Guest guest Posted January 18, 2000 Report Share Posted January 18, 2000 In a message dated 1/17/00 10:51:48 PM Pacific Standard Time, jrmonica@... writes: << I SOME TIMES CAN'T LIFT MY LEGGS AND HAVE LOTTS OF PAIN, MORE THEN BEFOR THE SURGERY THANKS MONICA FROM SUNNY CALIFORNIA >> HI , I had just about the same surgery years ago. It does get better. After a long time the pain goes away. Well most of it. My upper legs are much weaker after the surgery I understand that is normal. Who did your surgery? in california Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2000 Report Share Posted January 19, 2000 HI JENNY(I HAVE A DAUGHTER NAMED JENNY) I AM FROM SOUTHERN CAL AND I HAD SURGERY FROM KAISER IN PANARAMA CITY. MY DOCTOR IS DOC, KREIGER A YOUNG DOC. BUT I FEEL HE IS GOOD. HE DOS'NT TALK ENOUGH THOUGH AND I DON'T THINK HE KNOWS ALLOT ABOUT CMT. I NEED TO GO BACK THIS YEAR CAUSE HE DIDN'T DO THE TOP OF MY FOOT( TOE OSTOMY) AND MY LEFT FOOT IS LEANING TO THE OUT SIDE AGAIN AND I AM REALLY MAD CAUSE WE TALKED ABOUT IT AND HE SAID HE DID'NT THINK I NEEDED IT DONE, BUT ON THE RIGHT FOOT HE DID IT AND SO FAR ALL IS WELL.DO YOU WALK COMPLETLEY STRIGHT?? DID YOU HAVE THE TIBIAL ANTERIOR TENDON SPLIT? I DIDN'T AND I WAS WONDERING IF YOU FELT THAT HELPED. I ALSO HAD THE SOFT BRACE THOSE ARE GREAT,MUCH BETTER THEN THE HARD CAST. DO YOU THINK YOU ARE HOME FREE NOW OR DO YOU HAVE TO GET ORTHOTICS OR BRACES. I FEEL NOW THAT I HAD MY SURGERY I SHOULDN'T HAVE TO WEAR ANY OF THESE BUT MAYBE I'M WRONG. ANYONE OUT THERE WITH A THOUGHT ON THIS??? MONICA -----Original Message----- From: JACEE17@... <JACEE17@...> onelist <onelist> Date: Tuesday, January 18, 2000 2:10 PM Subject: Re: [] Surgery PS From: JACEE17@... In a message dated 1/17/00 10:51:48 PM Pacific Standard Time, jrmonica@... writes: << I SOME TIMES CAN'T LIFT MY LEGGS AND HAVE LOTTS OF PAIN, MORE THEN BEFOR THE SURGERY THANKS MONICA FROM SUNNY CALIFORNIA >> HI , I had just about the same surgery years ago. It does get better. After a long time the pain goes away. Well most of it. My upper legs are much weaker after the surgery I understand that is normal. Who did your surgery? in california ---------------------------------------------------------------------------- Please click above to support our sponsor ---------------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2000 Report Share Posted January 19, 2000 OH JENNY ME AGAIN TELL ME WHAT KIND OF EXERCISES YOU DO FOR YOUR LEGS ?? THANKS MONICA OR IF ANYONE HAS ANY SPECIAL THINGS THEY DO FOR OUR LEGS -----Original Message----- From: JACEE17@... <JACEE17@...> onelist <onelist> Date: Tuesday, January 18, 2000 2:10 PM Subject: Re: [] Surgery PS From: JACEE17@... In a message dated 1/17/00 10:51:48 PM Pacific Standard Time, jrmonica@... writes: << I SOME TIMES CAN'T LIFT MY LEGGS AND HAVE LOTTS OF PAIN, MORE THEN BEFOR THE SURGERY THANKS MONICA FROM SUNNY CALIFORNIA >> HI , I had just about the same surgery years ago. It does get better. After a long time the pain goes away. Well most of it. My upper legs are much weaker after the surgery I understand that is normal. Who did your surgery? in california ---------------------------------------------------------------------------- Please click above to support our sponsor ---------------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2000 Report Share Posted January 19, 2000 HI JENNY (I HAVE A DAUGHTER NAMED JENNY) THANKS FOR THE INFO. SOMETIMES I GET REALLY TIRED OF ALL THIS SURGERY AND PAIN ETC. BUT I HAVE TO KEEP TELLING MYSELF THAT OTHERS ARE SO MUCH WORSE OFF THEN ME SOOOOO THEN I PICK MY SELF UP AND START AGAIN. MONICA -----Original Message----- From: JACEE17@... <JACEE17@...> onelist <onelist> Date: Tuesday, January 18, 2000 2:10 PM Subject: Re: [] Surgery PS From: JACEE17@... In a message dated 1/17/00 10:51:48 PM Pacific Standard Time, jrmonica@... writes: << I SOME TIMES CAN'T LIFT MY LEGGS AND HAVE LOTTS OF PAIN, MORE THEN BEFOR THE SURGERY THANKS MONICA FROM SUNNY CALIFORNIA >> HI , I had just about the same surgery years ago. It does get better. After a long time the pain goes away. Well most of it. My upper legs are much weaker after the surgery I understand that is normal. Who did your surgery? in california ---------------------------------------------------------------------------- Please click above to support our sponsor ---------------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2000 Report Share Posted January 20, 2000 In a message dated 1/19/00 10:27:46 AM Pacific Standard Time, jrmonica@... writes: << DO YOU WALK COMPLETLEY STRIGHT?? DID YOU HAVE THE TIBIAL ANTERIOR TENDON SPLIT? I DIDN'T AND I WAS WONDERING IF YOU FELT THAT HELPED. I ALSO HAD THE SOFT BRACE THOSE ARE GREAT,MUCH BETTER THEN THE HARD CAST. DO YOU THINK YOU ARE HOME FREE NOW OR DO YOU HAVE TO GET ORTHOTICS OR