Re: stomach problem question more

[Guest guest]

I called Children's hospital and spoke to the head tech who spoke to the

radiologist about Myah's test. They want to papoose her to a board and put in an

NG tube to get the barium in her. I know for sure that she will not tolerate the

procedure on her own so I called to see what to expect. I really don't know if

this is the way I want to go. From what I understand the specialist can do an

endoscopy under anesthesia-which just seems more humane to me. My heart just

aches to think of her being strapped to a board for this. I know she will be

thrashing anyway and oh my. She has had this done one other time a few years

back for blood work and it was awful. I promised her and myself that I would

never do that to her again. I guess to me I just think if there is another way

to get the info, then let's try that method. Maybe I will just take her for the

ultrasound (which will be bad enough holding her down) and get to a specialist

for the endo. Any thoughts?

stomach problem question

Here is Myah's scenario. I have an appt with the ped tomorrow to get her

examined, but I always like you input as to what I need to ask for.

The most recent problem is that, today for the second time in a week, Myah

woke up throwing up what appears to be bile. She will then be on the toilet

about 2 times, not diarrhea, but lots, sometimes bright yellow colored. She will

lay around, say her stomach hurts and then by about 3-4 hours later she will be

fine. The school called this week to tell me she is complaining that her stomach

hurts every morning and will be in the bathroom at school too. She has always

been a kid to bend over and out will come whatever she just drank or ate. That

has been excused by the ped as a purposeful act, which I know it is not-why

would you want to do that? lol We went through this same problem a year (or 2)

ago and I had her tested for Celiac which was normal. It seems like it comes and

goes, but recently is here to stay. After these eposides she will just lay on

the floor and is really pale with dark eyes.She keeps telling me she is sick and

needs a doctor.

She has been on Adderall for about 3 weeks and everyone close thinks this is

the problem, which it may be, but I keep thinking that we have had this " cycle "

before and that if the medicine has anything to do with it, it could be because

she does not eat very much on it. The weird thing to me is that if it is the

meds, it's happening in the AM before she even gets it, so it just doesn' t make

100% sense to me. Myah did have doudenal atresia repiar at birth if it matters.

I am just wondering about her gallbaldder or something like that. Has anyone

been through this that can give some advice? Some doctors do not understand our

kids' increased risk factors and will tend to not look in the unusual places.

Thanks for you help,

Mom to Myah DS 6, Shianne 2, and baby girl due in July

[Guest guest]

has had many upper GI series. We haven't had to strap her down, even when

she was younger. I always went into the room with her, and stood next to her,

as close as possible. We practiced before we went to have the x-rays done.

When I was pregnant with , I postponed 's x-ray until after delivery.

And we never, to this day, never call an x-ray an x-ray. We are simply going to

take pictures.

The upper GI's were never fun, always had to book extra time to allow for

's reluctance to drink the barium, but we managed to get them done without

using the papoose board.

Yes, a specialist can do an endoscopy under anesthesia, depending on what they

are looking for. If they are looking at motility issues, then the endoscopy may

not address that.

The ultrasound is the least invasive, you might want to start with that. You

can also practice that at home with a round object, like a shampoo bottle, and

some aloe gel, and rub it on her belly. You can also be present at the

ultrasound.

One thing about the barium for the UGI, no matter how they get it in her, it is

very, very constipating. I always limit 's solid food intake the day

before, giving her mainly soups, jellos, etc. When we get home from having the

ugi done, I always give her some milk of magnesia, followed by tons of liquids.

The barium pretty much turns to cement inside them, the quicker you get it out,

the better.

Sharon H.

Mom to , (15, DS) and , (11)

South Carolina

" Be kinder than necessary, for everyone you meet is fighting some kind of

battle. "

stomach problem question

Here is Myah's scenario. I have an appt with the ped tomorrow to get her

examined, but I always like you input as to what I need to ask for.

