Guest guest Posted March 21, 2005 Report Share Posted March 21, 2005 Intolerance to normal blood pressure meds is classic PA. As for surgery, it seems people have mixed results. Often the PA comes back on the other gland!!! The exercise blood pressure response is very wierd, like Dr. Grim said, have you had a complete stress test? At leas there they can document the blood pressure changes to get a better idea. when you say it goes up 50-100 points, what do you mean? 50-100 points from what? It would not be unusual for a person with 120/80 blood pressure to go up to 170/110 during severe exercise. The less conditioned you are, the higher it will go. Thanks, Mike > Greetings: > I am a new member. Thanks for this site and the group I can get some answers. > I was just diagnosed with hyperaldostronism and am scheduled to see a surgeon this week to determine if I need an operation. Appreciate if you can give me some info on if surgery is a good option or having to take meds for the rest of my life. > My bp is suddenly so high. As long as I dont move, I am ok, but as soon as I do any kind of physical activity my bp moves up 50-100 points(both sys. and dias), and it quickly drops as fast when I lie downl. I must also say that I can not take any blood pressure meds because my body basically takes all the side effects of them without the benefit. > thanks, > FR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2005 Report Share Posted March 22, 2005 Jeepers, I wish I had known this 6 years ago. So much drug suffering and my right adrenal removed, and no result except more problems. Then, spiro (or a steroid), and poof, the BP, liquid retention and K normalised. This is one industry in dire need of reform. The first thing I'd pass would be taking Dracula (big pharmo) out of the bloodbank guard-house (clinical medicine, the FDA and licensing courts). Imagine if doctors had to account for their methods! There'd be some fast action on the registry and fact-sharing fronts, I can tell you. I have watched administrative courts in licensing hearings off and on for over 40 years, and know a little wherof I speak. Dave On Mar 22, 2005, at 6:58 AM, Pamela s wrote: > > Hi, Mark > > I don't expect you to remember my story, so here's the > recap: I'm from Ohio, my aldo:renin I suppose was > never very clear, although I did have significant > hypokalemia and malignant hypertension for over five > years, and I did not get a trial of spironolactone > until I developed heart failure as the result of > maglignant hypertension. Congestive heart failure is > one of the conditions spironolactone is most commonly > used for. Much to my doctors' amazement, after over > thirty trials of different blood pressure meds with no > result (which most of my doctors assumed was due to me > not taking my meds, a false assumption), my blood > pressure finally responded to spironolactone. So I > was treated for aldosteronism by accident, and > responded in a way that most of my doctors (except my > nephrologist) would not have predicted. > > They still don't know what caused my aldosteronism. > They think the nonstandard renin:aldosterone test > results were caused by other blood pressure > medications I was taking when tested. They are not > interested in retesting because my blood pressure > rises too high (highest 260/200) without > spironoalctone. > > Unfortunately I'm afraid my story is not unusual, and > that those who are diagnosed with primary > aldosteronism promptly and treated appropriately > (spironolactone or inspra first, don't worry about > surgery until we know if medication works or not) are > the exception rather than the rule. > > I'm happy for you or anyone who has not had to deal > with issues of lagging diagnosis and poor treatment. > > Warmly, > > Pam > > > --- THE HOUSE <thewhiningpplz@...> wrote: >> well not sure where u r at but one of the first >> things they tryed on me and my bud also my sister >> inlaw was spero. >> Thanks Mark >> Re: hyperaldos... >> >> >> Greetings, Farah Rahbar >> >> You are in the right place! I have similar >> problems >> with blood pressure medications, so I know what >> you >> mean. Have you tried Spironolactone or Inspra? >> They >> are aldosterone blockers which are usually very >> effective for people with our condition. But I >> have >> found very few doctors are willing to prescribe >> them >> unless they know we have hyperaldosteronism, and >> sometimes, to my surprise, they don't even bother >> to >> try them even then. >> >> Warmly, >> >> Pam >> >> --- Farah Rahbar <farahbar@...> wrote: >>> Greetings: >>> I am a new member. Thanks for this site and the >>> group I can get some answers. >>> I was just diagnosed with hyperaldostronism and >> am >>> scheduled to see a surgeon this week to >> determine if >>> I need an operation. Appreciate if you can give >> me >>> some info on if surgery is a good option or >> having >>> to take meds for the rest of my life. >>> My bp is suddenly so high. As long as I dont >> move, I >>> am ok, but as soon as I do any kind of physical >>> activity my bp moves up 50-100 points(both sys. >> and >>> dias), and it quickly drops as fast when I lie >>> downl. I must also say that I can not take any >> blood >>> pressure meds because my body basically takes >> all >>> the side effects of them without the benefit. >>> thanks, >>> FR >>> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2005 Report Share Posted March 22, 2005 Until two months ago, I worked as a personal trainer. Taught aerobics and yoga classes. Walked or ran 2-5 miles/day. Needless to say I exercised 5-6 days a week. 48 yrs old and my diet is lots of fruits and vegs, I am not a vegetarian but eat little meat and chicken, I dont smoke, no cafeine, no alcohol, and follow a low