Re: Can Conn's and Cushing's appear together

[Guest guest]

I had surgery for the cushings. It was causing my life to be a

disaster. I guess the Conn's (if I truly had it too) was put in the

background.

My blood pressure dropped last night after not being on florinef

for 1 1/2 days so now am back on it at a lowered dose. Life without

adrenals is a roller coaster. Violet

> > > > >

> > > > >

> > > > > In a message dated 8/9/06 7:42:19 PM, viumber@ writes:

> > > > >

> > > > >

> > > > > >

> > > > > > There isn't any way to check the cortisol levels now

after

> > BLA is

> > > > > > there? The IPSS done after pit surgery showed that there

was

> > > > tumor

> > > > > > on the opposite side of the pit that had been operated

on.

> > So I

> > > > just

> > > > > > need to get an MRI every year. Nothing shows up at this

> > point.

> > > > That

> > > > > > is why they went for the adrenals.But it was probably

good

> > that

> > > > the

> > > > > > adrenals are gone if they were causing multiple problems

and

> > with

> > > > > > all the nodules they would probably never be OK..

> > > > > > I had surgery at Elmbrooke Hospital in Wisconsin. A

wonderful

> > > > > > hospital and a wonderful surgeon. Violet

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > > > They can check the urine free cortisol and aldo they

should be

> > > > zero.

> > > > >

> > > > > Can you get us the renin and aldo levels before the

surgery?

> > > > Were they

> > > > > operating on you for Cushing's or Primary Aldo-ie what was

the

> > > > preoperative Dx?

> > > > > It is still not clear to me.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > May your pressure be low!

> > > > >

> > > > > C.E. Grim, B.S., M.S., M.D.

> > > > > Specializing in Difficult to Control High Blood Pressure

> > > > > and the Physiology and History of Survival During

> > > > > Hard Times and Heart Disease today.

> > > > >

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>

[Guest guest]

I have read in the s group in for a year and there are quite a few

that only need to take their flornif every other day. One size never fits all.

Hope you feel better soon you have quite a back ground of complexing data.Your

prof it does and can happen. Thank you for sharing.

ita

[Guest guest]

Dr Grim, can you or someone else help me figure out how to find this

article. I would also like to find the one on micronoules.

Guess I am getting too old for this computer stuff. Thanks! Violet

>

>

> In a message dated 8/11/06 3:18:11 PM, viumber@... writes:

>

>

> > he one lab report that I found pre surgery was renin .15 with

> > normals of 1.31-3.95 for upright and aldosterone was 9.8 and

normals

> > for that were 1.0-16. The ratio for this is not good right? Even

> > though the aldosterone is in the normal range.

> >

> You had at least physcioloic aldosteronism-see my article and take

it to your

> Drs.

>

> > Can the renin come back into the normal levels after everything

else

> > is balanced or is this ability lost forever.

> >

> Yes it can bet to normal and is prob a good way to monitor you Flor

>

> > Also wondering if the renin is still low now would that mean I

would

> > need less florinef?

> >

>

> Yes and/or your salt intake too high.

> > Violet

> >

>

>

>

>

>

> May your pressure be low!

>

> C.E. Grim, B.S., M.S., M.D.

> Specializing in Difficult to Control High Blood Pressure

> and the Physiology and History of Survival During

> Hard Times and Heart Disease today.

>

[Guest guest]

Tonia,

When I was first diagnosed with hyperaldo, my neph ordered an MRI but

nothing showed up. I kept looking for an endo that knew anything

about it and finally found one two years later. After repeating the

same tests that had been done before, she ordered another MRI and

this time a 9 mm " area of nodularity " showed up. She sent me to UVA

and after more tests, the endo there, told me that the aldo was

suppressed by saline. He also ordered an octreotide scan which

showed nothing. He says that I have secondary aldo since it is

suppressed by saline and the nodule on my left adrenal is not

producing any hormones and is harmless. I would say that you should

ask for a saline suppression test. You have to be off Aldactone for

5 weeks to do the test. There are some people in this group who had

an adrenal tumor removed and still have hyperaldo. I have read that

secondary aldo is caused by heart failure, kidney failure or cirosses

of the liver and I haven't been diagnosed with any of those. I

finally turned to acupuncture for help with some strange symptoms and

he says that I have liver and kidney deficiency and that my body

can't processess water properly.

