Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 HOORAY! Noah seems to have gained alot at ! Is the respiratory control some type of deep breathing? Keep us updated, sounds like there's only going to be progress from here on. (Though I know we all try to just take things a day at a time.) > > So far, so good. I brought Noah back on Tuesday from > . It was such a tearful goodbye (for me, not > him) LOL. I spent most of my days on the phone trying > to line up a therapist to fill the gap until we can > get into the intensive program at the Anxiety Center > here. It's an outpatient program for about two hours a > day x 5 days a week. Hopefully, there will be an > opening within the next two or three weeks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 ((((())))), YAY! It sounds like Noah has made some real progress. That's terrific! Is he taking meds too, or is he relying on the ERP and deep breathing to get through the rough spots? I would love to lower Josh's meds, but it seems like such a fragile house of cards that you don't even want to breathe on. Sometimes, it's so hard to hope. . . You just keep holding your breath and waiting for it to all blow up again. I have a hard time just living in the moment and being grateful for things going okay on that particular day. . .But I hide it well. lol I encourage him and tell him things are going great and will only get better, while in my own head I'm saying, " I hope, I hope, I hope " . I really hope Noah can get into a good therapist and continue the good work he's been doing, so he can continue to battle this beast called OCD. Thank you for the update. BJ > > So far, so good. I brought Noah back on Tuesday from > . It was such a tearful goodbye (for me, not > him) LOL. I spent most of my days on the phone trying > to line up a therapist to fill the gap until we can > get into the intensive program at the Anxiety Center > here. It's an outpatient program for about two hours a > day x 5 days a week. Hopefully, there will be an > opening within the next two or three weeks. > > Meanwhile, my dh and I are seeing a counselor there to > help us better deal with Noah and his OCD, like how > not to accomodate, set up an incentive program, etc. > I'm telling you, we are relearning how to parent. > Ultimately, it's going to be a very good change for > all our kids, and us as a family. My dh even came > through last night. Though he couldn't be home in time > for our new " family dinner " time, he brought his food > into the family room to join the kids, and we all were > actually in the same room for more than two minutes! > > This morning I took Noah for the first day of school. > He seemed fine. This afternoon we will visit a > potential theapist who has never done ERP with kids, > but we'll see. Then we will meet with the assistant > head of school to set up a distress signal Noah can > use with his teachers, AFTER he tries to calm himself > with respiratory control. Which, by the way, really > works! > > Last night at dinner, Noah's sister just mentioned his > OCD demon, buttons, and Noah said, " That's it. My > dinner is ruined. " He put down his food. I asked what > he could do to calm himself. He left the kitchen and > came back a minute later and resumed eating. He had > used the respiratory control he practiced at > and brought his anxiety down from level 7 to a 1 or 2. > I was so proud of him, and let him know. So, I'm > feeling quite hopeful. > > He is still unable to touch food and eat it--he uses a > napkin to hold the food--but the first night he > returned, he slept in his bed (instead of on the floor > of his room). That hadn't happened in months! And last > night, he was still sleeping there. Woo hoo! > > I'm keeping him on his exposures schedule--25 a > day--and playing therapist for now. It's a lot to deal > with, but things are looking up. > > Until next time, > > > > > > ________________________________________________________________________________\ ____ > oneSearch: Finally, mobile search > that gives answers, not web links. > http://mobile./mobileweb/onesearch?refer=1ONXIC > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 This is so good to hear!!!! F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 Thanks, Chris. The respiratory control they teach is: inhale through nose for five counts (or maybe it's four), think " relax " and exhale through nose four or five counts. Repeat until anxiety subsides. This therapist we met with today for the first time, who until now has only treated OCD adults, says he also teaches to try to breathe through one nostril at a time--no hands! I guess you can't think of anything else if you're doing that! Also, he says the eyes are part of the brain, and if you roll them up, as if into your head, it actually stops feelings of anxiety, like it's some scientific fact. He says it also works to stop crying. Interesting... <@...> wrote: HOORAY! Noah seems to have gained alot at ! Is the respiratory control some type of deep breathing? Keep us updated, sounds like there's only going to be progress from here on. (Though I know we all try to just take things a day at a time.) > > So far, so good. I brought Noah back on Tuesday from > . It was such a tearful goodbye (for me, not > him) LOL. I spent most of my days on the phone trying > to line up a therapist to fill the gap until we can > get into the intensive program at the Anxiety Center > here. It's an outpatient program for about two hours a > day x 5 days a week. Hopefully, there will be an > opening within the next two or three weeks. --------------------------------- Sick sense of humor? Visit TV's Comedy with an Edge to see what's on, when. --------------------------------- Sick sense of humor? Visit TV's Comedy with an Edge to see what's on, when. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 Thanks, BJ. Noah is now on 100 mg of Zoloft, after trying Prozac with no benefit. He could go up to 200 mg eventually, but I think I'd like to hold him here until we get more therapy under our belts. As long as he's progressing and not feeling hopeless or depressed, I'm comfortable staying where we are. I know what you mean about keeping up Josh's hopes. That may be the hardest part of our job. (I didn't see " actress " on the job description for PARENT WANTED.) svdbyhislove <BJClosner@...