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What of my LOW BP (As in my Labile BP).

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I feel better. My labile BP was stuck as just high today. It happens with my left side GI problem.Oral fleet helps. Well things worked, I am back to my usual ups and down (Labile) BP.

2.36 PM 221-157-85 -- sudden filling bladder causes Dysreflexia.

2.40 PM 105-48-72 -- Dysreflexia stops after voiding.

2.42 PM 91-61-52 -- recovery. My skin softens after all voids. If you take my BP, the cuff gets so tight I get Dysreflexia.

2.47 PM 230-150-104 -- WRIST BP cuff was tight again and I get this reading.

As I recover from voiding, I am now back to my usual BP of:

2.56 PM 84-47-99

So, as my skin turgor gets back to usual, I feel great. Until I move. The pressure of my soft skin unblocks my one ureter and my bladder fills. This happens all the time. Oh well. I have contact with a EDS and Autonomic specialist on this. She is Dr. C. Francomano and is director of adult genetics at GBMC Healthcenter. She is formerly from NIH. She has seen some of my Autonomic Dysfunction problems and the labile BP numbers and has agreed to see me. Once my GI doctor fixes it so I can sit without having BP spikes I will try to travel there. Well, as time goes by,

3.12 PM 195-145-93

3.14 PM 71-50-92

3.15 PM 110-89-103 - Bladder is filling again. All of the above will repeat.

MY QUESTION: Dr Grim. How would PA be an issue in terms of my severe low BP's. I have a history of my labs being to low. But with the high BP's (and the low BP back then unknown) this might be why nothing was ever done.

[i am still working on the answer to your other email about why I was not on Spiro.)

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