Guest guest Posted December 6, 2007 Report Share Posted December 6, 2007 In a message dated 12/6/07 5:07:50 PM, gaznik111@... writes: > Did u have the AVS done when u were in as a day patient, do u have a > similar case as me or is yours not a tumor. Do u mind me asking your age as im 34 > and i feel young, no offence to the older patients but they all seem much > older when u go the clinics > This is about the age of the very first Conn's as I recall. AVS can be done as an outpt. We recommned it be done after ACTH stimulation to minimze the risk of having to do another one. Details in our files I think. Be sure to keep copies of all you records as they seem to get lost over there more than here. I would also do your own history and print it out as well so they dont have to keep asking you the same questions. You could even number the questions they are likely to ask you and say see question number 4 and my answer. Trust you are undergoing or have undergone a spironolactone trial to see if it helps BP and K. Remind any newbies you see in his office that they need to become very familiar with this disease as it is very common. May your pressure be low! Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS Clinical Professor of Medicine and Epidemiology Director, Hypertension Diagnosis and Treatment Center Board Certified in Internal Medicine, Geriatrics and Hypertension Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes. Listed in Best Doctors in America Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora ************************************** Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2007 Report Share Posted December 6, 2007 In a message dated 12/6/07 4:01:29 PM, beecathy@... writes: > > > > > Just wondering what the general Conns experience is in UK - I'm under > Kings College in London which is a pretty big NHS teaching hospital, > and I'm pretty happy with the consultant I have seen up to now. He's > fairly high up in the food chain. However last time I went for an > annual check in august I saw another person on his team (that's pretty > normal here, to see different people - does that happen elsewhere??) > Anyway - his opening remark was that " I looked younger than he was > expecting " - subtext: on account of Conns. Pointed out that my dob was > clearly marked on the front of my file but it went downhill fom there. > He wandered through my file and made odd comments here and there, > stopping to ask pointless questions. He then took my BP and failed to > tell me what it was so i asked him, at which point he asked me what I > thought it was!! Hadn't realised I'ld landed in a game show. Anyway I > complained to PALS and magically had another appt sent through which > was 8 months earlier than expected!!! So I'm there next week. I just > felt like some 100 point item in the " I spy book of rare medical > diseases " . I'm sure my file has a big sticker with " don't piss her > off " written in doctor code. It's not the first time I've made a big > fuss. Previously they wanted me to spend a whole w/e in a ward just so > I could " maybe " secure a bed for the following monday to do the vile > blood sampling test.I absolutely refused to live on a ward for a w/e, > given that a)I live 15 mins from the hospital, b)I was perfectly well > and there were lots of people who actually NEEDED the bed and c)I had > a wedding to go to!My suggestions that I provided a mop dressed to > look like me, or would arrange for my friends to tag-sit in the bed > didn't go down too well but common sense won through and I managed to > change their policy and was seen as a day patient instead!! > > > > This is funny and clever but sad tale for the NHS. good observations. Suggest you think about writing a magazine article about this experience when things have worked out. Keep us posted. May your pressure be low! Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS Clinical Professor of Medicine and Epidemiology Director, Hypertension Diagnosis and Treatment Center Board Certified in Internal Medicine, Geriatrics and Hypertension Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes. Listed in Best Doctors in America Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora ************************************** Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2007 Report Share Posted December 6, 2007 Hi Catma, I to am in the UK, i live in Stoke and am under the University teaching hospital, i am happy with Dr Golash my surgeon and he seems to have a good record with laparotic surgeries, i found some info re him on the internet. My endo however good at finding the problem now seem poor, they did the aldo test and that came back high, had CT scan and found the tumor,but no mention of my illness ie conn's. Ive had 3 appointments now and i have learnt more from my surgeon than from my endo, maybe im not asking the correct questions, but this site is helping me do that. The last time i attended i also saw an understudy, he seemed to no less than me, I also asked if this condition ( didnt no i had conn's then and he didnt mention it) has any side effects, guess what he said NO. There were no notes on my file as the person i usually see was away and i had to tell him what i had been told last time, he left the room and then came back in, wen t on the pc and then found some info. I was that confussed (which isnt hard 2 do where im concerned) i had to ring back a few days later and speak to the big chief and he clarified most things and wrote me a letter, but still no mention of conn's !!! Oh and i even mentioned my aching legs,sore neck and terrible migrans, but my ilness still has no side effects. Did u have the AVS done when u were in as a day patient, do u have a similar case as me or is yours not a tumor. Do u mind me asking your age as im 34 and i feel young, no offence to the older patients but