New to the group...

March 30, 2004

We recommend Optisource Chewable Multivitamins for Bariatric patients,

which is made by Novartis. The daily dosage is 4 tablets per day and

has extra calcium, iron, B12, and antioxidants.

They also make a High Protein Drink that we give our patients after

surgery--4 ounces has 100 calories, 12 grams of protein, 6 grams CHO, 3

grams fat.

Beth Hersh, RD,LMNT

Alegent Health

Omaha, NE

>>> dhrobar@... 03/29/04 01:04PM >>>

Hello everyone. I am the dietitian for a new group of surgeons in

Austin, Texas who are performing both Lap-Banding as well as RNY

Gastric Bypass. I am very excited to find this great source of

information since there are no other bariatric dietitians in Austin

and the other central Texas surgeons do not have an RD on staff.

Most of my questions have been answered by reading some of the old

messages. I still have a few more questions to bounce off the

group. Is anyone having difficulties with potassium deficiency? I

have found that this is not usually a part of chewable vitamins.

Also, do any of you market a specific " bariatric " vitamin to your

patients. If so, what is it and do you recommend this as a general

practice or are the traditional over the counter vitamins adequate?

Thank you very much for your help.

Dana Hrobar, RD, LD

Southwest Bariatric Surgeons, PLLC.

Austin, TX

November 16, 2006

Welcome to the group. Good to have you here. I will say I wish we were neighbors! LOL. I love the Bahamas and have been there twice. It is such a beautiful place. I am very impressed with the accommodations they are making for your son. I would go back on the GFCF diet and stick with it for a good bit of time. It truly works. I honesly have met anyone who has stuck with it and not come out on top. With the ADHD you might want to try the Feingold Diet as well. Great ideas out there and many things to chose from. Dietary changes are what changed our lives. You would never recognize my kids if you knew them a year ago up until now...just amazing transformations. Also, a weighted blanket made big changes for our kids as well. We got ours from www.sensorycritters.com is wonderful and everything is personal serviced. It was great to work with her and such a blessing to have their quilts. They sleep soooo well and less cranky and can focus in the morning.

I would try some basis remedies of alternative care before putting them on meds.

Hope this helps,

Jenna

New to the group...

I would just like to say hi to everyone,And thanks so very much for letting me join.I would just like to introduce myself... My name is rachel (33 year old house-wife) To three very precious children.Josh (Aged 12) Dignosed with Asperger's at the age of 8 years, Georgia (aged nearly 8 years) recently diagnosed with ADHD... last but not least we have Harry (who is 3) and soaking up everything like a a sponge!I would like to share stories and experiences with others, as I feel that we Mothers, Father's, Grandparents here... truly know, how to deal with these experiences.... as after all, we are the ones coping and living with these daily challenges.I am having a great deal of issuses at the moment, with both my Eldest (Aspergers child) and my Middle Child (with ADHD)... They both have so much anger and frustrations within them, neither of my children are on medications... Because I was told by my last Heath Care professionals that there was no treatment/drugs available for Aspergers (It was just something that we would have to deal with as a family) We recieved very little support to be quit honest! He remained in main stream school, and struggered so much! He is a really intelliegent child, and he was so frustraited (As he knew so very much, but had difficulties in getting his ideas down on the paper) He was then offered a full time support, she would act as his scrib, and sit with him during lessons. This was GREAT! But in the long run, made him very lazy.... as she would write everything for him!! He then moved on to another school, due to moving house.... He was offered again support, and this support teacher... was out to make him more independent. He was great, and we saw a great deal of change in our Son. Possitive change, but his frustraions were getting him into trouble!! He was so angery all the time, and we were experiencing alot of temper out burts, and tantrums. He was also very loney, and just wanted a friend. He knew he was different from other kids in his class, he was always the one being left off party lists.... and this really up set him.We have sinced moved away, My Husband was offered an over seas transfer. We had to consider ... So we flew him out here, so he was able to see the school, house and Island. ( As these children really don't cope with change) He was very grown up about it, and saw it as a fun trip. He set an exam (FOR THE FIRST TIME) in his life... and passed with flying colours!! He fell in love with the school, and told my Husband... this was where he wanted to go to school. He stated he felt safe, and would be happy here!We have been here (Bahamas) for the past 11 mnths, Josh is doing GREAT!!!! His education is coming along great.... he has managed to come out with A's and B's in his exams. He still has problems, but the class sizes are no bigger than 8 students. So the Teacher is able to give him that extra bit of attention. The school is very understanding, and has been a pool of knowledge. He does very well in Exams, but he just struggles in the daily class room studies, his mind wonders... and finds it so very hard to complete things, and focus to remain in the task! Does anyone have the same problems?We have also just had our Daughter (Georgia) diagnosed with ADHD... so we are waiting for the next step...things are very tricky at home. Josh and Georgia simply can't get along, they are constantly fighting, arguing... hitting, screaming... and trying to kill oneanother... Things are so very bad!Reward systems no longer work, taking toys and previlidges away (eg watching tv, playing computers) no longer work, we have tried everything...I have tried diets to control behaviour, the guten free diet, dairy free, we stay clear of MSG, food additives, food colours and sugar.... But to be honest we have seen no improvments!We have tried herbal remodies, but we haven't seen any change.I just want my children to be happy, and right now... home isn't happy, the children are so angry and scream and fight. I just want my family to get alone, it's really getting me down right now. I have always been so possitive! Can anyone help.... Please xxxx x

