Guest guest Posted September 26, 2005 Report Share Posted September 26, 2005 Ernie, if you log onto /hyperaldosteronism and look under files you will see several articles from Dr. Grim. That is what I am doing right now. I think the article he means is Grim Evol PA 50324.pdf. -- Re: Re: K-sparing diuretics Hi Dr Grim,We don't eat licorice and I am not aware of people having short fingers in my family.I have my geneolgy starting in 10 generations ago.Which of your article I should bring to my internist?Thanks for offering to call my internist. I will give him your offer next week.My brother's path report:Cardiac findings included cardiac hypertrophy with a mass of 615 gm (male average for 180 cm height = 340 gm +/- 40gm, 1 SD). The left ventricle was symmetrically hypertrophic without ventricular dilation. Histologically there was extensive interstitial fibrosis in the myocardium with massive hypertrophic myoctypes and significant myocyte dropout. There were also regions with prominent disarray of myocyte bundles. Together these findings support the diagnosis of hypertrophic cardiomyopathy. The combination of hypertrophic cardiomyopathy, coronory artery disease, and hypertension would be expected to have predisposed Mr X to cardiac failure. The existence of pulmonary edema further supports this conclusion.Mr X did have very large adrenal glands. The left adrenal gland was 21 gm and the right 15 gm (average male gland = 9.7 gm each). Histologically, the adrenal gland showed no identifable pathologic changes. The significance of the size of his adrenal glands is not clear, however, it would be interesting to note whether of not enlarged adrenal glands correlate with high plasma catecholamines levels in this syndrome.Ernie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2005 Report Share Posted September 26, 2005 Good lord, . A pinched nerve? That sounds like a quacky thing to say in the face of your symptoms. Dave On Sep 26, 2005, at 2:57 PM, S. wrote: > Ok TIA is a new term for me, I'll look that up. I don't think anyone > has ever thought I had a stroke...what type of tests would they run? > I have had an echocardiogram, thallium study (chemical not exercise > because I pass out), ultrasound of my legs, and blood work out the > wazoo. So far my heart seems to be fine from those tests and they > were done in July. Am I not a bit young for a stroke? I always > thought they were more an issue for senior citizens. > > There is a website for orthostatic HTN? I have never looked. This > was a new dx my last visit to my nephrologist thought it was the > case and my endo confirmed it. I had a 40+ variation in BP from > standing and lying positions. I just can't understand how I can tumble > into such poor health so fast. I have always been " sickly " and caught > everything that I was exposed to but this is ridiculous. > > My familly does have a very serious cardiac history but it struck > older ages. My maternal grandfather passed away overnight from a > massive heart attack at 54 (right after passing a FAA physical the day > before) and my grandmother in her early 70s. My grandfather was a > heavy smoker as well. My paternal grandfather passed from a " brain > tumor " in 1948 and paternal grandmother was classified as a > severe (type 1) diabetic and died young from complications of > diabetes. My parents are in their mid 60s and have HTN, high > cholesterol, obesity and mom has malignant melanoma but they are in > decent health otherwise. My sister is obese but fine as far as I > know. > > I guess I need to look up the risk factors for a stroke. I know my > aunt had a stroke in her 40s but that was because of lifestyle issues > I was told. She is now in her late 50s. > > Hrmmm. I was afraid a doctor wouldn't take me seriously with my > symptoms. They seemed so goofy. I was guessing a pinched nerve. > > > (no caffeine, no smoking or alcohol) > > -- Re: K-sparing diuretics > > > In a message dated 9/26/05 4:17:16 PM, friday@... writes: > > > I had a weird occurrence last week. Have you ever had half your body > go numb (not pins and needles but just like novocaine not there > numb)? My entire right side was without feeling and felt heavy but > did move for about 20 hours and was extremely weak. I didn't go to > the ER but my PCP gave me the riot act for not going. He said I > needed an MRI or CT. Oops. I don't know what that was all about but > I hope it doesn't happen again. > > > You may have had a TIA which is a warning of an on coming stroke. Next > time go to the ER and It would still be good to get the tests if you > have never had one-esp is anyone has ever thoughtyou had a stroke. > > Have you been to the for orthostatic HTN? I cant recall the site now > but there is a national organization. with at good site.May be under > the name automatic nervous system dysfunction or autonomic > dysfunction. > > > > May your pressure be low! > > Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS > Clinical Professor of Medicine and Epidemiology > Director, Hypertension Diagnosis and Treatment Center > Board Certified in Internal Medicine, Geriatrics and Hypertension > > Published over 220 scientific papers, book chapters and 220 abstracts > in the area of high blood pressure epidemiology, physiology, > endocrinology measurement, treatment and how to detect curable causes. > Listed in