Re: left adrenal gland adenoma + symptoms of hyperaldosteronism

[Guest guest]

,

I'm familiar with the Tampa-St. Pete area, and I'd have to say you've just

had a run of bad luck with physicians. You certainly aren't in the boonies

by any means. I hope you have a different primary than you did in 2003 &

2006, yes?

As to the pcp not testing for the PA, most pcp's are not the least bit

knowledgeable in this area. Most of the people on this board were

mis-diagnosed by their PCP and other docs for years before getting an

appropriate diagnosis. In general, you ought to be seeing a nephologist or

endocrinologist for proper diagnosis and, even then, many of them may not be

sufficiently knowledgeable. Does your insurance require a referral? If so,

you may want to come prepared with the name of a knowledgeable doctor on

your plan.

One such individual in your area is Dr. Arunabha Ganguly in Tampa (

http://health.usf.edu/medicine/internalmedicine/endocrinology/index.htm).

You ought to check to see if he's on your plan and sees patients who would

not normally go to the VA hospital. He's published several articles on PA

over the years and at least one with Drs. Grim and Weinberger in the

mid-1980's. If he's not covered on your plan, he probably can recommend

someone knowledgeable who may be.

Dr. Grim may be able to recommend other docs in your area as well.

-Jeff

On 4/15/07, kbcatlin22 <kbcatlin22@...> wrote:

>

> ct scan showed left adrenal cyst of 1 cm. mri diagnosed left

> adrenal gland adenoma of 5 mm. I am aware that different imaging

> modalities can show different sizes.

>

> My problem is that my primary care physician will not test for an

> active adrenal gland adenoma.

>

> In 2003 I had my gallbladder out for alcalculous cholectcystis after

> eight months of doctor visits.

>

> On July 19th, 2006 I had my appendix out after 20 months of chronic

> appendicitis.

>

> My kidneys started hurting about 12 years ago after a kidney

> infection - the pain never really went away. I had two ivps and was

> told there was nothing wrong with my kidneys.

>

> That was the time I started getting high blood pressure reads,

> around 160/110. I was put on Altace 5 mgs twice per day. It does

> not control the bp.

>

> I have had daily headaches now for a year, the neurologist found

> nothing. I upped my Altace to 3 to 4 capsules per day and the

> headaches (not migraine) are being controlled.

>

> I have had a few reads of low potassium, was admitted and was put on

> an iv drip of potassium which made me feel wonderful in April 2005.

>

> My hypertension is labile. I have terrible muscle cramps in feet,

> calves, hands and back.

>

> I have double carotid artery bruits, worse in the am and pm. I can

> hear them, they sound like blood rushing through my ears.

>

> No energy. I pee every 20-30 mins all day long and about 4-5 times

> nightly. I have a very high level of thirst and drink water all day

> and down it at night when I wake up.

>

> My dilema is that if they cannot diagnose a bad gallbladder or

> appendicitis where I live, what chance do I have with possible

> Conn's Syndrome? I am seeing my primary care physician this week

> and want to approach him with an attitude that maybe we can learn

> together about this. I mentioned it to him before, but he brushed

> it off as an incidentaloma. (This tells me he needs more reading on

> the subject.)

>

> Please wish me luck, I went through hell with the appendicitis and

> am still drained from that experience. I am glad I found this

> site.

>

> current meds: Altace 5 mgs 3-4 times daily

> Fioricet for migraines as needed

> Klonopin 2 mgs at bedtime (fibromyalgia)

> Cymbalta 60 mgs am (fibromyalgia)

> Celexa 40 mgs per day for stress from medical problems

>

> no licorice Never touch the stuff

>

> Thankyou,

> in St sburg, Florida insurance: Cigna

> newbie, first post

>

>

>

[Guest guest]

Hi :

It would help if you post any lab results here so Dr. Grim can take a look.

Also with Conn's one way to know is if meds such as Aldactone work for you.

If so, your bp will be controlled within few days. Do you have any problems

with potassium? One could have adrenal tumors but they may not be the result

of access aldosterone.

Hope you feel better soon.

Farah

On 4/15/07, kbcatlin22 <kbcatlin22@...> wrote:

>

> ct scan showed left adrenal cyst of 1 cm. mri diagnosed left

> adrenal gland adenoma of 5 mm. I am aware that different imaging

> modalities can show different sizes.

>

> My problem is that my primary care physician will not test for an

> active adrenal gland adenoma.

>

> In 2003 I had my gallbladder out for alcalculous cholectcystis after

> eight months of doctor visits.

>

> On July 19th, 2006 I had my appendix out after 20 months of chronic

> appendicitis.

>

> My kidneys started hurting about 12 years ago after a kidney

> infection - the pain never really went away. I had two ivps and was

> told there was nothing wrong with my kidneys.

>

> That was the time I started getting high blood pressure reads,

> around 160/110. I was put on Altace 5 mgs twice per day. It does

> not control the bp.

>

> I have had daily headaches now for a year, the neurologist found

> nothing. I upped my Altace to 3 to 4 capsules per day and the

> headaches (not migraine) are being controlled.

