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Re: Husband have surgery tommorrow for Conn's Tumor

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In a message dated 11/19/07 9:50:16 AM, viumber@... writes:

>

> I am no doctor but have had both adrenal glands removed. But my guess is

> that he will probably need hydrocortisone and fludrocortisone as the other

> adrenal gland may take a while to wake up. Then he can wean when it wakes up.

If

> he doesn't have hydrocortisone and not making any or not much he will have a

> lot of muscle aches and also could have an adrenal crisis. Just hoping that

> his other adrenal gland can wake up fast. Good luck to both of you. Violet

>

>

>

Again usually only the aldo part of the other gland is asleep. Unless they

explore both glands surgically which is rarely done these days should have no

cortisol problem. In the old days we used to give cortisol pre and post op

for a few days as we could never predict if we had to take out both sides.

May your pressure be low!

Clarence E. Grim, BS, MS, MD

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's new at http://www.aol.com

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I am no doctor but have had both adrenal glands removed. But my guess is that he

will probably need hydrocortisone and fludrocortisone as the other adrenal gland

may take a while to wake up. Then he can wean when it wakes up. If he doesn't

have hydrocortisone and not making any or not much he will have a lot of muscle

aches and also could have an adrenal crisis. Just hoping that his other adrenal

gland can wake up fast. Good luck to both of you. Violet

" candy.lord " <candy.lord@...> wrote:

5 years ago, sudden uncontrollable high blood pressure led his gp to

suspect adenoma. Nothing showed on the CT. After 5 years, in April he

has an 8 mm adenoma on the right gland. We went to Dallas as there is

a specialist in this area. He diagnosed certain right aldosterone

producing adenoma through AVS. His reading on right is 15,200 and left

is 42. What are side effects of surgery if any? He is concerned with

the left gland reacting immediately and responding after it has

basically been asleep for 5 years. As the years have progressed his

symptoms have worsened. The low potassium being a huge problem in the

last year. Thanks for any response!

---------------------------------

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Read my article on the evolution of PA to understand what is going on.

Do you also have cortisol numbers from AVS? Was it done with ACTH

stimulatio? See our protocol.

Classically the only part of the contralateral adrenal that is asleep

is the glomerulosa part that produces aldo. Again see my article which

explains this in detail.

If they have done lots of these surgeries they will know how to handle

the post operative problems that can develop.

The classical post op changes are related to sudden hypoaldosteronism

(if you have not been on sprio before surgery). BTW trust you have had

a trial of spiro finally. It is diagnositc and suggests that surgery

will improve things if they get the right side and it is only

unilateral.

What one hopes to see is a very low post op PA and a rise in K even to

" high " levels. If this occur it is good news and suggests that surgery

will improve things.

Any FH of low K or HTN or PA?

Ask them how many they have done and followed for 15 years so you can

get some idea of their experience and results.

Husband have surgery tommorrow for Conn's

Tumor

5 years ago, sudden uncontrollable high blood pressure led

his gp to

suspect adenoma. Nothing showed on the CT. After 5 years, in April he

has an 8 mm adenoma on the right gland. We went to Dallas as there is

a specialist in this area. He diagnosed certain right aldosterone

producing adenoma through AVS. His reading on right is 15,200 and left

is 42. What are side effects of surgery if any? He is concerned with

the left gland reacting immediately and responding after it has

basically been asleep for 5 years. As the years have progressed his

symptoms have worsened. The low potassium being a huge problem in the

last year. Thanks for any response!

________________________________________________________________________

Email and AIM finally together. You've gotta check out free AOL Mail! -

http://mail.aol.com

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Share on other sites

>

> Read my article on the evolution of PA to understand what is going

on.

>

>

> Do you also have cortisol numbers from AVS? Was it done with ACTH

> stimulatio? See our protocol.

>

> Classically the only part of the contralateral adrenal that is

asleep

> is the glomerulosa part that produces aldo. Again see my article

which

> explains this in detail.

>

> If they have done lots of these surgeries they will know how to

handle

> the post operative problems that can develop.

>

> The classical post op changes are related to sudden

hypoaldosteronism

> (if you have not been on sprio before surgery). BTW trust you have

had

> a trial of spiro finally. It is diagnositc and suggests that

surgery

> will improve things if they get the right side and it is only

> unilateral.

>

>

>

> What one hopes to see is a very low post op PA and a rise in K even

to

> " high " levels. If this occur it is good news and suggests that

surgery

> will improve things.

>

> Any FH of low K or HTN or PA?

>

> Ask them how many they have done and followed for 15 years so you

can

> get some idea of their experience and results.