Fran

> >

> > I haven't been on the board for a while. I had cyclical Cushing's

> but

> > also had symptoms of Conn's. I had pituitary surgery July of

2004.

> > Then had adrenal surgery in May of this year. They found 3 bright

> > yellow micronodules in each adrenal gland and 2 adjacent to one

of

> > them (8 in all). Micronodular hyperplasia! None of these showed

on

> the

> > adrenal MRI's. My blood pressure and sugar dropped really low

> after

> > surgery and is now back UP!! Thru all of my testing my renin has

> run

> > extremely low. Aldosterone was always in the normal range. One of

> my

> > endos wants a renin test run but for some reason cannot get the

> reqs

> > from quest and the other doesn't want to order it because he

> doesn't

> > know how the other endo wants it done. Have been waiting almost 2

> > months. I am now on .1 mg of florinef. Could going up from a half

> of

> > that pill to the whole .1 mg have caused a rise in blood pressure?

> > I guess my Question is could I also have had Conn's in adition to

> the

> > Cushing's. My electolytes are off sometimes. Can they tell by

path

> > report if it was cushing nodules or conn's. I am mixed up! Violet

> >

>

[Guest guest]

In a message dated 8/20/06 5:33:34 PM, frand.2@... writes:

I

finally turned to acupuncture for help with some strange symptoms and

he says that I have liver and kidney deficiency and that my body

can't processess water properly.

Ask for this guy's references on how he knows you can't process water properly. The problem is that the excess aldo you are making is messing with your sodiumm and K and any water problem is related to the salt problem from the aldo. You do not have renal or liver or heart failure causing your aldo to be high. If you had that then your renin would be high also.

May your pressure be low!

C.E. Grim, B.S., M.S., M.D.

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

[Guest guest]

In a message dated 8/24/06 12:06:59 PM, meling333@... writes:

Hi

Well just got some labs and I am also over range in cortisol at 10am by 1 point, along with aldosterone, Well just go & DHEA.

One point would bear repeating in 6 months. What was your renin? I know HTN experts at UCSF.

May your pressure be low!

C.E. Grim, B.S., M.S., M.D.

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

[Guest guest]

Hi

Well just got some labs and I am also over range in cortisol at 10am by 1 point,

along with aldosterone,testosterone, & DHEA.

I am dropping the present Endo and going back to the Professor at UCD in

Sacramento who told me my thyroid labs were lab errors which they were not.

I am running out of endos in Sacramento and have not found one that has been

helpfull out of 7. I hope my luck will change soon. I am so tired of being

swollen and sickly. I presume the only way out of this mess is to have the left

adrenal adenoma removed just like you have done. Hope your feeling much better

with your adrenal gone. Did you have both or 1 taken out? ita

[Guest guest]

Hi Dr. Grim

Renin 0.5 upright 0.5-4.0

Aldo 55.3 H " 4.0-31.0

Aldo 24hr urine 78 H 6-25

Glucose 126 H 77-119

Cortisol 10am H 23.6 6.7-22.6

Acth 9 6-58

I am not that far from SF and need some one who knows what they are doing.I have

been sick since 04. MY email is meling333@... ita

lowerbp2@...What was your renin? I know HTN experts at UCSF.

May your pressure be low!

C.E. Grim, B.S., M.S., M.D.

Specializing in Difficult to Control High Blood Pressure

> and the Physiology and History of Survival During

> Hard Times and Heart Disease today.

[Guest guest]

In a message dated 8/24/06 9:01:38 PM, meling333@... writes:

Hi Dr. Grim

Renin 0.5 upright 0.5-4.0

Aldo 55.3 H " 4.0-31.0

Aldo 24hr urine 78 H 6-25

Glucose 126 H 77-119

Cortisol 10am H 23.6 6.7-22.6

Acth 9 6-58

I am not that far from SF and need some one who knows what they are doing.I have been sick since 04. MY email is meling333@... ita

lowerbp2@... lowerbp2@...<wbr>What was your renin? I know HTN

You prob know you appear to have Conn's, not Cushings. I will let you know next week who to try to get to see in SF.