The most recent problem is that, today for the second time in a week, Myah

woke up throwing up what appears to be bile. She will then be on the toilet

about 2 times, not diarrhea, but lots, sometimes bright yellow colored. She will

lay around, say her stomach hurts and then by about 3-4 hours later she will be

fine. The school called this week to tell me she is complaining that her stomach

hurts every morning and will be in the bathroom at school too. She has always

been a kid to bend over and out will come whatever she just drank or ate. That

has been excused by the ped as a purposeful act, which I know it is not-why

would you want to do that? lol We went through this same problem a year (or 2)

ago and I had her tested for Celiac which was normal. It seems like it comes and

goes, but recently is here to stay. After these eposides she will just lay on

the floor and is really pale with dark eyes.She keeps telling me she is sick and

needs a doctor.

She has been on Adderall for about 3 weeks and everyone close thinks this is

the problem, which it may be, but I keep thinking that we have had this " cycle "

before and that if the medicine has anything to do with it, it could be because

she does not eat very much on it. The weird thing to me is that if it is the

meds, it's happening in the AM before she even gets it, so it just doesn' t make

100% sense to me. Myah did have doudenal atresia repiar at birth if it matters.

I am just wondering about her gallbaldder or something like that. Has anyone

been through this that can give some advice? Some doctors do not understand our

kids' increased risk factors and will tend to not look in the unusual places.

Thanks for you help,

Mom to Myah DS 6, Shianne 2, and baby girl due in July

[Guest guest]

HI-

Is an upper GI series the same as a swallow study? If it is then my daughter

has had 4 and she has not had to be strapped down either. I went with her and

talked about Dora and sang and played with her to make it a game. Last week she

had an endoscopy under anesthesia and she did very well.

Dawn

Sharon <huie@...> wrote:

has had many upper GI series. We haven't had to strap her down,

even when she was younger. I always went into the room with her, and stood next

to her, as close as possible. We practiced before we went to have the x-rays

done. When I was pregnant with , I postponed 's x-ray until after

delivery. And we never, to this day, never call an x-ray an x-ray. We are simply

going to take pictures.

The upper GI's were never fun, always had to book extra time to allow for

's reluctance to drink the barium, but we managed to get them done without

using the papoose board.

Yes, a specialist can do an endoscopy under anesthesia, depending on what they

are looking for. If they are looking at motility issues, then the endoscopy may

not address that.

The ultrasound is the least invasive, you might want to start with that. You can

also practice that at home with a round object, like a shampoo bottle, and some

aloe gel, and rub it on her belly. You can also be present at the ultrasound.

One thing about the barium for the UGI, no matter how they get it in her, it is

very, very constipating. I always limit 's solid food intake the day

before, giving her mainly soups, jellos, etc. When we get home from having the

ugi done, I always give her some milk of magnesia, followed by tons of liquids.

The barium pretty much turns to cement inside them, the quicker you get it out,

the better.

Sharon H.

Mom to , (15, DS) and , (11)

South Carolina

" Be kinder than necessary, for everyone you meet is fighting some kind of

battle. "

stomach problem question

Here is Myah's scenario. I have an appt with the ped tomorrow to get her

examined, but I always like you input as to what I need to ask for.

The most recent problem is that, today for the second time in a week, Myah woke

up throwing up what appears to be bile. She will then be on the toilet about 2

times, not diarrhea, but lots, sometimes bright yellow colored. She will lay

around, say her stomach hurts and then by about 3-4 hours later she will be

fine. The school called this week to tell me she is complaining that her stomach

hurts every morning and will be in the bathroom at school too. She has always

been a kid to bend over and out will come whatever she just drank or ate. That

has been excused by the ped as a purposeful act, which I know it is not-why

would you want to do that? lol We went through this same problem a year (or 2)

ago and I had her tested for Celiac which was normal. It seems like it comes and

goes, but recently is here to stay. After these eposides she will just lay on

the floor and is really pale with dark eyes.She keeps telling me she is sick and

needs a doctor.

She has been on Adderall for about 3 weeks and everyone close thinks this is the

problem, which it may be, but I keep thinking that we have had this " cycle "

before and that if the medicine has anything to do with it, it could be because

she does not eat very much on it. The weird thing to me is that if it is the

meds, it's happening in the AM before she even gets it, so it just doesn' t make

100% sense to me. Myah did have doudenal atresia repiar at birth if it matters.

I am just wondering about her gallbaldder or something like that. Has anyone

been through this that can give some advice? Some doctors do not understand our

kids' increased risk factors and will tend to not look in the unusual places.

