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Not sure what you mean when you say that your son had his adnoids out nut

tonsils are still intack???

T & A

> Hi ,

> It's me again,

> I was just curious if you heard anymore re: the T & A's

> b/c our son had his adnoids out in 8/2002 and recently

> DX with this April. The ENT wouldn't even touch

> his tonsils back then and then we didn't have the

> patterns of fevers yet.

> Thanks.

>

>

>

>

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  • 1 year later...
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I agree with you to an extent. I think you need to tell your child what is

going on. My daughter is 3 and has been diagnosed with FMF-Familial

Mediterranean Fever. She has always known what is going to happen during her

blood draws and other appointments. I don't think you should hide what's going

on with the child. When my other daughter was 18 months she had to have tubes

put in her ears for chronic ear infections and we told her before hand what was

going to happen. Did she still kick and scream? Of course they will. It's a

scary thing for them and the stick does hurt.

I do agree that you shouldn't go on and on about how much it will hurt. And

don't say that they don't like needles or are scared of them. I don't like

needles either but I'm not afraid of them. I don't know anyone who really likes

to be stuck with a needle! My husband is terrified of needles but he never lets

on with the kids around. They do know that he hates them but he still takes

them to have shots and he takes our youngest to have blood drawn sometimes.

It's not the needles and surgery that's so scary, it's the pain you feel from

them that's scary!

God be with you,

Debby

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Just wanted to take a minute to share our experience with PAFPA and our

decision to have a T & A for our son. had fevers every month of his life

pretty much like clockwork for FIVE years.

Our pediatrician never had any answers for us except for that some kids get

sick more often than others. As I mother, I knew something was wrong. I sought

out on my own the opinion of two doctors in Chicago. One was at Children's

Memorial and the other at the University of Chicago. The doctor at CM just

wanted to give him steroids and send us on our way. The doctor at U of Chicago

was fantastic. We went ahead with the T & A as the results have been VERY

FAVORABLE with others. The surgery was a piece of cake for our son. He was six

years old when he had it done. He is now almost eight! It has been over two

years and he is cured. Our lives are normal again and he is healthy and happy.

I encourage everyone to consider all of the success that a T & A has provided. I'd

be happy to talk with anyone about our experience.

Good Luck!

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THAT makes me feel alot better!!! I know that it doesn't work for

everyone, but if my daughter gets the same results as your son I

would be thrilled. Thanks so much for sharing your story with us.

Amy Leary

Mother to Krystina 3.2 years old.

>

> Just wanted to take a minute to share our experience with PAFPA

and our decision to have a T & A for our son. had fevers

every month of his life pretty much like clockwork for FIVE years.

>

> Our pediatrician never had any answers for us except for that

some kids get sick more often than others. As I mother, I knew

something was wrong. I sought out on my own the opinion of two

doctors in Chicago. One was at Children's Memorial and the other at

the University of Chicago. The doctor at CM just wanted to give him

steroids and send us on our way. The doctor at U of Chicago was

fantastic. We went ahead with the T & A as the results have been VERY

FAVORABLE with others. The surgery was a piece of cake for our

son. He was six years old when he had it done. He is now almost

eight! It has been over two years and he is cured. Our lives are

normal again and he is healthy and happy. I encourage everyone to

consider all of the success that a T & A has provided. I'd be happy to

talk with anyone about our experience.

>

> Good Luck!

>

>

>

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We too had out son's tonsils removed. He does not get fever anymore but he does

complain occasionally about his knees or feet hurting. Otherwise everything

else is great.

Leanne

Cade 4yrs old

Chiavola <tomjenc99@...> wrote:

Just wanted to take a minute to share our experience with PAFPA and

our decision to have a T & A for our son. had fevers every month of his

life pretty much like clockwork for FIVE years.