>

> I have had a few reads of low potassium, was admitted and was put on

> an iv drip of potassium which made me feel wonderful in April 2005.

>

> My hypertension is labile. I have terrible muscle cramps in feet,

> calves, hands and back.

>

> I have double carotid artery bruits, worse in the am and pm. I can

> hear them, they sound like blood rushing through my ears.

>

> No energy. I pee every 20-30 mins all day long and about 4-5 times

> nightly. I have a very high level of thirst and drink water all day

> and down it at night when I wake up.

>

> My dilema is that if they cannot diagnose a bad gallbladder or

> appendicitis where I live, what chance do I have with possible

> Conn's Syndrome? I am seeing my primary care physician this week

> and want to approach him with an attitude that maybe we can learn

> together about this. I mentioned it to him before, but he brushed

> it off as an incidentaloma. (This tells me he needs more reading on

> the subject.)

>

> Please wish me luck, I went through hell with the appendicitis and

> am still drained from that experience. I am glad I found this

> site.

>

> current meds: Altace 5 mgs 3-4 times daily

> Fioricet for migraines as needed

> Klonopin 2 mgs at bedtime (fibromyalgia)

> Cymbalta 60 mgs am (fibromyalgia)

> Celexa 40 mgs per day for stress from medical problems

>

> no licorice Never touch the stuff

>

> Thankyou,

> in St sburg, Florida insurance: Cigna

> newbie, first post

>

>

>

[Guest guest]

In a message dated 4/16/07 1:00:54 AM, farahbar@... writes:

>

> Hi :

> It would help if you post any lab results here so Dr. Grim can take a look.

> Also with Conn's one way to know is if meds such as Aldactone work for you.

> If so, your bp will be controlled within few days. Do you have any problems

> with potassium? One could have adrenal tumors but they may not be the result

> of access aldosterone.

>

> Hope you feel better soon.

> Farah

>

> On 4/15/07, kbcatlin22 <kbcatlin22@...> wrote:

> >

> > ct scan showed left adrenal cyst of 1 cm. mri diagnosed left

> > adrenal gland adenoma of 5 mm. I am aware that different imaging

> > modalities can show different sizes.

> >

> > My problem is that my primary care physician will not test for an

> > active adrenal gland adenoma.

> >

> > In 2003 I had my gallbladder out for alcalculous cholectcystis after

> > eight months of doctor visits.

> >

> > On July 19th, 2006 I had my appendix out after 20 months of chronic

> > appendicitis.

> >

> > My kidneys started hurting about 12 years ago after a kidney

> > infection - the pain never really went away. I had two ivps and was

> > told there was nothing wrong with my kidneys.

> >

> > That was the time I started getting high blood pressure reads,

> > around 160/110. I was put on Altace 5 mgs twice per day. It does

> > not control the bp.

>

Note in my article which you should take to your GP that ACEs do not work in

PA---at all.

> >

> > I have had daily headaches now for a year, the neurologist found

> > nothing. I upped my Altace to 3 to 4 capsules per day and the

> > headaches (not migraine) are being controlled.

>

See abvoe. You need spiron in all likelyhood.

> >

> > I have had a few reads of low potassium, was admitted and was put on

> > an iv drip of potassium which made me feel wonderful in April 2005.

>

You have primary aldo.

> >

> > My hypertension is labile. I have terrible muscle cramps in feet,

> > calves, hands and back.

>

Classic sign of PA advanced see my paper.

> >

> > I have double carotid artery bruits, worse in the am and pm. I can

> > hear them, they sound like blood rushing through my ears.

>

What does your Dr hear over these? How old are you. Do you smoke, what is

your cholesterol??

Give us as much and many details of your BP Hx as possible Call it 's

Story. See our files for other examples.

> >

> > No energy. I pee every 20-30 mins all day long and about 4-5 times

> > nightly. I have a very high level of thirst and drink water all day

> > and down it at night when I wake up.

>

Classic for advanced PA.

> >

> > My dilema is that if they cannot diagnose a bad gallbladder or

> > appendicitis where I live, what chance do I have with possible

> > Conn's Syndrome? I am seeing my primary care physician this week

> > and want to approach him with an attitude that maybe we can learn

> > together about this. I mentioned it to him before, but he brushed

> > it off as an incidentaloma. (This tells me he needs more reading on

> > the subject.)

>

Take him my article and ask to be referred to Dr. Arunaba Ganguly in Tampa

for evaluation-who is a former collegue of mine.l

> >

> > Please wish me luck, I went through hell with the appendicitis and

> > am still drained from that experience. I am glad I found this

> > site.

> >

> > current meds: Altace 5 mgs 3-4 times daily

> > Fioricet for migraines as needed

> > Klonopin 2 mgs at bedtime (fibromyalgia)

> > Cymbalta 60 mgs am (fibromyalgia)

> > Celexa 40 mgs per day for stress from medical problems

> >

> > no licorice Never touch the stuff

> >

> > Thankyou,

> > in St sburg, Florida insurance: Cigna

> > newbie, first post

> >

> >

> >

>

>

[Guest guest]

It will be worth your health and wealth to pay to see Dr. Ganguly if you need

to.

