Re: Tingling and numbness in feet

[Guest guest]

On Jun 8, 2007, at 9:30 PM, Debra Meath wrote:

> Does anyone with primary hyperaldosteronism have symptoms of tingling

> and numbness in their feet? If so does anyone have a treatment? I do

> have a tumor in my left Adrenal gland and my blood pressure is

> controlled with spiro

how much per day?

> and BP meds

which other meds, and ow much daily on each?

> and postassium suppliments.

How about a low total sodium diet? With spiro the K may stay up there

w/ low salt intake.

> I did have a battery of tests at Mayo Clinic that did not show any

> cause for foot symptoms.

Including, I'd imagine, an MRI for spinal tube stenosis, facet or disc

problems?

> I have had hyperaldosteronism for 10 years, but the foot problems has

> been getting worse, and I have trouble sleeping at night. My doctor at

> Mayo Clinic has no answers. If anyone has any info regarding this

> problem, please let me know. Thanks Deb

[Guest guest]

Uncle Dave,

Current medicine: 50 mg spiro, 25 mg nifedipine, 20 MEQ of potassium. I eat a

very low sodium diet, but my last blood tests were all within normal range exept

for Aldosterone was 32 and my CO2 was 37. The doctors at Mayo did not think it

was from a disk, etc, because it moves around in my feet and varies in

intensity. I am also allergic to wheat products. Could it be a deficiency of

some sort? Deb

Re: Tingling and numbness in feet

On Jun 8, 2007, at 9:30 PM, Debra Meath wrote:

> Does anyone with primary hyperaldosteronism have symptoms of tingling

> and numbness in their feet? If so does anyone have a treatment? I do

> have a tumor in my left Adrenal gland and my blood pressure is

> controlled with spiro

how much per day?

> and BP meds

which other meds, and ow much daily on each?

> and postassium suppliments.

How about a low total sodium diet? With spiro the K may stay up there

w/ low salt intake.

> I did have a battery of tests at Mayo Clinic that did not show any

> cause for foot symptoms.

Including, I'd imagine, an MRI for spinal tube stenosis, facet or disc

problems?

> I have had hyperaldosteronism for 10 years, but the foot problems has

> been getting worse, and I have trouble sleeping at night. My doctor at

> Mayo Clinic has no answers. If anyone has any info regarding this

> problem, please let me know. Thanks Deb

[Guest guest]

What sort of testing have you had for a peripheral neuropathy??

In a message dated 6/8/07 11:37:47 PM, riothamus20@... writes:

>

>

> On Jun 8, 2007, at 9:30 PM, Debra Meath wrote:

>

> > Does anyone with primary hyperaldosteronism have symptoms of tingling

> > and numbness in their feet? If so does anyone have a treatment? I do

> > have a tumor in my left Adrenal gland and my blood pressure is

> > controlled with spiro

>

> how much per day?

>

> > and BP meds

>

> which other meds, and ow much daily on each?

>

> > and postassium suppliments.

>

> How about a low total sodium diet? With spiro the K may stay up there

> w/ low salt intake.

>

> > I did have a battery of tests at Mayo Clinic that did not show any

> > cause for foot symptoms.

>

> Including, I'd imagine, an MRI for spinal tube stenosis, facet or disc

> problems?

>

> > I have had hyperaldosteronism for 10 years, but the foot problems has

> > been getting worse, and I have trouble sleeping at night. My doctor at

> > Mayo Clinic has no answers. If anyone has any info regarding this

> > problem, please let me know. Thanks Deb

>

>

[Guest guest]

Deb,

I also have numbness in my hans, feet an lower legs. It started with

a tingling sensation and then graduated to numbness. I also had a

burning sensation in my hands and feet sometimes. I still don't have

any definate answers to my health problems; however, this is what I

have learned along the way. One side effect of Procardia is

paresthesia and when I looked that up, it described the way my feet,

legs and hands. When my doc took me off of Proc because my feet were

swelling, the numbness went away in a couple of weeks and my feet

felt normal. He put me on Zestril but the more I took, the higher my

bp went and finally he put me back on Proc. In about a week my feet

were numb again. I went off of proc 5 years ago but still have the

numbness. I think it is a systemic problem that some drugs

aggrevate. I was also checked for folic acid and B12 deficiency but

they were OK. My K has been OK for about 4 years with spiro.

