Re: Hello, I'm a new member....

[Guest guest]

Welcome to the group. I don't post much on here......as a matter of

fact, I'm hoping my problems have been solved at least somewhat. I

had an adenoma on my left adrenal which was causing the blood pressure

surges. After many tests, it was decided that it would have to come

out (my adrenal gland that is). I had that removed on April 19th, and

have had a normal life again. Im off all BP meds except for a very

low dose of Lotrel (5 mg.),and Levoxyl. Im feeling so much better I

cant even describe to you the difference. Just know that there is

help out there, and the people in this group are a great help and

encouragement. Good luck with your CT.

> My name is Mike, and I've been very ill the past few years. I was

> originally diagnosed with mastocytosis (too many allergy cells),

> postural orthostatic tachycardia syndrome, and basilar migraines. I

> also have a metabolic defect (CPT-II) that makes processing fat

> diffucult for my muscles. Oh, and I have ulcerative colitis,

> sebhorreic dermatitis, and acne all over. No wonder the girls don't

> give me a second look! :-P

>

> Because of my incredible blood prressure surges, I was referred to a

> nephrologist. He did all sorts of tests, and now I found out that I

> have high aldosterone secretion with an aldosterone/renin ratio of

> 48. Yikes! He seems to be a very good doctor. I'm glad he's here

> for me.

>

> Well, that explaines my hypertensive episodes. I'm kind of scared.

> I'm expecially scared of aldactone--I don't want to be feminized by

> it!! :-P Fortunatley, there is Inspra... but that is expensive...

>

> I'm getting ahead of myself. Since I've been sick, I've learned

> lots of medicine. I will be getting a CAT scan soon where they will

> do a high-res scan of my adrenals. Hopefully something useful will

> come of it. Oh, I'm 32, BTW if that means anything.

>

> I've only read a few posts, but what you are describing so far

> sounds a lot like me!!!

>

> I probably will have lots of questions as time goes on. This is the

> only support group I could find related to this condition. Please

> bear with me. :-D

>

> Thanks,

>

> Mike

[Guest guest]

Hi Mike, and welcome to the group. This has been a great source of information and support for me, I'm sure it will be for you, too.

Hello, I'm a new member....

My name is Mike, and I've been very ill the past few years. I was originally diagnosed with mastocytosis (too many allergy cells), postural orthostatic tachycardia syndrome, and basilar migraines. I also have a metabolic defect (CPT-II) that makes processing fat diffucult for my muscles. Oh, and I have ulcerative colitis, sebhorreic dermatitis, and acne all over. No wonder the girls don't give me a second look! :-PBecause of my incredible blood prressure surges, I was referred to a nephrologist. He did all sorts of tests, and now I found out that I have high aldosterone secretion with an aldosterone/renin ratio of 48. Yikes! He seems to be a very good doctor. I'm glad he's here for me.Well, that explaines my hypertensive episodes. I'm kind of scared. I'm expecially scared of aldactone--I don't want to be feminized by it!! :-P Fortunatley, there is Inspra... but that is expensive...I'm getting ahead of myself. Since I've been sick, I've learned lots of medicine. I will be getting a CAT scan soon where they will do a high-res scan of my adrenals. Hopefully something useful will come of it. Oh, I'm 32, BTW if that means anything.I've only read a few posts, but what you are describing so far sounds a lot like me!!! I probably will have lots of questions as time goes on. This is the only support group I could find related to this condition. Please bear with me. :-DThanks,Mike

[Guest guest]

Keep us posted on the numbers. Aldo dose not usually cause spikes.

Mastocytosis may be assocaited with HTN if I am not mistaken. Well maybe portal HTN.

May your pressure be low!

Clarence E. Grim, BS, MS, MD, FACP, FACC

Professor of Medicine and Epidemiology

Board Certified in Internal Medicine, Geriatrics and Hypertension

Focusing on difficult to control high blood pressure and high cholesterol especially in the African Diaspora

“Of all the forms of injustice, inequality in health is the most shocking and inhumanâ€:

Dr. Luther King, Jr.

[Guest guest]

Hey, Doc, it's good to know you're here.

I have a question. It is my understanding that the only two

mechanisms that can stimulate aldosterone secretion are angiotensin

II and salt loss/potassium gain. Are there any other mechanisms by

which aldosterone oculd be secreted outside the angiotensin system.

Are there any drugs that might do this?

Thanks,

Mike

> Keep us posted on the numbers. Aldo dose not usually cause

spikes.

>

> Mastocytosis may be assocaited with HTN if I am not mistaken.

Well maybe

> portal HTN.

>

>

>

> May your pressure be low!

>

> Clarence E. Grim, BS, MS, MD, FACP, FACC

> Professor of Medicine and Epidemiology

> Board Certified in Internal Medicine, Geriatrics and Hypertension

> Focusing on difficult to control high blood pressure and high

cholesterol

> especially in the African Diaspora

>

>

>

> “Of all the forms of injustice, inequality in health is the most

shocking and

> inhumanâ€:

> Dr. Luther King, Jr.