You have suffered a lot from a likelyh improper diagnosis and it is time to

act.

May your pressure be low!

Clarence E. Grim, B.S., M.S., M.D.

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's free at http://www.aol.com.

[Guest guest]

In a message dated 4/15/07 6:08:07 PM, kbcatlin22@... writes:

> In 2003 I had my gallbladder out for alcalculous cholectcystis after

> eight months of doctor visits.

>

> On July 19th, 2006 I had my appendix out after 20 months of chronic

> appendicitis.

>

Would be very interested in exactly what your symptoms were for each of

these. Was K low then?

Acalcululus cholecystitis means you had an inflammed GP but no stones which

is very unusual. I recommend you get the pathology report on this.

May your pressure be low!

Clarence E. Grim, B.S., M.S., M.D.

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's free at http://www.aol.com.

[Guest guest]

,

Since you live in Fla, I would say forget about the others and go to

the Mayo Clinic in ville. My primary keeps telling me that I

should go to Mayo. I have heard from people in this web site that

the one in Minn is better for treating PA but since you live in Fl, I

would start there. If you need a referral for insurance, tell you

primary that you want to go there, he probably won't object. For the

most part, I think if drs aren't sure what to do, they won't even try.

Fran

>

> ct scan showed left adrenal cyst of 1 cm. mri diagnosed left

> adrenal gland adenoma of 5 mm. I am aware that different imaging

> modalities can show different sizes.

>

> My problem is that my primary care physician will not test for an

> active adrenal gland adenoma.

>

> In 2003 I had my gallbladder out for alcalculous cholectcystis

after

> eight months of doctor visits.

>

> On July 19th, 2006 I had my appendix out after 20 months of chronic

> appendicitis.

>

> My kidneys started hurting about 12 years ago after a kidney

> infection - the pain never really went away. I had two ivps and

was

> told there was nothing wrong with my kidneys.

>

> That was the time I started getting high blood pressure reads,

> around 160/110. I was put on Altace 5 mgs twice per day. It does

> not control the bp.

>

> I have had daily headaches now for a year, the neurologist found

> nothing. I upped my Altace to 3 to 4 capsules per day and the

> headaches (not migraine) are being controlled.

>

> I have had a few reads of low potassium, was admitted and was put

on

> an iv drip of potassium which made me feel wonderful in April 2005.

>

> My hypertension is labile. I have terrible muscle cramps in feet,

> calves, hands and back.

>

> I have double carotid artery bruits, worse in the am and pm. I can

> hear them, they sound like blood rushing through my ears.

>

> No energy. I pee every 20-30 mins all day long and about 4-5 times

> nightly. I have a very high level of thirst and drink water all

day

> and down it at night when I wake up.

>

> My dilema is that if they cannot diagnose a bad gallbladder or

> appendicitis where I live, what chance do I have with possible

> Conn's Syndrome? I am seeing my primary care physician this week

> and want to approach him with an attitude that maybe we can learn

> together about this. I mentioned it to him before, but he brushed

> it off as an incidentaloma. (This tells me he needs more reading

on

> the subject.)

>

> Please wish me luck, I went through hell with the appendicitis and

> am still drained from that experience. I am glad I found this

> site.

>

> current meds: Altace 5 mgs 3-4 times daily

> Fioricet for migraines as needed

> Klonopin 2 mgs at bedtime (fibromyalgia)

> Cymbalta 60 mgs am (fibromyalgia)

> Celexa 40 mgs per day for stress from medical

problems

>

> no licorice Never touch the stuff

>

> Thankyou,

> in St sburg, Florida insurance: Cigna

> newbie, first post

>

[Guest guest]

> >

> > ct scan showed left adrenal cyst of 1 cm. mri diagnosed left

> > adrenal gland adenoma of 5 mm. I am aware that different

imaging

> > modalities can show different sizes.

> >

> > My problem is that my primary care physician will not test for

an

> > active adrenal gland adenoma.

> >

> > In 2003 I had my gallbladder out for alcalculous cholectcystis

> after

> > eight months of doctor visits.

> >

> > On July 19th, 2006 I had my appendix out after 20 months of

chronic

> > appendicitis.

> >

> > My kidneys started hurting about 12 years ago after a kidney

> > infection - the pain never really went away. I had two ivps and

> was

> > told there was nothing wrong with my kidneys.

> >

> > That was the time I started getting high blood pressure reads,

> > around 160/110. I was put on Altace 5 mgs twice per day. It

does

> > not control the bp.

> >

> > I have had daily headaches now for a year, the neurologist found

> > nothing. I upped my Altace to 3 to 4 capsules per day and the

> > headaches (not migraine) are being controlled.

> >

> > I have had a few reads of low potassium, was admitted and was

put

> on

> > an iv drip of potassium which made me feel wonderful in April

2005.

> >

> > My hypertension is labile. I have terrible muscle cramps in

feet,

> > calves, hands and back.

> >

> > I have double carotid artery bruits, worse in the am and pm. I

can

> > hear them, they sound like blood rushing through my ears.

