just one bill) to ensure that things

don't become a matter of " interpretation " (look how that works [not] when we

deal with IDEA issues). And if it's to be a comprehensive approach, tort

law, private insurance regulation, and disability issues should be addressed

too.

That said, a better discussion might be one of what reforms are needed/ how

to get the desired effect than hashing over the current bills that will

almost certainly change before they get passed (if they ever do).

Judi

From: [mailto: ] On Behalf

Of Dusterhoft

Sent: Monday, September 14, 2009 10:59 AM

'Gem Bordages'; ; Dinkins-Borkowski

Subject: Re: US Health Care Update and Action Alert-Warning

opinion expressed may disagree with yours

Okay my two cents!!

is on straight Medical assistance/Medicaid and we have had no problems

what so ever with seeing a doctor or a specialist we have not been turned

away for any type of service at all. The only rejection or problem that I

have had is to get MA/Medicaid to pay for a piece of assistive technology

that is not on their approval list (working on that with an advocate on the

DD assistive technology board) MA/Medicaid would rather pay for a set up

that costs $10,000 instead of $500 just because Apple is not a MA/Medicaid

vendor. That is the only problem that I have had (instead it is coming out

of our waiver, oh well). I should also state that I do live in Minnesota and

the program here is top notch - my entire family is on some form of medicaid

and the only other problem that we have had is finding a dentist for my

husband and myself that took some work but we did find one.

mom to 10 (DS and a long list of other labels)

Abbey and a 4 my identical girls =)

US Health Care Update and Action Alert

>

> & gt;

>

> & gt; For the past several months, IMDSA has been monitoring the proposed

US

>

> & gt; Health Care Reform. The way the current wording is, in this proposed

> bill it

>

> & gt; is not certain that individuals with developmental delays, medical

>

> & gt; conditions, or genetic conditions would receive health care, the

> therapy

>

> & gt; services that they currently receive, or adult and elder care such as

>

> & gt; assisted living or nursing care.

>

> & gt;

>

> & gt; Our first priority is always our families. With many of our families

> living

>

> & gt; in the US, we realize that this is a deep concern for you. We want to

> assure

>

> & gt; you that we are in contact with many of the legislators and we do not

> plan

>

> & gt; to allow this bill to pass with its current wording.

>

> & gt;

>

> & g

> t; This coming Wed, Sep 16th, a press conference will be given in

> Washington

>

> & gt; DC with many concerned families along with Congresswoman

> Mc

>

> & gt; . In the press package that will go along with this press

> conference,

>

> & gt; we ask for families to include stories of their loved ones and how

> this bill

>

> & gt; would affect their loved ones in its current vague wording. This

story

> needs

>

> & gt; to be by American families and must be no more than one page in Word

> and a

>

> & gt; picture needs to be included on the page. Because of our quickly

> approaching

>

> & gt; deadline, all stories must be received no later than this Sunday

> afternoon.

>

> & gt;

>

> & gt; Please send your attached story to my email address at

> Kristyimdsa (DOT) <mailto:Kristy%40imdsa.org>

org & lt;Kristy%40imdsa.org & gt;with the subject line Health

> Care Story.

>

> & gt;

>

> & gt; I know that many of you have questions regarding this bill. We have

> those

>

> & gt; same questions. We will keep you updated as we receive new

> information.

>

> & gt;

>

> & gt; Thank you,

>

> & gt;

>

> & gt; Kristy Colvin

>

> & gt; IMDSA President

>

> & gt; ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

> & gt; International Mosaic Down Syndrome Association

>

> & gt; PH: 979-828-4177

>

> & gt; Toll Free: 1-888-MDS-LINK

>

> & gt; http://www.imdsa. <http://www.imdsa.org> org

>

> & gt; http://www.mosaicmo <http://www.mosaicmoments.today.com>

ments.today.com

>

> & gt;

>

> & gt;

Link to comment
Share on other sites

I sooooo agree with you Cari.? Thanks for saying what I was afraid to say.

Kathy, Liam's mom (11,DS,Diabetes, asthma)

Re: US Health Care Update and Action Alert-Warning opinion

expressed may disagree with yours

I still say open Federal Employees Health Benefit Plan up to all citizens --

it's private insurance companies (several of them) that have negotiated (much

better rates with the federal government than they do with private citizens or

companies).? Let the citizens pay the same rates as federal employees for the

same coverage.? Those who can't afford it (based on income) can be subsidized.

Cari

?

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