Best Doctors in America > Specializing in Difficult to Control High Blood Pressure and the > History and Physiology of High Blood pressure in the African Diaspora > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2005 Report Share Posted September 26, 2005 Hi Dr Grim, Sorry I misunderstood your question on pedigree. My father died of a heart attack. He was 72 years old, had diabetes (amputated of both legs), hypertension, oedema on the lungs, arterosclerosis, cirrhosis of the liver (with no alcohol consumption), His kidneys were atrophied (I am sorry but the autopsy report is in French and I have a hard time finding the English medical word). It says something like sclerosis of the arteries. Hypertrophy of the heart, sclerosis of myocardium, sclero-emphysema of the lungs, eodema of the (viscère - French)? My father's sister died at 77 years old of cholecystite, lithiasis of gall bladder, adenocardionome of gall bladder. She had a heart attack before and generalised and cerebral arterioclerosis. My paternal grandmother died of a heart attack at 75 years old. Many of my father's sibbling died of heart attack but I don't have a copy of the autopsy report so I don't know more about them. My brother who died last year also had leg pain and would sometimes eat 6 bananas per day. His son is only 14 years old and has leg pain and his legs turn blue when he sits or stands. I don't know if he had potassium problems. Mine got undiagnosed for 30 years so who knows for him! I know one of my paternal cousin has problem with potassium and muscle weakness. When it gets too low she faints so she eats one banana per day. Another of my cousin has muscle weakness but I don't know if she has potassium problems. She has many disgestive issues. One of my sister has muscle weakness. If the slides exists (do you mean something like pictures?) you can have a look at them. Just tell me how to proceed. They could have missed something because I think that my problem is very complicated and rare and only a few experts can find it. Ernie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2005 Report Share Posted September 26, 2005 Hi Thanks for sharing your experience. Your story is so sad. I had tears while reading it. I am so sorry for you. I surely hope that doctors will help you get your quality of life back. I also have high cortisol (x3 above the normal high). Howne do they know you have permanent muscle weakness/wasting? Have you been tested? I have not notice that carbs make me paralyse but I have hypoglycemia. At least that's what I was told 20 years ago. When I paralyze I feel like I was given a paralyzing drug. I want to move my body but nothing will respond. I cannot open my eyes or talk. I don't feel pain but I can feel the cold floor. I don't feel heavy. I just know I have to wait it off until my body will start moving again. I think you should get checked by a doctor for the episode you had the other day. At first the potassium pills gave me upset stomach but now I am taking Pantoloc and my stomach is doing OK with the salt and potassium. I am taking Midodrine every 4 hours and that is what keeps me conscious. I cannot stand up without it. I have no side effects on it beside itchy scalp. I have extremelly high adrenaline level and my BP just crashes without warning when I stand a few seconds. Love Ernie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2005 Report Share Posted September 26, 2005 Ernie, the sad thing is we sound a lot alike. Do you mind sharing your age? I have struggled with doctors studying my case all over the country and was misdiagnosed with my Cushing's Disease as everything but. The most common thing I was told was "eat less, exercise more and see a psychiatrist". I was gaining 20 lbs a month on an 1800 calorie ADA diet and exercising as much as my body would tolerate. Most of the endocrinologists I saw attributed my condition to either female hysteria, stress etc. This was from doctors in 3 states until I got to California (from Ohio) to a pituitary specialist who found me in a very dire state. Thankfully he found my problem and it's been a slippery slope since. I believe my memory has been permanently damaged (no clinical diagnosis of that) and my body just seems to fail one part after another. My muscles have been evaluated by a rheumatologist I have been on the quest of finding out why my kidneys are in the state they are and so far my symptoms are vague enough they can fit dozens of issues both psychiatric and physical. I have really messed up labs, I am also just recently hypoglycemic (from a type 2 diabetic who had glucose in the 300 range on meds), my hypertension turned 180 degrees to hypotension along with the massive loss of potassium so somewhere something is messed up in my body. My legs when paralyzed just wouldn't move either and if I tried to force the issue they just folded under me. I never lost use of anything above my waist thankfully or I think I would lose my mind. Potassium is very hard on your stomach that is for certain. High adrenaline almost sounds like your adrenals are in overdrive. That is how I felt with my cortisols being high. I was as high as 6x normal. I was misdiagnosed at one point bipolar because I was up for a week and down for a few days, back up etc. Thankfully that issue seems to be resolved after removing the pituitary