Re: 1 year check up

[Guest guest]

My was not tested for thyroid problems until she developed symptoms

at age 16 or so. The X-ray is for atlanto/axial stability and should be done

as soon as possible.

Services? In the U.S.??? Surely you jest. That may change soon, but it

hasn't changed yet. Too many " tea parties " going on.

granny

On Wed, Apr 15, 2009 at 1:29 PM, Nzingha S <nzinghas3@...> wrote:

>

>

> I was into see our peditrician for my sons one year check up. I'm catching

> up on vaccinations, they seem to have more than I remember with my last

> child so I have refused two. At any rate I read in a book on DS that at 1

> year a child should have a thyroid test done, he had one when he was born it

> was fine and he doesn't show any signs that it should be a concern right

> now. I've also read that he should have a neck xray not sure what it is

> called. But after meeting w/ the ped. she said no for the xray when he is

> three and for the thyroid another year unless we suspect there is an issue.

>

> Is this right? I have no ped that sees many children with DS so not sure

> how accurate her information is.

>

> also since I'm writing, we are buying a summer home in the US (we are

> americans but live and work outside of the US) and will spend a few months

> out of the year there. Possibly might have to live there full time depending

> on schooling here is there anything I need to do to register my son for

> services? If so where do I go?

>

> thanks

> ann

>

>

[Guest guest]

I believe that yearly thyroid tests are now recommended for all children

with DS, as the condition can crop up at any time. It is more critical

when they are young (hypothyroidism in babies can lead to brain damage,

which is why they test a birth), but I'm not sure at what point this is

no longer a problem. 's pediatrician requests them yearly, and

for the most part, we've tried to do it at least every couple years...

sometimes it's easier than others to get it done :-)

We did 's first Xray at about 3 when she started preschool, and

again this year, as she has been more active in different sports and the

ped thought it a good idea. Since they have both been fine, I'm

guessing they won't need them again. I think 3 is about the usual time

for an neck Xray.

, mom to (13), (11 DS), and Sammy (7)

Nzingha S wrote:

>

>

> I was into see our peditrician for my sons one year check up. I'm

> catching up on vaccinations, they seem to have more than I remember

> with my last child so I have refused two. At any rate I read in a book

> on DS that at 1 year a child should have a thyroid test done, he had

> one when he was born it was fine and he doesn't show any signs that it

> should be a concern right now. I've also read that he should have a

> neck xray not sure what it is called. But after meeting w/ the ped.

> she said no for the xray when he is three and for the thyroid another

> year unless we suspect there is an issue.

>

> Is this right? I have no ped that sees many children with DS so not

> sure how accurate her information is.

>

> also since I'm writing, we are buying a summer home in the US (we are

> americans but live and work outside of the US) and will spend a few

> months out of the year there. Possibly might have to live there full

> time depending on schooling here is there anything I need to do to

> register my son for services? If so where do I go?

>

> thanks

> ann

>

>

[Guest guest]

I'll speak to the thyroid question from my personal experience only.

I believe we checked his thyroid every year as a precaution and always got a

normal report. When he was about 13, I didn't think to ask for it until the end

of the checkup....I thought about not doing it since the tests always were

normal, but decided to go ahead and ask for it. That was the year that he

started showing problems with low thyroid. I give him a 30mg tablet of Armour

thyroid each day and his numbers are back in the normal range. He is 20 now.

Thyroid medicine is fairly inexpensive and seems to do it's job.

Hope you are all enjoying a nice spring day!

Shirley

1 year check up

I was into see our peditrician for my sons one year check up. I'm catching up

on vaccinations, they seem to have more than I remember with my last child so I

have refused two. At any rate I read in a book on DS that at 1 year a child

should have a thyroid test done, he had one when he was born it was fine and he

doesn't show any signs that it should be a concern right now. I've also read

that he should have a neck xray not sure what it is called. But after meeting w/

the ped. she said no for the xray when he is three and for the thyroid another

year unless we suspect there is an issue.

Is this right? I have no ped that sees many children with DS so not sure how

accurate her information is.

also since I'm writing, we are buying a summer home in the US (we are

americans but live and work outside of the US) and will spend a few months out

of the year there. Possibly might have to live there full time depending on

schooling here is there anything I need to do to register my son for services?

