Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 (32, DS) will live with me as long as we can take care of each other. Her sister very much wants her after that and talks to both of us about it all the time. But that's our family. Not all families are the same. granny Poll some thoughts > >Just as an afterthought... >If Karrie were typically developing, at the age of 22, I would fully expect her to have some sort of vocation, friends, social life, and somewhere to live besides home >I don't want Karrie to have what has been called a " tag-along " life, doing things with me simply because she has no choice. >I want to believe that Karrie could someday hold a good-paying job, have her own home and maintain it, have friends, and be fully independent. I am beginning to realize that probably won't happen for Karrie. I think she may need some help. >As far as her living with Kate, Kate has a career path chosen. I don't want Kate to have to care for her sister. Even if Karrie did live with Kate, what would Karrie do during the day when Kate was gone? >I am also faced with the position of having no one for Karrie to live with when I pass on. At this point, she would be placed in some sort of nursing type home. She would have to deal with grieving for her parent, losing her home, her room, her school and friends, her life as she has known it. >Luckily, I'm not anticipating leaving in the near future Not trying to sway anyone, just another position on the segregation issue lol >-- >Sue > > >---- sue <karriemom@...> wrote: >> Wondering if you could take a moment to answer a question for me... >> >> You may remember a dream I shared with everyone several months ago >> about a ranch for young adults with Down syndrome. It would be a >> participatory ranch, a working ranch, if you will. I saw something on >> TV and in People magazine about Down Home Ranch. I was shocked, since >> I'd been planning my ranch for over 10 years!! >> Anyway, how many of you would encourage your child once he/she was out >> of high school to live on a ranch where continued learning, theraputic >> based activities of daily living were promoted. A place where they >> would be paid a decent wage for work performed. A place where they were >> treated with the dignity that we all deserve. A place where >> socialization is also promoted. >> >> By the way, it looks as if my ranch will be coming true....in the past >> 2 weeks, the not for profit status is done, with connections made for >> assistance for the land and buildings in place. It is about to become a >> reality!!!!! >> >> Sue mom to Kate 18 and Karrie 11 w/ds and mild autism >> >> >> >> Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 My daughter Shalana will be responsible for Maverick when/if and I are no longer around. As well as any of the younger children who might not be grown and independent yet. A couple years ago she brought home her first serious boyfriend. I sat him down and told him that with Shalana, came the responsibility of her younger sibs. (We still had 5 at home at that time.) Harley, an only child, looked at me and asked if the house was paid off because they wouldn't all fit in his apartment. LOL. Hmm...Now Levi has moved out, but has moved in......... and we bought a new house with a big mortgage.. and they are talking marriage.. I better remind them once again of their future.... and make sure their priorities are right! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 In a message dated 3/4/2008 7:29:38 AM Eastern Standard Time, bspyle@... writes: I am not sold on " inclusion Unfortunately granny alot of us don't have to much choice but to fight for our kids today. My oldest is 32 so I am up there with you also and things have changed drastically since she went to school. When mu eldest went to scholl they had a program in my district for children with DS to teach them life skills and they did. Today they are all (and by all I mean ALL disabilities and emotional problem children) dumped together into what they called basic life skills or self contained classroom. There is no way they can get any kind of an education in that atmosphere...besides the danger. How can you teach 12 different kids of varying intellect and social skills all at the same time with one teacher and one aide. It is not possible and so our kids don't get the education they need to function on evn a basic level. If I could find a school for children with Down Syndrome I would be there in a heartbeat but you can't find them. Today's paren (not all but many) are stuck with what is offered unless we fight for " inclusion " . Though not perfect it is better than the alternative...at least in my district. Loree **************It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 In a message dated 3/4/2008 11:06:21 AM Eastern Standard Time, bspyle@... writes: diddly-bops off every morning on the handivan and comes home full of cheer and news about her day. She often b A lucky girl she is. Loree **************It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Well, went through 12 years of school in Special Ed. She was taught by teachers who were trained to teach her population. She took part in a lot of " segregated " stuff such as Special Olympics. Instead of being a little fish in a big pond, or the class pet, she was a big fish in