Fran

>

> > Does anyone with primary hyperaldosteronism have symptoms of

tingling

> > and numbness in their feet? If so does anyone have a treatment? I

do

> > have a tumor in my left Adrenal gland and my blood pressure is

> > controlled with spiro

>

> how much per day?

>

> > and BP meds

>

> which other meds, and ow much daily on each?

>

> > and postassium suppliments.

>

> How about a low total sodium diet? With spiro the K may stay up

there

> w/ low salt intake.

>

> > I did have a battery of tests at Mayo Clinic that did not show

any

> > cause for foot symptoms.

>

> Including, I'd imagine, an MRI for spinal tube stenosis, facet or

disc

> problems?

>

> > I have had hyperaldosteronism for 10 years, but the foot problems

has

> > been getting worse, and I have trouble sleeping at night. My

doctor at

> > Mayo Clinic has no answers. If anyone has any info regarding this

> > problem, please let me know. Thanks Deb

>

>

[Guest guest]

In a message dated 6/9/07 1:32:20 PM, frand2@... writes:

>

> Deb,

> I also have numbness in my hans, feet an lower legs. It started with

> a tingling sensation and then graduated to numbness. I also had a

> burning sensation in my hands and feet sometimes. I still don't have

> any definate answers to my health problems; however, this is what I

> have learned along the way. One side effect of Procardia is

> paresthesia and when I looked that up, it described the way my feet,

> legs and hands. When my doc took me off of Proc because my feet were

> swelling, the numbness went away in a couple of weeks and my feet

> felt normal. He put me on Zestril but the more I took, the higher my

> bp went and finally he put me back on Proc. In about a week my feet

> were numb again. I went off of proc 5 years ago but still have the

> numbness. I think it is a systemic problem that some drugs

> aggrevate. I was also checked for folic acid and B12 deficiency but

> they were OK. My K has been OK for about 4 years with spiro.

> Fran

>

>

>

Sounds like Procardia causes numbness in you.

May your pressure be low!

Clarence E. Grim, BS, MS, MD

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's free at http://www.aol.com.

[Guest guest]

I don't have tingling or numbness in my feet but rather cramps. I

notice the cramps mostly at night when I'm trying to go to sleep.

Sometimes I have a hard time going to sleep. I am still in the testing

stage which seems to be taking forever. I was told that I do have PA

but my Endo wants to do a few more tests 'to be sure' and to decide the

next stage of treatment. My BP is somewhat controlled on the meds I'm

on but I continue to have low potassium. I am eating more Dash.

I sympathize with the feet issues as my feet are bothering me too.

>

> Does anyone with primary hyperaldosteronism have symptoms of tingling

and numbness in their feet? If so does anyone have a treatment? I do

have a tumor in my left Adrenal gland and my blood pressure is

controlled with spiro and BP meds and postassium suppliments. I did

have a battery of tests at Mayo Clinic that did not show any cause for

foot symptoms. I have had hyperaldosteronism for 10 years, but the

foot problems has been getting worse, and I have trouble sleeping at

night. My doctor at Mayo Clinic has no answers. If anyone has any

info regarding this problem, please let me know. Thanks Deb

>

>

[Guest guest]

,

I have been on the internet doing research on beta blockers. Most of

them cause paresthesia. Years ago I looked that up and it described

exactly how my feet feel. It started when I began taking Nifedipine.

My doctor said they don't usually see that symptom with the drug. I

looked it up on the internet and sure enough, it caused paresthesia.

I am starting to wonder if most if not all of my symptoms are caused

by my bp meds. I don't seem to have any problems with spiro, except

the pain in my feet. The brand name Aldactone makes the pain worse

so I can't take it. It has got to be some of the fillers but I can't

isolate it. I do seem to have a problem with Yellow dye #6. My beta

blocker which seems to be the only other RX that controls my BP

causes sweating which is my major problem right now. I went to my

endo yesterday and discussed the carcinoid theory that another endo

suspected. He looked at the other endos test results and said that

my 5HIAA isn't that high. The max range was 5 and mine is 11. He

said that lorazapam which I take to help me sleep could also elevate

it. He wants to test it again (it was tested last 18 months ago).

They gave me a list of foods to avoid. Top of the list was bananas --

I eat a banana every day. Also on the list are tomatoes and nuts.