>

>

> Husband have surgery tommorrow for

Conn's

> Tumor

>

>

> Cortisol on right " sick side was in the 700's " cortisol on left

side was in the 400's. The surgeon does about 50 adrenal surgeries a

year, specializes in adrenal tumor and thyroid surgeries. I feel we

are in good hands. We just don't want to feel worse after surgery.

To correct the potassium problem will be a huge blessing plus

possibly getting off of meds. He takes Amiloride. He was on Spiro for

4 1/2 years doctor took him off to go on to Amiloride due to AVS

sampling. Spiro seemed to work better controlling potassium issues.

Thank you for your response!

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> 5 years ago, sudden uncontrollable high blood pressure

led

> his gp to

>

> suspect adenoma. Nothing showed on the CT. After 5 years, in

April he

>

> has an 8 mm adenoma on the right gland. We went to Dallas as there

is

>

> a specialist in this area. He diagnosed certain right aldosterone

>

> producing adenoma through AVS. His reading on right is 15,200 and

left

>

> is 42. What are side effects of surgery if any? He is concerned

with

>

> the left gland reacting immediately and responding after it has

>

> basically been asleep for 5 years. As the years have progressed his

>

> symptoms have worsened. The low potassium being a huge problem in

the

>

> last year. Thanks for any response!

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

______________________________________________________________________

__

> Email and AIM finally together. You've gotta check out free AOL

Mail! -

> http://mail.aol.com

>

Link to comment
Share on other sites

> >

> > Read my article on the evolution of PA to understand what is

going

> on.

> >

> >

> > Do you also have cortisol numbers from AVS? Was it done with

ACTH

> > stimulatio? See our protocol.

> >

> > Classically the only part of the contralateral adrenal that is

> asleep

> > is the glomerulosa part that produces aldo. Again see my article

> which

> > explains this in detail.

> >

> > If they have done lots of these surgeries they will know how to

> handle

> > the post operative problems that can develop.

> >

> > The classical post op changes are related to sudden

> hypoaldosteronism

> > (if you have not been on sprio before surgery). BTW trust you

have

> had

> > a trial of spiro finally. It is diagnositc and suggests that

> surgery

> > will improve things if they get the right side and it is only

> > unilateral.

> >

> >

> >

> > What one hopes to see is a very low post op PA and a rise in K

even

> to

> > " high " levels. If this occur it is good news and suggests that

> surgery

> > will improve things.

> >

> > Any FH of low K or HTN or PA?

> >

> > Ask them how many they have done and followed for 15 years so you

> can

> > get some idea of their experience and results.

> >

> >

> > Husband have surgery tommorrow for

> Conn's

> > Tumor

> >

> >

> > Cortisol on right " sick side was in the 700's " cortisol on left

> side was in the 400's. The surgeon does about 50 adrenal surgeries

a

> year, specializes in adrenal tumor and thyroid surgeries. I feel

we

> are in good hands. We just don't want to feel worse after

surgery.

> To correct the potassium problem will be a huge blessing plus

> possibly getting off of meds. He takes Amiloride. He was on Spiro

for

> 4 1/2 years doctor took him off to go on to Amiloride due to AVS

> sampling. Spiro seemed to work better controlling potassium

issues.

> Thank you for your response!

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > 5 years ago, sudden uncontrollable high blood

pressure

> led

> > his gp to

> >

> > suspect adenoma. Nothing showed on the CT. After 5 years, in

> April he

> >

> > has an 8 mm adenoma on the right gland. We went to Dallas as

there

> is

> >

> > a specialist in this area. He diagnosed certain right aldosterone

> >

> > producing adenoma through AVS. His reading on right is 15,200

and

> left

> >

> > is 42. What are side effects of surgery if any? He is concerned

> with

> >

> > the left gland reacting immediately and responding after it has

> >

> > basically been asleep for 5 years. As the years have progressed

his

> >

> > symptoms have worsened. The low potassium being a huge problem

in

> the

> >

> > last year. Thanks for any response!

> >

> >

> >

> >

> > The AVS was done with drip cortisol stimulation

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

>

______________________________________________________________________

> __

> > Email and AIM finally together. You've gotta check out free AOL

> Mail! -

> > http://mail.aol.com

> >

>

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Share on other sites

How long ago was the bilateral, Violet? How has it been living

ian? Have you had adrenal crisis? Been caught without your

meds? I wonder because someday us one-siders may face this. . .