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.430 / Virus Database: 268.14.5/534 - Release Date: 11/14/2006 3:58 PM

November 16, 2006

Welcome to the group. Good to have you here. I will say I wish we were neighbors! LOL. I love the Bahamas and have been there twice. It is such a beautiful place. I am very impressed with the accommodations they are making for your son. I would go back on the GFCF diet and stick with it for a good bit of time. It truly works. I honesly have met anyone who has stuck with it and not come out on top. With the ADHD you might want to try the Feingold Diet as well. Great ideas out there and many things to chose from. Dietary changes are what changed our lives. You would never recognize my kids if you knew them a year ago up until now...just amazing transformations. Also, a weighted blanket made big changes for our kids as well. We got ours from www.sensorycritters.com is wonderful and everything is personal serviced. It was great to work with her and such a blessing to have their quilts. They sleep soooo well and less cranky and can focus in the morning.

I would try some basis remedies of alternative care before putting them on meds.

Hope this helps,

Jenna

New to the group...

I would just like to say hi to everyone,And thanks so very much for letting me join.I would just like to introduce myself... My name is rachel (33 year old house-wife) To three very precious children.Josh (Aged 12) Dignosed with Asperger's at the age of 8 years, Georgia (aged nearly 8 years) recently diagnosed with ADHD... last but not least we have Harry (who is 3) and soaking up everything like a a sponge!I would like to share stories and experiences with others, as I feel that we Mothers, Father's, Grandparents here... truly know, how to deal with these experiences.... as after all, we are the ones coping and living with these daily challenges.I am having a great deal of issuses at the moment, with both my Eldest (Aspergers child) and my Middle Child (with ADHD)... They both have so much anger and frustrations within them, neither of my children are on medications... Because I was told by my last Heath Care professionals that there was no treatment/drugs available for Aspergers (It was just something that we would have to deal with as a family) We recieved very little support to be quit honest! He remained in main stream school, and struggered so much! He is a really intelliegent child, and he was so frustraited (As he knew so very much, but had difficulties in getting his ideas down on the paper) He was then offered a full time support, she would act as his scrib, and sit with him during lessons. This was GREAT! But in the long run, made him very lazy.... as she would write everything for him!! He then moved on to another school, due to moving house.... He was offered again support, and this support teacher... was out to make him more independent. He was great, and we saw a great deal of change in our Son. Possitive change, but his frustraions were getting him into trouble!! He was so angery all the time, and we were experiencing alot of temper out burts, and tantrums. He was also very loney, and just wanted a friend. He knew he was different from other kids in his class, he was always the one being left off party lists.... and this really up set him.We have sinced moved away, My Husband was offered an over seas transfer. We had to consider ... So we flew him out here, so he was able to see the school, house and Island. ( As these children really don't cope with change) He was very grown up about it, and saw it as a fun trip. He set an exam (FOR THE FIRST TIME) in his life... and passed with flying colours!! He fell in love with the school, and told my Husband... this was where he wanted to go to school. He stated he felt safe, and would be happy here!We have been here (Bahamas) for the past 11 mnths, Josh is doing GREAT!!!! His education is coming along great.... he has managed to come out with A's and B's in his exams. He still has problems, but the class sizes are no bigger than 8 students. So the Teacher is able to give him that extra bit of attention. The school is very understanding, and has been a pool of knowledge. He does very well in Exams, but he just struggles in the daily class room studies, his mind wonders... and finds it so very hard to complete things, and focus to remain in the task! Does anyone have the same problems?We have also just had our Daughter (Georgia) diagnosed with ADHD... so we are waiting for the next step...things are very tricky at home. Josh and Georgia simply can't get along, they are constantly fighting, arguing... hitting, screaming... and trying to kill oneanother... Things are so very bad!Reward systems no longer work, taking toys and previlidges away (eg watching tv, playing computers) no longer work, we have tried everything...I have tried diets to control behaviour, the guten free diet, dairy free, we stay clear of MSG, food additives, food colours and sugar.... But to be honest we have seen no improvments!We have tried herbal remodies, but we haven't seen any change.I just want my children to be happy, and right now... home isn't happy, the children are so angry and scream and fight. I just want my family to get alone, it's really getting me down right now. I have always been so possitive! Can anyone help.... Please xxxx x

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.430 / Virus Database: 268.14.5/534 - Release Date: 11/14/2006 3:58 PM

