Re: Final Update Post Surgery for Unilateral PA

[Guest guest]

I dont know if I ever told this group that we studied the original Conn's

patient about 30 years later when HTN had returned. It was not due to

recurrent

Conn's.

Because HTN is so common many likely have both: essential HTN and Conn's.

Removing the Conn's may quiet it down for many years but is your genome is

salt sensitive and you stay on a high salt diet High BP will likely reappear due

to that and not to Conn's.

In a message dated 4/29/07 9:33:18 PM, datawrhsdoc@... writes:

>

> Folks,

>

> Although I've posted every now and again since my surgery on Dec 11, 2006, I

> haven't given you guys a major update on my health in some time.

>

> Last week, I saw my end for my 5 month post-op follow-up. Although I tend

> to have a bit of white coat syndrome, the nurse read my BP at 124/82. On a

> second try by the physician, I was 122/80. I am presently on zero

> medications and am no longer DASHing. He said to me, " Jeff I think we are

> done here. You should consider yourself very lucky, because it looks like

> we caught the PA early enough to avoid significant vascular damage. Have a

> nice life. "

>

> To go from a point where this time last year my BP was uncontrolled on 4+

> HTN medications along with severe depression and other pysch and cognitive

> issues, to now where I feel about as good as I did my first year of college

> with no lasting effects from the PA (other than 4 little scars) and no

> medications at all, seems like nothing less than a miracle. This is

> especially in consideration of a slightly botched AVS and having to take a

> small gamble that my PA was unilateral.

>

> FLAME RETARDANT ON

> ------------ -------- -------- ----

> For those of you that have unilateral PA and are good laparoscopic surgical

> candidates, with a skilled surgeon, the state of the art has gotten to the

> point where the recovery can be a walk in the park...especially if your

> adenoma is on the left side. In my case, I had no need for anything

> stronger than Tylenol by the day after surgery. So don't rule out surgery

> just because you can take a pill instead.

> ------------ -------- -------- ----

> FLAME RETARDANT OFF

>

> If you are still trying to get a clear diagnosis and a medical or surgical

> " cure " , please don't give up. There are excellent physicians out there, and

> you've got us to help you as well.

>

> Warmest regards,

> Jeff

>

>

[Guest guest]

Great news Jeff.

My story is similar although I have developed another tumour.

Unfortunately we moved between the diagnosis last time and now so

I've been screaming at the DRs here for a year now and FINALLY have

been referred back to the hospital which did the first diagnosis.

Helen in Scotland

>

> Folks,

>

> Although I've posted every now and again since my surgery on Dec

11, 2006, I

> haven't given you guys a major update on my health in some time.

>

> Last week, I saw my endo for my 5 month post-op follow-up.

Although I tend

> to have a bit of white coat syndrome, the nurse read my BP at

124/82. On a

> second try by the physician, I was 122/80. I am presently on zero

> medications and am no longer DASHing. He said to me, " Jeff I think

we are

> done here. You should consider yourself very lucky, because it

looks like

> we caught the PA early enough to avoid significant vascular

damage. Have a

> nice life. "

>

> To go from a point where this time last year my BP was uncontrolled

on 4+

> HTN medications along with severe depression and other pysch and

cognitive

> issues, to now where I feel about as good as I did my first year of

college

> with no lasting effects from the PA (other than 4 little scars) and

no

> medications at all, seems like nothing less than a miracle. This is

> especially in consideration of a slightly botched AVS and having to

take a

> small gamble that my PA was unilateral.

>

> FLAME RETARDANT ON

> -----------------------------------

> For those of you that have unilateral PA and are good laparoscopic

surgical

> candidates, with a skilled surgeon, the state of the art has gotten

to the

> point where the recovery can be a walk in the park...especially if

your

> adenoma is on the left side. In my case, I had no need for anything

> stronger than Tylenol by the day after surgery. So don't rule out

surgery

> just because you can take a pill instead.