tumors, now to tackle the latest. Has the doctor done an MRI or CT of your adrenals? I would also look here to see if any of the symptoms of Cushing's fit. http://www.cushings-help.com/symptoms.htm It doesn't sound like it fits but it's good to understand the symptoms of high cortisol at least. Are you in the US? -- Re: K-sparing diuretics Hi Thanks for sharing your experience.Your story is so sad. I had tears while reading it. I am so sorry for you. I surely hope that doctors will help you get your quality of life back.I also have high cortisol (x3 above the normal high). Howne do they know you have permanent muscle weakness/wasting? Have you been tested?I have not notice that carbs make me paralyse but I have hypoglycemia. At least that's what I was told 20 years ago.When I paralyze I feel like I was given a paralyzing drug. I want to move my body but nothing will respond. I cannot open my eyes or talk. I don't feel pain but I can feel the cold floor. I don't feel heavy. I just know I have to wait it off until my body will start moving again.I think you should get checked by a doctor for the episode you had the other day.At first the potassium pills gave me upset stomach but now I am taking Pantoloc and my stomach is doing OK with the salt and potassium.I am taking Midodrine every 4 hours and that is what keeps me conscious. I cannot stand up without it. I have no side effects on it beside itchy scalp. I have extremelly high adrenaline level and my BP just crashes without warning when I stand a few seconds.LoveErnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2005 Report Share Posted September 26, 2005 Hi Dr Grim, I asked my endo last week if he thinks I have periodic paralysis and he said no because I am improved with eating and pp is triggered by eating. I have never been tested for it. I will call the hospital that did the autopsy to find out about the adrenal slides. Ernie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2005 Report Share Posted September 26, 2005 You'd have to know the treatment I've had at my local "world class" hospital. I had a neurologist look at me and tell me I was on 23 medications and that I was a junkie and needed to go elsewhere to get my fix. He never bothered to look at the meds, none of them were pain meds, all either vitamins or mineral supplements, replacement hormones, and required meds for adrenal insufficiency and medication for depression and anxiety. I was there for a splitting headache that was corrected with potassium, magnesium and depakote under the care of a different neurologist. I am told coming off steroid (cortisol) is worse than kicking a heroine addiction. I can't say what that's like but getting off cortisone was very hard. Yes I did report him to the hospital and medical board. This is also the same hospital that watched me struggle with hypokalemia for 5 months and never searched for a reason...they would fill me up and send me home. I was in that hospital at least every 10-14 days for infusions and they never looked despite requests from my PCP, me and my husband. I saw the same physicians 4-5 times with potassium levels in the 2.5 or less range and they just patched the problem and never tried to help. It took going to UCLA again (back to my original doc) to find out everything I know today about my kidneys, aldosterone/renin etc. That is why I was so reluctant to go. -- Re: K-sparing diuretics > > > In a message dated 9/26/05 4:17:16 PM, friday@... writes: > > > I had a weird occurrence last week. Have you ever had half your body > go numb (not pins and needles but just like novocaine not there > numb)? My entire right side was without feeling and felt heavy but > did move for about 20 hours and was extremely weak. I didn't go to > the ER but my PCP gave me the riot act for not going. He said I > needed an MRI or CT. Oops. I don't know what that was all about but > I hope it doesn't happen again. > > > You may have had a TIA which is a warning of an on coming stroke. Next > time go to the ER and It would still be good to get the tests if you > have never had one-esp is anyone has ever thoughtyou had a stroke. > > Have you been to the for orthostatic HTN? I cant recall the site now > but there is a national organization. with at good site.May be under > the name automatic nervous system dysfunction or autonomic > dysfunction. > > > > May your pressure be low! > > Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS > Clinical Professor of Medicine and Epidemiology > Director, Hypertension Diagnosis and Treatment Center > Board Certified in Internal Medicine, Geriatrics and Hypertension > > Published over 220 scientific papers, book chapters and 220 abstracts > in the area of high blood pressure epidemiology, physiology, > endocrinology measurement, treatment and how to detect curable causes. > Listed in Best Doctors in America > Specializing in Difficult to Control High Blood Pressure and the > History and Physiology of High Blood pressure in the African Diaspora > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2005 Report Share Posted September 26, 2005 Food supplements can play havoc with the renal-adrenal-angiotensin system. Many with PA can't use them at all, relying instead upon something as well-grounded as DASH diet. They skew all results that doctors rely on, regardless of anyone's philosophy. Without