they all seem much older when u go the clinics Tales from the NHS... Just wondering what the general Conns experience is in UK - I'm under Kings College in London which is a pretty big NHS teaching hospital, and I'm pretty happy with the consultant I have seen up to now. He's fairly high up in the food chain. However last time I went for an annual check in august I saw another person on his team (that's pretty normal here, to see different people - does that happen elsewhere??) Anyway - his opening remark was that " I looked younger than he was expecting " - subtext: on account of Conns. Pointed out that my dob was clearly marked on the front of my file but it went downhill fom there. He wandered through my file and made odd comments here and there, stopping to ask pointless questions. He then took my BP and failed to tell me what it was so i asked him, at which point he asked me what I thought it was!! Hadn't realised I'ld landed in a game show. Anyway I complained to PALS and magically had another appt sent through which was 8 months earlier than expected!!! So I'm there next week. I just felt like some 100 point item in the " I spy book of rare medical diseases " . I'm sure my file has a big sticker with " don't piss her off " written in doctor code. It's not the first time I've made a big fuss. Previously they wanted me to spend a whole w/e in a ward just so I could " maybe " secure a bed for the following monday to do the vile blood sampling test.I absolutely refused to live on a ward for a w/e, given that a)I live 15 mins from the hospital, b)I was perfectly well and there were lots of people who actually NEEDED the bed and c)I had a wedding to go to!My suggestions that I provided a mop dressed to look like me, or would arrange for my friends to tag-sit in the bed didn't go down too well but common sense won through and I managed to change their policy and was seen as a day patient instead!! __________________________________________________________ Sent from - the World's favourite mail http://uk.mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 and , Your experiences are pretty common for the NHS. You are NOT entitled to know your test results or the lab normals in the UK but most specialists will share if you ask. Some won't as they consider it to increase patient anxiety and will just say " low " , " normal " or " high " . You do need to see someone who has experience in this area - and a student or recent grad will not have seen many Conn's patients. However you have no right to specify which specialist sees you - or even if it is the specialist or a member of the team. Some doctors think they are way above everyone and speak to you as was spoken to. The only way to deal with this is to complain. I had a bit of a head start as I was an academic staff member at the university teaching hospital where I was treated so knew all the team very well. However as a patient I was able to pick up shortcomings and did manage to get major issues addressed. Still nowhere near perfect but better than it was. I have now moved away from this hospital and have issues similar to yours at my local hospital. Some of the Drs at my new hospital refuse to treat me as I am " difficult " as in I ask questions and prod and probe until I am satisfied. They certianly don't like knowing that I am also a doctor (but a PhD and DLitt not an MD) and have far more experience in pharma and medical diagnostic testing than they do. I think it gives them the willies when I refer to the pharma data sheets (chapter and verse) and also the specs of the tests. No medical test is 100% accurate for all patients after all. You can try taking Dr Grim's papers but I think you will find they end up being filed in the bucket under the doctor's desk. They certianly won't be read. It is part of the NIH (not invented here) frame of mind. AVS is not carried out as a routine procedure in the NHS due to cost. If there is a tumour then surgery is the only route as recommended by NICE and The Chief Scientist's Office. As there is a 50% " cure " rate this is considered to be a good outcome. If a specialist goes down the AVS route when there is a tumour and something goes wrong during AVS (or the AVS doesn't give any additional information) the dr who ordered the test would be subject to investigation. The NHS system is very different to the US model. Both have strengths and weaknesses. The NHS is very budget aware and has to remain within spending limits which means treatment is not always as advanced as in the US but no one in the UK is turned away from medical treatment due to lack of funds. You don't get people in the UK who die due to a simple infection for example. Helen in Scotland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 Helen, that makes me dizzy. Not invented here. If anyone could find a cure for that, can you fancy what a world it might be? It sounds like licensing is very different from USA's, where each state does it - and undoes them. My dad was the chief of the licensing judges in Calif. for 21 years, so I have watched many docs get unfrocked. Usually for leaving a foreign object inside someone's abdomen. Occasionally, fr diagnosing outside their area of certification. Duelling psychiatry and medical boards. Dave Helen wrote: > > and , > > Your experiences are pretty common for the NHS. You are NOT entitled > to know your test results or the lab normals in the UK but most > specialists will share if you ask. Some won't as they consider it to > increase patient anxiety and will just say " low " , " normal " or " high " . > > You do need to see someone who has experience in this area - and a > student or recent grad will not have seen many Conn's patients. > However you have no right to specify which specialist sees you - or > even if it is the specialist or a member of the team. Some doctors > think they are way