> >

> > No energy. I pee every 20-30 mins all day long and about 4-5

times

> > nightly. I have a very high level of thirst and drink water all

> day

> > and down it at night when I wake up.

> >

> > My dilema is that if they cannot diagnose a bad gallbladder or

> > appendicitis where I live, what chance do I have with possible

> > Conn's Syndrome? I am seeing my primary care physician this

week

> > and want to approach him with an attitude that maybe we can

learn

> > together about this. I mentioned it to him before, but he

brushed

> > it off as an incidentaloma. (This tells me he needs more

reading

> on

> > the subject.)

> >

> > Please wish me luck, I went through hell with the appendicitis

and

> > am still drained from that experience. I am glad I found this

> > site.

> >

> > current meds: Altace 5 mgs 3-4 times daily

> > Fioricet for migraines as needed

> > Klonopin 2 mgs at bedtime (fibromyalgia)

> > Cymbalta 60 mgs am (fibromyalgia)

> > Celexa 40 mgs per day for stress from medical

> problems

> >

> > no licorice Never touch the stuff

> >

> > Thankyou,

> > in St sburg, Florida insurance: Cigna

> > newbie, first post

> >

>

[Guest guest]

> >

> > ct scan showed left adrenal cyst of 1 cm. mri diagnosed left

> > adrenal gland adenoma of 5 mm. I am aware that different imaging

> > modalities can show different sizes.

> >

> > My problem is that my primary care physician will not test for an

> > active adrenal gland adenoma.

> >

> > In 2003 I had my gallbladder out for alcalculous cholectcystis

after

> > eight months of doctor visits.

> >

> > On July 19th, 2006 I had my appendix out after 20 months of

chronic

> > appendicitis.

> >

> > My kidneys started hurting about 12 years ago after a kidney

> > infection - the pain never really went away. I had two ivps and

was

> > told there was nothing wrong with my kidneys.

> >

> > That was the time I started getting high blood pressure reads,

> > around 160/110. I was put on Altace 5 mgs twice per day. It does

> > not control the bp.

> >

> > I have had daily headaches now for a year, the neurologist found

> > nothing. I upped my Altace to 3 to 4 capsules per day and the

> > headaches (not migraine) are being controlled.

> >

> > I have had a few reads of low potassium, was admitted and was

put on

> > an iv drip of potassium which made me feel wonderful in April

2005.

> >

> > My hypertension is labile. I have terrible muscle cramps in feet,

> > calves, hands and back.

> >

> > I have double carotid artery bruits, worse in the am and pm. I

can

> > hear them, they sound like blood rushing through my ears.

> >

> > No energy. I pee every 20-30 mins all day long and about 4-5

times

> > nightly. I have a very high level of thirst and drink water all

day

> > and down it at night when I wake up.

> >

> > My dilema is that if they cannot diagnose a bad gallbladder or

> > appendicitis where I live, what chance do I have with possible

> > Conn's Syndrome? I am seeing my primary care physician this week

> > and want to approach him with an attitude that maybe we can learn

> > together about this. I mentioned it to him before, but he brushed

> > it off as an incidentaloma. (This tells me he needs more reading

on

> > the subject.)

> >

> > Please wish me luck, I went through hell with the appendicitis

and

> > am still drained from that experience. I am glad I found this

> > site.

> >

> > current meds: Altace 5 mgs 3-4 times daily

> > Fioricet for migraines as needed

> > Klonopin 2 mgs at bedtime (fibromyalgia)

> > Cymbalta 60 mgs am (fibromyalgia)

> > Celexa 40 mgs per day for stress from medical problems

> >

> > no licorice Never touch the stuff

> >

> > Thankyou,

> > in St sburg, Florida insurance: Cigna

> > newbie, first post

> >

> >

> >

>

>

>

[Guest guest]

> >

> > ct scan showed left adrenal cyst of 1 cm. mri diagnosed left

> > adrenal gland adenoma of 5 mm. I am aware that different imaging

> > modalities can show different sizes.

> >

> > My problem is that my primary care physician will not test for an

> > active adrenal gland adenoma.

> >

> > In 2003 I had my gallbladder out for alcalculous cholectcystis

after

> > eight months of doctor visits.

> >

> > On July 19th, 2006 I had my appendix out after 20 months of

chronic

> > appendicitis.

> >

> > My kidneys started hurting about 12 years ago after a kidney

> > infection - the pain never really went away. I had two ivps and

was

> > told there was nothing wrong with my kidneys.

> >

> > That was the time I started getting high blood pressure reads,

> > around 160/110. I was put on Altace 5 mgs twice per day. It does

> > not control the bp.

> >

> > I have had daily headaches now for a year, the neurologist found

> > nothing. I upped my Altace to 3 to 4 capsules per day and the

> > headaches (not migraine) are being controlled.

> >

> > I have had a few reads of low potassium, was admitted and was

put on

> > an iv drip of potassium which made me feel wonderful in April

2005.

> >

> > My hypertension is labile. I have terrible muscle cramps in feet,

> > calves, hands and back.

> >

> > I have double carotid artery bruits, worse in the am and pm. I

can

> > hear them, they sound like blood rushing through my ears.