November 16, 2006

Hi ,My name is I am a Navy wife and mom to four kiddos - Max ADHD/LD/SID, Molly - AS with mood disturbances, SaraCait ith ADHD and BP and Hope who is Autistic.I will say that I disagree with the medication issue - Molly takes 100mg of Seroquel at night and 100mg of Lexapro, and has been a dream! Prior to medicating Hope - who is almost 6 - she was quite literally like a little animal - almost non verbal, not toilet trained, self injurious in the extreme, violent it was awful. We put her on Abilify and Tenex along with DVAPP for night time wetting, that produced a lot of improvement, and now with a gluten free diet, she has made not just strides but leaps - from a vocabulary of around 50 words at age 5, no eye contact and SEVERE sensory issues - she now has an out of sight vocab - for her. She tests at 2 years 6 months to 3 years 5 months in vocabulary!!! woooohoooooo - she also reads, is in a mainstream class for a

full day with her aide, and goes to the YMCA after school without an aide. Molly now has autism team services through the school FINALLY - she is in her first year of high school, and went from a very sad girl who was assaulted physically for being Jewish at school and was sexually assaulted because she simply didn't understand that there was evil intent - last year, to a bright smiling successful girl - the girl I always knew was inside her!!! Both my spectrum girls are in the high average to superior intellect range, and that in and of itself is a mixed blessing. Positive because I know that I can push harder and longer and if we persevere we will see results, and negative because, like me, they tend to be overly analytical and live in their own heads. ABA has been Extremely helpful for Hope - she started two months ago, and she can now button buttons and is still working hard at zippers. She can wash her own face now and doesn't

panic about the washcloth. In addition, she is slowly learning that hurting herself doesn't do anything but hurt her - Molly actually is the one who figured out the key to that one - she would scream i want to die and I hate this home - i am going to run away and one day molly just looked at her and said, "how's that workin' for ya Hope?" and walked away. The look on Hope's face (she idolizes Molly) was comic in the extreme.A year ago, I was completely desperate - I was just basically going through the motions of life. It just all seemed so meaningless and horrible. Day after day it was a fight from the time I got up until I went to bed (if I managed to get to bed at all) - my husband deployed for four months, and I had to take a leave of absence at work, then try to split my time between working with Hope at my office and time working from home. That too was particularly helpful with Hope. I work in a brokerage where the median

age (if you don't factor me in) is around 55, they are mostly men, the exception being myself, my mother and a newer sales girl. Everyone would take turns with Hope duty. Hope fixates on things - and is very visual - and the guys would take her down to the docks with handfulls of keys and show her boat after boat after boat. They would take her with them to the bank, to the post office and so forth. After that I started seeing much less resistance to change. Finally around July - I was still barely there - exhausted and giving up - and I tried what I had been resisting all along - gfcf - we didn't end up having to go "all the way" with that - Hope has refused 90% of all casein containing foods all along - so we just removed wheat. We also have learned that sometimes being flexible is ok - example: Hope is sick with the croup right now, and this morning I allowed her to have 1 piece of cinnamon toast - money was tight this past

month as I completed a design project; although I just picked up another design project moonlighting with another brokerage - so she didn't have her "special bread". She freaked out and bit me and hit me when I stopped at the ATM machine. She wanted something and didn't use her nice words - of course everyone was staring at her. When I finally got her calmed down - I told her that when she acted like that people looked at her and they didn't think nice thoughts - in fact, they didn't get to see what a wonderful sweet child she is! They only saw a little girl who wasn't acting properly. She started to scream and say I am bad I am bad. I explained to her next time (which won't be sooner than a month) that she wanted to have wheat toast, that she would only be able to have 1/2 slice. My theory being that she is gluten sensitive, but I don't want to be completely extreme about anything you know? Sometimes it is those little

things that make her feel so different. So, by teaching her what the results of those choices are - she can either as she gets older, choose to have the wheat periodically knowing what will happen, or she more likely will choose to have the type of diet that I follow - which is about 80% vegetarian, with grains being mainly natural rices and so forth. It is rough - I rarely get to eat at home - as my husband is from the south etc. lolSorry to ramble - and welcome!JenJenna and Rob <7wonderfulblessings@...> wrote: Welcome to the group. Good to have you here. I will say I wish we were neighbors! LOL. I love the Bahamas and have been there twice. It is such a beautiful place. I am very impressed with the accommodations they are making for your son. I would go back on the GFCF diet and stick with it for a good bit of time. It truly works. I honesly have met anyone who has stuck with it and not come out on top. With the ADHD you might want to try the Feingold Diet as well. Great ideas out there and many things to chose from. Dietary changes are what changed our lives. You would never recognize my kids if you knew them a year ago up until now...just amazing transformations. Also, a weighted blanket made big changes for our kids as well. We got ours from www.sensorycritters.com is wonderful and everything is personal serviced. It was great to work with her and such a blessing to have their quilts. They sleep soooo well and less cranky and can focus in the morning. I would try some basis remedies of alternative care before putting them on meds. Hope this helps, Jenna New to the group... I would just like to say hi to everyone,And thanks so very much for letting me join.I would just like to introduce myself... My name is rachel (33 year old house-wife) To three very precious children.Josh (Aged 12) Dignosed with Asperger's at the age of 8 years, Georgia (aged nearly 8 years) recently diagnosed with ADHD... last but not least we have Harry (who is 3) and soaking up everything like a a sponge!I would like to share stories and experiences with others, as I feel that we Mothers, Father's, Grandparents here... truly know, how to deal with these experiences.... as after all, we are the ones coping and living with these daily challenges.I am having a great deal of issuses at the moment, with both my Eldest (Aspergers child) and my Middle