above everyone and speak to you as was > spoken to. The only way to deal with this is to complain. I had a bit > of a head start as I was an academic staff member at the university > teaching hospital where I was treated so knew all the team very well. > However as a patient I was able to pick up shortcomings and did > manage to get major issues addressed. Still nowhere near perfect but > better than it was. > > I have now moved away from this hospital and have issues similar to > yours at my local hospital. Some of the Drs at my new hospital refuse > to treat me as I am " difficult " as in I ask questions and prod and > probe until I am satisfied. They certianly don't like knowing that I > am also a doctor (but a PhD and DLitt not an MD) and have far more > experience in pharma and medical diagnostic testing than they do. I > think it gives them the willies when I refer to the pharma data > sheets (chapter and verse) and also the specs of the tests. No > medical test is 100% accurate for all patients after all. > > You can try taking Dr Grim's papers but I think you will find they > end up being filed in the bucket under the doctor's desk. They > certianly won't be read. It is part of the NIH (not invented here) > frame of mind. > > AVS is not carried out as a routine procedure in the NHS due to cost. > If there is a tumour then surgery is the only route as recommended by > NICE and The Chief Scientist's Office. As there is a 50% " cure " rate > this is considered to be a good outcome. If a specialist goes down > the AVS route when there is a tumour and something goes wrong during > AVS (or the AVS doesn't give any additional information) the dr who > ordered the test would be subject to investigation. > > The NHS system is very different to the US model. Both have strengths > and weaknesses. The NHS is very budget aware and has to remain within > spending limits which means treatment is not always as advanced as in > the US but no one in the UK is turned away from medical treatment due > to lack of funds. You don't get people in the UK who die due to a > simple infection for example. > > Helen in Scotland > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 In my 40 years of teaching medical students I find it hard to teach them to think if they dont have it in them. Memory and thinking are not the same. But unless you have programmed you computer in your head with as many facts as you can, you cannot think well about medicine because your random access storage is not there to call on when needed. In a message dated 12/7/07 5:54:17 AM, helenmpearson@... writes: > > Yes the route for medical registration is very different here. > > Here is a brief description: > > http://www.privatehhttp://wwhttp://www.privahttp://www.prihttp://w > > To complain about a doctor it depends where you live within the UK. > Scotland has a different system to England for example. If the > complaint is serious is goes to the General Medical Council. Here is > a brief outline of the ish complaints system: > > http://www.gmc-http://www.gmc-http://wwhttp://wwwhttp://www.gmc-http > > As you can see the medical profession are pretty much self-regulating > in the UK. The complaints process is long and difficult. I have a > complaint in progress at present - it has been going on for nearly a > year now. I've been told it could take a further 2 years to come to a > conclusion. Many people who are ill are unable to face this sort of > trial (I use the word trial after consideration) as the process does > leave one feeling as if one had been before a judge for several > years...... I have a lot of academic qualifications and hands on > experience so can satnd up for myself but I would think the average > Jane Doe would be really overwhelmed. > > I usually refer to " NIH " as ignorance and " closed mindishness " I us > also expains why when a patient moves from one hospital to another > (or even one specialist to another within the same hospital and > department) tests are repeated. I have been sent from the local > hospital which can't deal with my problem (not PA related I hope) to > another. The second hospital are part way through repeating nearly > all the tests the first hospital ran even though they have been sent > the full lab results. The only tests not being re-run are the > biopsies sent to the second hospital for their lab to run originally. > (Our local hospital does not have a path lab.) I asked why it was > necessary and was told the results of the original tests did not come > into any of their models so the tests must be wrong - well guess > what? The re-run tests have pretty much the same results as the first > and they still don't fit the model. > > My take on this? Well just maybe you are seeing something that hasn't > yet been described in the medical literature. A chance for fame and > recognition? Which specialist doesn't want a disease named after > them???? > > Most (and note I say MOST not all) medical students I have had the > pleasure of working with have no greater intelligence than any other > student but they do tend to have better memories and to work (and > play) a lot harder. I also notice that most (again MOST) medical > students work so hard on passing their exams that they don't have > time to think out of the box. It is a rare student who asks questions > that are not on the diagnostic flow chart. In short they learn how to > pass exams and the creative thinking part gets shunted into a side > alley. > > These are of course just my conclusions and opinions from what I have > observed over 30 years of working in the HE sector...... > > Helen in Scotland > > May your pressure be low! Clarence E. Grim, BS, MS, MD Senior Consultant to Shared Care Research and Consulting, Inc. (sharedcareinc.com) Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI Clinical Professor of Nursing, Univ. of