May your pressure be low!

C.E. Grim, B.S., M.S., M.D.

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

[Guest guest]

Hi ita:You can see Dr. Quan Duh, chief of Endocrinology surgery at UCSF. I would not trust their AVS radiologists though.

Farah

On 8/25/06, lowerbp2@... <lowerbp2@...> wrote:

In a message dated 8/24/06 9:01:38 PM, meling333@... writes:

Hi Dr. GrimRenin 0.5 upright 0.5-4.0Aldo 55.3 H " 4.0-31.0Aldo 24hr urine 78 H 6-25Glucose 126 H 77-119

Cortisol 10am H 23.6 6.7-22.6Acth 9 6-58I am not that far from SF and need some one who knows what they are doing.I have been sick since 04. MY email is

meling333@... italowerbp2@... lowerbp2@...<wbr>What was your renin? I know HTN

You prob know you appear to have Conn's, not Cushings. I will let you know next week who to try to get to see in SF. May your pressure be low!

C.E. Grim, B.S., M.S., M.D.Specializing in Difficult to Control High Blood Pressureand the Physiology and History of Survival DuringHard Times and Heart Disease today.

[Guest guest]

In a message dated 8/26/06 12:50:08 AM, farahbar@... writes:

Hi ita:

You can see Dr. Quan Duh, chief of Endocrinology surgery at UCSF. I would not trust their AVS radiologists though.

 

Farah

My genearl advice is not to see the surgeon first---if you have a hammer in your hand everything looks like a nail.

May your pressure be low!

C.E. Grim, B.S., M.S., M.D.

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

[Guest guest]

Hi Farah

Thank you for the name. I dont know if I would ever have AVS ever done again

since the last one was a dreadfull experience. I have 2 kidneys on the right

side it would take a real pro to find the right vein and the 2nd kidney does not

show up in IVP or xrays or ultra sound. It was discovered with a scope looking

around between kidney and bladder. I ofter wonder what sits on top of that 2nd

kidney like another adrenal gland I guess I need to know if i have a spare.

ita

12:50:08 AM, farahbar@... writes:

Hi ita You can see Dr. Quan Duh, chief of Endocrinology surgery at UCSF. I

would

not trust their AVS radiologists though.

> >  

> > Farah

> >

> >

> >

> >

>

> My genearl advice is not to see the surgeon first---if you have a hammer in

> your hand everything looks like a nail.

>

>

>

> May your pressure be low!

>

> C.E. Grim, B.S., M.S., M.D.

> Specializing in Difficult to Control High Blood Pressure

> and the Physiology and History of Survival During

> Hard Times and Heart Disease today.

>

[Guest guest]

>

>

>

>

> My genearl advice is not to see the surgeon first---if you have a

hammer in

> your hand everything looks like a nail.

>

>

Almost three years ago, I was seeing these two cardios. Both were just

looking at the heart, never mentioning Conn's. One cardio recommended

I have a heart transplant, the other told me I had a year to live.

[Guest guest]

In a message dated 8/26/06 10:48:38 PM, bayabas76@... writes:

>

>

>

>

> My genearl advice is not to see the surgeon first---if you have a

hammer in

> your hand everything looks like a nail.

>

>

Almost three years ago, I was seeing these two cardios. Both were just

looking at the heart, never mentioning Conn's. One cardio recommended

I have a heart transplant, the other told me I had a year to live.

Were you having low K at the time??

May your pressure be low!

C.E. Grim, B.S., M.S., M.D.

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

[Guest guest]

In a message dated 8/26/06 10:48:38 PM, bayabas76@... writes:

>

>

>

>

> My genearl advice is not to see the surgeon first---if you have a

hammer in

> your hand everything looks like a nail.

>

>

Almost three years ago, I was seeing these two cardios. Both were just

looking at the heart, never mentioning Conn's. One cardio recommended

I have a heart transplant, the other told me I had a year to live.

Actually you are the 2nd pt in our group who was told they might need a heart transplant as I recall.

May your pressure be low!

C.E. Grim, B.S., M.S., M.D.

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.