He offered me some of the new sleeping pills and I said I probably

couldn't tolerate them because of my feet. They he suggested a

couple of other drugs which I said no to. In the end, I am beginning

to think I am not getting any help anywhere. Catecholamines have

been checked over and over again and always come out normal. I don't

have the last test but doc said it was OK and I trust him to know

what he is doing. Before I left, I asked the nurse if I could try

Cymbalta, one of the drugs he offered me. Last year I went to a new

gyno and she offered me Cymbalta for hot flashes. I didn't plan to

leave my old gyno, just wanted a second opinion. She said that if

estrogen didn't help the " hot flashes " they weren't caused by

menopause and that I should not be taking estrogen because I had had

a stroke years ago when my bp shot way up. I looked up cymbalta side

effects and they include sweating! I already have a terrible problem

with sweating, so why would I take a drug that could cause it??? In

the meantime, I am planning a trip to PA the weekend after next and

don't want to take anything that could possibly cause me more pain.

Bottom line is do some research on the RX you are taking and see what

you can find. The web site I like is www.rxlist.com, it was

recommended to me by a hospital research worker.

Fran

> >

> > Does anyone with primary hyperaldosteronism have symptoms of

tingling

> and numbness in their feet? If so does anyone have a treatment? I

do

> have a tumor in my left Adrenal gland and my blood pressure is

> controlled with spiro and BP meds and postassium suppliments. I did

> have a battery of tests at Mayo Clinic that did not show any cause

for

> foot symptoms. I have had hyperaldosteronism for 10 years, but the

> foot problems has been getting worse, and I have trouble sleeping

at

> night. My doctor at Mayo Clinic has no answers. If anyone has any

> info regarding this problem, please let me know. Thanks Deb

> >

> >

[Guest guest]

Suggest that you ask for a trial of spirnolactone.

An old addage: To study a patient until the diagnosis is clear is to study

the patient to death.

You have PA and need to be treated for it. IMHO.

In a message dated 6/13/07 11:11:38 AM, frand2@... writes:

> I don't have tingling or numbness in my feet but rather cramps. I

> > notice the cramps mostly at night when I'm trying to go to sleep.

> > Sometimes I have a hard time going to sleep. I am still in the

> testing

> > stage which seems to be taking forever. I was told that I do have

> PA

> > but my Endo wants to do a few more tests 'to be sure' and to decide

> the

> > next stage of treatment. My BP is somewhat controlled on the meds

> I'm

> > on but I continue to have low potassium. I am eating more Dash.

> > I sympathize with the feet issues as my feet are bothering me too.

> >

>

May your pressure be low!

Clarence E. Grim, BS, MS, MD

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's free at http://www.aol.com.

[Guest guest]

Dr. Grim, I am having AVS done on Monday. I hope it goes well. I am

covered with our health plan here. I did ask for a trial of spiro

but it seems they want to wait until after AVS.

>

> Suggest that you ask for a trial of spirnolactone.

>

> An old addage: To study a patient until the diagnosis is clear is

to study

> the patient to death.

>

> You have PA and need to be treated for it. IMHO.

>

>

> In a message dated 6/13/07 11:11:38 AM, frand2@... writes:

>

>

> > I don't have tingling or numbness in my feet but rather cramps. I

> > > notice the cramps mostly at night when I'm trying to go to

sleep.

> > > Sometimes I have a hard time going to sleep. I am still in the

> > testing

> > > stage which seems to be taking forever. I was told that I do

have

> > PA

> > > but my Endo wants to do a few more tests 'to be sure' and to

decide

> > the

> > > next stage of treatment. My BP is somewhat controlled on the

meds

> > I'm

> > > on but I continue to have low potassium. I am eating more Dash.

> > > I sympathize with the feet issues as my feet are bothering me

too.

> > >

> >

>

>

>

>

>

> May your pressure be low!

>

> Clarence E. Grim, BS, MS, MD

> Senior Consultant to Shared Care Research and Consulting, Inc.

> (sharedcareinc.com)

> Clinical Professor of Internal Medicine and Epidemiology Med. Col.

WI

> Clinical Professor of Nursing, Univ. of WI, Milwaukee

>

> Specializing in Difficult to Control High Blood Pressure

> and the Physiology and History of Survival During

> Hard Times and Heart Disease today.

>

>

>

> **************************************

> See what's free at http://www.aol.com.

