Re: New--and seeking advice

[Guest guest]

-

Welcome to the group. Did you see this article that was posted here

a couple of weeks ago:

http://www.nj.com/news/ledger/essex/index.ssf?/base/news-

0/101618702034255.xml

I think these stinking doctors need to wake up!

We were also told by the initial dr. who diagnosed Dane's tort and

plagio that he didn't believe in helmets prior to 12 months. He

said all the stuff we researched that said the best time for a

helmet is much younger was all advertising campaigns from " the

helmet people. "

Where do you live? If you live near a CT, I would suggest getting a

consultation where you can get a concrete measurement. If you don't

live near one, I bet other places measure as well. We were told

Dane had a very mild case and " should round out on his own. " He

measured 17 cm off. We decided to go with the DOC Band as soon as

we got those numbers. I called my doctor and said we needed the

script. I got it without any probs.

Dane is now 6 months old and has been in the band since 2/14. His

flat spot is filling in very well. We are still waiting for the

symettry to correct, but will probably need a second band for that.

Good luck! You're certainly not alone!

Dane's mom

[Guest guest]

Welcome !

Tell the doctor ( i am assuming pediatritian) a Jury in New Jersey

just awarded a family $2 million dollars for the doctor's negligence

in not referring their son to a specialist before 10 months (yes 10

months!) for his plaigio because by then it was not enought time to

treat. That ought to get him on the phone in a hurray to give you a

referral.

- Not that the specialist are all that help anyway..all the

specialist we saw said the same wishy washy things " (Oh, I don't

think she's that bad..will round out on own..give it time...the

decision is up to you whether to band or not...)

The truth is..We ended up DOC Banding at 8 months and am glad we

did! Even though Jane has only been on the band for a week..she has

adjusted wonderfully aside from the stinky helmet syndrome!! We of

course are fighting the Insurance (what did call them?

Turkeys?) at United Healthcare.

Anyway..welcome ot the group! It is great and will be so much help in

your journey. Start by perusing through the POLLS and FILEs..very

interesting!

welcome again, and Jane

> Hello to all!

> I've been a member of the Torticollis group for a while, but now I

think

> it's time (or more accurately, past time) to address my daughter's

Plagio

> issues. I'm not satisfied with what her doctor is telling me, so

I'm

> open to any and all advice.

>

> Here's our story....

> My daughter (Katrina - now 7 1/2 mos.) was breech, delivered by

> c-section, and has had a crooked head since day 1. We've been told

all

> along it would round out. We noticed a lump on her neck around 1

mo. and

> it was diagnosed as tort. We were told to do stretches at home, and

> given a referral to PT at her 2 mo. apt. Both the PT and Dr. said

it was

> a mild case that should correct by 6 mo. (We're still working on

it.)

> At both her 3 mo. and 6 mo. I asked the Dr. about the shape of her

head.

> He said it was normal for babies to have crooked heads. I was more

> insistent about doing something at 6 mo., but the Dr. said that we

should

> wait until 1 yr. and then proceed if it's still crooked. Isn't

that too

> long to wait?

>

> Katrina's head has a ridge along the top left side, running front to

> back, it is a bit flat on the left behind her ear, and her right

cheek

> is more prominent. We have been repositioning her all along,

putting

> her to sleep on her right side and I've tried various wedges, but

she's

> always managed to wiggle herself into a position that she could

turn her

> head to the left. She's just recently begun to roll about, and now

> chooses to sleep on her tummy with her head still turned to the

left...

> at least the pressure is on the OTHER side of her face now.

>

> How successful is repositioning? What should I say to/insist

from/tell

> her doctor?

>

> Thanks for reading this far. It's so hard to keep these things

" brief " .

>

>

[Guest guest]

,

Addendum to prior message..You mentioned your daughter is being

treated for TORT. Is her PT evaluating her Plagio as well? Has she

taken anything called an Anthropometric measurement?

> Hello to all!

> I've been a member of the Torticollis group for a while, but now I

think

> it's time (or more accurately, past time) to address my daughter's

Plagio

> issues. I'm not satisfied with what her doctor is telling me, so

I'm

> open to any and all advice.

>

> Here's our story....

> My daughter (Katrina - now 7 1/2 mos.) was breech, delivered by

> c-section, and has had a crooked head since day 1. We've been told

all

> along it would round out. We noticed a lump on her neck around 1

mo. and

> it was diagnosed as tort. We were told to do stretches at home, and

> given a referral to PT at her 2 mo. apt. Both the PT and Dr. said

it was

> a mild case that should correct by 6 mo. (We're still working on

it.)