WI, Milwaukee Specializing in Difficult to Control High Blood Pressure and the Physiology and History of Survival During Hard Times and Heart Disease today. ************************************** Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 In a message dated 12/7/07 3:29:30 AM, riothamus2@... writes: > but no one in the UK is turned away from medical treatment due > > to lack of funds. You don't get people in the UK who die due to a > > simple infection for example. > Some call this socialized medicine. I call it civilized medicine. We need this in the US I can assure you. May your pressure be low! Clarence E. Grim, BS, MS, MD Senior Consultant to Shared Care Research and Consulting, Inc. (sharedcareinc.com) Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI Clinical Professor of Nursing, Univ. of WI, Milwaukee Specializing in Difficult to Control High Blood Pressure and the Physiology and History of Survival During Hard Times and Heart Disease today. ************************************** Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 Have you thought about writing a Helen's Guide to the NHS? You sound like a real expert, unfortunatley. May your pressure be low! Clarence E. Grim, BS, MS, MD Senior Consultant to Shared Care Research and Consulting, Inc. (sharedcareinc.com) Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI Clinical Professor of Nursing, Univ. of WI, Milwaukee Specializing in Difficult to Control High Blood Pressure and the Physiology and History of Survival During Hard Times and Heart Disease today. ************************************** Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 Yes the route for medical registration is very different here. Here is a brief description: http://www.privatehealth.co.uk/privatespecialists/medical-training To complain about a doctor it depends where you live within the UK. Scotland has a different system to England for example. If the complaint is serious is goes to the General Medical Council. Here is a brief outline of the ish complaints system: http://www.gmc-uk.org/concerns/making_a_complaint/referal_Scotland.pdf As you can see the medical profession are pretty much self-regulating in the UK. The complaints process is long and difficult. I have a complaint in progress at present - it has been going on for nearly a year now. I've been told it could take a further 2 years to come to a conclusion. Many people who are ill are unable to face this sort of trial (I use the word trial after consideration) as the process does leave one feeling as if one had been before a judge for several years...... I have a lot of academic qualifications and hands on experience so can satnd up for myself but I would think the average Jane Doe would be really overwhelmed. I usually refer to " NIH " as ignorance and " closed mindishness " . It also expains why when a patient moves from one hospital to another (or even one specialist to another within the same hospital and department) tests are repeated. I have been sent from the local hospital which can't deal with my problem (not PA related I hope) to another. The second hospital are part way through repeating nearly all the tests the first hospital ran even though they have been sent the full lab results. The only tests not being re-run are the biopsies sent to the second hospital for their lab to run originally. (Our local hospital does not have a path lab.) I asked why it was necessary and was told the results of the original tests did not come into any of their models so the tests must be wrong - well guess what? The re-run tests have pretty much the same results as the first and they still don't fit the model. My take on this? Well just maybe you are seeing something that hasn't yet been described in the medical literature. A chance for fame and recognition? Which specialist doesn't want a disease named after them???? Most (and note I say MOST not all) medical students I have had the pleasure of working with have no greater intelligence than any other student but they do tend to have better memories and to work (and play) a lot harder. I also notice that most (again MOST) medical students work so hard on passing their exams that they don't have time to think out of the box. It is a rare student who asks questions that are not on the diagnostic flow chart. In short they learn how to pass exams and the creative thinking part gets shunted into a side alley. These are of course just my conclusions and opinions from what I have observed over 30 years of working in the HE sector....... Helen in Scotland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 I do have a tumour - left adrenal about 10 - 12mm which I thought was ENORMOUS until I found here. I was about 40 when this started though it took a year to diagnose. Now 45 and yes I do feel very young still in the clinic. I did have the AVS done as day surgery but only after a humungous fuss. > > Hi Catma, > > I to am in the UK, i live in Stoke and am under the University teaching hospital, i am happy with Dr Golash my surgeon and he seems to have a good record with laparotic surgeries, i found some info re him on the internet. > > My endo however good at finding the problem now seem poor, they did the aldo test and that came back high, had CT scan and found the tumor,but no mention of my illness ie conn's. Ive had 3 appointments now and i have learnt more from my surgeon than from my endo, maybe im not asking the correct questions, but this site is helping me do that. The last time i attended i also saw an understudy, he seemed to no less than me, I also asked if this condition ( didnt no i had conn's then and he didnt mention it) has any side effects, guess what he said NO. > There were no notes on my file as the person i usually see was away and i had to tell him what i had been told last time, he left the room and then came back