Update on TJ

[Guest guest]

In a message dated 19/07/2006 21:33:23 GMT Daylight Time, gail@... writes:

Next I added NCD - too much to start and we saw lots and lots of scripting and an increase in visual stimming. Stopped, lowered dose then we got an increase in clarity of speech, longer phrases (still mainly prompted), better eye contact and even VB tutors commented that T was much more together. Have stuck at 4 drops 3 * day. Next addition was valtrex (poor kid, more vile tasting potions). First time I gave it to him, T pushed the cup back and said "Too horrid Mummy" How appropriate was that?

>>>Wonderful!

Now day 10 of valtrex and so far no 5th week slide into usual exteme tiredness, crankiness and 'flu like symptoms. He is great - so happy, fab eye contact, sociable - he wants to play with other kids, wants to be around them just doesn't have all the language and play skills he needs - T used to be very afraid of other children. He is also much more affectionate, has always been cuddly but now gives big squeezy hugs right back. Is still a bit scripty and also getting v tired in late pm but so am I in this heat!

>>Actually I have melted and fallen down a crack in the tiles................

Not quite sure what to increase next - Virastop/NCD????

>>Virastop would be my choice, if you are gettign good things on the NCD he is at saty there a while

Oh! Forgot have also been chelating with oral DMSA stopping while we into'd something new then back to every other w/e.Haven't seen much of a yeast increase but have him on candex and yeast aid so hopefully that is doing trick.Does anyone have ideas on supps to target speech? When we tell T to slow down - much of what he says is beautifully clear, when he doesn't it merges & becomes one garbled jumble. He is generally v excitable (had dreadful probs supplementing alpha keto glutaric acid - sent him sky high) was wondering if Gaba might help.

>>Some say it does - didn;t seem to do much for Sam but it makes me feel better

Mandi x

[Guest guest]

Hi everyone ..just wanted to share that my oldest son left for Iraq on

Thursday. He is currently in Kuwait and will be there for a few more days.

Please add him to your prayer lists - along with all the soldiers and

marines that are there. Thanks ahead of time!

We went to Savannah Georgia to send him off. It's really difficult with Mr.

Grumpy/Chuckie, but he did well during the time we were waiting. At one

point, he stood up and told TJ he loved him, gave him a hug and kiss and

said goodbye. Then he walked off. After getting him to come back - we had

to explain that we were waiting for TJ to leave before we left. I think

has some understanding. If you ask him where TJ is, he'll say Iraq.

We met and Hayley in NC for dinner and he told her that TJ left on a

bus, that it was sad and we cried. He can be so sweet and sensative at

times.

I'm going to temporarily add a picture of the two of them on the main web

page. Look for it soon!

[Guest guest]

Great new photo. Keep that up for a while. Best wishes and good thoughts

for TJ. -- Bob

[Guest guest]

HI

My heart goes out to you .................. watching your son leave to go

off to Iraq has to be one of the hardest things a Mom will face. I tear up

every time my adult children leave my home to go back to Memphis. I know TJ

left

you with a smile, and with words like " Ill see you soon " ..... hang on to

that

Yesterday I spent most of the day relaxing and watching war movies, mid way

into " We Were Soldiers " I called my grandson in my room to watch this movie

with me. Tater just join boy scouts and went to the Veterans Hospital Friday to

say thank you for being there for us. Tater is 7 and I was sure he was

clueless to what a veteran really is and what they have done for us

soooooooooooo

this is why I had him watch this movie with me really we talked most of

the movie, he had tons of questions but I know he left me when the movie ended

with a new ***graphic insight to what these men and woman do for each and

everyone one of us, he totally showed me a great appreciation and love for our

veterans. I wish I had done this years back with my children, Veterans Day

meant little I believe to them ..... they really didn't understand it.

My prayers will be with TJ ................. he sure looks handsome in his

PIC

Kathy mom to Sara 15

¸...¸ ___/ /\ \___ ¸...¸

,·´º o`·, /__/ _/\_ \__\ ,·´º o`·,

```)¨(´´´ | | | | | | | | | ```)¨(´´´

¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-.¸

As for me and my house, we will serve the Lord.

Josh. 24:15

************************************** See what's new at http://www.aol.com

[Guest guest]

,

That is a great picture of TJ and ! We are so thankful for the

soldiers in Irag and their families who make the sacrifice so that we can

have the Freedom we enjoy. Thank you!! {{{{hugs}}}}

Love,

Kym

PS Are the Green Eggs and Ham pages laminated now???

[Guest guest]

,

Our prayers for safety are with TJ. We do appreciate what our military do for

us.

My oldest son just finished boot camp and is still in Georgia doing some more

training.

[Guest guest]

We will be keeping TJ and your whole family in our prayers. We love

the pic at site, great picture.

I am including Dave Hingsburger's blog entry from a couple of days

ago. Rather appropriate right now.

Sharon

Military Might

You could tell that this was the place. We pulled into the parking

lot of the Holiday Inn in Trenton and every disabled parking bay was

full, there were several people with disabilities outside the door

having a smoke. The line up waiting for rooms and registration was

abuzz with humour and excitement. I'd been looking forward to this

for awhile. The conference is one that is aimed at developing skills

in the self advocate movement.

As we made our way through the crowd there were staff I knew and we

waved or briefly chatted, there were self advocates that I knew and

we did the same. It's cool being in a place where everyone looks just

a little bit different. We got our keys and made it to the room only

to find out that we'd been given an inaccessible room.

Back to the front.

More people were there now. They'd set it up such that those

attending the conference got their conference registration, materials

along with the room key from a group of volunteers at a table just

inside the door. Those registering for the hotel, but not the

conference, went straight to the regular registration desk of the

hotel.

Two army type guys came in to register. The first thing they

registered was 'Whoa, this isn't your usual lobby, " before they could

recover a woman with a disability gave them a huge grin and

said, " You need to go to the desk over there. " Military trained,

military manners, they said " Thanks, ma'am. " She, the ma'am, in this

case thought that being called 'ma'am' was very, very funny and burst

into the kind of laughter that is unrestrained.

Their faces looked impassive but I'm convinced the younger one wanted

to giggle. I don't think of military men giggling but I'm sure they

do.

They proceeded to the desk and were checked in shortly. But not

before another van load of people with disabilities had burst through

the door. Then I saw that the younger guy was now wearing an open

grin.

They didn't notice me sitting in my chair, looking like Jabba the

Hutt on vacation. I heard the younger guy say, " You know, this is

kind of what we are fighting for isn't it. Freedom for everyone.

You've got to admit this is cool ... "

And they were gone.

I don't know what they teach in military school here in Canada - but

they get the most important word about inclusion in the english

language.

Everyone.