BRACES. I FEEL NOW THAT I HAD MY SURGERY I SHOULDN'T HAVE TO WEAR ANY OF THESE BUT MAYBE I'M WRONG. ANYONE OUT THERE WITH A THOUGHT ON THIS??? MONICA >> HI , My surgery worked great for years and years. I will have to have a brace soon for my left foot. I am developing drop foot again. My left foot surgery lasted for 25 years. My right foot had to be redone after 12 years. i don't think anyone is home free with CMT. It always seems to be something. I live in lancaster Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2000 Report Share Posted January 20, 2000 Walking seems to wear me out so for exercise I do house work. jenny In a message dated 1/19/00 10:41:52 AM Pacific Standard Time, jrmonica@... writes: << OH JENNY ME AGAIN TELL ME WHAT KIND OF EXERCISES YOU DO FOR YOUR LEGS ?? THANKS MONICA OR IF ANYONE HAS ANY SPECIAL THINGS THEY DO FOR OUR LEGS -----Original Message----- From: JACEE17@... <JACEE17@...> onelist <onelist> Date: Tuesday, January 18, 2000 2:10 PM Subject: Re: [] Surgery PS From: JACEE17@... In a message dated 1/17/00 10:51:48 PM Pacific Standard Time, jrmonica@... writes: << I SOME TIMES CAN'T LIFT MY LEGGS AND HAVE LOTTS OF PAIN, MORE THEN BEFOR THE SURGERY THANKS MONICA FROM SUNNY CALIFORNIA >> HI , I had just about the same surgery years ago. It does get better. After a long time the pain goes away. Well most of it. My upper legs are much weaker after the surgery I understand that is normal. Who did your surgery? in california ---------------------------------------------------------------------------- >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2000 Report Share Posted January 20, 2000 Sorry for the delay in responding but I just got my arm out of the brace from dislocating my elbow. I would like to say that I had the triple arthodesis surgery on both ankles/feet when I was 12 yrs. old. I was 8 yrs. old when diagnosed. I did not need AFO's until I broke my leg going down stairs (which created spiral fractures since the surgery fuses your ankles and it is like wearing ski boots you break above where it's braced, etc.) The surgery is in place of the AFO;s. The surgery got me through the growing up years and I could accept AFO's better in my 30's than in my teens. DB-- On Wed, 19 Jan 2000 10:35:09 JR & MONICA WRIGHT wrote: >From: " JR & MONICA WRIGHT " <jrmonica@...> > >HI JENNY(I HAVE A DAUGHTER NAMED JENNY) I AM FROM SOUTHERN CAL AND I HAD SURGERY FROM KAISER IN PANARAMA CITY. MY DOCTOR IS DOC, KREIGER A YOUNG DOC. BUT I FEEL HE IS GOOD. HE DOS'NT TALK ENOUGH THOUGH AND I DON'T THINK HE KNOWS ALLOT ABOUT CMT. I NEED TO GO BACK THIS YEAR CAUSE HE DIDN'T DO THE TOP OF MY FOOT( TOE OSTOMY) AND MY LEFT FOOT IS LEANING TO THE OUT SIDE AGAIN AND I AM REALLY MAD CAUSE WE TALKED ABOUT IT AND HE SAID HE DID'NT THINK I NEEDED IT DONE, BUT ON THE RIGHT FOOT HE DID IT AND SO FAR ALL IS WELL.DO YOU WALK COMPLETLEY STRIGHT?? DID YOU HAVE THE TIBIAL ANTERIOR TENDON SPLIT? I DIDN'T AND I WAS WONDERING IF YOU FELT THAT HELPED. I ALSO HAD THE SOFT BRACE THOSE ARE GREAT,MUCH BETTER THEN THE HARD CAST. DO YOU THINK YOU ARE HOME FREE NOW OR DO YOU HAVE TO GET ORTHOTICS OR BRACES. I FEEL NOW THAT I HAD MY SURGERY I SHOULDN'T HAVE TO WEAR ANY OF THESE BUT MAYBE I'M WRONG. ANYONE OUT THERE WITH A THOUGHT ON THIS??? MONICA >-----Original Message----- > From: JACEE17@... <JACEE17@...> > onelist <onelist> > Date: Tuesday, January 18, 2000 2:10 PM > Subject: Re: [] Surgery PS > > > From: JACEE17@... > > In a message dated 1/17/00 10:51:48 PM Pacific Standard Time, > jrmonica@... writes: > > << I SOME TIMES CAN'T LIFT MY LEGGS AND HAVE LOTTS OF PAIN, MORE THEN BEFOR > THE SURGERY THANKS MONICA FROM SUNNY CALIFORNIA >> > HI , I had just about the same surgery years ago. It does get better. > After a long time the pain goes away. Well most of it. My upper legs are much > weaker after the surgery I understand that is normal. Who did your surgery? > in california > > ---------------------------------------------------------------------------- > > > Please click above to support our sponsor > > > ---------------------------------------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2000 Report Share Posted January 20, 2000 Hi --you said <Walking seems to wear me out so for exercise I do house work.> ***************************************************** What can you say to inspire me to do housework, and feel it's beneficial? I'm sure it benefits you in2 ways--you are exercising, plus getting some work done. But I hate housework!! I'm going to try to look at it as a weight-loser, maybe that will help. Perhaps I should always have a dust cloth in a pocket--then when I fall, I can dust the low things, as I crawl to some support to get up. LOL dusty Theresa ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
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