glycemic index diet. I weigh 115 lbs When I am lying down, my bp is as low as 120/80, sometimes goes up to 140/90 As soon as I walk a few steps or even start talking it becomes 196/135 or higher I start feeling weird and my body starts to shake, and my eyes become very weak, cant see very well when its high. Gets better when my bp comes down!! My resting heart rate is 56-60, occasionally it goes as high as 80. So for the last two months I've been bed bound trying to avoid a heart attack or a stroke and I hope I dont have brain damage or heart failure soon. I take Nitro, sublingual when my bp is very high to quickly bring it down.Any other kind of nitro, gel, patch, spray, even intravenously(at the hospital) makes my blood pressure go higher with severe headaches, tightness in my chest and my heart pounds so severly as if it is going to jump out of my chest.thats mainly what happens when I take any kind of bp med. Stress test? about two yrs ago I had a stress test done as a result of having high sparks of my bp going up to 140/90 which accured for a couple of days then dropped down to normal. I thought they were related to my hormones but the doctor didnt buy it and did a stress test, had to run on the treadmill for 45 mins before my heart rate went up and immediately it dropped within 4 mins so the doctor said it was inconclusive told me that this probabely means I have hypertenstion since it runs in my family(my mom). So thats when we tried all kinds of bp medications and nothing worked, the doctor finally gave up on me and said I should be ok since he had never seen a case like mine. When I got sick again two monhs ago, I went back to the doctor again and he gave me hyzar and labetalol, I became so sick that I ended up in the ER with my bp being 250-144. A month ago I had a total body scan (electron beam) and it didnt show anything. But now one of the doctors wants another radiologist to look at it too becaue the blood test is showing a vey high ratio of ald. to renin. Is there a difference between the EBS and a regular cat scan?. Do you know which one is showing better results? Do Inspra, and other hyperald. medications have any side effects? Pam, does your medication have any side effects? It appears that the med. you are taking is working for you. Wishing you all the best of health FRlord_mike_the_great <lord_mike_the_great@...> wrote: Intolerance to normal blood pressure meds is classic PA.As for surgery, it seems people have mixed results. Often the PA comes back on the other gland!!!The exercise blood pressure response is very wierd, like Dr. Grim said, have you had a complete stress test? At leas there they can document the blood pressure changes to get a better idea. when you say it goes up 50-100 points, what do you mean? 50-100 points from what? It would not be unusual for a person with 120/80 blood pressure to go up to 170/110 during severe exercise. The less conditioned you are, the higher it will go.Thanks,Mike> Greetings:> I am a new member. Thanks for this site and the group I can get some answers.> I was just diagnosed with hyperaldostronism and am scheduled to see a surgeon this week to determine if I need an operation. Appreciate if you can give me some info on if surgery is a good option or having to take meds for the rest of my life.> My bp is suddenly so high. As long as I dont move, I am ok, but as soon as I do any kind of physical activity my bp moves up 50-100 points(both sys. and dias), and it quickly drops as fast when I lie downl. I must also say that I can not take any blood pressure meds because my body basically takes all the side effects of them without the benefit. > thanks,> FR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2005 Report Share Posted March 22, 2005 Until two months ago, I worked as a personal trainer. Taught aerobics and yoga classes. Walked or ran 2-5 miles/day. Needless to say I exercised 5-6 days a week. 48 yrs old and my diet is lots of fruits and vegs, I am not a vegetarian but eat little meat and chicken, I dont smoke, no cafeine, no alcohol, and follow a low glycemic index diet. I weigh 115 lbs When I am lying down, my bp is as low as 120/80, sometimes goes up to 140/90 As soon as I walk a few steps or even start talking it becomes 196/135 or higher I start feeling weird and my body starts to shake, and my eyes become very weak, cant see very well when its high. Gets better when my bp comes down!! My resting heart rate is 56-60, occasionally it goes as high as 80. So for the last two months I've been bed bound trying to avoid a heart attack or a stroke and I hope I dont have brain damage or heart failure soon. I take Nitro, sublingual when my bp is very high to quickly bring it down.Any other kind of nitro, gel, patch, spray, even intravenously(at the hospital) makes my blood pressure go higher with severe headaches, tightness in my chest and my heart pounds so severly as if it is going to jump out of my chest.thats mainly what happens when I take any kind of bp med. Stress test? about two yrs ago I had a stress test done as a result of having high sparks of my bp going up to 140/90 which accured for a couple of days then dropped down to normal. I thought they were related to my hormones but the doctor didnt buy it and did a stress test, had to run on the treadmill for 45 mins before my heart rate went up and immediately it dropped within 4 mins so the doctor said it was inconclusive told me that this probabely means I have hypertenstion since it runs in my family(my mom). So thats when we tried all kinds of bp medications and nothing worked, the doctor finally gave up on me and said I should be ok since he had never seen a case like mine. When I got sick again two monhs ago, I went back to the doctor again and he gave me hyzar and labetalol, I became so sick that I ended up in the ER with my bp being 250-144. A month ago I had a total body scan (electron beam) and it didnt show anything. But now one of the doctors wants another radiologist to look at it too becaue the blood test is showing a vey high ratio of ald. to renin. Is there a difference between the EBS and a regular cat scan?. Do you know which one is showing better results? Do Inspra, and other hyperald. medications have any side effects? Pam, does your medication have any side effects? It appears that the med. you are taking is working for you. Wishing you all the best of health FRlord_mike_the_great <lord_mike_the_great@...