> -----------------------------------

> FLAME RETARDANT OFF

>

> If you are still trying to get a clear diagnosis and a medical or

surgical

> " cure " , please don't give up. There are excellent physicians out

there, and

> you've got us to help you as well.

>

> Warmest regards,

> Jeff

>

>

>

[Guest guest]

Flameproof suit on

***************************

Essential hypertension = we haven't done the correct tests to find

out the real cause yet.

****************************

>

> I dont know if I ever told this group that we studied the original

Conn's

> patient about 30 years later when HTN had returned. It was not

due to recurrent

> Conn's.

>

> Because HTN is so common many likely have both: essential HTN and

Conn's.

> Removing the Conn's may quiet it down for many years but is your

genome is

> salt sensitive and you stay on a high salt diet High BP will likely

reappear due

> to that and not to Conn's.

>

>

> In a message dated 4/29/07 9:33:18 PM, datawrhsdoc@... writes:

>

>

> >

> > Folks,

> >

> > Although I've posted every now and again since my surgery on Dec

11, 2006, I

> > haven't given you guys a major update on my health in some time.

> >

> > Last week, I saw my end for my 5 month post-op follow-up.

Although I tend

> > to have a bit of white coat syndrome, the nurse read my BP at

124/82. On a

> > second try by the physician, I was 122/80. I am presently on zero

> > medications and am no longer DASHing. He said to me, " Jeff I

think we are

> > done here. You should consider yourself very lucky, because it

looks like

> > we caught the PA early enough to avoid significant vascular

damage. Have a

> > nice life. "

> >

> > To go from a point where this time last year my BP was

uncontrolled on 4+

> > HTN medications along with severe depression and other pysch and

cognitive

> > issues, to now where I feel about as good as I did my first year

of college

> > with no lasting effects from the PA (other than 4 little scars)

and no

> > medications at all, seems like nothing less than a miracle. This

is

> > especially in consideration of a slightly botched AVS and having

to take a

> > small gamble that my PA was unilateral.

> >

> > FLAME RETARDANT ON

> > ------------ -------- -------- ----

> > For those of you that have unilateral PA and are good

laparoscopic surgical

> > candidates, with a skilled surgeon, the state of the art has

gotten to the

> > point where the recovery can be a walk in the park...especially

if your

> > adenoma is on the left side. In my case, I had no need for

anything

> > stronger than Tylenol by the day after surgery. So don't rule out

surgery

> > just because you can take a pill instead.

> > ------------ -------- -------- ----

> > FLAME RETARDANT OFF

> >

> > If you are still trying to get a clear diagnosis and a medical or

surgical

> > " cure " , please don't give up. There are excellent physicians out

there, and

> > you've got us to help you as well.

> >

> > Warmest regards,

> > Jeff

> >

> >

[Guest guest]

We don't get, nor are entitled to, our lab reports here. I have seen

the letters sent to (1) my primary care Dr after the original tumour

but it was only concerned with dressing changes and pain relief, and

(2) the local hospital which concerned follow up bloods & a 6 monthly

CT scan (which were never done as the local hospital can't process

bloods fast enough and doesn't have a CT or MRI scanner which can be

set to the sensitivity needed - thick slice only here).

I asked to be sent back to the original hospital 9 months ago but was

turned down on cost grounds. I appealed and was turned down again. I

made a formal complaint - it was dismissed and then I appealed

against the dismissal of the complaint to the ombudsman and won!!!!!

The only problem is that the local hospital has now " lost " my notes.

I have made a formal complaint about that as I suspect they are

hiding that they didn't do what they were supposed to....... and they

have made some pretty bad blunders which I pointed out in writing -

and I have copies and a receipt for the documents I gave them.

Moral - just keep pushing even though sometimes you feel like jumping

off a bridge or in front of a train.