a little pond and no one's pet. She can read, write, does her own banking and pays her own bills. She is a big help to me and I depend on her a lot. She receives survivors' benefits from Social Security rather than SSI because her father died when she was a infant. This enabled her to inherit an independent income. She has no desire to work outside of Sunshine Center and I'm sort of relieved she doesn't. Way too many MR adults are physically and sexually abused in " normal " work places. It's bad enough they have to put up with that sort of thing within their families and circle of friends. At Sunshine Center she has a host of friends with whom she can relate; who are on her level intellectually and do not treat her as a pet or someone to patronize. And it gives her a life independent of mine. I am not sold on " inclusion. " granny Re: Poll some thoughts > >I am more of an inclusion advocate and I'm afraid this sounds more likesegregation than inclusion to me. It isn't something I would want forTim. > >Val in Winnipeg > >B. S. Pyle wrote: > > (32, DS) will live with me as long as we can take care ofeach other. Her sister very much wants her after that and talksto both of us about it all the time. But that's our family. Not allfamilies are the same. > >granny > >- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 I know! My two eldest children (Brick, 54 and , 43) both teach. Well doesn't any more, but she taught last year. They have dumped on me a lot about what they have to deal with. When was in secondary education, the kids with behavior problems were handled in a different class. Sunshine Center, where happily goes every day, is basically life-skills. They have a green house, ceramics shop, full kitchen and laundry, computer lab and general classroom. They teach American sign language, home and citizenship skills, have job support, go swimming and bowling and other field trips. They do not accept clients with behavior problems. diddly-bops off every morning on the handivan and comes home full of cheer and news about her day. She often brings me herbs she's raised in the greenhouse or lovely ceramics she made in the ceramics shop. A couple of her friends have seizures and she knows what to do for them when they do. About half the clients there were her classmates in public schools. They are wonderful people and I visit as often as I can. granny Re: Poll some thoughts > > >In a message dated 3/4/2008 7:29:38 AM Eastern Standard Time, >bspyle@... writes: > >I am not sold on " inclusion > > >Unfortunately granny alot of us don't have to much choice but to fight for >our kids today. My oldest is 32 so I am up there with you also and things >have changed drastically since she went to school. When mu eldest went to >scholl they had a program in my district for children with DS to teach them life >skills and they did. Today they are all (and by all I mean ALL disabilities >and emotional problem children) dumped together into what they called basic >life skills or self contained classroom. There is no way they can get any kind >of an education in that atmosphere...besides the danger. How can you teach >12 different kids of varying intellect and social skills all at the same time >with one teacher and one aide. It is not possible and so our kids don't get >the education they need to function on evn a basic level. If I could find a >school for children with Down Syndrome I would be there in a heartbeat but >you can't find them. Today's paren (not all but many) are stuck with what is >offered unless we fight for " inclusion " . Though not perfect it is better >than the alternative...at least in my district. > >Loree > > > >**************It's Tax Time! Get tips, forms, and advice on AOL Money & >Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 LOL That is so funny. He is a keeper! B --- " M. FRANK " <michdock@...> wrote: > My daughter Shalana will be responsible for Maverick > when/if and I are no longer around. As well > as any of the younger children who might not be > grown and independent yet. > A couple years ago she brought home her first > serious boyfriend. I sat him down and told him that > with Shalana, came the responsibility of her younger > sibs. (We still had 5 at home at that time.) > Harley, an only child, looked at me and asked if the > house was paid off because they wouldn't all fit in > his apartment. > LOL. > Hmm...Now Levi has moved out, but has moved > in......... and we bought a new house with a big > mortgage.. and they are talking marriage.. I better > remind them once again of their future.... and make > sure their priorities are right! > > > [Non-text portions of this message have been > removed] > > > > Click reply to all for messages to go to the list. > Just hit reply for messages to go to the sender of > the message. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Karrie, Go for it!! I'd consider something like that for in a heart beat when the time comes for him to be more independent. I know you have had this calling for a long time - sounds like things are moving forward for you! Keep us posted! -- cindysue@... Poll some thoughts Just as an afterthought... If Karrie were typically developing, at the age of 22, I would fully expect her to have some sort of vocation, friends, social life, and somewhere to live besides home I don't want Karrie to have what has been called a " tag-along " life, doing things with me simply because she has no choice. I want to believe that Karrie could someday hold a good-paying job, have her own home and maintain it, have friends, and be fully independent. I am beginning to realize that probably won't happen for Karrie. I think she may need some help. As far as her living with Kate, Kate has a career path chosen. I don't want Kate to have to care for her sister. Even if Karrie did live with Kate, what would Karrie do during the day when Kate was gone? I am also faced with the position of having no one for Karrie to live with when I pass on. At this point, she would be placed in some sort of nursing type home. She would have to deal with grieving for her parent, losing her home, her room, her school and friends, her life as she has known it. Luckily, I'm not anticipating leaving in the near future Not trying to sway anyone, just another position on the segregation issue lol -- Sue ---- sue <karriemom@...> wrote: > Wondering if you could take a moment to answer a question for me... > > You may remember a dream I shared with everyone several months ago > about a ranch for young adults with Down syndrome. It would be a > participatory ranch, a working ranch, if you will. I saw something on > TV and in People magazine about Down Home Ranch. I was shocked, since > I'd been planning my ranch for over 10 years!! > Anyway, how many of you would encourage your child once he/she was out > of high school to live on a ranch where continued learning, theraputic > based activities of daily living were promoted. A place where they > would be paid a decent wage for work performed. A place where they were > treated with the dignity that we all deserve. A place where > socialization is also promoted. > > By the way, it looks as if my ranch will be coming true....in the past > 2 weeks, the not for profit status is done, with connections made for > assistance for the land and buildings in place. It is about to become a > reality!!!!! > > Sue mom to Kate 18 and Karrie 11 w/ds and mild autism > > > > Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Hi , Yep...10 years, it's been working in my mind...finally made the step forward. Within 2 weeks, I have not for profit status through our assoc., major contributions for land and housing!! Think it was meant to be! -- Sue mom to Kate 18 and Karrie 11 w/ds and mild autism ---- Me <cindysue@...> wrote: > Karrie, > > Go for it!! I'd consider something like that for in a heart beat when the time comes for him to be more independent. I know you have had this calling for a long time - sounds like things are moving forward for you! Keep us posted! > > -- > > cindysue@... > Poll some thoughts > > > Just as an afterthought... > If Karrie were typically developing, at the age of 22, I would fully expect her to have some sort of vocation, friends, social life, and somewhere to live besides home > I don't want Karrie to have what has been called a " tag-along " life, doing things with me simply because she has no choice. > I want to believe that Karrie could someday hold a good-paying job, have her own home and maintain it, have friends, and be fully independent. I am beginning to realize that probably won't happen for Karrie. I think she may need some help. > As far as her living with Kate, Kate has a career path chosen. I don't want Kate to have to care for her sister. Even if Karrie did live with Kate, what would Karrie do during the day when Kate was gone? > I am also faced with the position of having no one for Karrie to live with when I pass on. At this point, she would be placed in some sort of nursing type home. She would have to deal with grieving for her parent, losing her home, her room, her school and friends, her life as she has known it. > Luckily, I'm not anticipating leaving in the near future Not trying to sway anyone, just another position on the segregation issue lol > -- > Sue > > > ---- sue <karriemom@...> wrote: > > Wondering if you could take a moment to answer a question for me... > > > > You may remember a dream I shared with everyone several months ago > > about a ranch for young adults with Down syndrome. It would be a > > participatory ranch, a working ranch, if you will. I saw something on > > TV and in People magazine about Down Home Ranch. I was shocked, since > > I'd been planning my ranch for over 10 years!! > > Anyway, how many of you would encourage your child once he/she was out > > of high school to live on a ranch where continued learning, theraputic > > based activities of daily living were promoted. A place where they > > would be paid a decent wage for work performed. A place where they were > > treated with the dignity that we all deserve. A place where > > socialization is also promoted. > > > > By the way, it looks as if my ranch will be coming true....in the past > > 2 weeks, the not for profit status is done, with connections made for > > assistance for the land and buildings in place. It is about to become a > > reality!!!!! > > > > Sue mom to Kate 18 and Karrie 11 w/ds and mild autism > > > > > > > > Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. > > Quote Link to comment Share on other sites More sharing options...
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