Child (with ADHD)... They both have so much anger and frustrations within them, neither of my children are on medications... Because I was told by my last Heath Care professionals that there was no treatment/drugs available for Aspergers (It was just something that we would have to deal with as a family) We recieved very little support to be quit honest! He remained in main stream school, and struggered so much! He is a really intelliegent child, and he was so frustraited (As he knew so very much, but had difficulties in getting his ideas down on the paper) He was then offered a full time support, she would act as his scrib, and sit with him during lessons. This was GREAT! But in the long run, made him very lazy.... as she would write everything for him!! He then moved on to another school, due to moving house.... He was offered again support, and this support teacher... was out to make

him more independent. He was great, and we saw a great deal of change in our Son. Possitive change, but his frustraions were getting him into trouble!! He was so angery all the time, and we were experiencing alot of temper out burts, and tantrums. He was also very loney, and just wanted a friend. He knew he was different from other kids in his class, he was always the one being left off party lists.... and this really up set him.We have sinced moved away, My Husband was offered an over seas transfer. We had to consider ... So we flew him out here, so he was able to see the school, house and Island. ( As these children really don't cope with change) He was very grown up about it, and saw it as a fun trip. He set an exam (FOR THE FIRST TIME) in his life... and passed with flying colours!! He fell in love with the school, and told my Husband... this was where he wanted to go to school.

He stated he felt safe, and would be happy here!We have been here (Bahamas) for the past 11 mnths, Josh is doing GREAT!!!! His education is coming along great.... he has managed to come out with A's and B's in his exams. He still has problems, but the class sizes are no bigger than 8 students. So the Teacher is able to give him that extra bit of attention. The school is very understanding, and has been a pool of knowledge. He does very well in Exams, but he just struggles in the daily class room studies, his mind wonders... and finds it so very hard to complete things, and focus to remain in the task! Does anyone have the same problems?We have also just had our Daughter (Georgia) diagnosed with ADHD... so we are waiting for the next step...things are very tricky at home. Josh and Georgia simply can't get along, they are constantly fighting, arguing... hitting, screaming... and trying to

kill oneanother... Things are so very bad!Reward systems no longer work, taking toys and previlidges away (eg watching tv, playing computers) no longer work, we have tried everything...I have tried diets to control behaviour, the guten free diet, dairy free, we stay clear of MSG, food additives, food colours and sugar.... But to be honest we have seen no improvments!We have tried herbal remodies, but we haven't seen any change.I just want my children to be happy, and right now... home isn't happy, the children are so angry and scream and fight. I just want my family to get alone, it's really getting me down right now. I have always been so possitive! Can anyone help.... Please xxxx x No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.430 / Virus

Database: 268.14.5/534 - Release Date: 11/14/2006 3:58 PM A great teacher never strives to explain his vision - he simply invites you to stand beside him and see for yourself.... The Rev. R. Inman Children are likely to live up to what you believe of them - Lady Bird Treat a child as though he already is the person he's capable of becoming - Haim Gnott

Sponsored LinkMortgage rates near 39yr lows. $510,000 Mortgage for $1,698/mo - Calculate new house payment

November 16, 2006

, I understand where you are coming from, it sounds ALOT like our household a few years ago. Then I got my dd correctly diagnosed and on meds and it is night and day! I do not agree with just "throwing meds" at problems and had to be convinced to go this route but it has been so wonderful for my dd AND the rest of the family. She is not a different person or a zombie, she is simply as I put it "Elissa on a good day" most of the time now. Her dx are adhd, odd, bipolar and AS. She takes adderall xr for the adhd/calming etc, she takes Namenda for the AS which is a great med since it has NO sideaffects, it either works or doesn't but nothing negative goes along with it. That is to help with obsessing, helping them with clarity of thought etc and Abilify for her bipolar. That one is new so we will have to see..... I do not let her use her condition or meds as a crutch for example "I can't help it, I didn't have my meds...." I say, nope kiddo, you still know right from

wrong without them, you just need to think a little harder to remember and act correctly. I know many people have had negative experiences with meds and as I said, I am not a "med mommy" usually try all I can before resorting to them BUT it really was the correct choice for our family and it reduced the violence and fighting to almost nothing. (well no more than a nt family has anyway! lol, kids do fight) but it is arguments now without the dangers and physical violence for the most part. I hope this helps somewhat, just another perspective. BTW, Namenda's label purpose is to treat Alzheimers but our docs here alone have over 800 kids on it who are on the spectrum. It affects the same regions of the brain in both conditions. (we are in Iowa so not a huge population so 800 kids through one office on the meds is ALOT! lol) Good luck and God bless! DeeDee Martel