I may not have an MD but I do have a PhD which I earned via original

reseach and not just as part of my taught course. The MDs hate

that........... seems to make them feel inferior. But then I guess it

is pushed down their throats in the SCR...... (not by me). I don't

use my title - It has no relevance to my current employment and my

research may be the foundation for x, y and z but it is nearly 35

years out of date and othrs have taken my ideas and developed them

far beyond my imagination........ I am pleased to say!!!!

Helen in Scotland

> > >

[Guest guest]

>

> I dont know if I ever told this group that we studied the original

Conn's

> patient about 30 years later when HTN had returned. It was not

due to recurrent

> Conn's.

>

> Because HTN is so common many likely have both: essential HTN

and Conn's.

> Removing the Conn's may quiet it down for many years but is your

genome is

> salt sensitive and you stay on a high salt diet High BP will

likely reappear due

> to that and not to Conn's.

>

>

> In a message dated 4/29/07 9:33:18 PM, datawrhsdoc@... writes:

>

>

> >

> > Folks,

> >

> > Although I've posted every now and again since my surgery on Dec

11, 2006, I

> > haven't given you guys a major update on my health in some time.

> >

> > Last week, I saw my end for my 5 month post-op follow-up.

Although I tend

> > to have a bit of white coat syndrome, the nurse read my BP at

124/82. On a

> > second try by the physician, I was 122/80. I am presently on zero

> > medications and am no longer DASHing. He said to me, " Jeff I

think we are

> > done here. You should consider yourself very lucky, because it

looks like

> > we caught the PA early enough to avoid significant vascular

damage. Have a

> > nice life. "

> >

> > To go from a point where this time last year my BP was

uncontrolled on 4+

> > HTN medications along with severe depression and other pysch and

cognitive

> > issues, to now where I feel about as good as I did my first year

of college

> > with no lasting effects from the PA (other than 4 little scars)

and no

> > medications at all, seems like nothing less than a miracle. This

is

> > especially in consideration of a slightly botched AVS and having

to take a

> > small gamble that my PA was unilateral.

> >

> > FLAME RETARDANT ON

> > ------------ -------- -------- ----

> > For those of you that have unilateral PA and are good

laparoscopic surgical

> > candidates, with a skilled surgeon, the state of the art has

gotten to the

> > point where the recovery can be a walk in the park...especially

if your

> > adenoma is on the left side. In my case, I had no need for

anything

> > stronger than Tylenol by the day after surgery. So don't rule

out surgery

> > just because you can take a pill instead.

> > ------------ -------- -------- ----

> > FLAME RETARDANT OFF

> >

> > If you are still trying to get a clear diagnosis and a medical

or surgical

> > " cure " , please don't give up. There are excellent physicians out

there, and

> > you've got us to help you as well.

> >

> > Warmest regards,

> > Jeff

> >

> >

[Guest guest]

,

Thanks. I'm glad my words were able to give you some hope. I was

feeling pretty hopeless and worse prior to my diagnosis.

So, I take it that you were able to find a good doc in the St. Pete

area after all? I'm glad that's working out.

-Jeff

> >

> > I dont know if I ever told this group that we studied the original

> Conn's

> > patient about 30 years later when HTN had returned. It was not

> due to recurrent

> > Conn's.

> >

> > Because HTN is so common many likely have both: essential HTN

> and Conn's.

> > Removing the Conn's may quiet it down for many years but is your

> genome is

> > salt sensitive and you stay on a high salt diet High BP will

> likely reappear due

> > to that and not to Conn's.

> >

> >

> > In a message dated 4/29/07 9:33:18 PM, datawrhsdoc@ writes:

> >

> >

> > >

> > > Folks,

> > >

> > > Although I've posted every now and again since my surgery on Dec

> 11, 2006, I

> > > haven't given you guys a major update on my health in some time.

> > >

> > > Last week, I saw my end for my 5 month post-op follow-up.

