Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 Debi, I am going to try this again, I had written out a long, thought out response to you, and then my son Danny deleted it on me. I should just stick to posting at night ;o) It is very common for the ortho to be the one to tell you when your child has graduated from the band, regardless of whether or not you've been back to see your specialist. I know a lot of parents here see their specialist in order to get the prescription for the helmet/band, and then don't need to go back ever again. I also want to say that if you feel Mikey needs more time in his band, then call your ortho and tell them so, especially if Mikey has some unresolved tort. Its very frustrating being at the point where you are because you just want all of this behind you, but you also want to make sure your child has received the most correction that he possibly can since time is of the essence. I'm sure Mikey's head has grown while he was in his band, otherwise you wouldn't have seen any improvements. But with the new head shape, measurements are being all reconfigurated so its hard to tell just exactly how much the had has grown. After my son Danny had graduated from his band, his head circumference had dropped in percentile. I know I had written more in my original post to you, but I can't remember it now. Good luck Debi, and keep us posted. In the meantime, congrats Mikey on your round little noggin! Niki Kaylie & Danny (STAR grads) Phila., PA > Hi all, > > It's been a while. Mikey started the STARBand in late November and it's > been going pretty well except he hasn't hit a good growth spurt the whole > time he was in the helmet. So I was quite surprised yesterday when the > orthotist told us that Mikey's time in the helmet was finished. He told us > to go back to the cranio facial doctor who originally diagnosed him for > confirmation, but in the meantime we'd only have to put the helmet on at > night if we wanted to. > > Aside from my feelings of missing the sight of him in the helmet, I am > concerned that it ended so abruptly. And that he has decided that we're > finished even before the doctor has seen him. > > I agree that Mikey's gotten good correction, but I'm still concerned about > the lack of a growth spurt (his head size hasn't changed since his 9 month > checkup) and the tort that we didn't know he had. > > Let me back up. I knew he had tort when he was 3-4 months old. We were > given exercises by our pediatrician. When we saw the cranio guy he said > Mikey DIDN'T have tort and told us to stop the exercises. This was October > and was 7 months old. And now at 1 year the orthotist says that he > believes still has tort??? > > Do I keep him in the helmet all the time until I see the cranio doc? Do I > just keep him in it at night until he outgrows the helmet? Or do I just do > the happy dance that Mikey's done with the helmet and move on? > > Debi and in Kansas > STARBand 11/29/01-04/10/021` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 Hi Debi: I'd just like to agree with what some of the other replies have said! IF you feel Mikey could still get more improvement in his band, then talk it over with your orthotist. As long as his band is still fitting him, then why not keep going with it? He's still young enuf to get addt'l improvement. After our neuro. wrote Abby the RX for her STARband we didn't see him again until we had problems with the band & we needed a new RX for a DOCband, then after she had her DOCband we never saw him again. So it is quite common for the orthotist AND the parent to know when the child should graduate Let us know what you decide to do. Good luck, it's not an easy decision to make. Debbie Abby's mom DOCgrad MI > > > > Hi all, > > > > It's been a while. Mikey started the STARBand in late November and > it's > > been going pretty well except he hasn't hit a good growth spurt the > whole > > time he was in the helmet. So I was quite surprised yesterday when > the > > orthotist told us that Mikey's time in the helmet was finished. He > told us > > to go back to the cranio facial doctor who originally diagnosed him > for > > confirmation, but in the meantime we'd only have to put the helmet > on at > > night if we wanted to. > > > > Aside from my feelings of missing the sight of him in the helmet, I > am > > concerned that it ended so abruptly. And that he has decided that > we're > > finished even before the doctor has seen him. > > > > I agree that Mikey's gotten good correction, but I'm still > concerned about > > the lack of a growth spurt (his head size hasn't changed since his > 9 month > > checkup) and the tort that we didn't know he had. > > > > Let me back up. I knew he had tort when he was 3-4 months old. We > were > > given exercises by our pediatrician. When we saw the cranio guy he > said > > Mikey DIDN'T have tort and told us to stop the exercises. This was > October > > and was 7 months old. And now at 1 year the orthotist says > that he > > believes still has tort??? > > > > Do I keep him in the helmet all the time until I see the cranio > doc? Do I > > just keep him in it at night until he outgrows the helmet? Or do I > just do > > the happy dance that Mikey's done with the helmet and move on? > > > > Debi and in Kansas > > STARBand 11/29/01-04/10/021` Quote Link to comment Share on other sites More sharing options...
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