<martel.family@...> wrote: I would just like to say hi to everyone,And thanks so very much for letting me join.I would just like to introduce myself... My name is rachel (33 year old house-wife) To three very precious children.Josh (Aged 12) Dignosed with Asperger's at the age of 8 years, Georgia (aged nearly 8 years) recently diagnosed with ADHD... last but not least we have Harry (who is 3) and soaking up everything like a a sponge!I would like to share stories and experiences with

others, as I feel that we Mothers, Father's, Grandparents here... truly know, how to deal with these experiences.... as after all, we are the ones coping and living with these daily challenges.I am having a great deal of issuses at the moment, with both my Eldest (Aspergers child) and my Middle Child (with ADHD)... They both have so much anger and frustrations within them, neither of my children are on medications... Because I was told by my last Heath Care professionals that there was no treatment/drugs available for Aspergers (It was just something that we would have to deal with as a family) We recieved very little support to be quit honest! He remained in main stream school, and struggered so much! He is a really intelliegent child, and he was so frustraited (As he knew so very much, but had difficulties in getting his ideas down on the paper) He was then offered a full time support, she would act as his

scrib, and sit with him during lessons. This was GREAT! But in the long run, made him very lazy.... as she would write everything for him!! He then moved on to another school, due to moving house.... He was offered again support, and this support teacher... was out to make him more independent. He was great, and we saw a great deal of change in our Son. Possitive change, but his frustraions were getting him into trouble!! He was so angery all the time, and we were experiencing alot of temper out burts, and tantrums. He was also very loney, and just wanted a friend. He knew he was different from other kids in his class, he was always the one being left off party lists.... and this really up set him.We have sinced moved away, My Husband was offered an over seas transfer. We had to consider ... So we flew him out here, so he was able to see the school, house and Island. ( As these children really don't cope with change) He

was very grown up about it, and saw it as a fun trip. He set an exam (FOR THE FIRST TIME) in his life... and passed with flying colours!! He fell in love with the school, and told my Husband... this was where he wanted to go to school. He stated he felt safe, and would be happy here!We have been here (Bahamas) for the past 11 mnths, Josh is doing GREAT!!!! His education is coming along great.... he has managed to come out with A's and B's in his exams. He still has problems, but the class sizes are no bigger than 8 students. So the Teacher is able to give him that extra bit of attention. The school is very understanding, and has been a pool of knowledge. He does very well in Exams, but he just struggles in the daily class room studies, his mind wonders... and finds it so very hard to complete things, and focus to remain in the task! Does anyone have the same problems?We have also just had our Daughter (Georgia) diagnosed

with ADHD... so we are waiting for the next step...things are very tricky at home. Josh and Georgia simply can't get along, they are constantly fighting, arguing... hitting, screaming... and trying to kill oneanother... Things are so very bad!Reward systems no longer work, taking toys and previlidges away (eg watching tv, playing computers) no longer work, we have tried everything...I have tried diets to control behaviour, the guten free diet, dairy free, we stay clear of MSG, food additives, food colours and sugar.... But to be honest we have seen no improvments!We have tried herbal remodies, but we haven't seen any change.I just want my children to be happy, and right now... home isn't happy, the children are so angry and scream and fight. I just want my family to get alone, it's really getting me down right now. I have always been so possitive! Can anyone help.... Please xxxx

x

Sponsored Link Mortgage rates as low as 4.625% - $150,000 loan for $579 a month. Intro-*Terms

March 2, 2007

Welcome to the group. I also have a set of twins but

they are almost 16 years old.

Cassie

--- kcvpcv <kcvpcv@...> wrote:

> Hello everyone,

>

> I have twin 5 year old boys with IGG subclass def,

> amongst other

> problems. We have been doing sub-q vivaglobin for 3

> months now (we

> did IVIG prior). Can't believe I didn't know this

> group existed until

> recently.

>

> Kris

> Cole and Zack

>

www.marykay.com/cassieredinger

May 24, 2007

Hi and welcome to the group......

I also have the blood proglems and had to have some iron fusioins and more lab tests and then off to hemologist and they still dont know why i keep running so low on iron but i have lupus and sjogrens syndrome and it all is an autoimmune for me and i was also tested for celiac and dont have it. i know it gets oldbut go for it with the tests and remember the more is better is impotant if you get reviewed for your ssd.

keep us all posted

hugs to you Colleen C************************************** See what's free at http://www.aol.com.

May 25, 2007

hi

thanks alot! I will get the tests done soon. According to some doctors

and the book Going Against the Grain even if you test negative for

celiac you can still possibly have gluten intolerance causing immune

problems. there is a test for it at www.enterolab.com its the most

sensitive new test for it, its 99.00 and reimbursable by some

insurances. one of my sons has it and the other is celiac and since

avoiding wheat they are both much better

>

> Hi and welcome to the group......

>

> I also have the blood proglems and had to have some iron fusioins

and more

> lab tests and then off to hemologist and they still dont know why i

keep running

> so low on iron but i have lupus and sjogrens syndrome and it all is an

> autoimmune for me and i was also tested for celiac and dont have it.

i know it gets

> oldbut go for it with the tests and remember the more is better is

impotant

> if you get reviewed for your ssd.

> keep us all posted

> hugs to you Colleen C

>

> **************************************

> See what's free

> at http://www.aol.com.

>

May 10, 2008

Hi -

I just wanted to comment on the color of your daughter's skin when she fevers.

My daughter's hands/fingers and lips turn purplish blue when her fever is about

to spike as well. She has been doing this since she was 16 months old. It can

be so scary to see them that color.