> >

> > No energy. I pee every 20-30 mins all day long and about 4-5

times

> > nightly. I have a very high level of thirst and drink water all

day

> > and down it at night when I wake up.

> >

> > My dilema is that if they cannot diagnose a bad gallbladder or

> > appendicitis where I live, what chance do I have with possible

> > Conn's Syndrome? I am seeing my primary care physician this week

> > and want to approach him with an attitude that maybe we can learn

> > together about this. I mentioned it to him before, but he brushed

> > it off as an incidentaloma. (This tells me he needs more reading

on

> > the subject.)

> >

> > Please wish me luck, I went through hell with the appendicitis

and

> > am still drained from that experience. I am glad I found this

> > site.

> >

> > current meds: Altace 5 mgs 3-4 times daily

> > Fioricet for migraines as needed

> > Klonopin 2 mgs at bedtime (fibromyalgia)

> > Cymbalta 60 mgs am (fibromyalgia)

> > Celexa 40 mgs per day for stress from medical problems

> >

> > no licorice Never touch the stuff

> >

> > Thankyou,

> > in St sburg, Florida insurance: Cigna

> > newbie, first post

> >

> >

> >

>

>

>

[Guest guest]

> > >

> > > ct scan showed left adrenal cyst of 1 cm. mri diagnosed left

> > > adrenal gland adenoma of 5 mm. I am aware that different

imaging

> > > modalities can show different sizes.

> > >

> > > My problem is that my primary care physician will not test for

an

> > > active adrenal gland adenoma.

> > >

> > > In 2003 I had my gallbladder out for alcalculous cholectcystis

after

> > > eight months of doctor visits.

> > >

> > > On July 19th, 2006 I had my appendix out after 20 months of

chronic

> > > appendicitis.

> > >

> > > My kidneys started hurting about 12 years ago after a kidney

> > > infection - the pain never really went away. I had two ivps

and was

> > > told there was nothing wrong with my kidneys.

> > >

> > > That was the time I started getting high blood pressure reads,

> > > around 160/110. I was put on Altace 5 mgs twice per day. It

does

> > > not control the bp.

> >

> Note in my article which you should take to your GP that ACEs do

not work in

> PA---at all.

> > >

> > > I have had daily headaches now for a year, the neurologist

found

> > > nothing. I upped my Altace to 3 to 4 capsules per day and the

> > > headaches (not migraine) are being controlled.

> >

> See abvoe. You need spiron in all likelyhood.

>

> > >

> > > I have had a few reads of low potassium, was admitted and was

put on

> > > an iv drip of potassium which made me feel wonderful in April

2005.

> >

> You have primary aldo.

>

>

> > >

> > > My hypertension is labile. I have terrible muscle cramps in

feet,

> > > calves, hands and back.

> >

> Classic sign of PA advanced see my paper.

>

>

> > >

> > > I have double carotid artery bruits, worse in the am and pm. I

can

> > > hear them, they sound like blood rushing through my ears.

> >

>

> What does your Dr hear over these? How old are you. Do you

smoke, what is

> your cholesterol??

>

Dr has never listened to bruits. I am female, 49, 143 pds. I smoke

cigarettes.

11/18/2002

lipid panel w/ ldl/hdl ratio

cholesterol total 185 (100-199)

triglycerides 128 (0-149)

hdl chol 46 (40-59)

vldl chol cal 25 (5-40)

ldl chol calc 113 high (0-99)

ratio ldl/hdl 2.4 (0.0 -3.2)

09/23/2004

hdl chol 33 low (40-59)

vldl chol cal 37 (5-40)

ldl chol calc 108 high (0-99)

cholesterol, total 178 (100-199)

triglycerides 187 high (0-149)

09/24/05

triglycerides 188 (30-200)

cholesterol 182 (50-200)

hdl chol 41 (38-75)

ldl chol 103 (66-185)

vldl chol 38 (0-40)

cho/hdl ratio 4.4

ldl/hdl ratio 2.5

10/01/05 cholesterol 194 (50-200)

11/30/05 echocardiogram normal

>

> Give us as much and many details of your BP Hx as possible Call

it 's

> Story. See our files for other examples.

's Story

BP

4-12-99 130/88 p 96

4-15-99 140/80 p 96

11-15-99 140/80 p 84

5-22-00 168/94 p 88

6-08-01 118/80 p 72

6-28-01 120/80

11-18-02 140/100

4-1-03 146/110

5-14-03 160/110 --started altace 5 mg 1x daily

6-5-03 146/96

11-13-03 160/90 --altace bid

11-20-03 140/80

1-23-04 120/90

7-23-04 140/100

12-9-04 150/100

1-3-05 130/88

1-13-05 140/90

2-23-05 130/80

3-30-05 160/90 --started altace 5 mg 4-5 times daily

6-28-05 144/100

7-26-05 144/100

9-25-05 149/83

9-28-05 146/93 p 113

10-1-05 146/95 p 106 0800

130/79 p 85 0820

97/66 p 82 1100

111/66 p 81 1200

137/70 p 65 1300

104/60 p 72 1400

117/74 p 78 1500

117/73 p 76 1600

142/80 p 117 2330

144/78 p 108 0700

prone 148/83 p 78

sitting 149/83 p 81

standing 145/80 p 80

> > >

> > > No energy. I pee every 20-30 mins all day long and about 4-5

times

> > > nightly. I have a very high level of thirst and drink water

all day

> > > and down it at night when I wake up.