If so where do I go?

thanks

ann

[Guest guest]

we have Nic's thyroid checked every year.

Di

1 year check up

>I was into see our peditrician for my sons one year check up. I'm catching

>up on vaccinations, they seem to have more than I remember with my last

>child so I have refused two. At any rate I read in a book on DS that at 1

>year a child should have a thyroid test done, he had one when he was born

>it was fine and he doesn't show any signs that it should be a concern right

>now. I've also read that he should have a neck xray not sure what it is

>called. But after meeting w/ the ped. she said no for the xray when he is

>three and for the thyroid another year unless we suspect there is an issue.

>

> Is this right? I have no ped that sees many children with DS so not sure

> how accurate her information is.

>

> also since I'm writing, we are buying a summer home in the US (we are

> americans but live and work outside of the US) and will spend a few months

> out of the year there. Possibly might have to live there full time

> depending on schooling here is there anything I need to do to register my

> son for services? If so where do I go?

>

> thanks

> ann

>

>

>

>

>

>

[Guest guest]

We check 's level every year. We also have other tests run at the same time

just to cover our ends. We had our first neck xray when he was 3, and had it

repeated at 5 everything looked great no need to repeat it. When you move to

the us, where ever you live what ever school district you live in is who you

contact about services, you can also call the county you live in to see if you

qualify for any of the services through them.

1 year check up

I was into see our peditrician for my sons one year check up. I'm catching up

on vaccinations, they seem to have more than I remember with my last child so I

have refused two. At any rate I read in a book on DS that at 1 year a child

should have a thyroid test done, he had one when he was born it was fine and he

doesn't show any signs that it should be a concern right now. I've also read

that he should have a neck xray not sure what it is called. But after meeting w/

the ped. she said no for the xray when he is three and for the thyroid another

year unless we suspect there is an issue.

Is this right? I have no ped that sees many children with DS so not sure how

accurate her information is.

also since I'm writing, we are buying a summer home in the US (we are

americans but live and work outside of the US) and will spend a few months out

of the year there. Possibly might have to live there full time depending on

schooling here is there anything I need to do to register my son for services?

If so where do I go?

thanks

ann

[Guest guest]

had his thyroid tested every since I can remember. It always showed

nothing. Then a few years ago, the bloodwork came up abnormal and he began

taking thyroid medicine after we were referred to a Pediatric

Endocrinologist. He has been on the same dosage for about 3 years and we

see the specialist every 6 months. In fact, this morning was his

appointment. His latest labs showed that we need to up the dosage. I see

NO difference in anything physically or mentally, etc in the last 3 years,

so I guess only bloodwork can show some of these changes. I would recommend

testing because we never saw any problems, but he needed the medicine at

some point. Luckily, if you test every year, you can catch the problem when

it is first beginning. About the neck x-ray for AAI, I think he was 3 when

he first had that one.

Good luck,

Kym...mom to (11 w/ DS)

1 year check up

<<<At any rate I read in a book on DS that at 1 year a child should have a

thyroid test done, he had one when he was born it was fine and he doesn't

show any signs that it should be a concern right now. I've also read that he

should have a neck xray not sure what it is called. >>>

>

> thanks

> ann

[Guest guest]

So had his 1yr appt with the pediatrician today. He is at the 75th percentile for height and head size, but he is not gaining enough weight. He is starting to fall off his growth curve. This is not the news that I wanted to hear. Hopefully the dietitian will have some advice. I am worried because he doesn't particularily like milk but loves yogurt and cheese. I started him on pedialite today hoping that will help. Develomentally he is delayed as well. He didn't seem to be concerned. He wants to follow up after he is casted to see if he catches up. This is so new to me. My other two were chubby and had no health issues at all. It is sad to see needing so much and having such difficulty. And yet he seems to be happy and so easy going. Sorry ape the son story. Needed to spill to someone. Sent from my BlackBerry® wireless handheldFrom: <missikay10@...>Sender: infantile scoliosis treatment Date: Mon, 03 Jan 2011 12:07:03 -0600<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: Edmonton My son had a cobb angle at 50 degrees with an RVAD of 40 and he is now cast/brace free so don't get discouraged! Every child is different but there is hope!!kfaul@... wrote:>The RVAD is 40. Which was the bad news. Hoping that the casting will help temporarily. I have a feeling that may need surgery eventually. >Or maybe by some miracle the casting will do the trick>>Sent from my BlackBerry® wireless handheld>> Re: Edmonton>>EXCELLENT news! What a relief to hear that it was 63 and NOT 79! How>high is the RVAD? Did they give you that number by chance? You are on>the road...Congrats!>HRH>>>> We had a successful appt in Edmonton. Very happy with the Dr. He is>> going to cast at the end of january. Needs to wait until the MRI.>> The curve was 63 (not 79 like we were told at the last appt) however the>> RVAD is high -not good)>>>> Sent from my BlackBerry® wireless handheld>>>> ------------------------------------>>>>

