AM: 83-66-95 85-52-74 93-59-61 88-66-72, 12.31PM-87-61-95

[Guest guest]

Hi all,

Okay, due to technology, the BP machine and me still keeping my written database records, I can look back and see this. My BP Tuesday was my usual high of 243-158-96 and low of 68-42-98. This for a 24 hour daily record -- or one day. Well, looking at the days data, I have the times for when I was in the geneticist office. (My appointment was a little over three hours. That was from 9.00 AM to 12.00 Noon.) Well, the amazing thing is I was

09.34 AM 83-66-95

09.39 AM 85-52-74

10.08 AM 93-59-61

10.15 AM 88-66-72

12.31 PM 87-61-95

Perhaps the intake person did not see any significance since low bp in Connective tissure disease is normal :-(. I had no sign of my my Transient Aphasia. Grrrrrrr. I am soooo trying not to be frustrated!!!!!

Well, without the high BP stuff, I mean if I did not have Autonomic Dysreflexia nobody would care. Since I cannot feel the problem -- I would not know I had the problem :-( ... so here we go back to genetics, genes and DNA.

Note, I had to travel by train to get to Baltimore, MD. That is over 350 miles there and then the return trip. We (my health aid and I) could not get our reserved rental car. I was dehydrated and miserable that morning. When I sit up that long my nephroptosis (floppy kidney) is obstructed. My potassium was low. So, what she did "hear" was a heart murmur. One of her recommendations is that I get a echocardiogram. Well, Mom, my brother, cousins, we ALL have benign heart murmurs. The funny thing is some time they hear it, sometime they do not. Tuesday she raised concern I also had my Tetany. Which usually means my K is down. I was low seein my own doctor Jan-4-07 She mention fast HR (I was nervous) but notheing about a murmur. However, my blood work up that day was K 2.9. I was put back on my Kdur :-). CaroAOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.