them for a few months, my pharmo research pals say, you can be diagnosed. With them, it is shooting in the dark. The base diet is the only one in the world that received large sample testing, fine-tuning and good results. Maybe medicine should include supplements in all their testing protocalls, but the fact in practice is they don't. Potassium supplements are the same, if to a lesser degree. K-dur, etc is considered a short-term band-aid. Someone with angiotensin imbalance, funny electrolyte ratios (or " salts sensitivity " ) must find a longer term solution, any reasonable medico will tell you. I am interested to hear about the A/R ratio, and salt, sugar and cortisol. Dave On Sep 26, 2005, at 8:32 PM, S. wrote: > You'd have to know the treatment I've had at my local " world class " > hospital. I had a neurologist look at me and tell me I was on 23 > medications and that I was a junkie and needed to go elsewhere to get > my fix. He never bothered to look at the meds, none of them were pain > meds, all either vitamins or mineral supplements, replacement > hormones, and required meds for adrenal insufficiency and medication > for depression and anxiety. I was there for a splitting headache that > was corrected with potassium, magnesium and depakote under the care of > a different neurologist. I am told coming off steroid (cortisol) is > worse than kicking a heroine addiction. I can't say what that's like > but getting off cortisone was very hard. Yes I did report him to the > hospital and medical board. > > This is also the same hospital that watched me struggle with > hypokalemia for 5 months and never searched for a reason...they would > fill me up and send me home. I was in that hospital at least > every 10-14 days for infusions and they never looked despite requests > from my PCP, me and my husband. I saw the same physicians 4-5 times > with potassium levels in the 2.5 or less range and they just patched > the problem and never tried to help. It took going to UCLA again > (back to my original doc) to find out everything I know today about my > kidneys, aldosterone/renin etc. > > That is why I was so reluctant to go. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2005 Report Share Posted September 26, 2005 Dave are you talking about my levels or just in general? I have been off all supplements now for 2 months. I am literally down to potassium (because I don't have a choice), 1G salt, thyroid meds, growth hormone and benedryl. Everything from here on should be the real deal. The docs have stripped everything as far as I'm concerned. They plan to add in the near future metformin (high insulin), some sort of cholesterol med and probably an antidepressant but haven't so far. I am waiting for labs drawn a week ago last Friday. -- Re: K-sparing diuretics Food supplements can play havoc with the renal-adrenal-angiotensin system. Many with PA can't use them at all, relying instead upon something as well-grounded as DASH diet. They skew all results that doctors rely on, regardless of anyone's philosophy. Without them for a few months, my pharmo research pals say, you can be diagnosed. With them, it is shooting in the dark. The base diet is the only one in the world that received large sample testing, fine-tuning and good results. Maybe medicine should include supplements in all their testing protocalls, but the fact in practice is they don't. Potassium supplements are the same, if to a lesser degree. K-dur, etc is considered a short-term band-aid. Someone with angiotensin imbalance, funny electrolyte ratios (or "salts sensitivity") must find a longer term solution, any reasonable medico will tell you. I am interested to hear about the A/R ratio, and salt, sugar and cortisol. Dave On Sep 26, 2005, at 8:32 PM, S. wrote: > You'd have to know the treatment I've had at my local "world class" > hospital. I had a neurologist look at me and tell me I was on 23 > medications and that I was a junkie and needed to go elsewhere to get > my fix. He never bothered to look at the meds, none of them were pain > meds, all either vitamins or mineral supplements, replacement > hormones, and required meds for adrenal insufficiency and medication > for depression and anxiety. I was there for a splitting headache that > was corrected with potassium, magnesium and depakote under the care of > a different neurologist. I am told coming off steroid (cortisol) is > worse than kicking a heroine addiction. I can't say what that's like > but getting off cortisone was very hard. Yes I did report him to the > hospital and medical board. > > This is also the same hospital that watched me struggle with > hypokalemia for 5 months and never searched for a reason...they would > fill me up and send me home. I was in that hospital at least > every 10-14 days for infusions and they never looked despite requests > from my PCP, me and my husband. I saw the same physicians 4-5 times > with potassium levels in the 2.5 or less range and they just patched > the problem and never tried to help. It took going to UCLA again > (back to my original doc) to find out everything I know today about my > kidneys, aldosterone/renin etc. > > That is why I was so reluctant to go. