Guest guest Posted June 24, 2007 Report Share Posted June 24, 2007 Hello to everyone - - I haven't posted here yet - but have been watching, reading since about January when I found out the baby I was carrying would (does) have Trisomy 21 (confirmed via Amnio) we were absolutely devastated and it took quite a while before I could bring up the courage to really start reading about it and really reading everyone's stories (both good and bad) I want to thank everyone here for all their personal story sharing as it has been a tremendous help to me to know there are such great support groups out there and that I " m not alone -- we feel so blessed to have with us now - - *we came home Friday* - and are truly kicking ourselves in the rear end for even THINKING we had a 'choice' to not bring him into this world, as the doctors constantly reminded us. It makes me cry to even think I could have thought that. But anyway - - I do now have a couple questions as we have been watching our new son for a few days - - - the nurses all said he has the 'markers' - so I asked one out of curiousity what she was seeing as his markers - she said definately his eyes - which I do agree - they are a bit almond and closer set - - but she said except for the simian crease that was about it - - the crease though is ONLY on his left hand! Is this an oddity? so far we can't see any other external markers - - will others become more pronounced as he is growing? Is there any reason to believe that with the fewer markers, that possibly he may have mosaic? we will be doing his genetic testing shortly as well as get him going with getting an assigned EI counselor - again I want to thank you all for your sharing as it has helped me prepare so much better than reading text books. Kindly Dekom Long Island , NY julz_5@... Quote Link to comment Share on other sites More sharing options...
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