> Although I tend

> > > to have a bit of white coat syndrome, the nurse read my BP at

> 124/82. On a

> > > second try by the physician, I was 122/80. I am presently on zero

> > > medications and am no longer DASHing. He said to me, " Jeff I

> think we are

> > > done here. You should consider yourself very lucky, because it

> looks like

> > > we caught the PA early enough to avoid significant vascular

> damage. Have a

> > > nice life. "

> > >

> > > To go from a point where this time last year my BP was

> uncontrolled on 4+

> > > HTN medications along with severe depression and other pysch and

> cognitive

> > > issues, to now where I feel about as good as I did my first year

> of college

> > > with no lasting effects from the PA (other than 4 little scars)

> and no

> > > medications at all, seems like nothing less than a miracle. This

> is

> > > especially in consideration of a slightly botched AVS and having

> to take a

> > > small gamble that my PA was unilateral.

> > >

> > > FLAME RETARDANT ON

> > > ------------ -------- -------- ----

> > > For those of you that have unilateral PA and are good

> laparoscopic surgical

> > > candidates, with a skilled surgeon, the state of the art has

> gotten to the

> > > point where the recovery can be a walk in the park...especially

> if your

> > > adenoma is on the left side. In my case, I had no need for

> anything

> > > stronger than Tylenol by the day after surgery. So don't rule

> out surgery

> > > just because you can take a pill instead.

> > > ------------ -------- -------- ----

> > > FLAME RETARDANT OFF

> > >

> > > If you are still trying to get a clear diagnosis and a medical

> or surgical

> > > " cure " , please don't give up. There are excellent physicians out

> there, and

> > > you've got us to help you as well.

> > >

> > > Warmest regards,

> > > Jeff

> > >

> > >

[Guest guest]

> > >

> > > I dont know if I ever told this group that we studied the

original

> > Conn's

> > > patient about 30 years later when HTN had returned. It was

not

> > due to recurrent

> > > Conn's.

> > >

> > > Because HTN is so common many likely have both: essential

HTN

> > and Conn's.

> > > Removing the Conn's may quiet it down for many years but is

your

> > genome is

> > > salt sensitive and you stay on a high salt diet High BP will

> > likely reappear due

> > > to that and not to Conn's.

> > >

> > >

> > > In a message dated 4/29/07 9:33:18 PM, datawrhsdoc@ writes:

> > >

> > >

> > > >

> > > > Folks,

> > > >

> > > > Although I've posted every now and again since my surgery on

Dec

> > 11, 2006, I

> > > > haven't given you guys a major update on my health in some

time.

> > > >

> > > > Last week, I saw my end for my 5 month post-op follow-up.

> > Although I tend

> > > > to have a bit of white coat syndrome, the nurse read my BP

at

> > 124/82. On a

> > > > second try by the physician, I was 122/80. I am presently on

zero

> > > > medications and am no longer DASHing. He said to me, " Jeff I

> > think we are

> > > > done here. You should consider yourself very lucky, because

it

> > looks like

> > > > we caught the PA early enough to avoid significant vascular

> > damage. Have a

> > > > nice life. "

> > > >

> > > > To go from a point where this time last year my BP was

> > uncontrolled on 4+

> > > > HTN medications along with severe depression and other pysch

and

> > cognitive

> > > > issues, to now where I feel about as good as I did my first

year

> > of college

> > > > with no lasting effects from the PA (other than 4 little

scars)

> > and no

> > > > medications at all, seems like nothing less than a miracle.

This

> > is

> > > > especially in consideration of a slightly botched AVS and

having

> > to take a

> > > > small gamble that my PA was unilateral.

> > > >

> > > > FLAME RETARDANT ON

> > > > ------------ -------- -------- ----

> > > > For those of you that have unilateral PA and are good

> > laparoscopic surgical

> > > > candidates, with a skilled surgeon, the state of the art has

> > gotten to the

> > > > point where the recovery can be a walk in the

park...especially

> > if your

> > > > adenoma is on the left side. In my case, I had no need for

> > anything

> > > > stronger than Tylenol by the day after surgery. So don't

rule

> > out surgery

> > > > just because you can take a pill instead.