> wrote: Intolerance to normal blood pressure meds is classic PA.As for surgery, it seems people have mixed results. Often the PA comes back on the other gland!!!The exercise blood pressure response is very wierd, like Dr. Grim said, have you had a complete stress test? At leas there they can document the blood pressure changes to get a better idea. when you say it goes up 50-100 points, what do you mean? 50-100 points from what? It would not be unusual for a person with 120/80 blood pressure to go up to 170/110 during severe exercise. The less conditioned you are, the higher it will go.Thanks,Mike> Greetings:> I am a new member. Thanks for this site and the group I can get some answers.> I was just diagnosed with hyperaldostronism and am scheduled to see a surgeon this week to determine if I need an operation. Appreciate if you can give me some info on if surgery is a good option or having to take meds for the rest of my life.> My bp is suddenly so high. As long as I dont move, I am ok, but as soon as I do any kind of physical activity my bp moves up 50-100 points(both sys. and dias), and it quickly drops as fast when I lie downl. I must also say that I can not take any blood pressure meds because my body basically takes all the side effects of them without the benefit. > thanks,> FR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2005 Report Share Posted March 22, 2005 In a message dated 3/22/05 10:13:46 AM, carolch@... writes: Hello Pam I'm wondering if you could outline how you experience aldosteronism. Since being diagnosed, I have been treated with isoptin and amiloride. My blood pressure is now typically 140/90, so the doctor seems happy with that. However, I find I still experience symptoms of general body weakness, 'fuzzy' head, cramps in all areas of my body (eg around the ribs), sleep disturbance - alertness at night, despite being treated for sleep apnea. Symptoms are intermittent - some days I am symptom-free, other days I can do little and need to rest all day. The feeling I get in my head is very difficult to describe - almost like a wash passes through the brain. Needless to say, these symptoms are very life-disruptive But as difficult is the inability to communicate that these symptoms are very real and serious for me. I have not been able to get a clear answer as to why I should not be taking spironolactone. I have been told eplerenone is not available in Australia. Following tests in hospital, and adrenal vein sampling, my diagnosis was hyperaldosteronism in both adrenal glands. I would love to have a clearer understanding of why amiloride is prescribed rather than spironolactone, and whether the latter could help with these symptoms I have. Regards Carol Also be sure you are DASHing. May your pressure be low! Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHACHBPR Charter member of American Society of Hypertension(ASH) and the International Society for Hypertension in Blacks (ISHIB). Clinical Professor of Medicine and Epidemiology Director, Hypertension Diagnosis and Treatment Center Board Certified in Internal Medicine, Geriatrics and Hypertension Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology, measurement, treatment and how to detect curable causes. Listed in Best Doctors in America Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora Member of the Board of Directors, ISHIB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2005 Report Share Posted March 22, 2005 Farah, Very bizarre... it definately sounds like either pheo or an autonomic nervous system disease. Since peho has been ruled out (has it? The test is only positive when symptomatic), I'd check out the latter. That is very wierd. Inspra had almost zero side effects for me. I got the chills for a few days, then it was like a sugar pill in terms of side effects. Spiro I find to be very relaxing. I kind of like it. In higher doses it can cause side effects, but not so much for women. Thanks, Mike > > Greetings: > > I am a new member. Thanks for this site and the group I can get > some answers. > > I was just diagnosed with hyperaldostronism and am scheduled to > see a surgeon this week to determine if I need an operation. > Appreciate if you can give me some info on if surgery is a good > option or having to take meds for the rest of my life. > > My bp is suddenly so high. As long as I dont move, I am ok, but as > soon as I do any kind of physical activity my bp moves up 50-100 > points(both sys. and dias), and it quickly drops as fast when I lie > downl. I must also say that I can not take any blood pressure meds > because my body basically takes all the side effects of them without > the benefit. > > thanks, > > FR > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2005 Report Share Posted March 23, 2005 In a message dated 3/23/05 2:31:27 PM, hj.rankin5@... writes: Intolerance to normal blood pressure meds is classic PA. As for surgery, it seems people have mixed results. Often the PA comes back on the other gland!!! It does not come back to the other gland-it was there to start with but one side was more active than the other. If you have adrenal vein studies to decide what to do and they are positive then the prob of long term improvement is at least 75%. One way to get an idea if it is on both sides after one comes out is to look at the histology of the one that came out. If it has more than one lump or bump then it may well be on both sides-and may eventually cause a problem again depending on how fast it gets bigger. We dont know what causes this. May your pressure be low! Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHACHBPR Charter member of American Society of Hypertension(ASH) and the International Society for Hypertension in Blacks (ISHIB). Clinical Professor of Medicine and Epidemiology Director, Hypertension Diagnosis and Treatment Center Board Certified in Internal Medicine, Geriatrics and Hypertension Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology, measurement, treatment and how to detect curable causes. Listed in Best Doctors in America Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora Member of the Board of Directors, ISHIB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2005 Report Share Posted March 23, 2005 You eed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2005 Report Share Posted March 23, 2005 You need to be certain you have been tested for a pheochromocytoma. Also have them take a 24 hr urine for Na and K to really see much you are eating. Taking any supplements of any kind? Read the labels for Na. I woudl stop all supplements to see if BP bets better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2005 Report Share Posted March 23, 2005 What are the stats on PA returning to the other adrenal?Have any of you experienced this? I am really curious about this. Just b/c we've had/have PA does it mean it will return? Re: hyperaldos... Intolerance to normal blood pressure meds is classic PA.As for surgery, it seems people have mixed results. Often the PA comes back on the other gland!!!The exercise blood pressure response is very wierd, like Dr. Grim said, have you had a complete stress test? At leas there they can document the blood pressure changes to get a better idea. when you say it goes up 50-100 points, what do you mean? 50-100 points from what? It would not be unusual for a person with 120/80 blood pressure to go up to 170/110 during severe exercise. The less conditioned you are, the higher it will go.Thanks,Mike> Greetings:> I am a new member. Thanks for this site and the group I can get some answers.> I was just diagnosed with hyperaldostronism and am scheduled to see a surgeon this week to determine if I need an operation. Appreciate if you can give me some info on if surgery is a good option or having to take meds for the rest of my life.> My bp is suddenly so high. As long as I dont move, I am ok, but as soon as I do any kind of physical activity my bp moves up 50-100 points(both sys. and dias), and it quickly drops as fast when I lie downl. I must also say that I can not take any blood pressure meds because my body basically takes all the side effects of them without the benefit. > thanks,> FR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2005 Report Share Posted March 23, 2005 The problem seems to be, more often than not, that people were misdiagnosed as conn's instead of hyperplasia. Many of the people that have " recurrences " were never good surgical candidates to begin with. Only a handful of people should be considered for surgery, and only after a thorough evaluation with adrenal vein sampling. But, it may all be for naught... Dr. Grim feels that all PA is bilateral hyperplasia, just that in some people, a node developes on one gland as part of the hyperplasia. His theory makes a lot of sense. It would explain the poor success rate of surgery (only 40- 60%!!! Might as well flip a coin!) I've read in the physiology textbook that prolonged stimulation of the kidneys by aldosterone " changes " them somehow, which is why surgery is often not curative. Since these supposed " changes " have never been found histologically (as far as I know), I think Dr. Grim's theory makes a lot more sense. Thanks, Mike > > Greetings: > > I am a new member. Thanks for this site and the group I can get > some answers. > > I was just diagnosed with hyperaldostronism and am scheduled to > see a surgeon this week to determine if I need an operation. > Appreciate if you can give me some info on if surgery is a good > option or having to take meds for the rest of my life. > > My bp is suddenly so high. As long as I dont move, I am ok, but as > soon as I do any kind of physical activity my bp moves up 50-100 > points(both sys. and dias), and it quickly drops as fast when I lie > downl. I must also say that I can not take any blood pressure meds > because my body basically takes all the side effects of them without > the benefit. > > thanks, > > FR > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2005 Report Share Posted March 23, 2005 > One way to get an idea if it is on both sides after one comes out is to look > at the histology of the one that came out. If it has more than one lump or > bump then it may well be on both sides-and may eventually cause a problem again > depending on how fast it gets bigger. We dont know what causes this. That's is my case. The CT scan showed more than one bump on the one adrenal, and my doc said that surgery was not an option for me because of that. :-( I was quite bummed! My doc is good... really... I'm so gald I found him. He says that the studies show that 10% of ALL hypertensives have PA and that what " we used to think of being PA (i.e. severe cases) was only the tip of the iceberg " . Wow! It's so great to have a doctor like that! I wish more doctors were as knowledgeable! BTW, he speaks very highly of you as