> >

> Classic for advanced PA.

> > >

> > > My dilema is that if they cannot diagnose a bad gallbladder or

> > > appendicitis where I live, what chance do I have with possible

> > > Conn's Syndrome? I am seeing my primary care physician this

week

> > > and want to approach him with an attitude that maybe we can

learn

> > > together about this. I mentioned it to him before, but he

brushed

> > > it off as an incidentaloma. (This tells me he needs more

reading on

> > > the subject.)

> >

> Take him my article and ask to be referred to Dr. Arunaba Ganguly

in Tampa

> for evaluation-who is a former collegue of mine.

Thankyou Dr. Grimm so very much for the referral, Dr. Ganguly is not

in Tampa anymore. I called today.

> > >

> > > Please wish me luck, I went through hell with the appendicitis

and

> > > am still drained from that experience. I am glad I found this

> > > site.

> > >

> > > current meds: Altace 5 mgs 3-4 times daily

> > > Fioricet for migraines as needed

> > > Klonopin 2 mgs at bedtime (fibromyalgia)

> > > Cymbalta 60 mgs am (fibromyalgia)

> > > Celexa 40 mgs per day for stress from medical problems

> > >

> > > no licorice Never touch the stuff

> > >

> > > Thankyou,

> > > in St sburg, Florida insurance: Cigna

> > > newbie, first post

> > >

> > >

> > >

> >

> >

[Guest guest]

you've been through a lot.

Wow Jeff, It shouldn't be that hard. I'm still in early stages of

diagnosis myself and waiting for the next step. I have 2 internists

at the moment. Somehow it feels like a conflict... I should only

have 1... One is looking at my headaches and very interested in my BP

issues....I've only had one visit with him and he wasn't shy about

his opinion on how he'd treat my BP (it's different than the first

one) but right now I'm still following the first one. The first one

has been trying to figure out if I have PA and got me referred to

Endo but he's also misdiagnosed me in the past. (ie: he thought I had

a tumor behind my eye) He has also been looking after my BP issues.

When he first did aldo/renin testing (2005), it was suggestive of

Conn's but nothing was done until just recently.

I guess looking at the posts here, people see many specialists.

I appreciate the fortitude I see in many people here who seem to

persevere in getting down to a right diagnosis.

> > > >

> > > > ct scan showed left adrenal cyst of 1 cm. mri diagnosed left

> > > > adrenal gland adenoma of 5 mm. I am aware that different

imaging

> > > > modalities can show different sizes.

> > > >

> > > > My problem is that my primary care physician will not test

for an

> > > > active adrenal gland adenoma.

> > > >

> > > > In 2003 I had my gallbladder out for alcalculous cholectcystis

> > after

> > > > eight months of doctor visits.

> > > >

> > > > On July 19th, 2006 I had my appendix out after 20 months of

> > chronic

> > > > appendicitis.

> > > >

> > > > My kidneys started hurting about 12 years ago after a kidney

> > > > infection - the pain never really went away. I had two ivps

and

> > was

> > > > told there was nothing wrong with my kidneys.

> > > >

> > > > That was the time I started getting high blood pressure reads,

> > > > around 160/110. I was put on Altace 5 mgs twice per day. It

does

> > > > not control the bp.

> > > >

> > > > I have had daily headaches now for a year, the neurologist

found

> > > > nothing. I upped my Altace to 3 to 4 capsules per day and the

> > > > headaches (not migraine) are being controlled.

> > > >

> > > > I have had a few reads of low potassium, was admitted and was

> > put on

> > > > an iv drip of potassium which made me feel wonderful in April

> > 2005.

> > > >

> > > > My hypertension is labile. I have terrible muscle cramps in

feet,

> > > > calves, hands and back.

> > > >

> > > > I have double carotid artery bruits, worse in the am and pm. I

> > can

> > > > hear them, they sound like blood rushing through my ears.

> > > >

> > > > No energy. I pee every 20-30 mins all day long and about 4-5

> > times

> > > > nightly. I have a very high level of thirst and drink water

all

> > day

> > > > and down it at night when I wake up.

> > > >

> > > > My dilema is that if they cannot diagnose a bad gallbladder or

> > > > appendicitis where I live, what chance do I have with possible

> > > > Conn's Syndrome? I am seeing my primary care physician this

week

> > > > and want to approach him with an attitude that maybe we can

learn

> > > > together about this. I mentioned it to him before, but he

brushed

> > > > it off as an incidentaloma. (This tells me he needs more

reading

> > on

> > > > the subject.)

> > > >

> > > > Please wish me luck, I went through hell with the appendicitis

> > and

> > > > am still drained from that experience. I am glad I found this

> > > > site.