> wrote: ((((())))), YAY! It sounds like Noah has made some real progress. That's terrific! Is he taking meds too, or is he relying on the ERP and deep breathing to get through the rough spots? I would love to lower Josh's meds, but it seems like such a fragile house of cards that you don't even want to breathe on. Sometimes, it's so hard to hope. . . You just keep holding your breath and waiting for it to all blow up again. I have a hard time just living in the moment and being grateful for things going okay on that particular day. . .But I hide it well. lol I encourage him and tell him things are going great and will only get better, while in my own head I'm saying, " I hope, I hope, I hope " . I really hope Noah can get into a good therapist and continue the good work he's been doing, so he can continue to battle this beast called OCD. Thank you for the update. BJ > > So far, so good. I brought Noah back on Tuesday from > . It was such a tearful goodbye (for me, not > him) LOL. I spent most of my days on the phone trying > to line up a therapist to fill the gap until we can > get into the intensive program at the Anxiety Center > here. It's an outpatient program for about two hours a > day x 5 days a week. Hopefully, there will be an > opening within the next two or three weeks. > > Meanwhile, my dh and I are seeing a counselor there to > help us better deal with Noah and his OCD, like how > not to accomodate, set up an incentive program, etc. > I'm telling you, we are relearning how to parent. > Ultimately, it's going to be a very good change for > all our kids, and us as a family. My dh even came > through last night. Though he couldn't be home in time > for our new " family dinner " time, he brought his food > into the family room to join the kids, and we all were > actually in the same room for more than two minutes! > > This morning I took Noah for the first day of school. > He seemed fine. This afternoon we will visit a > potential theapist who has never done ERP with kids, > but we'll see. Then we will meet with the assistant > head of school to set up a distress signal Noah can > use with his teachers, AFTER he tries to calm himself > with respiratory control. Which, by the way, really > works! > > Last night at dinner, Noah's sister just mentioned his > OCD demon, buttons, and Noah said, " That's it. My > dinner is ruined. " He put down his food. I asked what > he could do to calm himself. He left the kitchen and > came back a minute later and resumed eating. He had > used the respiratory control he practiced at > and brought his anxiety down from level 7 to a 1 or 2. > I was so proud of him, and let him know. So, I'm > feeling quite hopeful. > > He is still unable to touch food and eat it--he uses a > napkin to hold the food--but the first night he > returned, he slept in his bed (instead of on the floor > of his room). That hadn't happened in months! And last > night, he was still sleeping there. Woo hoo! > > I'm keeping him on his exposures schedule--25 a > day--and playing therapist for now. It's a lot to deal > with, but things are looking up. > > Until next time, > > > > > > __________________________________________________________ > oneSearch: Finally, mobile search > that gives answers, not web links. > http://mobile./mobileweb/onesearch?refer=1ONXIC > --------------------------------- Ready for the edge of your seat? Check out tonight's top picks on TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 So happy for all of you !!! Sounds like you have your work cut out for you. It's almost a full time job, but then so is just living with OCD, so at least your work will have a positive payoff! Hopefully a space opens up at the treatment centre soon, I'll hold a good thought for you. Barb > > So far, so good. I brought Noah back on Tuesday from > . It was such a tearful goodbye (for me, not > him) LOL. I spent most of my days on the phone trying > to line up a therapist to fill the gap until we can > get into the intensive program at the Anxiety Center > here. It's an outpatient program for about two hours a > day x 5 days a week. Hopefully, there will be an > opening within the next two or three weeks. > > Meanwhile, my dh and I are seeing a counselor there to > help us better deal with Noah and his OCD, like how > not to accomodate, set up an incentive program, etc. > I'm telling you, we are relearning how to parent. > Ultimately, it's going to be a very good change for > all our kids, and us as a family. My dh even came > through last night. Though he couldn't be home in time > for our new " family dinner " time, he brought his food > into the family room to join the kids, and we all were > actually in the same room for more than two minutes! > > This morning I took Noah for the first day of school. > He seemed fine. This afternoon we will visit a > potential theapist who has never done ERP with kids, > but we'll see. Then we will meet with the assistant > head of school to set up a distress signal Noah can > use with his teachers, AFTER he tries to calm himself > with respiratory control. Which, by the way, really > works! > > Last night at dinner, Noah's sister just mentioned his > OCD demon, buttons, and Noah said, " That's it. My > dinner is ruined. " He put down his food. I asked what > he could do to calm himself. He left the kitchen and > came back a minute later and resumed eating. He had > used the respiratory control he practiced at > and brought his anxiety down from level 7 to a 1 or 2. > I was so proud of him, and let him know. So, I'm > feeling quite hopeful. > > He is still unable to touch food and eat it--he uses a > napkin to hold the food--but the first night he > returned, he slept in his bed (instead of on the floor > of his room). That hadn't happened in months! And last > night, he was still sleeping there. Woo hoo! > > I'm keeping him on his exposures schedule--25 a > day--and playing therapist for now. It's a lot to deal > with, but things are looking up. > > Until next time, > > > > > > ______________________________________________________________________ ______________ > oneSearch: Finally, mobile search > that gives answers, not web links. > http://mobile./mobileweb/onesearch?refer=1ONXIC > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 Thanks for explaining it , I had read your reply and TOLD him to try it! (emphasis on TOLD as I cheerfully said for him to try it more than once in a tone meaning " no choice " ) Heck, these days I'm going to try it too! > > Thanks, Chris. The respiratory control they teach is: inhale through nose for five counts (or maybe it's four), think " relax " and exhale through nose four or five counts. Repeat until anxiety subsides. This therapist we met with today for the first time, who Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2007 Report Share Posted August 24, 2007 , that is fantastic news! I am so happy for you and all your family. I am very impressed that Noah managed to regroup after the buttons incident and even slept in his own bed! The outpatient prgram you describe sounds great - good luck with that. It is so good to hear that Noah has gained so much more control over his OCD. I hope you continue to see improvement. update on Noah So far, so good. I brought Noah back on Tuesday from . It was such a tearful goodbye (for me, not him) LOL. I spent most of my days on the phone trying to line up a therapist to fill the gap until we can get into the intensive program at the Anxiety Center here. It's an outpatient program for about two hours a day x 5 days a week. Hopefully, there will be an opening within the next two or three weeks. Meanwhile, my dh and I are seeing a counselor there to help us better deal with Noah and his OCD, like how not to accomodate, set up an incentive program, etc. I'm telling you, we are relearning how to parent. Ultimately, it's going to be a very good change for all our kids, and us as a family. My dh even came through last night. Though he couldn't be home in time for our new " family dinner " time, he brought his food into the family room to join the kids, and we all were actually in the same room for more than two minutes! This morning I took Noah for the first day of school. He seemed fine. This afternoon we will visit a potential theapist who has never done ERP with kids, but we'll see. Then we will meet with the assistant head of school to set up a distress signal Noah can use with his teachers, AFTER he tries to calm himself with respiratory control. Which, by the way, really works! Last night at dinner, Noah's sister just mentioned his OCD demon, buttons, and Noah said, " That's it. My dinner is ruined. " He put down his food. I asked what he could do to calm himself. He left the kitchen and came back a minute later and resumed eating. He had used the respiratory control he practiced at and brought his anxiety down from level 7 to a 1 or 2. I was so proud of him, and let him know. So, I'm feeling quite hopeful. He is still unable to touch food and eat it--he uses a napkin to hold the food--but the first night he returned, he slept in his bed (instead of on the floor of his room). That hadn't happened in months! And last night, he was still sleeping there. Woo hoo! I'm keeping him on his exposures schedule--25 a day--and playing therapist for now. It's a lot to deal with, but things are looking up. Until next time, ____________ _________ _________ _________ _________ _________ _ oneSearch: Finally, mobile search that gives answers, not web links. http://mobile. / mobileweb/ onesearch? refer=1ONXIC ________________________________________________________________________________\ ____ oneSearch: Finally, mobile search that gives answers, not web links. http://mobile./mobileweb/onesearch?refer=1ONXIC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2007 Report Share Posted August 24, 2007 No joke - I would try it! I learned a similar technique for relaxation a few years ago when I was all stressed out and having panic attacks(before we knew what was going on with ds, but knew something was wrong). Anyway, it involved deep breathing and visualization and it really helped me cope better with the stress of it all. I haven't had a panic attack since. If anyone is interested the program is called Chaange. They have a website. I would strongly recommend it for anyone who suffers from stress ( that would be all of us parents!). Sinead Re: update on Noah Thanks for explaining it , I had read your reply and TOLD him to try it! (emphasis on TOLD as I cheerfully said for him to try it more than once in a tone meaning " no choice " ) Heck, these days I'm going to try it too! > > Thanks, Chris. The respiratory control they teach is: inhale through nose for five counts (or maybe it's four), think " relax " and exhale through nose four or five counts. Repeat until anxiety subsides. This therapist we met with today for the first time, who ________________________________________________________________________________\ ____ Luggage? GPS? Comic books? Check out fitting gifts for grads at Search http://search./search?fr=oni_on_mail & p=graduation+gifts & cs=bz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 Rich and I would like to express our thanks to those of you who continue to pray for Noah. We got word today that Noah's team of physicians at Cincinnati Children's Hospital did not meet this past Wednesday as planned. Our pulmonologist did have his nurse call us and let us know that they are still waiting on a few test results. They plan to meet this coming Wednesday to discuss Noah's case and decide on a plan of action. His pulmonologist told his nurse he believes Noah has a lung disease, but is not sure which one at this point. Rich and I are planning to give Cincinnati a chance to come up with a plan. We are keeping our options open to transfer his care to Children's Hospital in Philadelphia if we are not satisfied with the plan. Children's in Philadelphia appears to be more specialized in pulmonary care according to the info we have read. We are now monitoring Noah's oxygen more frequently and using oxygen as needed. We are very worried about Noah's condition and pray that answers come soon. Sue Carr Quote Link to comment Share on other sites More sharing options...
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