[Guest guest]

My son too is in the 75th %tile in height, 95% in head size and maybe 20% in

weight. He is 28 months old and wears a 18 month onesie. He too had many

physical delays but improved in cast and now out of cast is doing awesome.

Cognitively he is delayed profoundly. He is on the autism spectrum.

It is common for our scoli children to have big heads and be of slender

phenotype. Just try to boost calories as you can and continue Pediasure. Your

doing great!

kfaul@... wrote:

>So had his 1yr appt with the pediatrician today. He is at the 75th

percentile for height and head size, but he is not gaining enough weight. He is

starting to fall off his growth curve. This is not the news that I wanted to

hear.

>Hopefully the dietitian will have some advice. I am worried because he doesn't

particularily like milk but loves yogurt and cheese. I started him on pedialite

today hoping that will help.

>

>Develomentally he is delayed as well. He didn't seem to be concerned. He

wants to follow up after he is casted to see if he catches up.

>

>This is so new to me. My other two were chubby and had no health issues at

all. It is sad to see needing so much and having such difficulty. And

yet he seems to be happy and so easy going.

>

>Sorry ape the son story. Needed to spill to someone.

>Sent from my BlackBerry® wireless handheld

>

> Re: Edmonton

>>

>>EXCELLENT news! What a relief to hear that it was 63 and NOT 79! How

>>high is the RVAD? Did they give you that number by chance? You are on

>>the road...Congrats!

>>HRH

>>

>>

>>> We had a successful appt in Edmonton. Very happy with the Dr. He is

>>> going to cast at the end of january. Needs to wait until the MRI.

>>> The curve was 63 (not 79 like we were told at the last appt) however the

>>> RVAD is high -not good)

>>>

>>> Sent from my BlackBerry® wireless handheld

>>>

>>> ------------------------------------

>>>

>

[Guest guest]

Hey--

Logan just had his 18 month check up (out of cast) and he is >95%in height. 60th% in head and flippin 8% for weight. Talk about a tall and skinny! From what I have heard other mamas say on here---scoli kids typically are tall and skinny...

Logan is a picky eater as well...and the amount seems to be comparable to a bird. Its crazy! But I just make sure snacks are always out...he is def a grazer.

I have 2 older ones as well..so this was our first time dealing with one so thin. It still scares us but we def make up for lost time when the casts are off! He eats like crazy.

Logan's mama (45 down to 0 in cast, 6th cast, 18 months old)

From: "kfaul@..." <kfaul@...>infantile scoliosis treatment Sent: Tue, January 4, 2011 11:11:25 PMSubject: Re: 1 year check up

So had his 1yr appt with the pediatrician today. He is at the 75th percentile for height and head size, but he is not gaining enough weight. He is starting to fall off his growth curve. This is not the news that I wanted to hear. Hopefully the dietitian will have some advice. I am worried because he doesn't particularily like milk but loves yogurt and cheese. I started him on pedialite today hoping that will help. Develomentally he is delayed as well. He didn't seem to be concerned. He wants to follow up after he is casted to see if he catches up. This is so new to me. My other two were chubby and had no health issues at all. It is sad to see needing so much and having such difficulty. And yet he seems to be happy and so easy going. Sorry ape the son story. Needed to spill to someone. Sent from my BlackBerry® wireless handheld