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 In a message dated 9/26/05 11:44:21 PM, friday@... writes: They plan to add in the near future metformin (high insulin), some sort of cholesterol med and probably an antidepressant but haven't so far. If you DASHed you would not likely need metformin. If your BMI is above 25 would recommend you see if SSHE is in your area. SSHE.com May your pressure be low! Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS Clinical Professor of Medicine and Epidemiology Director, Hypertension Diagnosis and Treatment Center Board Certified in Internal Medicine, Geriatrics and Hypertension Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes. Listed in Best Doctors in America Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 In a message dated 9/26/05 11:28:12 PM, dave@... writes: Food supplements can play havoc with the renal-adrenal-angiotensin system. Many with PA can't use them at all, relying instead upon something as well-grounded as DASH diet. They skew all results that doctors rely on, regardless of anyone's philosophy. Without them for a few months, my pharmo research pals say, you can be diagnosed. With them, it is shooting in the dark. The base diet is the only one in the world that received large sample testing, fine-tuning and good results. Maybe medicine should include supplements in all their testing protocalls, but the fact in practice is they don't. Potassium supplements are the same, if to a lesser degree. K-dur, etc is considered a short-term band-aid. Someone with angiotensin imbalance, funny electrolyte ratios (or "salts sensitivity") must find a longer term solution, any reasonable medico will tell you. I am interested to hear about the A/R ratio, and salt, sugar and cortisol. Dave On Sep 26, 2005, at 8:32 PM, S. wrote: > You'd have to know the treatment I've had at my local "world class" > hospital. I had a neurologist look at me and tell me I was on 23 > medications and that I was a junkie and needed to go elsewhere to get > my fix. He never bothered to look at the meds, none of them were pain > meds, all either vitamins or mineral supplements, replacement > hormones, and required meds for adrenal insufficiency and medication > for depression and anxiety. What he should have said is what you need is a doctor and I am not one. I was there for a splitting headache that > was corrected with potassium, magnesium and depakote under the care of > a different neurologist. I am told coming off steroid (cortisol) is > worse than kicking a heroine addiction. I can't say what that's like > but getting off cortisone was very hard. Yes I did report him to the > hospital and medical board. > > This is also the same hospital that watched me struggle with > hypokalemia for 5 months and never searched for a reason...they would > fill me up and send me home. I was in that hospital at least > every 10-14 days for infusions and they never looked despite requests > from my PCP, me and my husband. I saw the same physicians 4-5 times > with potassium levels in the 2.5 or less range and they just patched > the problem and never tried to help. It took going to UCLA again > (back to my original doc) to find out everything I know today about my > kidneys, aldosterone/renin etc. Please report this to the medical lic board to protect future patients. > > That is why I was so reluctant to go. > > May your pressure be low! Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS Clinical Professor of Medicine and Epidemiology Director, Hypertension Diagnosis and Treatment Center Board Certified in Internal Medicine, Geriatrics and Hypertension Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes. Listed in Best Doctors in America Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 Recommend you and he go to Enterz PUBMED at NIH.gov and enter periodic paralysis in the search window and ask to show abstracts and you and he can better talk and figure out what you have. May your pressure be low! Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS Clinical Professor of Medicine and Epidemiology Director, Hypertension Diagnosis and Treatment Center Board Certified in Internal Medicine, Geriatrics and Hypertension Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes. Listed in Best Doctors in America Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 Sorry I spelled that wrong. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi Here is the med search site. Can someone put a link on our site to this? so all can use it. Hope your Drs do as well. May your pressure be low! Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS Clinical Professor of Medicine and Epidemiology Director, Hypertension Diagnosis and Treatment Center Board Certified in Internal Medicine, Geriatrics and Hypertension Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes. Listed in Best Doctors in America Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 Hi , Our histories sound similar. I have been complaining to doctors about my paralysis episodes for 30 years and they were telling it was because I was out of shape (and I was swimming 2 miles per day every day). They were also telling me I had a lot of imagination to come up with these symptoms. Are you able to control your weight now? I was told I had hysteria also by the top Canadian syncope specialist. I had to go to the States to get help. It is just so unbelievable. I had big memory problems but since I am taking salt and b-complex I am doing better. I hope they don't