Guest guest Posted March 28, 2005 Report Share Posted March 28, 2005 I can tell you, at least form my experince, that low K will give you horrible autonomic problems (and was tested positive on a tilt table with a pattern that they'd " never seen before " ).... Ironically, the first med they will give you for it is florinef, an long-acting aldosterone clone!!! My autonomic problems got significantly better once BP and K were normalized. Thanks, Mike > > > > > > In a message dated 3/22/05 2:53:09 PM, farahbar@s... writes: > > > > > > > > > > So thats when we tried all kinds of bp medications and nothing worked, the > > doctor finally gave up on me and said I should be ok since he had never seen a > > case like mine. > > > > When I got sick again two monhs ago, I went back to the doctor again and he > > gave me hyzar and labetalol, I became so sick that I ended up in the ER > > with my bp being 250-144. > > > > > > These drugs do not work in pt with PA. See my new file at hyperaldo site on > > PA. > > > > A month ago I had a total body scan (electron beam) and it didnt show > > anything. But now one of the doctors wants another radiologist to look at it too > > becaue the blood test is showing a vey high ratio of ald. to renin. > > > > > > You sound like you have PA or one sort or another to me. > > > > > > Is there a difference between the EBS and a regular cat scan?. Do you know > > which one is showing better results? > > > >  > > > > > > > > > > EBT is to look at calcium in the heart they prob did not look at the > > adrenals. > > > > Were you tired on spiro. > > > > > > What kind of K probelms have you had has you family had any K prolems? > > > > Today a family Hx of HTN makes one think of PA. > > > > > > > > > > May your pressure be low! > > > > Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHACHBPR > > Charter member of American Society of Hypertension(ASH) and the > > International Society for Hypertension in Blacks (ISHIB). > > Clinical Professor of Medicine and Epidemiology > > Director, Hypertension Diagnosis and Treatment Center > > Board Certified in Internal Medicine, Geriatrics and Hypertension > > > > Published over 220 scientific papers, book chapters and 220 abstracts > > in the area of high blood pressure epidemiology, physiology, endocrinology, > > measurement, treatment and how to detect curable causes. > > Listed in Best Doctors in America > > Specializing in Difficult to Control High Blood Pressure and the > > History and Physiology of High Blood pressure in the African Diaspora > > Member of the Board of Directors, ISHIB > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2005 Report Share Posted March 29, 2005 Is having low K have to do with feeling very tired first thing in the mornings, like you can't move an arm? Farahlowerbp2@... wrote: In a message dated 3/28/05 22:37:04, lord_mike_the_great@... writes: I can tell you, at least form my experince, that low K will give youhorrible autonomic problems (and was tested positive on a tilt tablewith a pattern that they'd "never seen before").... Ironically, thefirst med they will give you for it is florinef, an long-actingaldosterone clone!!!My autonomic problems got significantly better once BP and K werenormalized.Thanks,MikeThis is very interesting. Now that I think about it many of my pts go to me because of wild swings in BP and problems with vitrually all BP meds. Can you devleop for us a "Mike's story" of your trials and tribulations with HTN and Low K before the Dx and the sequence of how things got better. Go back as far as you can and in as much detail as you can-it can't be too detailed I think, ie go into as much detail as you like. No hurry on doing this. Indeed it would be good if everyone would do this.We have Pam's story and working on several others. These could even be published on our site and perhaps work their way into an article for the lay press. There are likley thousands of folks out there with this problem that will reconginze themselves even if they Drs dont. May your pressure be low!Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHSClinical Professor of Medicine and EpidemiologyDirector, Hypertension Diagnosis and Treatment CenterBoard Certified in Internal Medicine, Geriatrics and HypertensionPublished over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes.Listed in Best Doctors in AmericaSpecializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2005 Report Share Posted March 29, 2005 Hi Farah Before I was " properly " diagnosed and treated I had extreme muscle fatique, cramps and was unable to move my legs quite often. Sometimes arms but mostly legs. Of all my symtoms the headaches were the worse, just like mygrains (mispelled) of course. The DASH diet and Inspra has been my redemption to a new life. <><May we all be DASHing!!><> Randy Is having low K have to do with feeling very tired first thing in the mornings, like you can't move an arm? Farah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 I actuallty had myopathy documented on an EMG (the most horrible testt here is). The report said " non-necrotizing myopathy " whatever that means. My biopsyu showed type 2 muscle fiber atrophy. Both are consistent with muscle damage caused by nerve damage. Since my nerves were all OK in testing, I would have to gather that the potassium starved nerves just weren't working very well. Over time, that caused some muscle atrophy from lack of stimuation. This is a well known phenomenon. I'm not positive that is what was going on, but once my K and BP were better, I was much stronger physically and could lift much more weight. Thanks, Mike > > Hi Farah > > Before I was " properly " diagnosed and treated I had extreme muscle fatique, cramps and was unable to move my legs quite often. Sometimes arms but mostly legs. Of all my symtoms the headaches were the worse, just like mygrains (mispelled) of course. The DASH diet and Inspra has been my redemption to a new life. > > <><May we all be DASHing!!