Thanks for you help,

Mom to Myah DS 6, Shianne 2, and baby girl due in July

[Guest guest]

I could only hope that Myah would behave that way, but experience tells me

otherwise. I think as a combination of her OCD, tourette's and sensory issues,

she just can't take anyone in her space. I had to hold her down and she kicked

the doctor in the head just as she was trying to touch her stomach. She does not

take to any explanation either. she will just say no, no, no I don't want

it...lol It takes 3 of us to have the ENT check her tubes. I know it's got to be

a sensory thing of something becasue she loves going to the doctor and can never

wait to go. I call it the love/hate situation. she really wants to do it, but

gets too overwhelmed. We finally got her weight for the first time in years last

month because she would not stand on the scale. I talked it over with my husband

and I think we are going to go for the US, which we can pin her down for and

then get to a specialist for further planning. At least we will get something.

Thanks for all you help!

stomach problem question

Here is Myah's scenario. I have an appt with the ped tomorrow to get her

examined, but I always like you input as to what I need to ask for.

The most recent problem is that, today for the second time in a week, Myah

woke up throwing up what appears to be bile. She will then be on the toilet

about 2 times, not diarrhea, but lots, sometimes bright yellow colored. She will

lay around, say her stomach hurts and then by about 3-4 hours later she will be

fine. The school called this week to tell me she is complaining that her stomach

hurts every morning and will be in the bathroom at school too. She has always

been a kid to bend over and out will come whatever she just drank or ate. That

has been excused by the ped as a purposeful act, which I know it is not-why

would you want to do that? lol We went through this same problem a year (or 2)

ago and I had her tested for Celiac which was normal. It seems like it comes and

goes, but recently is here to stay. After these eposides she will just lay on

the floor and is really pale with dark eyes.She keeps telling me she is sick and

needs a doctor.

She has been on Adderall for about 3 weeks and everyone close thinks this is

the problem, which it may be, but I keep thinking that we have had this " cycle "

before and that if the medicine has anything to do with it, it could be because

she does not eat very much on it. The weird thing to me is that if it is the

meds, it's happening in the AM before she even gets it, so it just doesn' t make

100% sense to me. Myah did have doudenal atresia repiar at birth if it matters.

I am just wondering about her gallbaldder or something like that. Has anyone

been through this that can give some advice? Some doctors do not understand our

kids' increased risk factors and will tend to not look in the unusual places.

Thanks for you help,

Mom to Myah DS 6, Shianne 2, and baby girl due in July

[Guest guest]

The only problem with anesthesia is that there are more risks involved and

she may have to have an airway depending on how she reacts which could cause

a problem if they are trying to evaluate the esophagus I think..

recently had to be papoosed to do two extractions. they gave her nitrous

oxide before giving her the needle with novacaine which really seemed to

calm her down. I wonder if some kind of IV sedation can be used instead of

anesthesia

_____

From: [mailto: ] On Behalf

Of Spilios

Sent: Tuesday, April 10, 2007 6:27 PM

Subject: Re: stomach problem question more

I called Children's hospital and spoke to the head tech who spoke to the

radiologist about Myah's test. They want to papoose her to a board and put

in an NG tube to get the barium in her. I know for sure that she will not

tolerate the procedure on her own so I called to see what to expect. I

really don't know if this is the way I want to go. From what I understand

the specialist can do an endoscopy under anesthesia-which just seems more

humane to me. My heart just aches to think of her being strapped to a board

for this. I know she will be thrashing anyway and oh my. She has had this

done one other time a few years back for blood work and it was awful. I

promised her and myself that I would never do that to her again. I guess to

me I just think if there is another way to get the info, then let's try that

method. Maybe I will just take her for the ultrasound (which will be bad

enough holding her down) and get to a specialist for the endo. Any thoughts?

stomach problem question

Here is Myah's scenario. I have an appt with the ped tomorrow to get her

examined, but I always like you input as to what I need to ask for.

The most recent problem is that, today for the second time in a week, Myah

woke up throwing up what appears to be bile. She will then be on the toilet

about 2 times, not diarrhea, but lots, sometimes bright yellow colored. She

will lay around, say her stomach hurts and then by about 3-4 hours later she

will be fine. The school called this week to tell me she is complaining that

her stomach hurts every morning and will be in the bathroom at school too.

