Carcinoid Tumors

[Guest guest]

Does anyone know anything about carcinoid tumors? I had a urine 5-HIAA

test done twice and both times the 5-HIAA was 11. The upper limit of

the range is 6. I also had a Chromogranin A test done twice. The

first one was 72 and the second was 35. The reference range is 0 - 51.

Does anyone know anything about the test like what things can affect

it? My endo has told me that he thinks I have a carcinoid tumor but I

had an octreotide scan and nothing showed up. He said most of them are

in the stomach but I don't have any digestive problems at all. He also

thinks I have a parathyroid tumor and has done a PTH test 3 times but

so far no scan. Would a pth tumor show up on an octreatide scan? If I

have a carcinoid tumor do I just have to wait a few more years for one

to show up. Although my doctor said they aren't always cancer, the

only info I can find on them is on cancer web sites.

Fran