well, Dr. Grim! :-D Another plus! Thanks, Mike Thanks, Mike > > > May your pressure be low! > > Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHACHBPR > Charter member of American Society of Hypertension(ASH) and the International > Society for Hypertension in Blacks (ISHIB). > Clinical Professor of Medicine and Epidemiology > Director, Hypertension Diagnosis and Treatment Center > Board Certified in Internal Medicine, Geriatrics and Hypertension > > Published over 220 scientific papers, book chapters and 220 abstracts > in the area of high blood pressure epidemiology, physiology, endocrinology, > measurement, treatment and how to detect curable causes. > Listed in Best Doctors in America > Specializing in Difficult to Control High Blood Pressure and the > History and Physiology of High Blood pressure in the African Diaspora > Member of the Board of Directors, ISHIB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2005 Report Share Posted March 24, 2005 In a message dated 3/23/05 19:31:30, lord_mike_the_great@... writes: He says that the studies show that 10% of ALL hypertensives have PA and that what "we used to think of being PA (i.e. severe cases) was only the tip of the iceberg". Wow! It's so great to have a doctor like that! I wish more doctors were as knowledgeable! Dr. Conn once called this the "Grim Hypothesis" in one of his last articles. That is that most HTN with low PRA but not low aldo have early PA of one type or another. May your pressure be low! Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS Clinical Professor of Medicine and Epidemiology Director, Hypertension Diagnosis and Treatment Center Board Certified in Internal Medicine, Geriatrics and Hypertension Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes. Listed in Best Doctors in America Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2005 Report Share Posted March 24, 2005 In a message dated 3/23/05 19:18:44, lord_mike_the_great@... writes: I've read in the physiology textbook that prolonged stimulation of the kidneys by aldosterone "changes" them somehow, which is why surgery is often not curative. Since these supposed "changes" have never been found histologically (as far as I know), I think Dr. Grim's theory makes a lot more sense. The argument about this cause of failure of the BP to revent is that many pts who have had severe HTN for some time who have a big adenoma removed will have their HTN go away for an long time. So I dont buy this arguement. They may not have had PA at all. May your pressure be low! Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS Clinical Professor of Medicine and Epidemiology Director, Hypertension Diagnosis and Treatment Center Board Certified in Internal Medicine, Geriatrics and Hypertension Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes. Listed in Best Doctors in America Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2005 Report Share Posted March 25, 2005 Sorry, what is PRA? Something to do with renin? Dave On Mar 24, 2005, at 11:32 PM, lowerbp2@... wrote: > > In a message dated 3/23/05 19:31:30, lord_mike_the_great@... > writes: > > > > He says that > the studies show that 10% of ALL hypertensives have PA and that > what " we used to think of being PA (i.e. severe cases) was only the > tip of the iceberg " . Wow! It's so great to have a doctor like > that! I wish more doctors were as knowledgeable! > > > > Dr. Conn once called this the " Grim Hypothesis " in one of his last > articles. That is that most HTN with low PRA but not low aldo have > early PA of one type or another. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2005 Report Share Posted March 25, 2005 I now have a PDF of the most recent Grim hypothesis that I would like to post on our site. How do we do this? May your pressure be low! Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHACHBPR Charter member of American Society of Hypertension(ASH) and the International Society for Hypertension in Blacks (ISHIB). Clinical Professor of Medicine and Epidemiology Director, Hypertension Diagnosis and Treatment Center Board Certified in Internal Medicine, Geriatrics and Hypertension Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology, measurement, treatment and how to detect curable causes. Listed in Best Doctors in America Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora Member of the Board of Directors, ISHIB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2005 Report Share Posted March 25, 2005 In a message dated 3/25/05 6:32:02 PM, val@... writes: hyperaldosteronism/?yguid=7523009 Cool it looks like it worked. Will add some other stuff as time goes by if folks like this one. May your pressure be low! Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHACHBPR Charter member of American Society of Hypertension(ASH) and the International Society for Hypertension in Blacks (ISHIB). Clinical Professor of Medicine and Epidemiology Director, Hypertension Diagnosis and Treatment Center Board Certified in Internal Medicine, Geriatrics and Hypertension Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology, measurement, treatment and how to detect curable causes. Listed in Best Doctors in America Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora Member of the Board of Directors, ISHIB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2005 Report Share Posted March 25, 2005 Go to the hyperaldosteronism group at . You will need your username and password. hyperaldosteronism/?yguid=7523009 Click on " Files " Click on " Add File " It will ask for the file name and description. Then click " Upload. " Val -----Original Message----- From: lowerbp2@... [mailto:lowerbp2@...] I now have a PDF of the most recent Grim hypothesis that I would like to post on our site. How do we do this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2005 Report Share Posted March 25, 2005 Well, when I click on that link, I can't get in. You can get to the group with: www. Val -----Original Message-----From: Valarie [mailto:val@...]Go to the hyperaldosteronism group at . You will need your usernameand password.hyperaldosteronism/?yguid=7523009Click on "Files"Click on "Add File"It will ask for the file name and description.Then click "Upload."Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2005 Report Share Posted March 25, 2005 In a message dated 3/22/05 2:53:09 PM, farahbar@... writes: So thats when we tried all kinds of bp medications and nothing worked, the doctor finally gave up on me and said I should be ok since he had never seen a case like mine. When I got sick again two monhs ago, I went back to the doctor again and he gave me hyzar and labetalol, I became so sick that I ended up in the ER with my bp being 250-144. These drugs do not work in pt with PA. See my new file at hyperaldo site on PA. A month ago I had a total body scan (electron beam) and it didnt show anything. But now one of the doctors wants another radiologist to look at it too becaue the blood test is showing a vey high ratio of ald. to renin. You sound like you have PA or one sort or another to me. Is there a difference between the EBS and a regular cat scan?. Do you know which one is showing better results?  EBT is to look at calcium in the heart they prob did not look at the adrenals. Were you tired on spiro. What kind of K probelms have you had has you family had any K prolems? Today a family Hx of HTN makes one think of PA. May your pressure be low! Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHACHBPR Charter member of American Society of Hypertension(ASH) and the International Society for Hypertension in Blacks (ISHIB). Clinical Professor of Medicine and Epidemiology Director, Hypertension Diagnosis and Treatment Center Board Certified in Internal Medicine, Geriatrics and Hypertension Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology, measurement, treatment and how to detect curable causes. Listed in Best Doctors in America Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora Member of the Board of Directors, ISHIB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2005 Report Share Posted March 27, 2005 I have never had problem with my K, as far as I know, but when I was hospitalized a month ago following taking Labetalol and a bunch of Nitro, at the hospital, they gave me potasium pills because my K was quite low(dont know how low), when I had another blood test 3 weeks later ordered by my End. my K was normal at 4.1 Never been put on Spiro and I only learnt of it from you and the end. mentioned it when she saw my blood test results. But still didn't want me to take anything before I see Dr. Duh. Dr.Duh's theory is that he believes I dont have a problem with K because of my diet and since I exercised a lot.(which by the way I've been totally off of for the last two months as I am practically bed ridden and I really miss), he believes that I will eventually have problems with K. Thank you, Farahlowerbp2@... wrote: In a message dated 3/22/05 2:53:09 PM, farahbar@... writes: So thats when we tried all kinds of bp medications and nothing worked, the doctor finally gave up on me and said I should be ok since he had never seen a case like mine.When I got sick again two monhs ago, I went back to the doctor again and he gave me hyzar and labetalol, I became so sick that I ended up in the ER with my bp being 250-144. These drugs do not work in pt with PA. See my new file at hyperaldo site on PA. A month ago I had a total body scan (electron beam) and it didnt show anything. But now one of the doctors wants another radiologist to look at it too becaue the blood test is showing a vey high ratio of ald. to renin.You sound like you have PA or one sort or another to me. Is there a difference between the EBS and a regular cat scan?. Do you know which one is showing better results? EBT is to look at calcium in the heart they prob did not look at the adrenals. Were you tired on spiro. What kind of K probelms have you had has you family had any K prolems?Today a family Hx of HTN makes one think of PA.May your pressure be low!Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHACHBPRCharter member of American Society of Hypertension(ASH) and the International Society for Hypertension in Blacks (ISHIB).Clinical Professor of Medicine and EpidemiologyDirector, Hypertension Diagnosis and Treatment CenterBoard Certified in Internal Medicine, Geriatrics and HypertensionPublished over 220 scientific papers, book chapters and 220 abstractsin the area of high blood pressure epidemiology, physiology, endocrinology, measurement, treatment and how to detect curable causes.Listed in Best Doctors in AmericaSpecializing in Difficult to Control High Blood Pressure and theHistory and Physiology of High Blood pressure in the African DiasporaMember of the Board of Directors, ISHIB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2005 Report Share Posted March 28, 2005 Why are you bed ridden? I would suspect low K. What about your diet is high K like the DASH which tries to get in 4000 mg a day or about 125 mM a day. Most is US get about 60. May your pressure be low!CE Grim MDClinical Professor of Internal MedicineProfessor of EpidemiologyBoard Certified in Internal Medicine, Geriatrics and Hypertension Re: Re: hyperaldos... I have never had problem with my K, as far as I know, but when I was hospitalized a month ago following taking Labetalol and a bunch of Nitro, at the hospital, they gave me potasium pills because my K was quite low(dont know how low), when I had another blood test 3 weeks later ordered by my End. my K was normal at 4.1 Never been put on Spiro and I only learnt of it from you and the end. mentioned it when she saw my blood test results. But still didn't want me to take anything before I see Dr. Duh. Dr.Duh's theory is that he believes I dont have a problem with K because of my diet and since I exercised a lot.