>

>

>

[Guest guest]

Dr. Grim, I am having AVS done on Monday. I hope it goes well. I am

covered with our health plan here. I did ask for a trial of spiro

but it seems they want to wait until after AVS.

>

> Suggest that you ask for a trial of spirnolactone.

>

> An old addage: To study a patient until the diagnosis is clear is

to study

> the patient to death.

>

> You have PA and need to be treated for it. IMHO.

>

>

> In a message dated 6/13/07 11:11:38 AM, frand2@... writes:

>

>

> > I don't have tingling or numbness in my feet but rather cramps. I

> > > notice the cramps mostly at night when I'm trying to go to

sleep.

> > > Sometimes I have a hard time going to sleep. I am still in the

> > testing

> > > stage which seems to be taking forever. I was told that I do

have

> > PA

> > > but my Endo wants to do a few more tests 'to be sure' and to

decide

> > the

> > > next stage of treatment. My BP is somewhat controlled on the

meds

> > I'm

> > > on but I continue to have low potassium. I am eating more Dash.

> > > I sympathize with the feet issues as my feet are bothering me

too.

> > >

> >

>

>

>

>

>

> May your pressure be low!

>

> Clarence E. Grim, BS, MS, MD

> Senior Consultant to Shared Care Research and Consulting, Inc.

> (sharedcareinc.com)

> Clinical Professor of Internal Medicine and Epidemiology Med. Col.

WI

> Clinical Professor of Nursing, Univ. of WI, Milwaukee

>

> Specializing in Difficult to Control High Blood Pressure

> and the Physiology and History of Survival During

> Hard Times and Heart Disease today.

>

>

>

> **************************************

> See what's free at http://www.aol.com.

>

>

>

[Guest guest]

In a message dated 6/15/07 9:48:34 AM, shahall@... writes:

>

> Good luck with the AVS. While others here have had

> bad experiences, mine was a piece of cake.

>

An expensive piece if I recall right??

> I also

> have had numbness and tingling of my feet and legs for

> years, sometimes so bad it felt like my feet were

> actually vibrating. Low magnesium levels go along

> with PA and mine was low. I now take 500 mg of

> magnesium daily and it has decreased the problem

> dramatically, it's at least 75% better than it was.

>

I dont recall if you have had surgery and if the numbness went away??

>

> a

>

>

>

May your pressure be low!

Clarence E. Grim, BS, MS, MD

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's free at http://www.aol.com.

[Guest guest]

In a message dated 6/15/07 10:57:41 AM, leslie@... writes:

> Another question - for those of you taking potassium, what form do you take

> it in? I've always taken potassium chloride pills but I've read that they

> can lead to ulcerations of the esophagus and stomach lining from sitting in

one

> spot while they slowly release potassium. Is anyone taking another form,

> like liquid? If so, does it taste terrible?

>

>

I recommend low sodium V-8. 1 can has about 1200 mg or nearly 40 mEq. Be

sure it is the low sodium one.

May your pressure be low!

Clarence E. Grim, BS, MS, MD

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's free at http://www.aol.com.

[Guest guest]

Keep us posted. Good luck.

May your pressure be low!

Clarence E. Grim, BS, MS, MD

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's free at http://www.aol.com.

[Guest guest]

In a message dated 6/14/07 11:41:08 PM, cjant@... writes:

>

> Dr. Grim, I am having AVS done on Monday. I hope it goes well. I am

> covered with our health plan here. I did ask for a trial of spiro

> but it seems they want to wait until after AVS.

>

>

>

>

Be certain the give you ACTH before.

May your pressure be low!

Clarence E. Grim, BS, MS, MD

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's free at http://www.aol.com.

[Guest guest]

In a message dated 6/15/07 12:57:31 PM, cjant@... writes:

>

> The ACTH stimulates the adrenals for a more accurate result... is

> that right?

>

Right.

> I already drink low sodium V8 juice regularly as well as take

> potassium supplements and still seem to have low potassium results.

>

That is because you have PA and are also eating too much sodium which causes

K wasting.

> I'm going out to buy some more V8 today.

> Is AVS a painful procedure? Do they give you a sedative? I was told

> I might have a sedative but forgot to ask if it was painful. I was

> told to expect to be there all day. It's nice to hear it was a walk

> in the park for some.