There have been times when she fevered close together, but then they seem to

spread out to about 3-5 weeks. She just ended her longest break, August 2007 -

April 2008. I almost forgot how lousy she feels when she fevers, not herself at

all. I gave her the steroid and Motrin and within a couple of hours her fever

went away and she was back to being the happy, talkative 4 1/2 year old she

usually is.

I wish you all the best at the doctor's next week. This is a great site with a

wealth of information. Welcome.

Lynn

May 10, 2008

Hi -

I just wanted to comment on the color of your daughter's skin when she fevers.

My daughter's hands/fingers and lips turn purplish blue when her fever is about

to spike as well. She has been doing this since she was 16 months old. It can

be so scary to see them that color.

There have been times when she fevered close together, but then they seem to

spread out to about 3-5 weeks. She just ended her longest break, August 2007 -

April 2008. I almost forgot how lousy she feels when she fevers, not herself at

all. I gave her the steroid and Motrin and within a couple of hours her fever

went away and she was back to being the happy, talkative 4 1/2 year old she

usually is.

I wish you all the best at the doctor's next week. This is a great site with a

wealth of information. Welcome.

Lynn

May 11, 2008

My Doctor told us that the blue color is because the blood in the body gathers

around the organs to protect from the heat. Because the organs are in the torso

the blood leaves the extremities turning them blue,(much like freezing).

Steve.

May 11, 2008

My Doctor told us that the blue color is because the blood in the body gathers

around the organs to protect from the heat. Because the organs are in the torso

the blood leaves the extremities turning them blue,(much like freezing).

Steve.

May 11, 2008

My Doctor told us that the blue color is because the blood in the body gathers

around the organs to protect from the heat. Because the organs are in the torso

the blood leaves the extremities turning them blue,(much like freezing).

Steve.

May 11, 2008

Thank you so much for your response. It is so very scary to watch how their

bodies and personalities change when they are going through an episode. My

daughter is in the middle of an episode at the moment, and after all we have

been through, it is still so difficult to see her this way.

I am thankful and relieved that I found found this site - it is wonderful to

have people to talk with that truly understand what our family goes though.

Unless you live it, I don't think you can completely comprehend what it is like.

Happy Mother's Day!

May 11, 2008

Thank you so much for your response. It is so very scary to watch how their

bodies and personalities change when they are going through an episode. My

daughter is in the middle of an episode at the moment, and after all we have

been through, it is still so difficult to see her this way.

I am thankful and relieved that I found found this site - it is wonderful to

have people to talk with that truly understand what our family goes though.

Unless you live it, I don't think you can completely comprehend what it is like.

Happy Mother's Day!

May 11, 2008

Thank you so much for your response. It is so very scary to watch how their

bodies and personalities change when they are going through an episode. My

daughter is in the middle of an episode at the moment, and after all we have

been through, it is still so difficult to see her this way.

I am thankful and relieved that I found found this site - it is wonderful to

have people to talk with that truly understand what our family goes though.

Unless you live it, I don't think you can completely comprehend what it is like.

Happy Mother's Day!

May 11, 2008

Thanks for the info...I have yet to hear that. It provides some relief having an

idea of what is going on in the body

May 13, 2008

-------Original Message-------

From: lindajsnyder

Date: 13/05/2008 3:43:40 PM

My son was diagnosed last year with Asperger's (at first we were told

PDD, but the actual report stated Asperger's). He is now 18 and my

Husband has nagged him this whole year about his grades. I guess he's

Considered highly functioning, but he still has problems. My son will

Graduate soon, but he is failing 2 subjects and now he doesn't speak

To my husband. My husband gets mad when my son won't talk to him. I

Understand my son's point of view better than my husband's (maybe

Because I might have ASD as well??) My husband thinks he's lazy and

Can do the work, but I see him as having a disability. Am I babying

Him too much, or is husband overbearing?

*******************

K: YES!!! Swap around " father " and " mother " and you know what is

happening in our house. Because I have ASD I am likely to be too soft. The

problem is, sometimes he can't do it because he has a disability, and

sometimes he is just being lazy. Telling the difference is part science,

part intuition, and mostly just a matter of guessing - for you, his father

and for him. The solution is learning how to remove the things that stop

him being able to work. Nagging is the number one thing, so is letting him

get away with not trying. I have struggled with this all my life, and I

still don't know of anything that *always* works for me or my son. One way

that often works is offering a reward for success, so that he will be more

motivated to work. My son has been promised a Wii if he earns an award at

the end of the year, but we are also helping him save in case he doesn't get

an award so he can buy his own. So far it is working. Sometimes breaking

the work down into small sections helps. Sometimes making a list to work

through helps. The problem we have is that my son likes to work

sequentially, so if, in a 10 step process, he gets to number three and can't

complete it, he will not move on until it is done. That often takes a *lot*

of negotiating to work through so he can leave that step and move on. And

you need to remove distractions [computers and games being the usual

suspects] until the work is done. Our son can not use the computer until

his homework is done. If he is really stressed and can't work, we allow him

20-30 minutes to de-stress, and then the work has to be done. My wife

objects to that, but as it works, and I am the one home supervising him, it

happens Sometimes he is just too stressed by school to do anything, and

then we simply let him play his games. Because he knows that will happen,

he is very rarely too stressed. He has had permission for the last 18

months to take a day off school if he needs it to cope - so far he has taken

only one day. Knowing that he can if he needs to often makes it unnecessary

That is a big improvement over the previous years where he often had days

at a time off because he has a headache, a stomach ache, felt like he would

throw up, had a sore leg, arm, etc.