> > > > ------------ -------- -------- ----

> > > > FLAME RETARDANT OFF

> > > >

> > > > If you are still trying to get a clear diagnosis and a

medical

> > or surgical

> > > > " cure " , please don't give up. There are excellent physicians

out

> > there, and

> > > > you've got us to help you as well.

> > > >

> > > > Warmest regards,

> > > > Jeff

> > > >

> > > >

[Guest guest]

Dr. Grim,

Certainly something we should all keep in mind. In my case, there is

no known family history of HTN, and given my family's eastern European

culinary heritage (kosher meats and other high Na foods). So, I

suspect that I'm relatively safe in that respect all other things

being equal.

However, I wonder if all other things are actually equal.

Specifically, is it possible that underlying, but low level, vascular

damage may have been related to subsequent recurrence of HTN in the

subject rather than a genetic propensity to sodium-mediated HTN? Any

evidence of such in the literature that you are aware of?

If that could be the case, perhaps all of us that have been " cured "

should assume that we've acquired a propensity toward sodium-mediated

HTN.

I'm very interested in your thoughts.

-Jeff

>

> I dont know if I ever told this group that we studied the original

Conn's

> patient about 30 years later when HTN had returned. It was not due

to recurrent

> Conn's.

>

> Because HTN is so common many likely have both: essential HTN and

Conn's.

> Removing the Conn's may quiet it down for many years but is your

genome is

> salt sensitive and you stay on a high salt diet High BP will likely

reappear due

> to that and not to Conn's.

>

>

> In a message dated 4/29/07 9:33:18 PM, datawrhsdoc@... writes:

>

>

> >

> > Folks,

> >

> > Although I've posted every now and again since my surgery on Dec

11, 2006, I

> > haven't given you guys a major update on my health in some time.

> >

> > Last week, I saw my end for my 5 month post-op follow-up. Although

I tend

> > to have a bit of white coat syndrome, the nurse read my BP at

124/82. On a

> > second try by the physician, I was 122/80. I am presently on zero

> > medications and am no longer DASHing. He said to me, " Jeff I think

we are

> > done here. You should consider yourself very lucky, because it

looks like

> > we caught the PA early enough to avoid significant vascular

damage. Have a

> > nice life. "

> >

> > To go from a point where this time last year my BP was

uncontrolled on 4+

> > HTN medications along with severe depression and other pysch and

cognitive

> > issues, to now where I feel about as good as I did my first year

of college

> > with no lasting effects from the PA (other than 4 little scars) and no

> > medications at all, seems like nothing less than a miracle. This is

> > especially in consideration of a slightly botched AVS and having

to take a

> > small gamble that my PA was unilateral.

> >

> > FLAME RETARDANT ON

> > ------------ -------- -------- ----

> > For those of you that have unilateral PA and are good laparoscopic

surgical

> > candidates, with a skilled surgeon, the state of the art has

gotten to the

> > point where the recovery can be a walk in the park...especially if

your

> > adenoma is on the left side. In my case, I had no need for anything

> > stronger than Tylenol by the day after surgery. So don't rule out

surgery

> > just because you can take a pill instead.

> > ------------ -------- -------- ----

> > FLAME RETARDANT OFF

> >

> > If you are still trying to get a clear diagnosis and a medical or

surgical

> > " cure " , please don't give up. There are excellent physicians out

there, and

> > you've got us to help you as well.

> >

> > Warmest regards,

> > Jeff

> >

> >

[Guest guest]

Hmm...don't know about the SS hypothesis. Although anecdotal, in my

case, I was SS prior to surgery and became decreasingly SS after

surgery over a period of about 2 months. I'm am rather certain that I

am no longer particularly SS as I have had multiple days during

business trips where my Na intake has been quite high, but had no

impact on BP.

