Guest guest Posted January 2, 2000 Report Share Posted January 2, 2000 Hello everyone, My name is . I have a mother who is battling with life. She has lived with CMT all of her life without knowing what it was. It was diagnosed as anything from a nervous breakdown to witchcraft. She turned 59 years old November 28, 1999. She is barely holding on now. This is a little about my mother. Since we know that the disease is hereditary, I also show signs. I still do not know much, if anything. But, I know I do suffer from the disease. A friend of mine tells me how can I diagnose myself without having a doctor tell me that I have it. Do I need a doctor's diagnoses? My mother's case was more extreme at my age. She has eventually lost control of all of her muscles and nerves. I need help with dealing with this. All the information I have found has been what I can muster up on the internet. NO doctors I have spoken with can tell my family anything. I am looking to find out as much as I can. Genetically, my mother is the only child out of 13 who has the disease. How is this? I have more syptoms than my brother or sister. I am so at a lost. Please help me Quote Link to comment Share on other sites More sharing options...
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