**************************

My son does not discuss emotional subjects.

*******************

K: This is unlikely to change, and if it does, it will most likely mean

listening to him for hours until he works around to these subjects. My wife

still complains about this on a regular basis. I hate the question " how do

you feel? " because I need to think about that question for a week or two

until I have some vague idea of how I do feel. Then I need another month of

processing to work out why Two things work for me and my son - long

drives at night and camping in the back yard. We'd prefer to do real

camping, but because of the drought, fires are not permitted in forests

except in the middle of winter, when we prefer not to be in a tent. We both

agree there is no point in camping if you can't make a camp fire We have

talked about staying in a cabin for the weekend, but so far that has not

been necessary.

*****************************

I've been thinking about family counseling. Has anyone done this?

Even though he was diagnosed last year, I still know nothing about

This and the school has been no help. They don't return our emails or

Our requests to meet with his teachers. I think because he is a

Senior, they have already " given up " on him.

Any thoughts will be appreciated.

in PA

*********************************

K: Most of the people who would be helpful are paediatricians, and at 18

there is sometimes reluctance to see one. If you know a psychologist who

specialises in autism or related issues, that can be helpful. The more your

son feels he is in charge of the process, the more likely he is to cooperate

If you and your husband learn about Aspergers, I suspect that most of your

problems will fade away over time. A hard lesson for fathers to learn is

that sometimes the best thing to do is just shut up and listen. Schools are

basically a lot of work, so if you can get him through this year without

bothering with the teachers, etc, it will be a lot easier for you. If you

use the Internet to read up on Aspergers, and borrow whatever books you can

find in your local libraries, you will probably end up knowing more than

most teachers anyway. Get your son to get involved in learning as well - it

s not that long before he will need to cope on his own, so the more he

learns the better. And as all of us are individuals, you're going to need

your son's input on just what applies in his case anyway. My son and I have

a lot in common, but in some areas we are very different. What works well

for me doesn't always work for him.

May 13, 2008

Welcome .

Sounds like you might need to ask the school if you need to get a lawyer for them to respond to you. Also maybe go directly to the superintendent of schools, for your town or area.

Gosh it's so hard when parents see things differently, and I think it's not about right or wrong; just what works best for the child/individual.

Although your son is probably a lot more capable than he is even letting himself know, nagging him obviously isn't working! Probably excusing him isn't the best either! I've certainly done both, (in other areas; my daughter was super-responsible about schoolwork).

If you can find a good counselor (and preferably -- for your finances -- one that medicaid will pay for, if he has medicaid) who respects parents, then you're in business!

I think the school district really has to be leaned on to provide him more services. Will he be able to graduate if he fails these classes. If not, does he want to repeat the year? Again, the school is failing him abysmally, and they need a kick in the butt (excuse my french!).

Sincerely,

Francine

In a message dated 5/13/2008 1:43:39 A.M. Eastern Daylight Time, lindajsnyder@... writes:

My son was diagnosed last year with Asperger's (at first we were toldPDD, but the actual report stated Asperger's). He is now 18 and myhusband has nagged him this whole year about his grades. I guess he'sconsidered highly functioning, but he still has problems. My son willgraduate soon, but he is failing 2 subjects and now he doesn't speakto my husband. My husband gets mad when my son won't talk to him. Iunderstand my son's point of view better than my husband's (maybebecause I might have ASD as well??) My husband thinks he's lazy andcan do the work, but I see him as having a disability. Am I babyinghim too much, or is husband overbearing? My son does not discussemotional subjects.I've been thinking about family counseling. Has anyone done this? Even though he was diagnosed last year, I still know nothing aboutthis and the school has been no help. They don't return our emails orour requests to meet with his teachers. I think because he is asenior, they have already "given up" on him.Any thoughts will be appreciated. in PA

epiousian = the expression of agapequite a bit more than enoughWondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food.

May 13, 2008

Welcome .

Sounds like you might need to ask the school if you need to get a lawyer for them to respond to you. Also maybe go directly to the superintendent of schools, for your town or area.

Gosh it's so hard when parents see things differently, and I think it's not about right or wrong; just what works best for the child/individual.

Although your son is probably a lot more capable than he is even letting himself know, nagging him obviously isn't working! Probably excusing him isn't the best either! I've certainly done both, (in other areas; my daughter was super-responsible about schoolwork).

If you can find a good counselor (and preferably -- for your finances -- one that medicaid will pay for, if he has medicaid) who respects parents, then you're in business!

I think the school district really has to be leaned on to provide him more services. Will he be able to graduate if he fails these classes. If not, does he want to repeat the year? Again, the school is failing him abysmally, and they need a kick in the butt (excuse my french!).