Our pediatrician never had any answers for us except for that some kids get sick

more often than others. As I mother, I knew something was wrong. I sought out on

my own the opinion of two doctors in Chicago. One was at Children's Memorial and

the other at the University of Chicago. The doctor at CM just wanted to give him

steroids and send us on our way. The doctor at U of Chicago was fantastic. We

went ahead with the T & A as the results have been VERY FAVORABLE with others. The

surgery was a piece of cake for our son. He was six years old when he had it

done. He is now almost eight! It has been over two years and he is cured. Our

lives are normal again and he is healthy and happy. I encourage everyone to

consider all of the success that a T & A has provided. I'd be happy to talk with

anyone about our experience.

Good Luck!

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Its sooooo great to hear a success story. Thanks for sharing.

Azzie, mom to Kianna 9

From: [mailto: ] On Behalf Of

Chiavola

Sent: Wednesday, April 18, 2007 8:42 AM

Subject: Re:T & A

Just wanted to take a minute to share our experience with PAFPA and our

decision to have a T & A for our son. had fevers every month of his

life pretty much like clockwork for FIVE years.

Our pediatrician never had any answers for us except for that some kids get

sick more often than others. As I mother, I knew something was wrong. I

sought out on my own the opinion of two doctors in Chicago. One was at

Children's Memorial and the other at the University of Chicago. The doctor

at CM just wanted to give him steroids and send us on our way. The doctor at

U of Chicago was fantastic. We went ahead with the T & A as the results have

been VERY FAVORABLE with others. The surgery was a piece of cake for our

son. He was six years old when he had it done. He is now almost eight! It

has been over two years and he is cured. Our lives are normal again and he

is healthy and happy. I encourage everyone to consider all of the success

that a T & A has provided. I'd be happy to talk with anyone about our

experience.

Good Luck!

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  • 4 months later...
  • 7 months later...
Guest guest

Hi All, My daughter fevered from 8 - 8 years old (1998-2006). The

fevers got closer as she got older-every 14 days by the time she was 8.

She had her T & A Jan 06. We have been FEVER FREE SINCE JAN 06!!!! We

used a coloring book that explained it. I think the ENT gave it to us.

Below are some links to similar downloadable coloring book. We had no

complication related to the surgery. It has been amazing.

She did have headaches almost on a cycle post surgery, but I kind of

think it was because her body was not used to having to keep-up for the

entire month. She didn't have the stamina & needed some down time every

few weeks. That only lasted about 6-8 month. Life is now normal.

Only remaining issue: her base-line SED rate is still above the normal

range.

http://www.asahq.org/patientEducation/MyTrip.pdf

http://www.arthrocareent.com/wt/page/coloring_book

http://www.ent-specialists.net/pdf/Jessie's%20Tonsillectomy.pdf

http://www.ent-specialists.net/resourcesbroc.php see last item

Best of Luck & Hope to you for fever free days!

Jane, Mom to a age 10- survivor! :-)

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Thank you so very much for the great links! This is exactly what I was hoping

for.....

Jace goes in on May 7th for his T & A and I think these will help a lot!

Your story is great!

bye bye fevers!!

Angie

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  • 10 months later...
Guest guest

Leis,

Sorry to hear that. Alyssa just had tubes and her T & A's removed last month.

Her's was more due to her health history than apnea. We had a new ENT, who was

new to the area. He wasn't approved yet by our insurance to do the surgery, so

his assoc. did it. When he came to meet us before the tube surgery, he mentioned

Lys getting her T & A removed also. We had to clear it from her cardialogist. She

was supposed to be off for a week, but needed more time and was off 10 days.

What a horrible first day back to school. She felt better physically, but was in

routine of staying home and refused to get ready (I had to physically dress her

and at 100 lbs of limp kid, it wasn't easy) and drag her. I was crying, she was

crying and I sat in my car for 10 minutes crying after I took her to school.

Thankfully her day went much better and she's been fine. It really wasn't as bad

as I thought it would be, other than the fact that all she would eat is

marshmellow peeps and

only drink frozen cokes. And that wasn't until the end of the 10 days. Good

Luck, Sue & Alyssa-MI

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