stick you again with a psychiatric disorder to justify your kidney problems! I have more than 10 hormones that out of whack and I don't even know the cause. Makes me worried because I don't know what I could find out. I have both hypertension and hypotension. My BP swings from high to low in seconds. I have stopped my potassium yesterday morning because I have a test on Thursday and I am having muscle pain and a headache. I am starting to have problems climbing one flight of stairs. Yes, my adrenals are in overdrive. I produce from 20-100 times the maximum normal amount of adrenaline. Nobody knows what's the cause. I always feel in hyperdrive. My cortisol is always high but not has high as the adrenaline. I am glad that they found what was wrong with you (vs bipolar). I don't think I am prejudiced against mental disorders but what I don't like is to be labelled with a mental disorder when the problem is physical and we don't get the proper treatment. I had no MRI or CT of my adrenals. I had the post decadron cortisol test and it was negative for adrenal tumor. I am in Canada. Take care Huguette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 I had this happen to me few months ago (before I was diagnosed with PA), right after taking Labetalol, a beta blocker my cardio. idiot gave me and insisted I had to take it. 2nd day of taking Lab. my bp suddenly went up, up, and up and had a sudden tingling in my right arm which very quickly spread to the entire right side of my body, totally numbing me and I could not move, my husband and I thought I was having a stroke or heart attack and called 911(my bp at that point was 300/160) and ambulance took me to the nearest ER. I was like that for a few hours but they never found out why. The doctor at the ER said I did not have a stroke and that it was because I was not getting enough oxygen. My K did not come out right and they did not bother to retake the . Just said that K was not correct due to error. A day later I was released and ended up at another hospital which confirmed my K was critically low and gave me K meds. for a couple of days. It was indeed a very scary feeling. I have not experienced it since thank God but have continued with tingling on my right arm that occasionally goes to my other arm and legs. My K each time has been around 4 with the tingling feeling, though I don't trust the work because they put a tight trinket on my arm and make me make a fist before they draw the . Without a triniket will not come out of my veins. lowerbp2@... wrote: In a message dated 9/26/05 4:17:16 PM, friday@... writes: I had a weird occurrence last week. Have you ever had half your body go numb (not pins and needles but just like novocaine not there numb)? My entire right side was without feeling and felt heavy but did move for about 20 hours and was extremely weak. I didn't go to the ER but my PCP gave me the riot act for not going. He said I needed an MRI or CT. Oops. I don't know what that was all about but I hope it doesn't happen again.You may have had a TIA which is a warning of an on coming stroke. Next time go to the ER and It would still be good to get the tests if you have never had one-esp is anyone has ever thoughtyou had a stroke. Have you been to the for orthostatic HTN? I cant recall the site now but there is a national organization. with at good site.May be under the name automatic nervous system dysfunction or autonomic dysfunction.May your pressure be low!Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHSClinical Professor of Medicine and EpidemiologyDirector, Hypertension Diagnosis and Treatment CenterBoard Certified in Internal Medicine, Geriatrics and HypertensionPublished over 220 scientific papers, book chapters and 220 abstracts in the area of high pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes.Listed in Best Doctors in AmericaSpecializing in Difficult to Control High Pressure and the History and Physiology of High pressure in the African Diaspora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 In a message dated 9/27/05 6:36:17 PM, farahbar@... writes: I had this happen to me few months ago (before I was diagnosed with PA), right after taking Labetalol, a beta blocker my cardio. idiot gave me and insisted I had to take it. 2nd day of taking Lab. my bp suddenly went up, up, and up and had a sudden tingling in my right arm which very quickly spread to the entire right side of my body, totally numbing me and I could not move, my husband and I thought I was having a stroke or heart attack and called 911(my bp at that point was 300/160) and ambulance took me to the nearest ER. I was like that for a few hours but they never found out why. The doctor at the ER said I did not have a stroke and that it was because I was not getting enough oxygen. My K did not come out right and they did not bother to retake the . Just said that K was not correct due to error. A day later I was released and ended up at another hospital which confirmed my K was critically low and gave me K meds. for a couple of days. It was indeed a very scary feeling. I have not experienced it since thank God but have continued with tingling on my right arm that occasionally goes to my other arm and legs. My K each time has been around 4 with the tingling feeling, though I don't trust the work because they put a tight trinket on my arm and make me make a fist before they draw the . Without a triniket will not come out of my veins. It is better to use the tourniquet but after the needle is in to release the T and wait one min before drawing blood-it they can. Some people this amy not work as no blood will flow. I would probably use a scalp vein needle. May your pressure be low! Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS Clinical Professor of Medicine and Epidemiology Director, Hypertension Diagnosis and Treatment Center Board Certified in Internal Medicine, Geriatrics and Hypertension Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes. Listed in Best Doctors in America Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 In a message dated 9/28/05 11:17:45 AM, farahbar@... writes: You mean a tourniquet? Dr Grim, what does this suggest? Dave Dont really have any good idea but must have been related to K problems. If the BB was short acting some will be rebound HTN before the next dose. Esp if on Clonicine at the same time (Catapres) May your pressure be low! Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS Clinical Professor of Medicine and Epidemiology Director, Hypertension Diagnosis and Treatment Center Board Certified in Internal Medicine, Geriatrics and Hypertension Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes. Listed in Best Doctors in America Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 In a message dated 9/28/05 11:17:45 AM, farahbar@... writes: You mean a tourniquet? Dr Grim, what does this suggest? Dave The B receptor blockers block the dilatory B receptors in the periphery. This leaves an unopposed alpha (vasoconstrictor) effect and can rarely aggravate HTN. It is the cause of BB Raynaud's as well. May your pressure be low! Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS Clinical Professor of Medicine and Epidemiology Director, Hypertension Diagnosis and Treatment Center Board Certified in Internal Medicine, Geriatrics and Hypertension Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes. Listed in Best Doctors in America Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 You mean a tourniquet? Dr Grim, what does this suggest? Dave On Sep 27, 2005, at 4:35 PM, Farah Rahbar wrote: > I had this happen to me few months ago (before I was diagnosed with > PA), right after taking Labetalol, a beta blocker my cardio. idiot > gave me and insisted I had to take it. 2nd day of taking Lab. my bp > suddenly went up, up, and up and had a sudden tingling in my right arm > which very quickly spread to the entire right side of my body, totally > numbing me and I could not move, my husband and I thought I was having > a stroke or heart attack and called 911(my bp at that point was > 300/160) and ambulance took me to the nearest ER. I was like that for > a few hours but they never found out why. The doctor at the ER said I > did not have a stroke and that it was because I was not getting enough > oxygen. My K did not come out right and they did not bother to retake > the . Just said that K was not correct due to error. A day later I was > released and ended up at another hospital which confirmed my K was > critically low and gave me K meds. for a couple of days. It was indeed > a very scary feeling. I have not experienced it since thank God but > have continued with tingling on my right arm that occasionally goes to > my other arm and legs. My K each time has been around 4 with the > tingling feeling, though I don't trust the work because they put a > tight trinket on my arm and make me make a fist before they draw the . > Without a triniket will not come out of my veins. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 Yap, sorry for mis-spelling.Dave <dave@...> wrote: You mean a tourniquet? Dr Grim, what does this suggest?DaveOn Sep 27, 2005, at 4:35 PM, Farah Rahbar wrote:> I had this happen to me few months ago (before I was diagnosed with > PA), right after taking Labetalol, a beta blocker my cardio. idiot > gave me and insisted I had to take it. 2nd day of taking Lab. my bp > suddenly went up, up, and up and had a sudden tingling in my right arm > which very quickly spread to the entire right side of my body, totally > numbing me and I could not move, my husband and I thought I was having > a stroke or heart attack and called 911(my bp at that point was > 300/160) and ambulance took me to the nearest ER. I was like that for > a few hours but they never found out why. The doctor at the ER said I > did not have a stroke and that it was because I was not getting enough > oxygen. My K did not come out right and they did not bother to retake > the . Just said that K was not correct due to error. A day later I was > released and ended up at another hospital which confirmed my K was > critically low and gave me K meds. for a couple of days. It was indeed > a very scary feeling. I have not experienced it since thank God but > have continued with tingling on my right arm that occasionally goes to > my other arm and legs. My K each time has been around 4 with the > tingling feeling, though I don't trust the work because they put a > tight trinket on my arm and make me make a fist before they draw the . > Without a triniket will not come out of my veins.> Quote Link to comment Share on other sites More sharing options...
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