She has always been a kid to bend over and out will come whatever she just

drank or ate. That has been excused by the ped as a purposeful act, which I

know it is not-why would you want to do that? lol We went through this same

problem a year (or 2) ago and I had her tested for Celiac which was normal.

It seems like it comes and goes, but recently is here to stay. After these

eposides she will just lay on the floor and is really pale with dark

eyes.She keeps telling me she is sick and needs a doctor.

She has been on Adderall for about 3 weeks and everyone close thinks this is

the problem, which it may be, but I keep thinking that we have had this

" cycle " before and that if the medicine has anything to do with it, it could

be because she does not eat very much on it. The weird thing to me is that

if it is the meds, it's happening in the AM before she even gets it, so it

just doesn' t make 100% sense to me. Myah did have doudenal atresia repiar

at birth if it matters. I am just wondering about her gallbaldder or

something like that. Has anyone been through this that can give some advice?

Some doctors do not understand our kids' increased risk factors and will

tend to not look in the unusual places.

Thanks for you help,

Mom to Myah DS 6, Shianne 2, and baby girl due in July

[Guest guest]

My daughter just had and endoscopy with anesthesia. Because she has reflux they

also intibated her (have an airway I think...) too. She did great and she didnt

have any complications. They told us that with adults they do not use anesthesia

but with children they do.

They told us that her esophagus looked fine but we are still waiting for the

results of the celiac biopsy.....

Dawn

Ann-marie <annshelley@...> wrote:

The only problem with anesthesia is that there are more risks involved

and

she may have to have an airway depending on how she reacts which could cause

a problem if they are trying to evaluate the esophagus I think..

recently had to be papoosed to do two extractions. they gave her nitrous

oxide before giving her the needle with novacaine which really seemed to

calm her down. I wonder if some kind of IV sedation can be used instead of

anesthesia

_____

From: [mailto: ] On Behalf

Of Spilios

Sent: Tuesday, April 10, 2007 6:27 PM

Subject: Re: stomach problem question more

I called Children's hospital and spoke to the head tech who spoke to the

radiologist about Myah's test. They want to papoose her to a board and put

in an NG tube to get the barium in her. I know for sure that she will not

tolerate the procedure on her own so I called to see what to expect. I

really don't know if this is the way I want to go. From what I understand

the specialist can do an endoscopy under anesthesia-which just seems more

humane to me. My heart just aches to think of her being strapped to a board

for this. I know she will be thrashing anyway and oh my. She has had this

done one other time a few years back for blood work and it was awful. I

promised her and myself that I would never do that to her again. I guess to

me I just think if there is another way to get the info, then let's try that

method. Maybe I will just take her for the ultrasound (which will be bad

enough holding her down) and get to a specialist for the endo. Any thoughts?

stomach problem question

Here is Myah's scenario. I have an appt with the ped tomorrow to get her

examined, but I always like you input as to what I need to ask for.

The most recent problem is that, today for the second time in a week, Myah

woke up throwing up what appears to be bile. She will then be on the toilet

about 2 times, not diarrhea, but lots, sometimes bright yellow colored. She

will lay around, say her stomach hurts and then by about 3-4 hours later she

will be fine. The school called this week to tell me she is complaining that

her stomach hurts every morning and will be in the bathroom at school too.

She has always been a kid to bend over and out will come whatever she just

drank or ate. That has been excused by the ped as a purposeful act, which I

know it is not-why would you want to do that? lol We went through this same

problem a year (or 2) ago and I had her tested for Celiac which was normal.

It seems like it comes and goes, but recently is here to stay. After these

eposides she will just lay on the floor and is really pale with dark

eyes.She keeps telling me she is sick and needs a doctor.

She has been on Adderall for about 3 weeks and everyone close thinks this is

the problem, which it may be, but I keep thinking that we have had this

" cycle " before and that if the medicine has anything to do with it, it could

be because she does not eat very much on it. The weird thing to me is that

if it is the meds, it's happening in the AM before she even gets it, so it

just doesn' t make 100% sense to me. Myah did have doudenal atresia repiar

at birth if it matters. I am just wondering about her gallbaldder or

something like that. Has anyone been through this that can give some advice?

Some doctors do not understand our kids' increased risk factors and will

tend to not look in the unusual places.