> At both her 3 mo. and 6 mo. I asked the Dr. about the shape of her

head.

> He said it was normal for babies to have crooked heads. I was more

> insistent about doing something at 6 mo., but the Dr. said that we

should

> wait until 1 yr. and then proceed if it's still crooked. Isn't

that too

> long to wait?

>

> Katrina's head has a ridge along the top left side, running front to

> back, it is a bit flat on the left behind her ear, and her right

cheek

> is more prominent. We have been repositioning her all along,

putting

> her to sleep on her right side and I've tried various wedges, but

she's

> always managed to wiggle herself into a position that she could

turn her

> head to the left. She's just recently begun to roll about, and now

> chooses to sleep on her tummy with her head still turned to the

left...

> at least the pressure is on the OTHER side of her face now.

>

> How successful is repositioning? What should I say to/insist

from/tell

> her doctor?

>

> Thanks for reading this far. It's so hard to keep these things

" brief " .

>

>

[Guest guest]

, Which Doctor's did you see? Did you see a Goldstein?

> -

> Welcome to the group. Did you see this article that was posted

here

> a couple of weeks ago:

> http://www.nj.com/news/ledger/essex/index.ssf?/base/news-

> 0/101618702034255.xml

> I think these stinking doctors need to wake up!

> We were also told by the initial dr. who diagnosed Dane's tort and

> plagio that he didn't believe in helmets prior to 12 months. He

> said all the stuff we researched that said the best time for a

> helmet is much younger was all advertising campaigns from " the

> helmet people. "

> Where do you live? If you live near a CT, I would suggest getting

a

> consultation where you can get a concrete measurement. If you

don't

> live near one, I bet other places measure as well. We were told

> Dane had a very mild case and " should round out on his own. " He

> measured 17 cm off. We decided to go with the DOC Band as soon as

> we got those numbers. I called my doctor and said we needed the

> script. I got it without any probs.

> Dane is now 6 months old and has been in the band since 2/14. His

> flat spot is filling in very well. We are still waiting for the

> symettry to correct, but will probably need a second band for that.

> Good luck! You're certainly not alone!

>

> Dane's mom

[Guest guest]

Hi ,

Welcome to the group! My neuro also wanted us to wait a month and

try more aggressive repositioning. At that point my twins were 6

months and it was really difficult to reposition them. I would say

in that time we saw little, if any at all, improvement in their head

shapes. We eventually pushed to get the babies' banded, and I

couldn't be more thrilled that we did so. If you are not comfortable

with what your doctor says, confront him on it until you are

comfortable. You are your babies best advocate, she can't speak up

so you'll have to do it for her. Good luck to you and again, welcome

to the group!!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Hello to all!

> I've been a member of the Torticollis group for a while, but now I

think

> it's time (or more accurately, past time) to address my daughter's

Plagio

> issues. I'm not satisfied with what her doctor is telling me, so

I'm

> open to any and all advice.

>

> Here's our story....

> My daughter (Katrina - now 7 1/2 mos.) was breech, delivered by

> c-section, and has had a crooked head since day 1. We've been told

all

> along it would round out. We noticed a lump on her neck around 1

mo. and

> it was diagnosed as tort. We were told to do stretches at home, and

> given a referral to PT at her 2 mo. apt. Both the PT and Dr. said

it was

> a mild case that should correct by 6 mo. (We're still working on

it.)

> At both her 3 mo. and 6 mo. I asked the Dr. about the shape of her

head.

> He said it was normal for babies to have crooked heads. I was more

> insistent about doing something at 6 mo., but the Dr. said that we

should

> wait until 1 yr. and then proceed if it's still crooked. Isn't

that too

> long to wait?

>

> Katrina's head has a ridge along the top left side, running front to

> back, it is a bit flat on the left behind her ear, and her right

cheek

> is more prominent. We have been repositioning her all along,

putting

> her to sleep on her right side and I've tried various wedges, but

she's

> always managed to wiggle herself into a position that she could

turn her

> head to the left. She's just recently begun to roll about, and now

> chooses to sleep on her tummy with her head still turned to the

left...

> at least the pressure is on the OTHER side of her face now.

>

> How successful is repositioning? What should I say to/insist

from/tell

> her doctor?

>

> Thanks for reading this far. It's so hard to keep these

things " brief " .

>

>