Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Welcome to the group. My son was diagnosed with scoliosis when he was 4 months. At 7 months his curvature was 60*. We are in the process of choosing which hospital we would like to go to for a second opinion. Our Dr has also said to wait. I am afraid to wait. Others in the group have great advice and have been a great source of encouragement for me. I am hoping to have my son seen in SLC or Edmonton or Montreal. I wouldn't wait. I have found through the stories that ace been shared here that the earlier you can get treatment the better it will be in the longrun. Keeley mom to 8months old waiting for second opinion. Sent from my BlackBerry® wireless handheldFrom: cayleesmommy10 <cayleesmommy10@...>Sender: infantile scoliosis treatment Date: Fri, 17 Sep 2010 04:27:58 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: New to the group... Hi everyone. I am new to the group and was hoping to find a little bit of help/advice/information. I recently found out that my 6 month old daughter has a 24 degree curve in her spine. The pediatric orthopedic doctor told us that she may grow out of it and we should bring her back and have her checked again in 6 months. I have done some research of my own and I noticed that most doctors agree that a curve over 20 degrees is progressive and will likely result in the need for treatment.I live in North Carolina, and there are no doctors around here that do serial casting as far as I know. My 3 year old brother had scoliosis surgery at Shriners in Philadelphia, so we sent my daughter's xrays to his doctor there today for a second opinion. I would really like to completely avoid surgery for my daughter, so I want to make sure that I do the right thing.I guess I was just wondering if any of you have any similar stories or advice to share with me. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Hi! Welcome to the Group! Do not wait! Anything over 20 is progressive! I noticed my daughter Sierra's curve at 9 mo. She went for 9 mo. Check up around Christmas of 09. I forgot to point it out & Ped. Did not check her spine! Sierra had a growth spurt at 11 mo. I took her in to Ped. They freaked out!!! Did x ray. We live on Gulf Coast of Alabama.... No one had ever seen scoliosis in an infant . I got on Line & found ISOP & ! We were in Birmingham Al. The next week at Children's to see Dr. K about Mehta Casting! Sierra was castes 2 weeks later in April 2010! She had a 34 degree curve. We r now on 3rd cast! She is down to 17 degrees in cast! She has had a brain & spine MRI! Hers is indeed idiopathic. The casting is difficult at times but doable! I want correction. No surgery at all! Do not wait! I wish I would have acted at 9 mo. When I knew something was just not right! U r in the right place! U have time on your side! Take advantage of it! Good luck!Kristi Mommy to Sierra 16 mo. 3rd cast 34 degrees down to 17 degrees in cast! 4 th cast scheduled for Oct. 22nd.Sent From Kristi's i-PhoneOn Sep 17, 2010, at 12:32 AM, kfaul@... wrote: Welcome to the group. My son was diagnosed with scoliosis when he was 4 months. At 7 months his curvature was 60*. We are in the process of choosing which hospital we would like to go to for a second opinion. Our Dr has also said to wait. I am afraid to wait. Others in the group have great advice and have been a great source of encouragement for me. I am hoping to have my son seen in SLC or Edmonton or Montreal. I wouldn't wait. I have found through the stories that ace been shared here that the earlier you can get treatment the better it will be in the longrun. Keeley mom to 8months old waiting for second opinion. Sent from my BlackBerry® wireless handheldFrom: cayleesmommy10 <cayleesmommy10@...> Sender: infantile scoliosis treatment Date: Fri, 17 Sep 2010 04:27:58 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: New to the group... Hi everyone. I am new to the group and was hoping to find a little bit of help/advice/information. I recently found out that my 6 month old daughter has a 24 degree curve in her spine. The pediatric orthopedic doctor told us that she may grow out of it and we should bring her back and have her checked again in 6 months. I have done some research of my own and I noticed that most doctors agree that a curve over 20 degrees is progressive and will likely result in the need for treatment. I live in North Carolina, and there are no doctors around here that do serial casting as far as I know. My 3 year old brother had scoliosis surgery at Shriners in Philadelphia, so we sent my daughter's xrays to his doctor there today for a second opinion. I would really like to completely avoid surgery for my daughter, so I want to make sure that I do the right thing. I guess I was just wondering if any of you have any similar stories or advice to share with me. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Hi! Welcome to the Group! Do not wait! Anything over 20 is progressive! I noticed my daughter Sierra's curve at 9 mo. She went for 9 mo. Check up around Christmas of 09. I forgot to point it out & Ped. Did not check her spine! Sierra had a growth spurt at 11 mo. I took her in to Ped. They freaked out!!! Did x ray. We live on Gulf Coast of Alabama.... No one had ever seen scoliosis in an infant . I got on Line & found ISOP & ! We were in Birmingham Al. The next week at Children's to see Dr. K about Mehta Casting! Sierra was castes 2 weeks later in April 2010! She had a 34 degree curve. We r now on 3rd cast! She is down to 17 degrees in cast! She has had a brain & spine MRI! Hers is indeed idiopathic. The casting is difficult at times but doable! I want correction. No surgery at all! Do not wait! I wish I would have acted