Girls

[Guest guest]

,

I thought the same thing re:it seemed like

more boys had ds than girls.But from things

Ive read it can equally happen to either sex

Funny part is when ever I seen a child with ds,

it was a boy!!Well my miss Skylar is definitly

a girl with ds....She is only 10 months old but

she seems calm & mostly happy thus far

As far as calm overall,Im not sure because I have

a 5yr old daughter with AD/HD!!( & this is something

they say is " mostly " found in boys, I guess she just lucked out...lol

Amber : )

[Guest guest]

Well if miss maggs is anything like miss skylar

(spunky...that is,even though she's only 10 months)

the boys better watch out because she will tell them off...like her mother

ofcourse......LOL

Amber : )

[Guest guest]

Hi Joyce and everyone,

I have some questions about raising girls with Ds versus raising boys with

Ds. It sounds unbelivable but in our support group, there are no girls with

Ds. There is one I know of but they don't really participate and the mom is

really really quiet. I swear part of me thinks that Ds happens more often

in boys.........if it weren't for this list I would be convinced.

So, Joyce, you seem to be our " in house " expert. Thus far, have you found

things to be the same with as Ben? I wonder things like are girls

calmer (overall)? I fully appreciate that all kids are different and

gender isn't a tell-all, but there are differences due to gender. I am just

curious to hear Joyce's perspective.

I have read so many accounts of raising kids with Ds but all the books

feature boys; Expecting Adam, Differences in Common, Burke, Count us

In...BOYS BOYS BOYS! Does anyone know about any books about girls?

Eventually, I will write one. I think we should get together and compile a

book of our experiences with multiples and Ds-I would love to read one now!

I am actaully trying to do this with my support group but no one wants to do

it, or I haven't had any response to my suggestions.

Thanks,

Re: Rusty and

From: Momjlf47@...

I just downloaded your picture and your is adorable! She looks

alot

like my !

JOyce-mother of seven (three are DS-Ben-16, 6, and 2 1/2)

http://DSyndrome.com/Multiples

[Guest guest]

Thanks Amber. Do you want to hear one of the rudest things we have heard

thus far concerning Maggie and Ds? The doctor said we have to be exta

cautious because men will try to take advantage of Maggie due to her limited

mental capacities. Fine, perhaps even true....but I don't think that is one

of the first things we needed to hear upon learning of her diagnosis!

Re: girls

From: MeanNasty1@...

,

I thought the same thing re:it seemed like

more boys had ds than girls.But from things

Ive read it can equally happen to either sex

Funny part is when ever I seen a child with ds,

it was a boy!!Well my miss Skylar is definitly

a girl with ds....She is only 10 months old but

she seems calm & mostly happy thus far

As far as calm overall,Im not sure because I have

a 5yr old daughter with AD/HD!!( & this is something

they say is " mostly " found in boys, I guess she just lucked out...lol

Amber : )

http://DSyndrome.com/Multiples

[Guest guest]

, Can't believe that had to be pointed out to you as you hold your

INFANT girl! What a horrible thought!

As far as the boy vs. girl issue goes, I know from my sister {who's son

is autistic} that far more boys than girls have autism. I wonder if this

is true for Ds?

Gail mom to Bobby-5 1/2, Jillian-3, and Tara{Ds}7 1/2 months

[Guest guest]

Hello everyone,

I have learned a great deal from your posts on many issues that

concern our children. Your input is very valuable and you have great

ideas almost for every situation. Knowing that there are many of you

that are moms to teenage girls, I would greatly appreciate your

suggestions on how to handle one of Ana's monthly problems; she does

Not want and refuses to wear her sanitary pad at home and at school.

I have attempted many ways to get her to wear her pad. I have had

meetings with the teachers, school nurse, with her doctor, and even

though they are willing to help, Ana still refuses to wear it. In the

last meeting I had with the teacher, she told me that Ana and some

other girls, hide their pads who knows where??? after they come from

their recess. So, the teacher, has told them that if they do not have

their pad when they return to the classroom, they are not allowed to

do an activity they especially like. This seems to work sometime, but

by the time Ana gets home, she comes without it. Ana rides the school

bus, which is about an hour-ride. She does not like to feel dirty, so

she changes constantly her underwear, but does not solve the problem.

I don't have periods anymore (hysterectomy), so I'm not able to set an

example, I show her how to use the daily pads, but even those don't

work. I even bought pampers for grown ups once, but that was only

wasted money. Ana is 14 years, she is still in the basis level, but

next year she has to go to secondary school, with more students and

more teachers.

Thanks a lot in advance for your comments and ideas.

Bonnie - mom to Ana (ds)

[Guest guest]

Hi Bonnie,

My daughter Dani is 16 - will be 17 next month. While she doesn't

refuse to wear pads she does have a hard time getting them in her

underwear so they are effective and doesn't always remember to change

them when she should. And, like all of us, she dreads that time of the

month! To help with this she is now on the birth control pill. She

takes the pill for 3 months, then stops, has her period, and starts the

pill again. Since she has started the pill her periods are also not as

heavy and she does better handling it, and, she only gets her period 4

times a year. :-)

Jackie

, 18, and Dani, 16 (ds)

Ana wrote:

>

> Hello everyone,

>

> I have learned a great deal from your posts on many issues that

> concern our children. Your input is very valuable and you have great

> ideas almost for every situation. Knowing that there are many of you

> that are moms to teenage girls, I would greatly appreciate your

> suggestions on how to handle one of Ana's monthly problems; she does

> Not want and refuses to wear her sanitary pad at home and at school.

> I have attempted many ways to get her to wear her pad. I have had

> meetings with the teachers, school nurse, with her doctor, and even

> though they are willing to help, Ana still refuses to wear it. In the

> last meeting I had with the teacher, she told me that Ana and some

> other girls, hide their pads who knows where??? after they come from

> their recess. So, the teacher, has told them that if they do not have

> their pad when they return to the classroom, they are not allowed to

> do an activity they especially like. This seems to work sometime, but

> by the time Ana gets home, she comes without it. Ana rides the school

> bus, which is about an hour-ride. She does not like to feel dirty, so

> she changes constantly her underwear, but does not solve the problem.

> I don't have periods anymore (hysterectomy), so I'm not able to set an

> example, I show her how to use the daily pads, but even those don't

> work. I even bought pampers for grown ups once, but that was only

> wasted money. Ana is 14 years, she is still in the basis level, but

> next year she has to go to secondary school, with more students and

> more teachers.

> Thanks a lot in advance for your comments and ideas.

>

> Bonnie - mom to Ana (ds)

>

>

[Guest guest]

hi we use pads with my daughter, however we use the ultra thin ones without the

wings. The thick pads didn't work for my daughter, I think it was a sensory

issue.

In the beginning, we did alot of reminders and helped her, the helping faded

quickly. Now I sometimes don't realize that she started her cycle.

Also we give her some pain pills and that seems to help the whole process when

she is on her cycle.

Heike

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