Re: Re: question about addisons

November 17, 2004

Thanks to both Dr Grim and Ali! Wish me luck tomorrow with UCSF and

the vein studies prep.

Dave

On Wednesday, November 17, 2004, at 08:14 PM, aadair4 wrote:

>

> Hi Dave,

>

> I would also try cushings-help.com. A lot of Cushing's patients

> have BLAs. Try the message boards; there is a lot of information

> there, patient stories, people to talk to. It's an excellent

> website!

>

> Ali

>

>> Dr Grim, and all :

>>

>> I am about to get the venous study at UCSF, to decide whether my

>> remaining (left) adrenal should go. I will find out about the

> meds

>> withdrawal, surgery, etc. there on Thursday, but any " heads up "

> about

>> this would be so welcome.

>>

>> Meanwhile, some months ago, one kind lady mentioned that she and a

>> family member or two had both glands out, and lived with addisons,

> and

>> steroid replacement.

>>

>> What is that life like? How is it limited in quality? Duration?

>> Dangers?

>>

>> I'm pretty nervous, as information about it seems hard to come by.

>>

>> Best Regards,

>>

>> Dave

>

November 17, 2004

Hi Ali, I am searching for a definition of BLA's. Maybe you could

shoot one here?

Dave

On Wednesday, November 17, 2004, at 08:14 PM, aadair4 wrote:

>

> Hi Dave,

>

> I would also try cushings-help.com. A lot of Cushing's patients

> have BLAs. Try the message boards; there is a lot of information

> there, patient stories, people to talk to. It's an excellent

> website!

>

> Ali

>

>> Dr Grim, and all :

>>

>> I am about to get the venous study at UCSF, to decide whether my

>> remaining (left) adrenal should go. I will find out about the

> meds

>> withdrawal, surgery, etc. there on Thursday, but any " heads up "

> about

>> this would be so welcome.

>>

>> Meanwhile, some months ago, one kind lady mentioned that she and a

>> family member or two had both glands out, and lived with addisons,

> and

>> steroid replacement.

>>

>> What is that life like? How is it limited in quality? Duration?

>> Dangers?

>>

>> I'm pretty nervous, as information about it seems hard to come by.

>>

>> Best Regards,

>>

>> Dave

>

November 18, 2004

IF you have only one adrenal and have PA then an adrenal vein study will not

help it is used to decide which side to take out. If there is only one and BP

and K cant be controlled then you take the last one out-be sure they have tested

you for GRA.

Unless they did not take all of the first one out.In a message dated 11/18/2004

12:04:33 AM Eastern Standard Time, Mr Pearson <dp@...> writes:

>

>Hi Ali, I am searching for a definition of BLA's. Â Maybe you could

>shoot one here?

>

>Dave

>

>On Wednesday, November 17, 2004, at 08:14 PM, aadair4 wrote:

>

>>

>> Hi Dave,

>>

>> I would also try cushings-help.com. Â A lot of Cushing's patients

>> have BLAs. Â Try the message boards; there is a lot of information

>> there, patient stories, people to talk to. Â It's an excellent

>> website!

>>

>> Ali

>>

>>> Dr Grim, and all :

>>>

>>> I am about to get the venous study at UCSF, to decide whether my

>>> remaining (left) adrenal should go. Â Â I will find out about the

>> meds

>>> withdrawal, surgery, etc. there on Thursday, but any " heads up "

>> about

>>> this would be so welcome.

>>>

>>> Meanwhile, some months ago, one kind lady mentioned that she and a

>>> family member or two had both glands out, and lived with addisons,

>> and

>>> steroid replacement.

>>>

>>> What is that life like? Â How is it limited in quality? Â Duration?

>>> Dangers?

>>>

>>> I'm pretty nervous, as information about it seems hard to come by.

>>>

>>> Best Regards,

>>>

>>> Dave

>>

November 18, 2004

Yes, and an NP-59 scan plus vein catheterization, plus exhausting the

meds approaches (e.g. I haven't even tried spiro, or inspra w/o

ameloride), eliminating my two complications (cum extraneous

variables--apnea syndrome, which masquerades as other things, and

exacerbates real ones, and the drugs nicotine + 1/4 Mg of BZD. A third

might be the seven meds I now take for low BP, which work pretty well),

said UCSF surgeon Quan Yahg Duh today, before he'd consider taking out

the last gland, giving me a " more serious disease (addisons), and

possibly still retaining the PA. " Two!

Thanks for the heads up on GRA. Nobody's mentioned it.

Dave

On Thursday, November 18, 2004, at 03:03 PM, lowerbp2@... wrote:

>

> IF you have only one adrenal and have PA then an adrenal vein study

> will not help it is used to decide which side to take out. If there

> is only one and BP and K cant be controlled then you take the last one

> out-be sure they have tested you for GRA.

>

> Unless they did not take all of the first one out.In a message dated

> 11/18/2004 12:04:33 AM Eastern Standard Time, Mr Pearson

> <dp@...> writes:

>

>>

>> Hi Ali, I am searching for a definition of BLA's. Maybe you could

>> shoot one here?

>>

>> Dave

>>

>> On Wednesday, November 17, 2004, at 08:14 PM, aadair4 wrote:

>>

>>>

>>> Hi Dave,

>>>

>>> I would also try cushings-help.com. A lot of Cushing's patients

>>> have BLAs. Try the message boards; there is a lot of information

>>> there, patient stories, people to talk to. It's an excellent

>>> website!

>>>

>>> Ali

>>>

>>>> Dr Grim, and all :

>>>>

>>>> I am about to get the venous study at UCSF, to decide whether my

>>>> remaining (left) adrenal should go. I will find out about the

>>> meds

>>>> withdrawal, surgery, etc. there on Thursday, but any " heads up "

>>> about

>>>> this would be so welcome.

>>>>

>>>> Meanwhile, some months ago, one kind lady mentioned that she and a

>>>> family member or two had both glands out, and lived with addisons,

>>> and

>>>> steroid replacement.

>>>>

>>>> What is that life like? How is it limited in quality? Duration?

>>>> Dangers?

>>>>

>>>> I'm pretty nervous, as information about it seems hard to come by.

>>>>

>>>> Best Regards,

>>>>

>>>> Dave

>>>

November 19, 2004

In a message dated 11/19/04 1:10:59, dp@... writes:

Yes, and an NP-59 scan plus vein catheterization, plus exhausting the

meds approaches (e.g. I haven't even tried spiro, or inspra w/o

ameloride), eliminating my two complications (cum extraneous

variables--apnea syndrome, which masquerades as other things, and

exacerbates real ones, and the drugs nicotine + 1/4 Mg of BZD. A third

might be the seven meds I now take for low BP, which work pretty well),

said UCSF surgeon Quan Yahg Duh today, before he'd consider taking out

the last gland, giving me a "more serious disease (addisons), and

possibly still retaining the PA." Two!

Thanks for the heads up on GRA. Nobody's mentioned it.

Dave

If the HTN is due to adrenal disease and you take out the adransl the BP will get better.

Why are you taking 6 drugs for LOW BP? What are they.

I have sleep apnea myself and have responed well to CPAP haw are you doing on that.?

Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS

Clinical Professor of Medicine and Epidemiology

Director, Hypertension Diagnosis and Treatment Center

Board Certified in Internal Medicine, Geriatrics and Hypertension

Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes.

Listed in Best Doctors in America

Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora

November 19, 2004