In general, however, my Na intake is considerably lower than what is

typical for Americans, merely because I was raised that way. As a

kid, we _never_ had salt on the table, added rather little salt during

cooking, and as an adult, things are pretty much the same in my

household.

-Jeff

>

>

> In a message dated 5/3/07 1:28:16 PM, datawrhsdoc@... writes:

>

>

> >

> > Dr. Grim,

> >

> > Certainly something we should all keep in mind. In my case, there is

> > no known family history of HTN, and given my family's eastern European

> > culinary heritage (kosher meats and other high Na foods). So, I

> > suspect that I'm relatively safe in that respect all other things

> > being equal.

> >

> > However, I wonder if all other things are actually equal.

> > Specifically, is it possible that underlying, but low level, vascular

> > damage may have been related to subsequent recurrence of HTN in the

> > subject rather than a genetic propensity to sodium-mediated HTN? Any

> > evidence of such in the literature that you are aware of?

> >

> This has always been the hypothesis yet we see many who are normal

BP for a

> very long time. If it were residual damage I would suspect BP

would not

> return to normal.

>

> >

> > If that could be the case, perhaps all of us that have been " cured "

> > should assume that we've acquired a propensity toward sodium-mediated

> > HTN.

> >

> My guess but it has never been tested is that if you were to test SS

before

> and after surgery you would find that it was higher than normal for

some time

> maybe always. So the BP post op is, in part, a function of how much

you feed or

> salt your genome. Would be an intesting study. Will see if any

of our old

> data fits with this but may be hard to dredge up.

>

> >

> > I'm very interested in your thoughts.

> >

> > -Jeff

> >

> >

> >

>

>

>

>

>

> May your pressure be low!

>

> Clarence E. Grim, BS, MS, MD

> Senior Consultant to Shared Care Research and Consulting, Inc.

> (sharedcareinc.com)

> Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

> Clinical Professor of Nursing, Univ. of WI, Milwaukee

>

> Specializing in Difficult to Control High Blood Pressure

> and the Physiology and History of Survival During

> Hard Times and Heart Disease today.

>

>

>

> **************************************

> See what's free at http://www.aol.com.

>

>

>

[Guest guest]

Jeff, How large was your tumor? Did you have the test of adrenal gland

secretions before the surgery? Did you experience tingling in your feet before

surgery? Thanks for your help. Deb

Final Update Post Surgery for Unilateral PA

Folks,

Although I've posted every now and again since my surgery on Dec 11, 2006, I

haven't given you guys a major update on my health in some time.

Last week, I saw my endo for my 5 month post-op follow-up. Although I tend

to have a bit of white coat syndrome, the nurse read my BP at 124/82. On a

second try by the physician, I was 122/80. I am presently on zero

medications and am no longer DASHing. He said to me, " Jeff I think we are

done here. You should consider yourself very lucky, because it looks like

we caught the PA early enough to avoid significant vascular damage. Have a

nice life. "

To go from a point where this time last year my BP was uncontrolled on 4+

HTN medications along with severe depression and other pysch and cognitive

issues, to now where I feel about as good as I did my first year of college

with no lasting effects from the PA (other than 4 little scars) and no

medications at all, seems like nothing less than a miracle. This is

especially in consideration of a slightly botched AVS and having to take a

small gamble that my PA was unilateral.

FLAME RETARDANT ON

------------ --------- --------- -----

For those of you that have unilateral PA and are good laparoscopic surgical

candidates, with a skilled surgeon, the state of the art has gotten to the

point where the recovery can be a walk in the park...especially if your

adenoma is on the left side. In my case, I had no need for anything

stronger than Tylenol by the day after surgery. So don't rule out surgery

just because you can take a pill instead.