From: <missikay10@...>

Sender: infantile scoliosis treatment

Date: Mon, 03 Jan 2011 12:07:03 -0600

<infantile scoliosis treatment >

Replyinfantile scoliosis treatment

Subject: Re: Edmonton

My son had a cobb angle at 50 degrees with an RVAD of 40 and he is now cast/brace free so don't get discouraged! Every child is different but there is hope!!kfaul@... wrote:>The RVAD is 40. Which was the bad news. Hoping that the casting will help temporarily. I have a feeling that may need surgery eventually. >Or maybe by some miracle the casting will do the trick>>Sent from my BlackBerry® wireless handheld>> Re: Edmonton>>EXCELLENT news! What a relief to hear that it was 63 and NOT 79! How>high is the RVAD? Did they give you that number by chance? You are on>the road...Congrats!>HRH>>>> We had a successful appt in Edmonton. Very happy with the Dr. He is>> going to cast at the end of january. Needs to wait until the

MRI.>> The curve was 63 (not 79 like we were told at the last appt) however the>> RVAD is high -not good)>>>> Sent from my BlackBerry® wireless handheld>>>> ------------------------------------>>>>

[Guest guest]

Thanks Sent from my BlackBerry® wireless handheldFrom: <missikay10@...>Sender: infantile scoliosis treatment Date: Tue, 04 Jan 2011 22:44:13 -0600<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: Re: 1 year check up My son too is in the 75th %tile in height, 95% in head size and maybe 20% in weight. He is 28 months old and wears a 18 month onesie. He too had many physical delays but improved in cast and now out of cast is doing awesome. Cognitively he is delayed profoundly. He is on the autism spectrum.It is common for our scoli children to have big heads and be of slender phenotype. Just try to boost calories as you can and continue Pediasure. Your doing great!kfaul@... wrote:>So had his 1yr appt with the pediatrician today. He is at the 75th percentile for height and head size, but he is not gaining enough weight. He is starting to fall off his growth curve. This is not the news that I wanted to hear. >Hopefully the dietitian will have some advice. I am worried because he doesn't particularily like milk but loves yogurt and cheese. I started him on pedialite today hoping that will help. >>Develomentally he is delayed as well. He didn't seem to be concerned. He wants to follow up after he is casted to see if he catches up. >>This is so new to me. My other two were chubby and had no health issues at all. It is sad to see needing so much and having such difficulty. And yet he seems to be happy and so easy going. >>Sorry ape the son story. Needed to spill to someone. >Sent from my BlackBerry® wireless handheld>> Re: Edmonton>>>>EXCELLENT news! What a relief to hear that it was 63 and NOT 79! How>>high is the RVAD? Did they give you that number by chance? You are on>>the road...Congrats!>>HRH>>>>>>> We had a successful appt in Edmonton. Very happy with the Dr. He is>>> going to cast at the end of january. Needs to wait until the MRI.>>> The curve was 63 (not 79 like we were told at the last appt) however the>>> RVAD is high -not good)>>>>>> Sent from my BlackBerry® wireless handheld>>>>>> ------------------------------------>>>>

[Guest guest]

is the same way.....eats like a bird at times. He is TALL and skinny. He will be 6 in April and has yet to reach over 45 lbs., but has to wear a size SEVEN for the length in jeans/pants. Praise God for adjustable waist pants!!!!!

For years I worried about his weight because he has a twin brother who has no problem eating. I finally gave up on worrying and figure he is happy, healthy and growing UP(height). Something must be working.

BTW-if anyone is looking for jeans that fit skinny boys.......Wrangler Cowboy cut. Of course we still had to get the slim fit, actually looks like he has a butt!

TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, Texas. After being treated in a series of 6 casts for 14 months he is now in a brace and has been since September 2007.

EARLY Treatment does work if done properly.

You can read 's story at.... http://www.infantilescoliosis.org/stories.html

Or follow our family one day at a time......http://thefontenotslife.blogspot.com/

From: Medlin <amanda.medlin@...>infantile scoliosis treatment Sent: Wed, January 5, 2011 7:39:12 AMSubject: Re: Re: 1 year check up

Hey--

Logan just had his 18 month check up (out of cast) and he is >95%in height. 60th% in head and flippin 8% for weight. Talk about a tall and skinny! From what I have heard other mamas say on here---scoli kids typically are tall and skinny...

Logan is a picky eater as well...and the amount seems to be comparable to a bird. Its crazy! But I just make sure snacks are always out...he is def a grazer.