Sincerely, Dave

Violet Umber wrote:

>

> I am no doctor but have had both adrenal glands removed. But my guess

> is that he will probably need hydrocortisone and fludrocortisone as

> the other adrenal gland may take a while to wake up. Then he can wean

> when it wakes up. If he doesn't have hydrocortisone and not making any

> or not much he will have a lot of muscle aches and also could have an

> adrenal crisis. Just hoping that his other adrenal gland can wake up

> fast. Good luck to both of you. Violet

>

> " candy.lord " <candy.lord@... <mailto:candy.lord%40>> wrote:

> 5 years ago, sudden uncontrollable high blood pressure led his gp to

> suspect adenoma. Nothing showed on the CT. After 5 years, in April he

> has an 8 mm adenoma on the right gland. We went to Dallas as there is

> a specialist in this area. He diagnosed certain right aldosterone

> producing adenoma through AVS. His reading on right is 15,200 and left

> is 42. What are side effects of surgery if any? He is concerned with

> the left gland reacting immediately and responding after it has

> basically been asleep for 5 years. As the years have progressed his

> symptoms have worsened. The low potassium being a huge problem in the

> last year. Thanks for any response!

>

> ---------------------------------

>

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It has been 1 and 1/2 years since my adrenalectomy. It has not been easy. I've

had about 5 crisises but most were just extrememly dizzy and nausea which I

handled OK with just more meds and sodium (opposite of the Conns I know) But a

couple months ago I nearly died. I got the stomach flu and was OUT before I knew

it. After almost 2 days my husband realized I was not getting better. He just

thought it was the flu. He called 911 and 2 EMT units responded. I wear a medic

alert bracelet. There are about 3 days I don't remember anything of, including

ambulance trip. My blood pressure was 90/24 when arriving at hospital. Was in

ICU for 5 days.

I wouldn't recomend both adrenals out unless it is absolutely necessary which

it was for me. Adrenals were full of tumors which didn't even show on MRI's. It

is strange how the hormonal system can have such an effect on our whole body. I

am doing pretty good now. I carry meds with me in my purse and have a red bag on

the counter. Also have injections of Solu Cortef both places but when my husband

realized what was wrong he got too shook to give me a shot. Guess it was best he

got me to the hospital. Good Luck to you all! Violet

Dave <riothamus2@...> wrote:

How long ago was the bilateral, Violet? How has it been living

ian? Have you had adrenal crisis? Been caught without your

meds? I wonder because someday us one-siders may face this. . .

Sincerely, Dave

Violet Umber wrote:

>

> I am no doctor but have had both adrenal glands removed. But my guess

> is that he will probably need hydrocortisone and fludrocortisone as

> the other adrenal gland may take a while to wake up. Then he can wean

> when it wakes up. If he doesn't have hydrocortisone and not making any

> or not much he will have a lot of muscle aches and also could have an

> adrenal crisis. Just hoping that his other adrenal gland can wake up

> fast. Good luck to both of you. Violet

>

> " candy.lord " <candy.lord@... <mailto:candy.lord%40>> wrote:

> 5 years ago, sudden uncontrollable high blood pressure led his gp to

> suspect adenoma. Nothing showed on the CT. After 5 years, in April he

> has an 8 mm adenoma on the right gland. We went to Dallas as there is

> a specialist in this area. He diagnosed certain right aldosterone

> producing adenoma through AVS. His reading on right is 15,200 and left

> is 42. What are side effects of surgery if any? He is concerned with

> the left gland reacting immediately and responding after it has

> basically been asleep for 5 years. As the years have progressed his

> symptoms have worsened. The low potassium being a huge problem in the

> last year. Thanks for any response!

>

> ---------------------------------

>

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In a message dated 11/20/07 10:01:07 AM, viumber@... writes:

>

> It has been 1 and 1/2 years since my adrenalectomy. It has not been easy.

> I've had about 5 crisises but most were just extrememly dizzy and nausea which

> I handled OK with just more meds and sodium (opposite of the Conns I know)

> But a couple months ago I nearly died. I got the stomach flu and was OUT

before

> I knew it. After almost 2 days my husband realized I was not getting better.

> He just thought it was the flu. He called 911 and 2 EMT units responded. I

> wear a medic alert bracelet. There are about 3 days I don't remember anything

> of, including ambulance trip. My blood pressure was 90/24 when arriving at

> hospital. Was in ICU for 5 days.

> I wouldn't recomend both adrenals out unless it is absolutely necessary

> which it was for me. Adrenals were full of tumors which didn't even show on

> MRI's. It is strange how the hormonal system can have such an effect on our

whole

> body. I am doing pretty good now. I carry meds with me in my purse and have a

> red bag on the counter. Also have injections of Solu Cortef both places but

> when my husband realized what was wrong he got too shook to give me a shot.

> Guess it was best he got me to the hospital. Good Luck to you all! Violet

>

>

>

You did not mention if you are taking steroids every day and have

instructions to increase them even with a minor illness to prevent rapid death

from

's crisis.

May your pressure be low!

Clarence E. Grim, BS, MS, MD

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

Check out AOL's list of 2007's hottest

products.

(http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001)

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