in, wen t on the pc and then found some info. I was that confussed (which isnt hard 2 do where im concerned) i had to ring back a few days later and speak to the big chief and he clarified most things and wrote me a letter, but still no mention of conn's !!! Oh and i even mentioned my aching legs,sore neck and terrible migrans, but my ilness still has no side effects. > > Did u have the AVS done when u were in as a day patient, do u have a similar case as me or is yours not a tumor. Do u mind me asking your age as im 34 and i feel young, no offence to the older patients but they all seem much older when u go the clinics > > > > Tales from the NHS... > > Just wondering what the general Conns experience is in UK - I'm under > Kings College in London which is a pretty big NHS teaching hospital, > and I'm pretty happy with the consultant I have seen up to now. He's > fairly high up in the food chain. However last time I went for an > annual check in august I saw another person on his team (that's pretty > normal here, to see different people - does that happen elsewhere??) > Anyway - his opening remark was that " I looked younger than he was > expecting " - subtext: on account of Conns. Pointed out that my dob was > clearly marked on the front of my file but it went downhill fom there. > He wandered through my file and made odd comments here and there, > stopping to ask pointless questions. He then took my BP and failed to > tell me what it was so i asked him, at which point he asked me what I > thought it was!! Hadn't realised I'ld landed in a game show. Anyway I > complained to PALS and magically had another appt sent through which > was 8 months earlier than expected!!! So I'm there next week. I just > felt like some 100 point item in the " I spy book of rare medical > diseases " . I'm sure my file has a big sticker with " don't piss her > off " written in doctor code. It's not the first time I've made a big > fuss. Previously they wanted me to spend a whole w/e in a ward just so > I could " maybe " secure a bed for the following monday to do the vile > blood sampling test.I absolutely refused to live on a ward for a w/e, > given that a)I live 15 mins from the hospital, b)I was perfectly well > and there were lots of people who actually NEEDED the bed and c)I had > a wedding to go to!My suggestions that I provided a mop dressed to > look like me, or would arrange for my friends to tag-sit in the bed > didn't go down too well but common sense won through and I managed to > change their policy and was seen as a day patient instead!! > > > > > > __________________________________________________________ > Sent from - the World's favourite mail http://uk.mail. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 I also ask questions, so many that in the middle of my AVS procedure they asked me if I would like a sedative!! It is the seeing different people that really makes me mad.I've been navigating this for 5 years now so I feel like I know the ropes and I'm always happy to complain!! > > and , > > Your experiences are pretty common for the NHS. You are NOT entitled > to know your test results or the lab normals in the UK but most > specialists will share if you ask. Some won't as they consider it to > increase patient anxiety and will just say " low " , " normal " or " high " . > > You do need to see someone who has experience in this area - and a > student or recent grad will not have seen many Conn's patients. > However you have no right to specify which specialist sees you - or > even if it is the specialist or a member of the team. Some doctors > think they are way above everyone and speak to you as was > spoken to. The only way to deal with this is to complain. I had a bit > of a head start as I was an academic staff member at the university > teaching hospital where I was treated so knew all the team very well. > However as a patient I was able to pick up shortcomings and did > manage to get major issues addressed. Still nowhere near perfect but > better than it was. > > I have now moved away from this hospital and have issues similar to > yours at my local hospital. Some of the Drs at my new hospital refuse > to treat me as I am " difficult " as in I ask questions and prod and > probe until I am satisfied. They certianly don't like knowing that I > am also a doctor (but a PhD and DLitt not an MD) and have far more > experience in pharma and medical diagnostic testing than they do. I > think it gives them the willies when I refer to the pharma data > sheets (chapter and verse) and also the specs of the tests. No > medical test is 100% accurate for all patients after all. > > You can try taking Dr Grim's papers but I think you will find they > end up being filed in the bucket under the doctor's desk. They > certianly won't be read. It is part of the NIH (not invented here) > frame of mind. > > AVS is not carried out as a routine procedure in the NHS due to cost. > If there is a tumour then surgery is the only route as recommended by > NICE and The Chief Scientist's Office. As there is a 50% " cure " rate > this is considered to be a good outcome. If a specialist goes down > the AVS route when there is a tumour and something goes wrong during > AVS (or the AVS doesn't give any additional information) the dr who > ordered the test would be subject to investigation. > > The NHS system is very different to the US model. Both have strengths > and weaknesses. The NHS is very budget aware and has to remain within > spending limits which means treatment is not always as advanced as in > the US but no one in the UK is turned away from medical treatment due > to lack of funds. You don't get people in the UK who die due to a > simple infection for example. > > Helen in Scotland > Quote Link to comment Share on other sites More sharing options...
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