>

My experience is that about 50% never want to do it again.

But it is better now that in the old days.

Very operator dependent.

>

>

>

>

May your pressure be low!

Clarence E. Grim, BS, MS, MD

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's free at http://www.aol.com.

[Guest guest]

Good luck with the AVS. While others here have had

bad experiences, mine was a piece of cake. I also

have had numbness and tingling of my feet and legs for

years, sometimes so bad it felt like my feet were

actually vibrating. Low magnesium levels go along

with PA and mine was low. I now take 500 mg of

magnesium daily and it has decreased the problem

dramatically, it's at least 75% better than it was.

a

--- lyndyst <cjant@...> wrote:

> Dr. Grim, I am having AVS done on Monday. I hope it

> goes well. I am

> covered with our health plan here. I did ask for a

> trial of spiro

> but it seems they want to wait until after AVS.

>

[Guest guest]

My AVS was a walk in the part, too. Getting it approved through my insurance

company was a nightmare, but the actual procedure went off without a hitch.

Just curious... are you familiar with Restless Leg Syndrome? If so, would you

consider your numbness and tingling to be RLS? The reason I ask is because I

have leg problems that keep me from sleeping but I wouldn't call it numbness and

tingling. It is difficult to describe, though... but it is definitely

associated with the need to move my legs to get relief. I'm justing wondering

if anyone else is having those types of symptoms. I also experience the brain

fog and memory problems that others complain about. I'm in my mid 30's and

spend an unbelievable amount of time trying to remember what I was about to do

or where I just put something or what someone just told me. My primary care

doctor has referred me to a neurologist but I'm fully expecting to be sent home

after being told absolutely nothing is wrong with me and I need to accept that

I'm getting older. After all, that's what I heard for many years when I

complained about weakness and fatigue before I was diagnosed with PA. Even

after they saw how low my potassium was and accused me of abusing laxatives....

(yeah, still bitter...)

Another question - for those of you taking potassium, what form do you take it

in? I've always taken potassium chloride pills but I've read that they can lead

to ulcerations of the esophagus and stomach lining from sitting in one spot

while they slowly release potassium. Is anyone taking another form, like

liquid? If so, does it taste terrible?

Re: Re: Tingling and numbness in feet

Good luck with the AVS. While others here have had

bad experiences, mine was a piece of cake. I also

have had numbness and tingling of my feet and legs for

years, sometimes so bad it felt like my feet were

actually vibrating. Low magnesium levels go along

with PA and mine was low. I now take 500 mg of

magnesium daily and it has decreased the problem

dramatically, it's at least 75% better than it was.

a

--- lyndyst <cjant@...> wrote:

> Dr. Grim, I am having AVS done on Monday. I hope it

> goes well. I am

> covered with our health plan here. I did ask for a

> trial of spiro

> but it seems they want to wait until after AVS.

>

[Guest guest]

The ACTH stimulates the adrenals for a more accurate result... is

that right?

I already drink low sodium V8 juice regularly as well as take

potassium supplements and still seem to have low potassium results.

I'm going out to buy some more V8 today.

Is AVS a painful procedure? Do they give you a sedative? I was told

I might have a sedative but forgot to ask if it was painful. I was

told to expect to be there all day. It's nice to hear it was a walk

in the park for some.

>

>

> In a message dated 6/14/07 11:41:08 PM, cjant@... writes:

>

>

> >

> > Dr. Grim, I am having AVS done on Monday. I hope it goes well. I

am

> > covered with our health plan here. I did ask for a trial of spiro

> > but it seems they want to wait until after AVS.

> >

> >

> >

> >

>

> Be certain the give you ACTH before.

>

>

>

> May your pressure be low!

>

> Clarence E. Grim, BS, MS, MD

> Senior Consultant to Shared Care Research and Consulting, Inc.

> (sharedcareinc.com)

> Clinical Professor of Internal Medicine and Epidemiology Med. Col.

WI

> Clinical Professor of Nursing, Univ. of WI, Milwaukee

>

> Specializing in Difficult to Control High Blood Pressure

> and the Physiology and History of Survival During

> Hard Times and Heart Disease today.

>

>

>

> **************************************

> See what's free at http://www.aol.com.

>

>

>

[Guest guest]

Actually, I usually drink my low sodium V-8 AND take the pills (60 meq daily).