------------ --------- --------- -----

FLAME RETARDANT OFF

If you are still trying to get a clear diagnosis and a medical or surgical

" cure " , please don't give up. There are excellent physicians out there, and

you've got us to help you as well.

Warmest regards,

Jeff

[Guest guest]

Deb,

After the PA was confirmed, I did have an AVS which showed a very high

aldosterone level on the left. However, it wasn't clear that we had a

clean draw from the right adrenal.

With the very high levels from the left and the fact I wasn't one of

those folks with huge serum aldo but rather an elevated ARR, in all

likelihood the PA was unilateral left. So, I had a choice. There

were three outcomes to surgery in descending order of likelihood:

1) It was unilateral left and I'd be cured

2) It was bilateral, and I'd need to continue on aldo blockers

post-surgery (not very likely, but possible)

3) It was unilateral left, but the right adrenal is dead, throwing me

in to an ian Crisis (rather unlikely but possible)

4) I die on the table (very unlikely since other than the PA and

related issues, I was in reasonably good health and had other recent

surgeries without incident)

So I rolled the dice, had my left adrenal removed, and within two days

of the surgery was feeling better than I had in well over a decade.

It was a good bet, but a bet I'd much rather would not have been a

position to have to make.

The tumor was 1.2 x 0.8 x 0.5cm. Past the boundaries of the tumor,

the remaining adrenal tissue showed no abnormalities under gross and

microscopic examination.

-Jeff

>

> Jeff, How large was your tumor? Did you have the test of adrenal

gland secretions before the surgery? Did you experience tingling in

your feet before surgery? Thanks for your help. Deb

>

>

> Final Update Post Surgery for

Unilateral PA

>

> Folks,

>

> Although I've posted every now and again since my surgery on Dec 11,

2006, I

> haven't given you guys a major update on my health in some time.

>

> Last week, I saw my endo for my 5 month post-op follow-up. Although

I tend

> to have a bit of white coat syndrome, the nurse read my BP at

124/82. On a

> second try by the physician, I was 122/80. I am presently on zero

> medications and am no longer DASHing. He said to me, " Jeff I think

we are

> done here. You should consider yourself very lucky, because it looks

like

> we caught the PA early enough to avoid significant vascular damage.

Have a

> nice life. "

>

> To go from a point where this time last year my BP was uncontrolled

on 4+

> HTN medications along with severe depression and other pysch and

cognitive

> issues, to now where I feel about as good as I did my first year of

college

> with no lasting effects from the PA (other than 4 little scars) and no

> medications at all, seems like nothing less than a miracle. This is

> especially in consideration of a slightly botched AVS and having to

take a

> small gamble that my PA was unilateral.

>

> FLAME RETARDANT ON

> ------------ --------- --------- -----

> For those of you that have unilateral PA and are good laparoscopic

surgical

> candidates, with a skilled surgeon, the state of the art has gotten

to the

> point where the recovery can be a walk in the park...especially if your

> adenoma is on the left side. In my case, I had no need for anything

> stronger than Tylenol by the day after surgery. So don't rule out

surgery

> just because you can take a pill instead.

> ------------ --------- --------- -----

> FLAME RETARDANT OFF

>

> If you are still trying to get a clear diagnosis and a medical or

surgical

> " cure " , please don't give up. There are excellent physicians out

there, and

> you've got us to help you as well.

>

> Warmest regards,

> Jeff

>

>

[Guest guest]

Also, no tingling in my feet before or after surgery.

> >

> > Jeff, How large was your tumor? Did you have the test of adrenal

> gland secretions before the surgery? Did you experience tingling in

> your feet before surgery? Thanks for your help. Deb

> >

> >

> > Final Update Post Surgery for

> Unilateral PA

> >

> > Folks,

> >

> > Although I've posted every now and again since my surgery on Dec 11,

> 2006, I

> > haven't given you guys a major update on my health in some time.