(which by the way I've been totally off of for the last two months as I am practically bed ridden and I really miss), he believes that I will eventually have problems with K. Thank you, Farahlowerbp2@... wrote: In a message dated 3/22/05 2:53:09 PM, farahbar@... writes: So thats when we tried all kinds of bp medications and nothing worked, the doctor finally gave up on me and said I should be ok since he had never seen a case like mine.When I got sick again two monhs ago, I went back to the doctor again and he gave me hyzar and labetalol, I became so sick that I ended up in the ER with my bp being 250-144. These drugs do not work in pt with PA. See my new file at hyperaldo site on PA. A month ago I had a total body scan (electron beam) and it didnt show anything. But now one of the doctors wants another radiologist to look at it too becaue the blood test is showing a vey high ratio of ald. to renin.You sound like you have PA or one sort or another to me. Is there a difference between the EBS and a regular cat scan?. Do you know which one is showing better results? EBT is to look at calcium in the heart they prob did not look at the adrenals. Were you tired on spiro. What kind of K probelms have you had has you family had any K prolems?Today a family Hx of HTN makes one think of PA.May your pressure be low!Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHACHBPRCharter member of American Society of Hypertension(ASH) and the International Society for Hypertension in Blacks (ISHIB).Clinical Professor of Medicine and EpidemiologyDirector, Hypertension Diagnosis and Treatment CenterBoard Certified in Internal Medicine, Geriatrics and HypertensionPublished over 220 scientific papers, book chapters and 220 abstractsin the area of high blood pressure epidemiology, physiology, endocrinology, measurement, treatment and how to detect curable causes.Listed in Best Doctors in AmericaSpecializing in Difficult to Control High Blood Pressure and theHistory and Physiology of High Blood pressure in the African DiasporaMember of the Board of Directors, ISHIB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2005 Report Share Posted March 28, 2005 I've been following DASH for yrs which probabely is why my K is normal. I am bed ridden because my BP fluctuates so much I am afraid I'd have a major stroke or have heart failure. My bp seems to be more stable when I am in bed or just sitting and doesn't fluctuate as much. I try to go for a walk but my bp shoots up very quickly. the Diastolic immediately goes to 120-136 from the normal 99-100 at rest. Farahlowerbp2@... wrote: Why are you bed ridden? I would suspect low K. What about your diet is high K like the DASH which tries to get in 4000 mg a day or about 125 mM a day. Most is US get about 60. May your pressure be low!CE Grim MDClinical Professor of Internal MedicineProfessor of EpidemiologyBoard Certified in Internal Medicine, Geriatrics and Hypertension Re: Re: hyperaldos... I have never had problem with my K, as far as I know, but when I was hospitalized a month ago following taking Labetalol and a bunch of Nitro, at the hospital, they gave me potasium pills because my K was quite low(dont know how low), when I had another blood test 3 weeks later ordered by my End. my K was normal at 4.1 Never been put on Spiro and I only learnt of it from you and the end. mentioned it when she saw my blood test results. But still didn't want me to take anything before I see Dr. Duh. Dr.Duh's theory is that he believes I dont have a problem with K because of my diet and since I exercised a lot.(which by the way I've been totally off of for the last two months as I am practically bed ridden and I really miss), he believes that I will eventually have problems with K. Thank you, Farahlowerbp2@... wrote: In a message dated 3/22/05 2:53:09 PM, farahbar@... writes: So thats when we tried all kinds of bp medications and nothing worked, the doctor finally gave up on me and said I should be ok since he had never seen a case like mine.When I got sick again two monhs ago, I went back to the doctor again and he gave me hyzar and labetalol, I became so sick that I ended up in the ER with my bp being 250-144. These drugs do not work in pt with PA. See my new file at hyperaldo site on PA. A month ago I had a total body scan (electron beam) and it didnt show anything. But now one of the doctors wants another radiologist to look at it too becaue the blood test is showing a vey high ratio of ald. to renin.You sound like you have PA or one sort or another to me. Is there a difference between the EBS and a regular cat scan?. Do you know which one is showing better results? EBT is to look at calcium in the heart they prob did not look at the adrenals. Were you tired on spiro. What kind of K probelms have you had has you family had any K prolems?Today a family Hx of HTN makes one think of PA.May your pressure be low!Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHACHBPRCharter member of American Society of Hypertension(ASH) and the International Society for Hypertension in Blacks (ISHIB).Clinical Professor of Medicine and EpidemiologyDirector, Hypertension Diagnosis and Treatment CenterBoard Certified in Internal Medicine, Geriatrics and HypertensionPublished over 220 scientific papers, book chapters and 220 abstractsin the area of high blood pressure epidemiology, physiology, endocrinology, measurement, treatment and how to detect curable causes.Listed in Best Doctors in AmericaSpecializing in Difficult to Control High Blood Pressure and theHistory and Physiology of High Blood pressure in the African DiasporaMember of the Board of Directors, ISHIB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2005 Report Share Posted March 28, 2005 Have you ever been testd on a tilt table? or other tests for autonomic problems? Ever had neck irradiation for any reason as a child? look at my difficult HTN protocol on bloodpressureline at and let me know if you have ever been any combinations that I discuss. In a message dated 3/28/05 1:33:58 PM, farahbar@... writes: I've been following DASH for yrs which probabely is why my K is normal. I am bed ridden because my BP fluctuates so much I am afraid I'd have a major stroke or have heart failure. My bp seems to be more stable when I am in bed or just sitting and doesn't fluctuate as much. I try to go for a walk but my bp shoots up very quickly. the Diastolic immediately goes to 120-136 from the normal 99-100 at rest.  Farah lowerbp2@... wrote: Why are you bed ridden? I would suspect low K. What about your diet is high K like the DASH which tries to get in 4000 mg a day or about 125 mM a day. Most is US get about 60.   May your pressure be low! CE Grim MD Clinical Professor of Internal Medicine Professor of Epidemiology Board Certified in Internal Medicine, Geriatrics and Hypertension   Re: Re: hyperaldos... I have never had problem with my K, as far as I know, but when I was hospitalized a month ago following taking Labetalol and a bunch of Nitro, at the hospital, they gave me potasium pills because my K was quite low(dont know how low), when I had another blood test 3 weeks later ordered by my End. my K was normal at 4.1 Never been put on Spiro and I only learnt of it from you and the end. mentioned it when she saw my blood test results. But still didn't want me to take anything before I see Dr. Duh. Dr.Duh's theory is that he believes I dont have a problem with K because of my diet and since I exercised a lot.(which by the way I've been totally off of for the last two months as I am practically bed ridden and I really miss), he believes that I will eventually have problems with K.  Thank you, Farah lowerbp2@... wrote: In a message dated 3/22/05 2:53:09 PM, farahbar@... writes: So thats when we tried all kinds of bp medications and nothing worked, the doctor finally gave up on me and said I should be ok since he had never seen a case like mine. When I got sick again two monhs ago, I went back to the doctor again and he gave me hyzar and labetalol, I became so sick that I ended up in the ER with my bp being 250-144. These drugs do not work in pt with PA. See my new file at hyperaldo site on PA. A month ago I had a total body scan (electron beam) and it didnt show anything. But now one of the doctors wants another radiologist to look at it too becaue the blood test is showing a vey high ratio of ald. to renin. You sound like you have PA or one sort or another to me. Is there a difference between the EBS and a regular cat scan?. Do you know which one is showing better results?  EBT is to look at calcium in the heart they prob did not look at the adrenals. Were you tired on spiro. What kind of K probelms have you had has you family had any K prolems? Today a family Hx of HTN makes one think of PA. May your pressure be low! Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHACHBPR Charter member of American Society of Hypertension(ASH) and the International Society for Hypertension in Blacks (ISHIB). Clinical Professor of Medicine and Epidemiology Director, Hypertension Diagnosis and Treatment Center Board Certified in Internal Medicine, Geriatrics and Hypertension Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology, measurement, treatment and how to detect curable causes. Listed in Best Doctors in America Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora Member of the Board of Directors, ISHIB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2005 Report Share Posted March 28, 2005 In a message dated 3/28/05 22:37:04, lord_mike_the_great@... writes: I can tell you, at least form my experince, that low K will give you horrible autonomic problems (and was tested positive on a tilt table with a pattern that they'd "never seen before").... Ironically, the first med they will give you for it is florinef, an long-acting aldosterone clone!!! My autonomic problems got significantly better once BP and K were normalized. Thanks, Mike This is very interesting. Now that I think about it many of my pts go to me because of wild swings in BP and problems with vitrually all BP meds. Can you devleop for us a "Mike's story" of your trials and tribulations with HTN and Low K before the Dx and the sequence of how things got better. Go back as far as you can and in as much detail as you can-it can't be too detailed I think, ie go into as much detail as you like. No hurry on doing this. Indeed it would be good if everyone would do this. We have Pam's story and working on several others. These could even be published on our site and perhaps work their way into an article for the lay press. There are likley thousands of folks out there with this problem that will reconginze themselves even if they Drs dont. May your pressure be low! Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS Clinical Professor of Medicine and Epidemiology Director, Hypertension Diagnosis and Treatment Center Board Certified in Internal Medicine, Geriatrics and Hypertension Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes. Listed in Best Doctors in America Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora Quote Link to comment Share on other sites More sharing options...
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