Can you help me find an essay?

[Guest guest]

Several years ago there was an essay posted in one of the DS groups

I'm in. It was written by a father about his son who only live a short

time (I think it was a matter of hours). It was a very sweet, touching

essay and I'd like to share it with some friends of mine whose baby is

dying. She is two months old, a 25 week premie with DS and heart

defects. She has fought a good fight, but the drs have told her family

she won't live through the night.

Can any of you remember that essay & point me to it? I would

appreciate it SO much!

B

Mom to Heidi 17 DS, Caleb 16 NDA, Corrie 15 DS and Mae 11 DS

[Guest guest]

What a beautiful interpretation of what is usually viewed as a tragedy. It's

funny how before I had Amelia I thought anything less then a " perfect " baby

would be intolerable. At 7 years old I can't imagine Amelia being improved upon

essentially. Not by the absence of a chromosome or the addition of points on an

IQ score. The poignancy of her existence allowed me to open my eyes and

understand that God is with me. With us. Amelia is God's very awesome gift to

me. Is it hard sometimes? Of course. As it is also with my typical child.

Having said that, I imagine my life without my special needs child-unfettered by

all that entails. It simply does not equal, in quality, my life with Amelia and

her shining little self.

Thank you for sharing that video.

Ann (mother to Amelia 7 w/ds and Jake 6)

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