I have 2 older ones as well..so this was our first time dealing with one so thin. It still scares us but we def make up for lost time when the casts are off! He eats like crazy.

Logan's mama (45 down to 0 in cast, 6th cast, 18 months old)

From: "kfaul@..." <kfaul@...>infantile scoliosis treatment Sent: Tue, January 4, 2011 11:11:25 PMSubject: Re: 1 year check up

So had his 1yr appt with the pediatrician today. He is at the 75th percentile for height and head size, but he is not gaining enough weight. He is starting to fall off his growth curve. This is not the news that I wanted to hear. Hopefully the dietitian will have some advice. I am worried because he doesn't particularily like milk but loves yogurt and cheese. I started him on pedialite today hoping that will help. Develomentally he is delayed as well. He didn't seem to be concerned. He wants to follow up after he is casted to see if he catches up. This is so new to me. My other two were chubby and had no health issues at all. It is sad to see needing so much and having such difficulty. And yet he seems to be happy and so easy going. Sorry ape the son story. Needed to spill to someone. Sent from my BlackBerry® wireless handheld

From: <missikay10@...>

Sender: infantile scoliosis treatment

Date: Mon, 03 Jan 2011 12:07:03 -0600

<infantile scoliosis treatment >

Replyinfantile scoliosis treatment

Subject: Re: Edmonton

My son had a cobb angle at 50 degrees with an RVAD of 40 and he is now cast/brace free so don't get discouraged! Every child is different but there is hope!!kfaul@... wrote:>The RVAD is 40. Which was the bad news. Hoping that the casting will help temporarily. I have a feeling that may need surgery eventually. >Or maybe by some miracle the casting will do the trick>>Sent from my BlackBerry® wireless handheld>> Re: Edmonton>>EXCELLENT news! What a relief to hear that it was 63 and NOT 79! How>high is the RVAD? Did they give you that number by chance? You are on>the road...Congrats!>HRH>>>> We had a successful appt in Edmonton. Very happy with the Dr. He is>> going to cast at the end of january. Needs to wait until the

MRI.>> The curve was 63 (not 79 like we were told at the last appt) however the>> RVAD is high -not good)>>>> Sent from my BlackBerry® wireless handheld>>>> ------------------------------------>>>>

[Guest guest]

Spill all you need, no worries. My daughter was similar and I was

constantly trying to increase her calorie intake. She remains slender to

this day and she is 13. I have finally come to the conclusion that she

will always be slender and have stopped trying to make her eat. Probably,

because she is a teen now and really hates my nagging. I have seen many

children benefit from ET w/ a properly applied series/solid block of EDF

casting in so many ways ie; balance, walking, eating, reflux, bowel

movements, etc. and hope that is one of these kiddos! Best of luck

on your 1st cast and pls keep us posted.

Sincerely,

HRH

> So had his 1yr appt with the pediatrician today. He is at the 75th

> percentile for height and head size, but he is not gaining enough weight.

> He is starting to fall off his growth curve. This is not the news that I

> wanted to hear.

> Hopefully the dietitian will have some advice. I am worried because he

> doesn't particularily like milk but loves yogurt and cheese. I started

> him on pedialite today hoping that will help.

>

> Develomentally he is delayed as well. He didn't seem to be concerned. He

> wants to follow up after he is casted to see if he catches up.

>

> This is so new to me. My other two were chubby and had no health issues

> at all. It is sad to see needing so much and having such

> difficulty. And yet he seems to be happy and so easy going.

>

> Sorry ape the son story. Needed to spill to someone.

> Sent from my BlackBerry® wireless handheld

>

> Re: Edmonton

>>

>>EXCELLENT news! What a relief to hear that it was 63 and NOT 79! How

>>high is the RVAD? Did they give you that number by chance? You are on

>>the road...Congrats!

>>HRH

>>

>>

>>> We had a successful appt in Edmonton. Very happy with the Dr. He is

>>> going to cast at the end of january. Needs to wait until the

>>> MRI.

>>> The curve was 63 (not 79 like we were told at the last appt) however

>>> the

>>> RVAD is high -not good)

>>>

>>> Sent from my BlackBerry® wireless handheld

>>>

>>> ------------------------------------

>>>

>>>