My last set of labs (a few weeks ago) still showed my potassium in the lower

half of the normal range. I'm looking at the bottle right now and 8 ounces is

820 mg of K and 140 of sodium. If I'm figuring things right, I'd need 3 cups of

low sodium V-8 daily to replace my current supplementation (which translates to

420 mg of sodium). That figures out to about one 46 ounce bottle every two

days, times $4.50 per bottle = $67.50 per month. Could be worse, I guess...

I'll have to give that some thought.

***picturing the three bottles of low sodium v8 in my suitcase over our next

family vacation...

Re: Re: Tingling and numbness in feet

In a message dated 6/15/07 10:57:41 AM, leslie@... writes:

> Another question - for those of you taking potassium, what form do you take

> it in? I've always taken potassium chloride pills but I've read that they

> can lead to ulcerations of the esophagus and stomach lining from sitting in

one

> spot while they slowly release potassium. Is anyone taking another form,

> like liquid? If so, does it taste terrible?

>

>

I recommend low sodium V-8. 1 can has about 1200 mg or nearly 40 mEq. Be

sure it is the low sodium one.

May your pressure be low!

Clarence E. Grim, BS, MS, MD

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's free at http://www.aol.com.

[Guest guest]

Hi ,

When I had my AVS, they did give me something to relax me and also I think they

gave me something for pain. Whatever they gave me made me nauseous so when they

tried to give me more mid-procedure, I refused it. They numb the area where the

incision is made, so there is the typical pain from that. As for the procedure

itself, even after the medication I had wore off, I would describe it as

uncomfortable but not painful. Of course, everyone's pain threshold is

different. The way I see it, I survived childbirth and haven't stumbled across

anything more painful than that yet.

Best of luck!

Re: Tingling and numbness in feet

The ACTH stimulates the adrenals for a more accurate result... is

that right?

I already drink low sodium V8 juice regularly as well as take

potassium supplements and still seem to have low potassium results.

I'm going out to buy some more V8 today.

Is AVS a painful procedure? Do they give you a sedative? I was told

I might have a sedative but forgot to ask if it was painful. I was

told to expect to be there all day. It's nice to hear it was a walk

in the park for some.

>

>

> In a message dated 6/14/07 11:41:08 PM, cjant@... writes:

>

>

> >

> > Dr. Grim, I am having AVS done on Monday. I hope it goes well. I

am

> > covered with our health plan here. I did ask for a trial of spiro

> > but it seems they want to wait until after AVS.

> >

> >

> >

> >

>

> Be certain the give you ACTH before.

>

>

>

> May your pressure be low!

>

> Clarence E. Grim, BS, MS, MD

> Senior Consultant to Shared Care Research and Consulting, Inc.

> (sharedcareinc.com)

> Clinical Professor of Internal Medicine and Epidemiology Med. Col.

WI

> Clinical Professor of Nursing, Univ. of WI, Milwaukee

>

> Specializing in Difficult to Control High Blood Pressure

> and the Physiology and History of Survival During

> Hard Times and Heart Disease today.

>

>

>

> **************************************

> See what's free at http://www.aol.com.

>

>

>

[Guest guest]

Yes, the bill to my insurance was about $14,000 and I

believed they reimbursed them about $5,000. But I

only had to pay about $250. I have bilateral adrenal

adenomas. The AVS was done on the off-chance that

only one was functional and I might be a sugical

candidate. Unfortunately the AVS showed bilateral

hypersecretion. Spiro controls my BP and K+ but I

continue to have many other symptoms such as muscle

weakness, chronic fatigue, nocturia, poor memory,

numbness and tingling and sweating. I feel like crap

about 80% of the time.

a

--- lowerbp2@... wrote:

>

> In a message dated 6/15/07 9:48:34 AM,

> shahall@... writes:

>

>

> >

> > Good luck with the AVS. While others here have had

> > bad experiences, mine was a piece of cake.

> >

> An expensive piece if I recall right??

>

> > I also

> > have had numbness and tingling of my feet and legs

> for

> > years, sometimes so bad it felt like my feet were

> > actually vibrating. Low magnesium levels go along

> > with PA and mine was low. I now take 500 mg of

> > magnesium daily and it has decreased the problem

> > dramatically, it's at least 75% better than it

> was.

> >

> I dont recall if you have had surgery and if the

> numbness went away??