Thanks for you help,

Mom to Myah DS 6, Shianne 2, and baby girl due in July

[Guest guest]

We had Myah's ultrasound this AM and all is fine with that. They called us

already. That is good news for us. I am so glad we didn't do the upper GI. It

took 3 of us plus the tech to do the ultrasound. They played movies and

practically danced on their heads, but Myah just didn't care. lol At least we

know that her gallbladder is not in immediate trouble.

Thanks to all for your help with this!

stomach problem question

Here is Myah's scenario. I have an appt with the ped tomorrow to get her

examined, but I always like you input as to what I need to ask for.

The most recent problem is that, today for the second time in a week, Myah

woke up throwing up what appears to be bile. She will then be on the toilet

about 2 times, not diarrhea, but lots, sometimes bright yellow colored. She

will lay around, say her stomach hurts and then by about 3-4 hours later she

will be fine. The school called this week to tell me she is complaining that

her stomach hurts every morning and will be in the bathroom at school too.

She has always been a kid to bend over and out will come whatever she just

drank or ate. That has been excused by the ped as a purposeful act, which I

know it is not-why would you want to do that? lol We went through this same

problem a year (or 2) ago and I had her tested for Celiac which was normal.

It seems like it comes and goes, but recently is here to stay. After these

eposides she will just lay on the floor and is really pale with dark

eyes.She keeps telling me she is sick and needs a doctor.

She has been on Adderall for about 3 weeks and everyone close thinks this is

the problem, which it may be, but I keep thinking that we have had this

" cycle " before and that if the medicine has anything to do with it, it could

be because she does not eat very much on it. The weird thing to me is that

if it is the meds, it's happening in the AM before she even gets it, so it

just doesn' t make 100% sense to me. Myah did have doudenal atresia repiar

at birth if it matters. I am just wondering about her gallbaldder or

something like that. Has anyone been through this that can give some advice?

Some doctors do not understand our kids' increased risk factors and will

tend to not look in the unusual places.

Thanks for you help,

Mom to Myah DS 6, Shianne 2, and baby girl due in July

[Guest guest]

Most endoscopies are done using what is called " IV Conscious Sedation " , using

drugs that sedate and provide an amnesic effect (so there is no memory). The

most common are Versed, Valium. Having had Versed before myself for a wisdom

tooth extraction, I recommend it, it was wonderful! So even though the docs may

use the term " anesthesia " , that is not what is commonly done. Be sure and ask.

Sharon H.

Mom to , (15, DS) and , (11)

South Carolina

" Be kinder than necessary, for everyone you meet is fighting some kind of

battle. "

stomach problem question

Here is Myah's scenario. I have an appt with the ped tomorrow to get her

examined, but I always like you input as to what I need to ask for.

The most recent problem is that, today for the second time in a week, Myah

woke up throwing up what appears to be bile. She will then be on the toilet

about 2 times, not diarrhea, but lots, sometimes bright yellow colored. She

will lay around, say her stomach hurts and then by about 3-4 hours later she

will be fine. The school called this week to tell me she is complaining that

her stomach hurts every morning and will be in the bathroom at school too.

She has always been a kid to bend over and out will come whatever she just

drank or ate. That has been excused by the ped as a purposeful act, which I

know it is not-why would you want to do that? lol We went through this same

problem a year (or 2) ago and I had her tested for Celiac which was normal.

It seems like it comes and goes, but recently is here to stay. After these

eposides she will just lay on the floor and is really pale with dark

eyes.She keeps telling me she is sick and needs a doctor.

She has been on Adderall for about 3 weeks and everyone close thinks this is

the problem, which it may be, but I keep thinking that we have had this

" cycle " before and that if the medicine has anything to do with it, it could

be because she does not eat very much on it. The weird thing to me is that

if it is the meds, it's happening in the AM before she even gets it, so it

just doesn' t make 100% sense to me. Myah did have doudenal atresia repiar

at birth if it matters. I am just wondering about her gallbaldder or

something like that. Has anyone been through this that can give some advice?

Some doctors do not understand our kids' increased risk factors and will

tend to not look in the unusual places.

Thanks for you help,

Mom to Myah DS 6, Shianne 2, and baby girl due in July