> >

> > Last week, I saw my endo for my 5 month post-op follow-up. Although

> I tend

> > to have a bit of white coat syndrome, the nurse read my BP at

> 124/82. On a

> > second try by the physician, I was 122/80. I am presently on zero

> > medications and am no longer DASHing. He said to me, " Jeff I think

> we are

> > done here. You should consider yourself very lucky, because it looks

> like

> > we caught the PA early enough to avoid significant vascular damage.

> Have a

> > nice life. "

> >

> > To go from a point where this time last year my BP was uncontrolled

> on 4+

> > HTN medications along with severe depression and other pysch and

> cognitive

> > issues, to now where I feel about as good as I did my first year of

> college

> > with no lasting effects from the PA (other than 4 little scars) and no

> > medications at all, seems like nothing less than a miracle. This is

> > especially in consideration of a slightly botched AVS and having to

> take a

> > small gamble that my PA was unilateral.

> >

> > FLAME RETARDANT ON

> > ------------ --------- --------- -----

> > For those of you that have unilateral PA and are good laparoscopic

> surgical

> > candidates, with a skilled surgeon, the state of the art has gotten

> to the

> > point where the recovery can be a walk in the park...especially if

your

> > adenoma is on the left side. In my case, I had no need for anything

> > stronger than Tylenol by the day after surgery. So don't rule out

> surgery

> > just because you can take a pill instead.

> > ------------ --------- --------- -----

> > FLAME RETARDANT OFF

> >

> > If you are still trying to get a clear diagnosis and a medical or

> surgical

> > " cure " , please don't give up. There are excellent physicians out

> there, and

> > you've got us to help you as well.

> >

> > Warmest regards,

> > Jeff

> >

> >

[Guest guest]

The problems my tumors were causing seemed endless. Not only was my

blood pressure high, it would go from very high to very low.

Nephrologist had me adjust my Triam/HCTZ depending on how high it

was. But my main problem was cushings so most specialists were not

concentrating on the blood pressure. Having adrenals out cured both

problems. It has not been easy at all (sometimes downright bad)

since but better than before.

I had extreme weight gain, high blood pressure, red face, extreme

fatigue, lack of concentration, getting very little sleep and pretty

much all of my life was affected. But my whole family has

uncontrolable high blood pressure. So not sure if the same tumors

were causing both problems or which came first. All I know is I was

VERY sick.

Dr Chiang practices at Elmbrooke Hospital, which is probably

Brookfield WI (I believe that is the name) and has done quite a few

adrenalectomies for my cushings specialist in CA and all have been

very happy with him. I even had 2 tumors adjacent to the adrenals

which he found and removed. So he is good at least in my estimation.

Most cushings patients have a LOT of extra weight too so a bariatric

surgeon can handle it.

My computer went down so haven't been on for a few days. Violet

>

>

> In a message dated 5/13/07 2:50:56 PM, viumber@... writes:

>

>

> >

> > I had both adrenal glands removed a year ago now. I had 8 tomors

on them

> > which didn't show on MRI's. I had a wonderful surgeon from

Milwaukee WI. His

> > name is Dr Manfred Chiang and he did it all laproscopically. I

am just so happy

> > I used him. He is also a very friendly caring person. Just

thought I would

> > add my 2 cents worth here. Violet

> >

> >

> >

>

> YOu did not say what problem the " tumors " were causing.

>

>

>

> May your pressure be low!

>

> Clarence E. Grim, BS, MS, MD

> Senior Consultant to Shared Care Research and Consulting, Inc.

> (sharedcareinc.com)

> Clinical Professor of Internal Medicine and Epidemiology Med. Col.

WI

> Clinical Professor of Nursing, Univ. of WI, Milwaukee

>

> Specializing in Difficult to Control High Blood Pressure

> and the Physiology and History of Survival During

> Hard Times and Heart Disease today.

>

>

>

> **************************************

> See what's free at http://www.aol.com.

>

>

>