> >

> > a

> >

> >

> >

>

>

>

>

>

> May your pressure be low!

>

> Clarence E. Grim, BS, MS, MD

> Senior Consultant to Shared Care Research and

> Consulting, Inc.

> (sharedcareinc.com)

> Clinical Professor of Internal Medicine and

> Epidemiology Med. Col. WI

> Clinical Professor of Nursing, Univ. of WI,

> Milwaukee

>

> Specializing in Difficult to Control High Blood

> Pressure

> and the Physiology and History of Survival During

> Hard Times and Heart Disease today.

>

>

>

> **************************************

> See what's free at http://www.aol.com.

>

>

> [Non-text portions of this message have been

> removed]

>

>

[Guest guest]

I received a very light sedative IV. It did not put

me to sleep but gave me a nice, floaty feeling. My

procedure was not painful. I felt the poke from the

needle when the local anesthesia was injected into my

groin and some pressure when the catheter was inserted

but that was all. A technician held pressure on my

groin for about 10 minutes afterwards and then a

bandaid was applied. I had to lie flat for 1 hour

afterward. I was home within 4 hours and could barely

see the insertion site the next day when I took the

bandaid off.

Good luck,

a

--- lyndyst <cjant@...> wrote:

> Is AVS a painful procedure? Do they give you a

> sedative? I was told

> I might have a sedative but forgot to ask if it was

> painful. I was

> told to expect to be there all day. It's nice to

> hear it was a walk

> in the park for some.

>

[Guest guest]

I had problems with my insurance co., too. My primary

fought with them for two months before they'd agree to

pay for it. I'm familiar with Restless Leg Syndrome

and I'm sure that I don't have it as I have no urge to

move my legs, just numbness and tingling. I also have

the brain fog and chronic fatigue. I can identify with

the laxative question. The Endo that I went to for

months kept trying to talk himself out of the fact

that I had PA even though all the classic symptoms

were staring him in the face. Once he was trying to

reconcile my low K+ and he asked me did I take

diuretics - No. Did I have chronic diarrhea or take

laxatives - No. Was I anorexic or bulimic? I lost it

then and just laughed at him. Considering that I was

almost 200 pounds at the time it was about the

stupidest question I'd ever heard. I never went back

to him after that. The K+ question I can't answer,

spiro keeps my K+ within normal limits.

a

--- <leslie@...> wrote:

> My AVS was a walk in the part, too. Getting it

> approved through my insurance company was a

> nightmare, but the actual procedure went off without

> a hitch.

>

> Just curious... are you familiar with Restless Leg

> Syndrome? If so, would you consider your numbness

> and tingling to be RLS? The reason I ask is because

> I have leg problems that keep me from sleeping but I

> wouldn't call it numbness and tingling. It is

> difficult to describe, though... but it is

> definitely associated with the need to move my legs

> to get relief. I'm justing wondering if anyone else

> is having those types of symptoms. I also

> experience the brain fog and memory problems that

> others complain about. I'm in my mid 30's and spend

> an unbelievable amount of time trying to remember

> what I was about to do or where I just put something

> or what someone just told me. My primary care

> doctor has referred me to a neurologist but I'm

> fully expecting to be sent home after being told

> absolutely nothing is wrong with me and I need to

> accept that I'm getting older. After all, that's

> what I heard for many years when I complained about

> weakness and fatigue before I was diagnosed with PA.

> Even after they saw how low my potassium was and

> accused me of abusing laxatives.... (yeah, still

> bitter...)

>

> Another question - for those of you taking

> potassium, what form do you take it in? I've always

> taken potassium chloride pills but I've read that

> they can lead to ulcerations of the esophagus and

> stomach lining from sitting in one spot while they

> slowly release potassium. Is anyone taking another

> form, like liquid? If so, does it taste terrible?

>

>

>

> Re: Re: Tingling and

> numbness in feet

>

>

> Good luck with the AVS. While others here have had

> bad experiences, mine was a piece of cake. I also

> have had numbness and tingling of my feet and legs

> for

> years, sometimes so bad it felt like my feet were

> actually vibrating. Low magnesium levels go along

> with PA and mine was low. I now take 500 mg of

> magnesium daily and it has decreased the problem

> dramatically, it's at least 75% better than it

> was.