at 9 mo. When I knew something was just not right! U r in the right place! U have time on your side! Take advantage of it! Good luck!Kristi Mommy to Sierra 16 mo. 3rd cast 34 degrees down to 17 degrees in cast! 4 th cast scheduled for Oct. 22nd.Sent From Kristi's i-PhoneOn Sep 17, 2010, at 12:32 AM, kfaul@... wrote: Welcome to the group. My son was diagnosed with scoliosis when he was 4 months. At 7 months his curvature was 60*. We are in the process of choosing which hospital we would like to go to for a second opinion. Our Dr has also said to wait. I am afraid to wait. Others in the group have great advice and have been a great source of encouragement for me. I am hoping to have my son seen in SLC or Edmonton or Montreal. I wouldn't wait. I have found through the stories that ace been shared here that the earlier you can get treatment the better it will be in the longrun. Keeley mom to 8months old waiting for second opinion. Sent from my BlackBerry® wireless handheldFrom: cayleesmommy10 <cayleesmommy10@...> Sender: infantile scoliosis treatment Date: Fri, 17 Sep 2010 04:27:58 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: New to the group... Hi everyone. I am new to the group and was hoping to find a little bit of help/advice/information. I recently found out that my 6 month old daughter has a 24 degree curve in her spine. The pediatric orthopedic doctor told us that she may grow out of it and we should bring her back and have her checked again in 6 months. I have done some research of my own and I noticed that most doctors agree that a curve over 20 degrees is progressive and will likely result in the need for treatment. I live in North Carolina, and there are no doctors around here that do serial casting as far as I know. My 3 year old brother had scoliosis surgery at Shriners in Philadelphia, so we sent my daughter's xrays to his doctor there today for a second opinion. I would really like to completely avoid surgery for my daughter, so I want to make sure that I do the right thing. I guess I was just wondering if any of you have any similar stories or advice to share with me. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 First of all WELCOME! We are so happy you found us.You are doing the right thing by not doing the wait and see game. Your daughter is in the rapid growth stage and that's when you can benefit the most from casting. Also I wanted to tell you that we live in Va and go the Shriners in Greenville Sc! Dr. P there is wonderful and was trained by Dr. Mehta. Hopefully that would be an easier road trip than Philly. Where in Nc are you? There is another mom() on here who lives in Nc and travels to Greenville, hopefully she will chime in soon. I would fax your app to them asap. If you need there info or contact name let me know and I will email them to you. Hope this helps.Amy J mom to Allie(4) in 5th cast down from 56* to 15* in castSent from my Verizon Wireless BlackBerryFrom: "cayleesmommy10" <cayleesmommy10@...>Sender: infantile scoliosis treatment Date: Fri, 17 Sep 2010 04:27:58 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: New to the group... Hi everyone. I am new to the group and was hoping to find a little bit of help/advice/information. I recently found out that my 6 month old daughter has a 24 degree curve in her spine. The pediatric orthopedic doctor told us that she may grow out of it and we should bring her back and have her checked again in 6 months. I have done some research of my own and I noticed that most doctors agree that a curve over 20 degrees is progressive and will likely result in the need for treatment.I live in North Carolina, and there are no doctors around here that do serial casting as far as I know. My 3 year old brother had scoliosis surgery at Shriners in Philadelphia, so we sent my daughter's xrays to his doctor there today for a second opinion. I would really like to completely avoid surgery for my daughter, so I want to make sure that I do the right thing.I guess I was just wondering if any of you have any similar stories or advice to share with me. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 First of all WELCOME! We are so happy you found us.You are doing the right thing by not doing the wait and see game. Your daughter is in the rapid growth stage and that's when you can benefit the most from casting. Also I wanted to tell you that we live in Va and go the Shriners in Greenville Sc! Dr. P there is wonderful and was trained by Dr. Mehta. Hopefully that would be an easier road trip than Philly. Where in Nc are you? There is another mom() on here who lives in Nc and travels to Greenville, hopefully she will chime in soon. I would fax your app to them asap. If you need there info or contact name let me know and I will email them to you. Hope this helps.Amy J mom to Allie(4) in 5th cast down from 56* to 15* in castSent from my Verizon Wireless BlackBerryFrom: "cayleesmommy10" <cayleesmommy10@...>Sender: infantile scoliosis treatment Date: Fri, 17 Sep 2010 04:27:58 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: New to the group... Hi everyone. I am new to the group and was hoping to find a little bit of help/advice/information. I recently found out that my 6 month old daughter has a 24 degree curve in her spine. The pediatric orthopedic doctor told us that she may grow out of it and we should bring her back and have her checked again in 6 months. I have done some research of my own and I noticed that most doctors agree that a curve over 20 degrees is progressive and will likely result in the need for treatment.I live in North Carolina, and there are no doctors around here that do serial casting as far as I know. My 3 year old brother had scoliosis surgery at Shriners in Philadelphia, so we sent my daughter's xrays to his doctor there today for a second opinion. I would really like to completely avoid surgery for my daughter, so I want to make sure that I do the right thing.I guess I was just wondering if any of you have any similar stories or advice to share with me. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Good Morning! My son had a x-ray taken at 6 months. His film was read as no obvious abnormality. He was finally diagnosed at 10 months old with a 67 degree curve. As we were preparing for our first trip to Chicago Shriners I requested all his previous films. initial x-ray at 6 months although read no obvious abnormality was read at 27 degrees when finally seen by a specialist. We made an astounding 40 degree jump in numbers in the 4 months it took him to get diagnosed. That is my don't wait story. If you are located in North Carolina, my thoughts would be to start the application process for Greenville Shriners. They are currently casting with great success and it would be significantly closer to home than traveling to Philly. We travel about 6.5 hours one way for casting. Many parents here travel as well. Although Shriners will gladly cover your travel costs, we always drive ourselves, but it is heaven sent to think if we need the assistance it is there. Casting little ones has a whole new set of hurtles, but in some ways it may be easier adjustment. has now spent more of his life in cast then out of cast. He learned to crawl, walk, roll over and now climb in his cast. He adjusted to the weight with help from his physical therapist. He also had 3 casts before realizing the hospital means a new cast. By 4 & 5 he had that figured out and started being a stinker when he got there. has now been labeled the biter of Chicago Shriners by the PACU nurses as well as the toddler who tries to crawl off the table. Oh Yeah thats my . I actually said he normally warns you before he bites with an "I Bite". They laughed and said oh no we know to keep our fingers out of his mouth now. I would fill out the Greenville Shriners information and send it off. I included a picture and called to confirm they received it. There are wonderful parents on here from Greenville and will be able to give you the Care coordinators information and you can start emailing/calling her for an appointment. Keep us posted. Catie,Cody(9) & 's(21mo)mom (in 5th cast 35*out of cast) proudly at Chicago Shriners From: cayleesmommy10 <cayleesmommy10@...>infantile scoliosis treatment Sent: Thu, September 16, 2010 11:27:58 PMSubject: New to the group... Hi everyone. I am new to the group and was hoping to find a little bit of help/advice/information. I recently found out that my 6 month old daughter has a 24 degree curve in her spine. The pediatric orthopedic doctor told us that she may grow out of it and we should bring her back and have her checked again in 6 months. I have done some research of my own and I noticed that most doctors agree that a curve over 20 degrees is progressive and will likely result in the need for treatment.I live in North Carolina, and there are no doctors around here that do serial casting as far as I know. My 3 year old brother had scoliosis surgery at Shriners in Philadelphia, so we sent my daughter's xrays to his doctor there today for a second opinion. I would really like to completely avoid surgery for my daughter, so I want to make sure that I do the right thing.I guess I was just wondering if any of you have any similar stories or advice to share with me. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Hey and Welcome! We live in NC as well (Wake Forest). We travel to SC greenville shriners to get Logan casted. Our stories sound similar about the wait and see....DONT DO IT! and if we say the same ped ortho Im going to die! lol! The best thing you can do is not to wait...go get a second opinion. Logan's curve was at 30 and we waited 3 months....like we were told....and it QUICKLY went to 45 degrees. I was shocked. I did some investigating of my own and found this group online and quickly got into shriners in SC....I wasnt going to risk Logan's curve getting any worse. This group is AWESOME and every experience you can imagine someone has been through...so there is always wonderful adivise. Good luck with your little one and we are always here =) Give me a call if you want to talk...I may be local for you =)) Logan's mama (45 degrees down to 0 in 4th cast) Cell 919-761-4090 hm 919-556-4077 From: cayleesmommy10 <cayleesmommy10@...>infantile scoliosis treatment Sent: Fri, September 17, 2010 12:27:58 AMSubject: New to the group... Hi everyone. I am new to the group and was hoping to find a little bit of help/advice/information. I recently found out that my 6 month old daughter has a 24 degree curve in her spine. The pediatric orthopedic doctor told us that she may grow out of it and we should bring her back and have her checked again in 6 months. I have done some research of my own and I noticed that most doctors agree that a curve over 20 degrees is progressive and will likely result in the need for treatment.I live in North Carolina, and there are no doctors around here that do serial casting as far as I know. My 3 year old brother had scoliosis surgery at Shriners in Philadelphia, so we sent my daughter's xrays to his doctor there today for a second opinion. I would really like to completely avoid surgery for my daughter, so I want to make sure that I do the right thing.I guess I was just wondering if any of you have any similar stories or advice to share with me. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 , We just moved to NC (Apex) and are looking for a pedi ortho for Moriah (age almost 14!) could you email me OFF GROUP and let me know who you see? Want to be sure to know who is good and who isn't. Thank you! shellie Grant From: Medlin <amanda.medlin@...>Subject: Re: New to the group...infantile scoliosis treatment Date: Friday, September 17, 2010, 7:34 AM Hey and Welcome! We live in NC as well (Wake Forest). We travel to SC greenville shriners to get Logan casted. Our stories sound similar about the wait and see....DONT DO IT! and if we say the same ped ortho Im going to die! lol! The best thing you can do is not to wait...go get a second opinion. Logan's curve was at 30 and we waited 3 months....like we were told....and it QUICKLY went to 45 degrees. I was shocked. I did some investigating of my own and found this group online and quickly got into shriners in SC....I wasnt going to risk Logan's curve getting any worse. This group is AWESOME and every experience you can imagine someone has been through...so there is always wonderful adivise. Good luck with your little one and we are always here =) Give me a call if you want to talk...I may be local for you =)) Logan's mama (45 degrees down to 0 in 4th cast) Cell 919-761-4090 hm 919-556-4077 From: cayleesmommy10 <cayleesmommy10@...>infantile scoliosis treatment Sent: Fri, September 17, 2010 12:27:58 AMSubject: New to the group... Hi everyone. I am new to the group and was hoping to find a little bit of help/advice/information. I recently found out that my 6 month old daughter has a 24 degree curve in her spine. The pediatric orthopedic doctor told us that she may grow out of it and we should bring her back and have her checked again in 6 months. I have done some research of my own and I noticed that most doctors agree that a curve over 20 degrees is progressive and will likely result in the need for treatment.I live in North Carolina, and there are no doctors around here that do serial casting as far as I know. My 3 year old brother had scoliosis surgery at Shriners in Philadelphia, so we sent my daughter's xrays to his doctor there today for a second opinion. I would really like to completely avoid surgery for my daughter, so I want to make sure that I do the right thing.I guess I was just wondering if any of you have any similar stories or advice to share with me. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Hello and welcome to CAST!You are doing the right thing to be so on top of this. "Watch and wait" or "wait and see" is the worst approach with progressive cases. It is great news that your daughter is so young, but time can pass quickly in setting appointments, getting an MRI to rule other things out, etc.In short, I wouldn't wait 6 months to follow up, either. Good for you! Hoping she will self resolve, but it is better to be safe.My son Bexon's story is on www.GirltoMom.com - just click on "Bexon's Story" at the top of the home page. Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast)From: cayleesmommy10 <cayleesmommy10@...>infantile scoliosis treatment Sent: Thu, September 16, 2010 9:27:58 PMSubject: New to the group... Hi everyone. I am new to the group and was hoping to find a little bit of help/advice/information. I recently found out that my 6 month old daughter has a 24 degree curve in her spine. The pediatric orthopedic doctor told us that she may grow out of it and we should bring her back and have her checked again in 6 months. I have done some research of my own and I noticed that most doctors agree that a curve over 20 degrees is progressive and will likely result in the need for treatment. I live in North Carolina, and there are no doctors around here that do serial casting as far as I know. My 3 year old brother had scoliosis surgery at Shriners in Philadelphia, so we sent my daughter's xrays to his doctor there today for a second opinion. I would really like to completely avoid surgery for my daughter, so I want to make sure that I do the right thing. I guess I was just wondering if any of you have any similar stories or advice to share with me. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Hello and welcome to CAST!You are doing the right thing to be so on top of this. "Watch and wait" or "wait and see" is the worst approach with progressive cases. It is great news that your daughter is so young, but time can pass quickly in setting appointments, getting an MRI to rule other things out, etc.In short, I wouldn't wait 6 months to follow up, either. Good for you! Hoping she will self resolve, but it is better to be safe.My son Bexon's story is on www.GirltoMom.com - just click on "Bexon's Story" at the top of the home page. Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast)From: cayleesmommy10 <cayleesmommy10@...>infantile scoliosis treatment Sent: Thu, September 16, 2010 9:27:58 PMSubject: New to the group... Hi everyone. I am new to the group and was hoping to find a little bit of help/advice/information. I recently found out that my 6 month old daughter has a 24 degree curve in her spine. The pediatric orthopedic doctor told us that she may grow out of it and we should bring her back and have her checked again in 6 months. I have done some research of my own and I noticed that most doctors agree that a curve over 20 degrees is progressive and will likely result in the need for treatment. I live in North Carolina, and there are no doctors around here that do serial casting as far as I know. My 3 year old brother had scoliosis surgery at Shriners in Philadelphia, so we sent my daughter's xrays to his doctor there today for a second opinion. I would really like to completely avoid surgery for my daughter, so I want to make sure that I do the right thing. I guess I was just wondering if any of you have any similar stories or advice to share with me. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 You are totally on the right track and welcome to the group! Second and third opinions (in my opinion) are crucial to easing your mind and getting all the info you can to make an educated decision. There are 2 really good and very experienced docs at Rochester as well if you are checking into locations on this coast. I would be happy to speak with you about our experiences if you want to chat by phone. It may be reasonable to wait a bit to see if you have a self-resolver on your hands, but I would not wait any longer than 3 months. Our initial ortho suggested 6 months too, but he was inexperienced in PIS and it was definitely the wrong advice. Let me know what Philly says and if you want to chat.- Noelle's mommy, 3 1/2 years oldRochester NYCasted 8 times for 1 1/2 years9 months in braceRegressed and currently in cast 9reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III From: cayleesmommy10 <cayleesmommy10@...>Subject: New to the group...infantile scoliosis treatment Date: Friday, September 17, 2010, 4:27 AM Hi everyone. I am new to the group and was hoping to find a little bit of help/advice/information. I recently found out that my 6 month old daughter has a 24 degree curve in her spine. The pediatric orthopedic doctor told us that she may grow out of it and we should bring her back and have her checked again in 6 months. I have done some research of my own and I noticed that most doctors agree that a curve over 20 degrees is progressive and will likely result in the need for treatment.I live in North Carolina, and there are no doctors around here that do serial casting as far as I know. My 3 year old brother had scoliosis surgery at Shriners in Philadelphia, so we sent my daughter's xrays to his doctor there today for a second opinion. I would really like to completely avoid surgery for my daughter, so I want to make sure that I do the right thing.I guess I was just wondering if any of you have any similar stories or advice to share with me. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 I would definately send her info on to a doctor that does derotational casting and see what they have to say. I don't know what the nearest center to you is, but sounds like she might. Contact her. I know that most people on this sight have heard the wait and see, and it has turned out " not for the best " . 24 degrees is really mild and you might not get anyone to jump very fast - depending on the RVAD- which your doctor probably did not tell you. My daughter Makenna, was at an initial diagnosis of 20 degrees. which under normal cirucmstances is the cut-off angle for observation vs. treatment. She has a genetic condition that predisposes the scoliosis to be progressive. This was not known at the time. The only thing that got her the treatment she needed was a consultation appointment t a facility that had studied, researched and trained with Dr. Mehta and understood the importance of the RVAD measurement. Although Makenna's COBB angle was 20 degrees, her RVAD was 39. RVAD indicates the likelihood that the curve will progress. So, although a 20 degree COBB angle would be borderline for treatment, the 39 RVAD made her a prime candidate for casting. You are doing the right thing by sending the files to Shriner's. Given her age, I suppose it's possible that the scolisosis is self-correcting. Only an evaluation of the RVAD will tell for sure. Makenna has a very rare genetic disorder that produces the progressive scoliosis, Even her pediatric neurologist (who, FYI could not accurately diagnos her with said condition), said any orthopedic doctor should be concerned with a toddler with any kind of curve. I wish you well and look forward to hearing GREAT things!!! > > > From: cayleesmommy10 <cayleesmommy10@...> > Subject: New to the group... > infantile scoliosis treatment > Date: Friday, September 17, 2010, 4:27 AM > > > Â > > > > Hi everyone. I am new to the group and was hoping to find a little bit of help/advice/information. > > I recently found out that my 6 month old daughter has a 24 degree curve in her spine. The pediatric orthopedic doctor told us that she may grow out of it and we should bring her back and have her checked again in 6 months. I have done some research of my own and I noticed that most doctors agree that a curve over 20 degrees is progressive and will likely result in the need for treatment. > > I live in North Carolina, and there are no doctors around here that do serial casting as far as I know. My 3 year old brother had scoliosis surgery at Shriners in Philadelphia, so we sent my daughter's xrays to his doctor there today for a second opinion. I would really like to completely avoid surgery for my daughter, so I want to make sure that I do the right thing. > > I guess I was just wondering if any of you have any similar stories or advice to share with me. Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 We live in Charlotte and travel to Greenville, SC as well. Dr. P is great and so is the entire staff. Do not wait and see.....There are no docotors in the area who are specialized in this. While waiting for our appt in Greenville, we saw 2 orthopedists and spoke to a third and the two opinions were wait and see....Good luck and if I were you I would atleaset make the appt in greenville. Aimee Emma's mommy > > > From: Medlin <amanda.medlin@...