Sincerely,

Francine

In a message dated 5/13/2008 1:43:39 A.M. Eastern Daylight Time, lindajsnyder@... writes:

My son was diagnosed last year with Asperger's (at first we were toldPDD, but the actual report stated Asperger's). He is now 18 and myhusband has nagged him this whole year about his grades. I guess he'sconsidered highly functioning, but he still has problems. My son willgraduate soon, but he is failing 2 subjects and now he doesn't speakto my husband. My husband gets mad when my son won't talk to him. Iunderstand my son's point of view better than my husband's (maybebecause I might have ASD as well??) My husband thinks he's lazy andcan do the work, but I see him as having a disability. Am I babyinghim too much, or is husband overbearing? My son does not discussemotional subjects.I've been thinking about family counseling. Has anyone done this? Even though he was diagnosed last year, I still know nothing aboutthis and the school has been no help. They don't return our emails orour requests to meet with his teachers. I think because he is asenior, they have already "given up" on him.Any thoughts will be appreciated. in PA

epiousian = the expression of agapequite a bit more than enoughWondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food.

May 13, 2008

I think family counseling is necessaryAutism and Aspergers Treatment From: lindajsnyder@...Date: Fri, 25 Apr 2008 02:37:13 +0000Subject: New to the group...

My son was diagnosed last year with Asperger's (at first we were told

PDD, but the actual report stated Asperger's). He is now 18 and my

husband has nagged him this whole year about his grades. I guess he's

considered highly functioning, but he still has problems. My son will

graduate soon, but he is failing 2 subjects and now he doesn't speak

to my husband. My husband gets mad when my son won't talk to him. I

understand my son's point of view better than my husband's (maybe

because I might have ASD as well??) My husband thinks he's lazy and

can do the work, but I see him as having a disability. Am I babying

him too much, or is husband overbearing? My son does not discuss

emotional subjects.

I've been thinking about family counseling. Has anyone done this?

Even though he was diagnosed last year, I still know nothing about

this and the school has been no help. They don't return our emails or

our requests to meet with his teachers. I think because he is a

senior, they have already "given up" on him.

Any thoughts will be appreciated.

in PA

Get Free (PRODUCT) RED™ Emoticons, Winks and Display Pics. Check it out!

May 13, 2008

If your son goes to a public school you can request a meeting for him

, it has to be in written form. The school district has 60 days to

respond which unfortunately might be more than what is left of the

school year. Will he graduate with failing 2 classes? Your husband

and yourself need to be informed on what Asperger's is and how that

might affect your son's behavior at home and at school. Your son may

need modifications, accomations to help him with the school work.

Please look into s law. Try not to get between your son and

your husband, or take sides. Your son is 18 right? What are his/your

plans for him after he graduates. He if is living at home a counselor

may help with the situation, especially one that has knowledge of

Autism spectrum. The public school system is suppose to provide help

with transitioning to adult living up to the age of 21 (may now be 22

not sure if the law was changes). Good Luck, Sue

>

> My son was diagnosed last year with Asperger's (at first we were told

> PDD, but the actual report stated Asperger's). He is now 18 and my

> husband has nagged him this whole year about his grades. I guess he's

> considered highly functioning, but he still has problems. My son will

> graduate soon, but he is failing 2 subjects and now he doesn't speak

> to my husband. My husband gets mad when my son won't talk to him. I

> understand my son's point of view better than my husband's (maybe

> because I might have ASD as well??) My husband thinks he's lazy and

> can do the work, but I see him as having a disability. Am I babying

> him too much, or is husband overbearing? My son does not discuss

> emotional subjects.

>

> I've been thinking about family counseling. Has anyone done this?

> Even though he was diagnosed last year, I still know nothing about

> this and the school has been no help. They don't return our emails or

> our requests to meet with his teachers. I think because he is a

> senior, they have already " given up " on him.

>

> Any thoughts will be appreciated.

> in PA

>

November 19, 2009

Welcome welcome! I am so pleased to meet you, even if by electronic media. I

live in Washington State, where it is currently raining! Imagine that!!!!

I have been a listener since last spring.Â Right now I am on a plateau which is

ok because my body is adjusting to the new lower weight. these 10lbs will melt

away like last year's snow did!

An artist? I am in awe I live in my right brain!

Lori

Amazing day

From: Marie-Dominique Dervil <divadaddy1022@...>

Subject: New to the Group...

" IOWL " <weightloss >

Date: Wednesday, November 18, 2009, 4:40 PM

Â

Hello all! I just wanted to introduce myself. My name is Marie-Dominique,

and I am a 31 year old artist living in Connecticut. I recently just happened

upon the IOWL podcasts while on I-tunes, and have been hooked since.

I've struggled with my weight my entire life but never though I would get this

big. I am 5'1 " and currently tip the scale at nearly 200lbs. Not that anyone

really needs to know that I just thought I'd give a point of reference.

Anywho...I just wanted to say how very pleased I am to now be a part of the IOWL

community. Since I've begun listening to the podcasts I have come to the

realization that I can and will achieve my goal weight. I had, before finding

the IOWL podcasts, pretty much resigned myself to being unhappy with my

self-image. I now know otherwise and believe without a doubt that everyday I'm

getting that much closer to my goal. The best part is that for the first time it

doesn't feel like work! IOWL IS AWESOME! I look forward to sharing with and

learning from all of you.

November 19, 2009