>

> a

>

> --- lyndyst <cjant@...> wrote:

>

> > Dr. Grim, I am having AVS done on Monday. I hope

> it

> > goes well. I am

> > covered with our health plan here. I did ask for

> a

> > trial of spiro

> > but it seems they want to wait until after AVS.

> >

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

[Guest guest]

a,

The brain fog, chronic fatigue and weight gain can also be caused by Cushing's

syndrome. I know. I had Cushing's and Conn's and still strugling from the

effects of it even a year after surgery to remove adrenals. Violet

a Hall <shahall@...> wrote:

I had problems with my insurance co., too. My primary

fought with them for two months before they'd agree to

pay for it. I'm familiar with Restless Leg Syndrome

and I'm sure that I don't have it as I have no urge to

move my legs, just numbness and tingling. I also have

the brain fog and chronic fatigue. I can identify with

the laxative question. The Endo that I went to for

months kept trying to talk himself out of the fact

that I had PA even though all the classic symptoms

were staring him in the face. Once he was trying to

reconcile my low K+ and he asked me did I take

diuretics - No. Did I have chronic diarrhea or take

laxatives - No. Was I anorexic or bulimic? I lost it

then and just laughed at him. Considering that I was

almost 200 pounds at the time it was about the

stupidest question I'd ever heard. I never went back

to him after that. The K+ question I can't answer,

spiro keeps my K+ within normal limits.

a

--- <leslie@...> wrote:

> My AVS was a walk in the part, too. Getting it

> approved through my insurance company was a

> nightmare, but the actual procedure went off without

> a hitch.

>

> Just curious... are you familiar with Restless Leg

> Syndrome? If so, would you consider your numbness

> and tingling to be RLS? The reason I ask is because

> I have leg problems that keep me from sleeping but I

> wouldn't call it numbness and tingling. It is

> difficult to describe, though... but it is

> definitely associated with the need to move my legs

> to get relief. I'm justing wondering if anyone else

> is having those types of symptoms. I also

> experience the brain fog and memory problems that

> others complain about. I'm in my mid 30's and spend

> an unbelievable amount of time trying to remember

> what I was about to do or where I just put something

> or what someone just told me. My primary care

> doctor has referred me to a neurologist but I'm

> fully expecting to be sent home after being told

> absolutely nothing is wrong with me and I need to

> accept that I'm getting older. After all, that's

> what I heard for many years when I complained about

> weakness and fatigue before I was diagnosed with PA.

> Even after they saw how low my potassium was and

> accused me of abusing laxatives.... (yeah, still

> bitter...)

>

> Another question - for those of you taking

> potassium, what form do you take it in? I've always

> taken potassium chloride pills but I've read that

> they can lead to ulcerations of the esophagus and

> stomach lining from sitting in one spot while they

> slowly release potassium. Is anyone taking another

> form, like liquid? If so, does it taste terrible?

>

>

>

> Re: Re: Tingling and

> numbness in feet

>

>

> Good luck with the AVS. While others here have had

> bad experiences, mine was a piece of cake. I also

> have had numbness and tingling of my feet and legs

> for

> years, sometimes so bad it felt like my feet were

> actually vibrating. Low magnesium levels go along

> with PA and mine was low. I now take 500 mg of

> magnesium daily and it has decreased the problem

> dramatically, it's at least 75% better than it

> was.

>

> a

>

> --- lyndyst <cjant@...> wrote:

>

> > Dr. Grim, I am having AVS done on Monday. I hope

> it

> > goes well. I am

> > covered with our health plan here. I did ask for

> a

> > trial of spiro

> > but it seems they want to wait until after AVS.

> >

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

---------------------------------

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[Guest guest]

Violet,

I've thought for many years that I might have

Cushing's but the Endo poo-poo'ed it because he said

my cortisol level was normal (check once). But my

aldosterone level was normal once too (check many

times), even thought I am a proven Conn's. I have a

first cousin who had Cushings and had his pituitary

removed. We could pass for twins, our body builds are

exactly the same. We look like Tweedle-Dee and

Tweedle-Dum. How did they diagnose the Cushings on

you?

a

--- Violet Umber <viumber@...> wrote:

> a,

> The brain fog, chronic fatigue and weight gain can

> also be caused by Cushing's syndrome. I know. I had

> Cushing's and Conn's and still strugling from the

> effects of it even a year after surgery to remove

> adrenals. Violet