> > Subject: Re: New to the group... > infantile scoliosis treatment > Date: Friday, September 17, 2010, 7:34 AM > > >  > > > > > > > > Hey and Welcome! > We live in NC as well (Wake Forest). We travel to SC greenville shriners to get Logan casted. Our stories sound similar about the wait and see....DONT DO IT! and if we say the same ped ortho Im going to die! lol! The best thing you can do is not to wait...go get a second opinion. Logan's curve was at 30 and we waited 3 months....like we were told....and it QUICKLY went to 45 degrees. I was shocked. I did some investigating of my own and found this group online and quickly got into shriners in SC....I wasnt going to risk Logan's curve getting any worse. This group is AWESOME and every experience you can imagine someone has been through...so there is always wonderful adivise. Good luck with your little one and we are always here =) >  > Give me a call if you want to talk...I may be local for you =)) > > Logan's mama (45 degrees down to 0 in 4th cast) > Cell 919-761-4090 > hm 919-556-4077 > > > > From: cayleesmommy10 <cayleesmommy10@...> > infantile scoliosis treatment > Sent: Fri, September 17, 2010 12:27:58 AM > Subject: New to the group... > >  > > Hi everyone. I am new to the group and was hoping to find a little bit of help/advice/information. > > I recently found out that my 6 month old daughter has a 24 degree curve in her spine. The pediatric orthopedic doctor told us that she may grow out of it and we should bring her back and have her checked again in 6 months. I have done some research of my own and I noticed that most doctors agree that a curve over 20 degrees is progressive and will likely result in the need for treatment. > > I live in North Carolina, and there are no doctors around here that do serial casting as far as I know. My 3 year old brother had scoliosis surgery at Shriners in Philadelphia, so we sent my daughter's xrays to his doctor there today for a second opinion. I would really like to completely avoid surgery for my daughter, so I want to make sure that I do the right thing. > > I guess I was just wondering if any of you have any similar stories or advice to share with me. Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 We live in Charlotte and travel to Greenville, SC as well. Dr. P is great and so is the entire staff. Do not wait and see.....There are no docotors in the area who are specialized in this. While waiting for our appt in Greenville, we saw 2 orthopedists and spoke to a third and the two opinions were wait and see....Good luck and if I were you I would atleaset make the appt in greenville. Aimee Emma's mommy > > > From: Medlin <amanda.medlin@...> > Subject: Re: New to the group... > infantile scoliosis treatment > Date: Friday, September 17, 2010, 7:34 AM > > >  > > > > > > > > Hey and Welcome! > We live in NC as well (Wake Forest). We travel to SC greenville shriners to get Logan casted. Our stories sound similar about the wait and see....DONT DO IT! and if we say the same ped ortho Im going to die! lol! The best thing you can do is not to wait...go get a second opinion. Logan's curve was at 30 and we waited 3 months....like we were told....and it QUICKLY went to 45 degrees. I was shocked. I did some investigating of my own and found this group online and quickly got into shriners in SC....I wasnt going to risk Logan's curve getting any worse. This group is AWESOME and every experience you can imagine someone has been through...so there is always wonderful adivise. Good luck with your little one and we are always here =) >  > Give me a call if you want to talk...I may be local for you =)) > > Logan's mama (45 degrees down to 0 in 4th cast) > Cell 919-761-4090 > hm 919-556-4077 > > > > From: cayleesmommy10 <cayleesmommy10@...> > infantile scoliosis treatment > Sent: Fri, September 17, 2010 12:27:58 AM > Subject: New to the group... > >  > > Hi everyone. I am new to the group and was hoping to find a little bit of help/advice/information. > > I recently found out that my 6 month old daughter has a 24 degree curve in her spine. The pediatric orthopedic doctor told us that she may grow out of it and we should bring her back and have her checked again in 6 months. I have done some research of my own and I noticed that most doctors agree that a curve over 20 degrees is progressive and will likely result in the need for treatment. > > I live in North Carolina, and there are no doctors around here that do serial casting as far as I know. My 3 year old brother had scoliosis surgery at Shriners in Philadelphia, so we sent my daughter's xrays to his doctor there today for a second opinion. I would really like to completely avoid surgery for my daughter, so I want to make sure that I do the right thing. > > I guess I was just wondering if any of you have any similar stories or advice to share with me. Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2010 Report Share Posted September 19, 2010 Thank you all so very much for replying to my post and making me feel welcome. You have all given me such great information already. I am anxious to learn more. I am now wondering if any of your children have a sacral dimple. If so, did it end up being an indicator of anything in your case? > > Hi everyone. I am new to the group and was hoping to find a little bit of help/advice/information. > > I recently found out that my 6 month old daughter has a 24 degree curve in her spine. The pediatric orthopedic doctor told us that she may grow out of it and we should bring her back and have her checked again in 6 months. I have done some research of my own and I noticed that most doctors agree that a curve over 20 degrees is progressive and will likely result in the need for treatment. > > I live in North Carolina, and there are no doctors around here that do serial casting as far as I know. My 3 year old brother had scoliosis surgery at Shriners in Philadelphia, so we sent my daughter's xrays to his doctor there today for a second opinion. I would really like to completely avoid surgery for my daughter, so I want to make sure that I do the right thing. > > I guess I was just wondering if any of you have any similar stories or advice to share with me. Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2010 Report Share Posted September 19, 2010 Thank you all so very much for replying to my post and making me feel welcome. You have all given me such great information already. I am anxious to learn more. I am now wondering if any of your children have a sacral dimple. If so, did it end up being an indicator of anything in your case? > > Hi everyone. I am new to the group and was hoping to find a little bit of help/advice/information. > > I recently found out that my 6 month old daughter has a 24 degree curve in her spine. The pediatric orthopedic doctor told us that she may grow out of it and we should bring her back and have her checked again in 6 months. I have done some research of my own and I noticed that most doctors agree that a curve over 20 degrees is progressive and will likely result in the need for treatment. > > I live in North Carolina, and there are no doctors around here that do serial casting as far as I know. My 3 year old brother had scoliosis surgery at Shriners in Philadelphia, so we sent my daughter's xrays to his doctor there today for a second opinion. I would really like to completely avoid surgery for my daughter, so I want to make sure that I do the right thing. > > I guess I was just wondering if any of you have any similar stories or advice to share with me. Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2010 Report Share Posted September 19, 2010 I have 2 boys. 1 has PIS and has no sacral dimple and I have 1 with a sacral dimple who so far has no indication of other health issues. We have done tests on the dimple and it is nothing more than a birth mark in his case. My husband and friend also have them and they are nothing. 1 in 50 kids have them and most of the time they are nothing more than a birth mark. That said it should be looked to to make sure that it is nothing. Jenn Mommy to Cole, 2.5 years old, 1st brace from rochester after 10 months in 5 casts, and baby max 2 months > > > > Hi everyone. I am new to the group and was hoping to find a little bit of help/advice/information. > > > > I recently found out that my 6 month old daughter has a 24 degree curve in her spine. The pediatric orthopedic doctor told us that she may grow out of it and we should bring her back and have her checked again in 6 months. I have done some research of my own and I noticed that most doctors agree that a curve over 20 degrees is progressive and will likely result in the need for treatment. > > > > I live in North Carolina, and there are no doctors around here that do serial casting as far as I know. My 3 year old brother had scoliosis surgery at Shriners in Philadelphia, so we sent my daughter's xrays to his doctor there today for a second opinion. I would really like to completely avoid surgery for my daughter, so I want to make sure that I do the right thing. > > > > I guess I was just wondering if any of you have any similar stories or advice to share with me. Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2010 Report Share Posted September 19, 2010 I have 2 boys. 1 has PIS and has no sacral dimple and I have 1 with a sacral dimple who so far has no indication of other health issues. We have done tests on the dimple and it is nothing more than a birth mark in his case. My husband and friend also have them and they are nothing. 1 in 50 kids have them and most of the time they are nothing more than a birth mark. That said it should be looked to to make sure that it is nothing. Jenn Mommy to Cole, 2.5 years old, 1st brace from rochester after 10 months in 5 casts, and baby max 2 months > > > > Hi everyone. I am new to the group and was hoping to find a little bit of help/advice/information. > > > > I recently found out that my 6 month old daughter has a 24 degree curve in her spine. The pediatric orthopedic doctor told us that she may grow out of it and we should bring her back and have her checked again in 6 months. I have done some research of my own and I noticed that most doctors agree that a curve over 20 degrees is progressive and will likely result in the need for treatment. > > > > I live in North Carolina, and there are no doctors around here that do serial casting as far as I know. My 3 year old brother had scoliosis surgery at Shriners in Philadelphia, so we sent my daughter's xrays to his doctor there today for a second opinion. I would really like to completely avoid surgery for my daughter, so I want to make sure that I do the right thing. > > > > I guess I was just wondering if any of you have any similar stories or advice to share with me. Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2010 Report Share Posted September 19, 2010 Yes, our son does have a sacral dimple. It can be related to spinal/neurological conditions, but not always. It should be checked out if noticed, though! Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast, Bexon's Story is on www.GirltoMom.com)From: cayleesmommy10 <cayleesmommy10@...