><> > Randy > > Is having low K have to do with feeling very tired first thing in the mornings, like you can't move an arm? > Farah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 Hi Shelton: Two yrs ago, I was having horrible headaches. I'd take an advil, temporarily my headache would go away but I was feeling really sick, once I checked my bp and noticed it was quite high. After a long battle, I discovered that when I have a hdache, and take advil, my bp goes up like crazy(without the headaches my bp was normal), so I found out that the advil was the culprit in my case of bringing my bp way up. At the time I was studying acupressure, and learned about the damage that sugar causes in our bodies, so I totally cut out sugar from my diet and since then I have not had a headache nor feeling depressed. (I take one cookie or a scoop of ice cream every Saturday, though I dont even crave for it anymore).If I really crave for sugary stuff I just add a spoon of honey to my tea or just have it by itself and then I am ok. Farah"sheltonlayne@..." <sheltonlayne@...> wrote: Hi FarahBefore I was "properly" diagnosed and treated I had extreme muscle fatique, cramps and was unable to move my legs quite often. Sometimes arms but mostly legs. Of all my symtoms the headaches were the worse, just like mygrains (mispelled) of course. The DASH diet and Inspra has been my redemption to a new life.<><May we all be DASHing!!><>RandyIs having low K have to do with feeling very tired first thing in the mornings, like you can't move an arm?Farah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2005 Report Share Posted March 31, 2005 Hi Farah I started having headaches probably 25 years ago. They started as the occasional, once every couple of months. Totally devastating, I found that total rest, in a dark room, consuming only liquids (fruit juice, H2O, etc.), in a couple of days I would better. No OTC meds would ever help. Rx meds only helped a little. About 19 years ago I was dx'd with HTN and started BP meds. Over the past 18 years ago until a little over a year ago and getting a proper dx. I had reoccuring headaches with ever increasing frequency and duration. Really no meds of any kind could lessen the deabilitating effects of the headaches. All pain meds that I tried and all OTC meds would raise my BP so I got so I would never take anything. The headaches were occuring almost constantly at the end of 2003. Muscle aches and what I thought was paralysis in the legs was becoming constant. No energy would be an understatement, total fatique. Taking 6 BP meds and not being able to keep the diastolic below 100. Sleep Apnea, kidney stones, gallstones all in the last 2 years before dx'd. The only relief I would get is when I would stay in bed and eat little, drink fruit juices etc, try to rest. I think the cycle I was unknowingly on was the liquid diet (basically fasting) would raise my K and a few symptoms would lessen. Then I would go back to eating the " All American Diet " of about 4500+mg Na per day and eat myself unknowingly sick again. Today life is many times better. The DASH and Inspra seems to be a life saver to me. I try to limit sugar also, but it hasn't seemed to be a big problem. I do honey and tea, sometimes honey and vinegar water, very relaxing. In the past I tried about every Migraine diet and cure known to peoplehood. Good luck. <><May we all be DASHing!!><> Randy > > Hi Farah > > Before I was " properly " diagnosed and treated I had extreme muscle fatique, cramps and was unable to move my legs quite often. Sometimes arms but mostly legs. Of all my symtoms the headaches were the worse, just like mygrains (mispelled) of course. The DASH diet and Inspra has been my redemption to a new life. > > <><May we all be DASHing!!><> > Randy > > Is having low K have to do with feeling very tired first thing in the mornings, like you can't move an arm? > Farah > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2005 Report Share Posted March 31, 2005 In a message dated 3/31/05 8:36:48 AM, sheltonlayne@... writes: > > Is having low K have to do with feeling very tired first thing in the mornings, like you can't move an arm? Classical symptom of low K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2005 Report Share Posted March 31, 2005 In a message dated 3/30/05 8:21:22 AM, lord_mike_the_great@... writes: I actuallty had myopathy documented on an EMG (the most horrible testt here is). The report said "non-necrotizing myopathy" whatever that means. My biopsyu showed type 2 muscle fiber atrophy. Both are consistent with muscle damage caused by nerve damage. Since my nerves were all OK in testing, I would have to gather that the potassium starved nerves just weren't working very well. Over time, that caused some muscle atrophy from lack of stimuation. This is a well known phenomenon. I'm not positive that is what was going on, but once my K and BP were better, I was much stronger physically and could lift much more weight. Thanks, Mike Most likely related to low K I would guess. I have a EMG about 2 years ago and I decided I would never make a good spy. All they would have to tell me is I am going to get an EMG and I would tell them everything they wanted to know. As the K goes up the neuropathy should get better. You might want to read the reference in our files at BP line descibing the first ever case. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2005 Report Share Posted March 31, 2005 In a message dated 3/29/05 4:36:44 PM, spirlhelix@... writes: I also realized by reading these lists of symptoms the other day that the cramping pains I used to get in my hands while working as a sign language interpreter began at the same time my high blood pressure did. I tested negative for carpal tunnel at the time. I don't remember being tested for potassium at the time, but perhaps that is the explanation. Please add this tidbit to Pams story Quote Link to comment Share on other sites More sharing options...
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