> > > >

> > > > current meds: Altace 5 mgs 3-4 times daily

> > > > Fioricet for migraines as needed

> > > > Klonopin 2 mgs at bedtime (fibromyalgia)

> > > > Cymbalta 60 mgs am (fibromyalgia)

> > > > Celexa 40 mgs per day for stress from medical problems

> > > >

> > > > no licorice Never touch the stuff

> > > >

> > > > Thankyou,

> > > > in St sburg, Florida insurance: Cigna

> > > > newbie, first post

> > > >

> > > >

> > > >

> > >

> > >

> > >

[Guest guest]

>

>

> In a message dated 4/15/07 6:08:07 PM, kbcatlin22@... writes:

>

>

> > In 2003 I had my gallbladder out for alcalculous cholectcystis

after

> > eight months of doctor visits.

> >

> > On July 19th, 2006 I had my appendix out after 20 months of

chronic

> > appendicitis.

> >

>

> Would be very interested in exactly what your symptoms were for

each of

> these. Was K low then?

>

> Acalcululus cholecystitis means you had an inflammed GP but no

stones which

> is very unusual. I recommend you get the pathology report on this.

4-1-03 k 3.6 (3.5-5.3)

5-21-03 final diagnosis gallbladder, cholecystectomy: chronic

cholecystitis, benign lymph node

gross description:

the specimen, labeled " gallbladder " , consists of an intact

gallbladder, 7.5 x 3 x 2 cm. the cystic node of Calot is

identified and is 1 x 0.5 x 0.5 cm. the gallbladder is opened and

is filled with dark green, thick bile. the gallbladder wall is 1

cm. the mucosa is dark green and roughened. gallstones are not

identified and representative sections are submitted in cassette " A1 "

symptoms: pain upper right abdominal quadrant 4-5 on 1-10 scale,

after meals especially, fever, belching. Both my primary and I

thought gallbladder, but it was hard to find a surgeon to take it

out.

appendix:

11/21/04 started with generalized pain middle of abdomen that

traveled to the lower right quadrant. fever, high white blood cell

count, thickened appendiceal wall on ct scan on 11/24/06. was being

admitted for surgery the next morning, but a different doctor told

me I had gastroenteritis and sent me home. I went right to the

surgeon who took out my gallbladder. Because I had bilateral

ovarian cysts too, I was shuttled back and forth between surgeons

and gynecologists.

I saw 23 doctors/surgeons and went to 8 hospitals/emergency rooms,

one of them three times, one of them two times. I literally begged

for surgery.

Pain 8/10 all of the time

the pain traveled to the upper right quadrant, then across the

abdomen to the left side. I had a left pleural effusion. I had

acute gastritis, pancreatitis, liver damage. Paucity of mesenteric

fat, diffuse lymph nodes in mesentery larger than expected. I had

fluid in the pelvic cul de sac that caused severe shoulder pain. I

developed fibroids where I had none before. I had solid nodules in

both ovaries that went away. I stopped menstruating. I had diarrhea

for 1 1/2 years, until the narcotics slowed it down. The pleural

effusion affected the left lung, I had crackles, wheezing and

tackycardia. I developed MRSA in May of 2005. Last outbreak in

October of 2006. was on antibiotics oral, iv, topical for months.

I started bleeding from both the upper and lower intestines, so was

finally referred to a new surgeon in town who took out the appendix

and adhesions. He also took out the left ovarian cysts.

side affects 9 months after surgery: my bowels do not move by

themselves. I have to take bysocodyl suppositories every other day

or I go weeks without a bowel movement. spinal degeneration. plus

all the symptoms I mentioned earlier.

7-21-06

procedure: diagnostic lap, lap appendectomy and lysis of adhesions

final diagnosis: mild chronic appendicitis with fecalith formation

gross description: the specimen, labeled " appendix " , consists of a

vermiform appendix, 8 x 0.5 cm. sectioning demonstrates a fecal

filled lumen and a 0.1 cm. wall. sections are submitted under

cassette " A1 " .

>

>

>

> May your pressure be low!

>

> Clarence E. Grim, B.S., M.S., M.D.

> Senior Consultant to Shared Care Research and Consulting, Inc.

> (sharedcareinc.com)

> Clinical Professor of Internal Medicine and Epidemiology Med. Col.

WI

> Clinical Professor of Nursing, Univ. of WI, Milwaukee

>

> Specializing in Difficult to Control High Blood Pressure

> and the Physiology and History of Survival During

> Hard Times and Heart Disease today.

>

>

>

> **************************************

> See what's free at http://www.aol.com.

>

>

>

[Guest guest]

>

> I am contacting Dr. Ganguly as the last time I knew he was still

seeing

> private pts. Will keep you posted.

I am very very grateful to you. Thankyou so much. If you can find

him, I will certainly see him.

>

>

>

> May your pressure be low!

>

> Clarence E. Grim, B.S., M.S., M.D.

> Senior Consultant to Shared Care Research and Consulting, Inc.

> (sharedcareinc.com)

> Clinical Professor of Internal Medicine and Epidemiology Med. Col.

WI

> Clinical Professor of Nursing, Univ. of WI, Milwaukee

>

> Specializing in Difficult to Control High Blood Pressure

> and the Physiology and History of Survival During

> Hard Times and Heart Disease today.