>infantile scoliosis treatment Sent: Sat, September 18, 2010 8:17:16 PMSubject: Re: New to the group... Thank you all so very much for replying to my post and making me feel welcome. You have all given me such great information already. I am anxious to learn more. I am now wondering if any of your children have a sacral dimple. If so, did it end up being an indicator of anything in your case? > > Hi everyone. I am new to the group and was hoping to find a little bit of help/advice/information. > > I recently found out that my 6 month old daughter has a 24 degree curve in her spine. The pediatric orthopedic doctor told us that she may grow out of it and we should bring her back and have her checked again in 6 months. I have done some research of my own and I noticed that most doctors agree that a curve over 20 degrees is progressive and will likely result in the need for treatment. > > I live in North Carolina, and there are no doctors around here that do serial casting as far as I know. My 3 year old brother had scoliosis surgery at Shriners in Philadelphia, so we sent my daughter's xrays to his doctor there today for a second opinion. I would really like to completely avoid surgery for my daughter, so I want to make sure that I do the right thing. > > I guess I was just wondering if any of you have any similar stories or advice to share with me. Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2010 Report Share Posted September 19, 2010 Yes, our son does have a sacral dimple. It can be related to spinal/neurological conditions, but not always. It should be checked out if noticed, though! Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast, Bexon's Story is on www.GirltoMom.com)From: cayleesmommy10 <cayleesmommy10@...>infantile scoliosis treatment Sent: Sat, September 18, 2010 8:17:16 PMSubject: Re: New to the group... Thank you all so very much for replying to my post and making me feel welcome. You have all given me such great information already. I am anxious to learn more. I am now wondering if any of your children have a sacral dimple. If so, did it end up being an indicator of anything in your case? > > Hi everyone. I am new to the group and was hoping to find a little bit of help/advice/information. > > I recently found out that my 6 month old daughter has a 24 degree curve in her spine. The pediatric orthopedic doctor told us that she may grow out of it and we should bring her back and have her checked again in 6 months. I have done some research of my own and I noticed that most doctors agree that a curve over 20 degrees is progressive and will likely result in the need for treatment. > > I live in North Carolina, and there are no doctors around here that do serial casting as far as I know. My 3 year old brother had scoliosis surgery at Shriners in Philadelphia, so we sent my daughter's xrays to his doctor there today for a second opinion. I would really like to completely avoid surgery for my daughter, so I want to make sure that I do the right thing. > > I guess I was just wondering if any of you have any similar stories or advice to share with me. Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2010 Report Share Posted September 20, 2010 I just wanted to let you know that there are others on here from your area and hopefully they will chime in and give you more options for places to go for treatment. I wouldn't wait, get a Mehta trained doctor's opinion and then go from there. Patty, mom of Isabella, 3 years old, in 7th scoli cast (Rochester) & mom to (9) & Evan(6)From: cayleesmommy10 <cayleesmommy10@...>infantile scoliosis treatment Sent: Fri, September 17, 2010 12:27:58 AMSubject: New to the group... Hi everyone. I am new to the group and was hoping to find a little bit of help/advice/information. I recently found out that my 6 month old daughter has a 24 degree curve in her spine. The pediatric orthopedic doctor told us that she may grow out of it and we should bring her back and have her checked again in 6 months. I have done some research of my own and I noticed that most doctors agree that a curve over 20 degrees is progressive and will likely result in the need for treatment. I live in North Carolina, and there are no doctors around here that do serial casting as far as I know. My 3 year old brother had scoliosis surgery at Shriners in Philadelphia, so we sent my daughter's xrays to his doctor there today for a second opinion. I would really like to completely avoid surgery for my daughter, so I want to make sure that I do the right thing. I guess I was just wondering if any of you have any similar stories or advice to share with me. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2011 Report Share Posted June 1, 2011 Just a note to say hello! I just got my Vitamix a couple of days ago. I am already a healthy eating 'nut' due to some health issues with my son... he is PDD-NOS so I cook dairy free and try very hard to come up with exciting and yummy healthy ways to eat for kids. I am excited to learn all the ways I can use my Vitamix, and particularly interested in hearing healthy snack and treat ideas for children! Look forward to getting to know all of you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2011 Report Share Posted June 1, 2011 WELCOME !My middle son was never diagnosed, but was probably PDD-NOS as well. We tried the gfcf diet (gluten-free, dairy-free) for about a year as well. Not fun, but not impossible either!Does your son like chocolate pudding? Have you heard of or tried Avocado chocolate pudding (mousse)? It is quite yummy!http://www.google.com/search?client=safari & rls=en & q=avocado+chocolate+mousse & ie=UTF-8 & oe=UTF-8 Blessings,Lea Ann SavageSatellite Beach, FL(321) 773-7088 (home)(321-961-9219 (cell)))><'>www.VitamixLady.comwww..com<))>< On Jun 1, 2011, at 12:37 PM, cdnskmom wrote: Just a note to say hello! I just got my Vitamix a couple of days ago. I am already a healthy eating 'nut' due to some health issues with my son... he is PDD-NOS so I cook dairy free and try very hard to come up with exciting and yummy healthy ways to eat for kids. I am excited to learn all the ways I can use my Vitamix, and particularly interested in hearing healthy snack and treat ideas for children! Look forward to getting to know all of you! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.