>

>

>

> **************************************

> See what's free at http://www.aol.com.

>

>

>

[Guest guest]

> > >

> > >

> > > In a message dated 4/15/07 6:08:07 PM, kbcatlin22@ In a mess

> > >

> > >

> > > > In 2003 I had my gallbladder out for alcalculous

cholectcystis

> > after

> > > > eight months of doctor visits.

> > > >

> > > > On July 19th, 2006 I had my appendix out after 20 months of

> > chronic

> > > > appendicitis.

> > > >

> > >

> > > Would be very interested in exactly what your symptoms were for

> > each of

> > > these. Was K low then?

> > >

> > > Acalcululus cholecystitis means you had an inflammed GP but no

> > stones which

> > > is very unusual. I recommend you get the pathology report on

this.

> >

> > 4-1-03 k 3.6 (3.5-5.3)

> >

> > 5-21-03 final diagnosis gallbladder, cholecystectomy: chronic

> > cholecystitis, benign lymph node

> >

> > gross description:

> >

> > the specimen, labeled " gallbladder " the specimen, labeled "

> > gallbladder, 7.5 x 3 x 2 cm. the cystic node of Calot is

> > identified and is 1 x 0.5 x 0.5 cm. the gallbladder is opened and

> > is filled with dark green, thick bile. the gallbladder wall is 1

> > cm. the mucosa is dark green and roughened. gallstones are not

> > identified and representative sections are submitted in

cassette " A1 "

> >

> > symptoms: pain upper right abdominal quadrant 4-5 on 1-10 scale,

> > after meals especially, fever, belching. Both my primary and I

> > thought gallbladder, but it was hard to find a surgeon to take it

> > out.

> >

> Did the Sx go away completely then you were right.

>

> >

> > appendix:

> >

> > 11/21/04 started with generalized pain middle of abdomen that

> > traveled to the lower right quadrant. fever, high white blood

cell

> > count, thickened appendiceal wall on ct scan on 11/24/06. was

being

> > admitted for surgery the next morning, but a different doctor

told

> > me I had gastroenteritis and sent me home. I went right to the

> > surgeon who took out my gallbladder. Because I had bilateral

> > ovarian cysts too, I was shuttled back and forth between surgeons

> > and gynecologists.

> >

> > I saw 23 doctors/surgeons and went to 8 hospitals/emergency

rooms,

> > one of them three times, one of them two times. I literally

begged

> > for surgery.

> >

> > Pain 8/10 all of the time

> > the pain traveled to the upper right quadrant, then across the

> > abdomen to the left side. I had a left pleural effusion. I had

> > acute gastritis, pancreatitis, liver damage. Paucity of

mesenteric

> > fat, diffuse lymph nodes in mesentery larger than expected. I had

> > fluid in the pelvic cul de sac that caused severe shoulder pain.

I

> > developed fibroids where I had none before. I had solid nodules

in

> > both ovaries that went away. I stopped menstruating. I had

diarrhea

> > for 1 1/2 years, until the narcotics slowed it down. The pleural

> > effusion affected the left lung, I had crackles, wheezing and

> > tackycardia. I developed MRSA in May of 2005. Last outbreak in

> > October of 2006. was on antibiotics oral, iv, topical for months.

> >

> > I started bleeding from both the upper and lower intestines, so

was

> > finally referred to a new surgeon in town who took out the

appendix

> > and adhesions. He also took out the left ovarian cysts.

> >

> And what did the appendix show?

>

>

> >

> > side affects 9 months after surgery: my bowels do not move by

> > themselves. I have to take bysocodyl suppositories every other

day

> > or I go weeks without a bowel movement. spinal degeneration. plus

> > all the symptoms I mentioned earlier.

> >

> > 7-21-06

> >

> > procedure: diagnostic lap, lap appendectomy and lysis of

adhesions

> >

> > final diagnosis: mild chronic appendicitis with fecalith

formation

> >

> > gross description: the specimen, labeled " appendix " , consists of

a

> > vermiform appendix, 8 x 0.5 cm. sectioning demonstrates a fecal

> > filled lumen and a 0.1 cm. wall. sections are submitted under

> > cassette " A1 " .

> >

> And caseeette AA1 showed what??

> >

> > >

> > >Only the keeper of the cassette knows for sure! By the way, I

love my new moniker: kbecatlin@in a mess.com I have been laughing

about that all day.

> > >

> > > May your pressure be low!

> > >

> > > Clarence E. Grim, B.S., M.S., M.D.

> > > Senior Consultant to Shared Care Research and Consulting, Inc.

> > > (sharedcareinc. (sh

> > > Clinical Professor of Internal Medicine and Epidemiology Med.

Col.

> > WI

> > > Clinical Professor of Nursing, Univ. of WI, Milwaukee

> > >

> > > Specializing in Difficult to Control High Blood Pressure

> > > and the Physiology and History of Survival During

> > > Hard Times and Heart Disease today.

> > >

> > >

> > >

> > > ************ ******** ******** *******

> > > See what's free at http://www.aol.http

> > >

> > >

> > >