Re: DS babies and Abortion

[Guest guest]

Also wanted to mention that TESTS CAN be wrong. I was in contact with

pregnant Mom that was SURE she was going to have a baby with Down syndrome. All

tests indicated... from what I recall, even the amnio! Mom had a 2 vessel cord

and was over age 40. She spent the entire pregnancy devastated. She was looking

for an adoptive home.

Low and behold...........baby girl arrived..........no chromosome issues.

Wonder how many babies are aborted and the tests were wrong? Just breaks my

heart.

Laurie

[Guest guest]

In a message dated 9/25/2006 9:20:45 A.M. Pacific Daylight Time,

jbocci55@... writes:

She definately has the extra chromosome.

WOW! Wonder if she has a balanced translocation between 2 chromosomes? Or a

mosaic Trisomy?? Amazing story. My oldest daughter has a translocation and

duplication. We suppose she would have been 'normal' had she not gotten the

duplication. It is on Chromosome number 9

Laurie

Mom na, , Marissa and Kayla.......and??

[Guest guest]

In a message dated 9/25/2006 9:27:14 A.M. Pacific Daylight Time,

jbocci55@... writes:

extra 13th chromosome and was only 1 of 10

Sorry, genetics is amazing to me.....but SO darned confusing. Can let this

one go yet....I think chromosome number 13 is one that does not carry any

significant genetic info on the 'q' portion.....the bottom half?? Just like

Trisomy 21...it is only the " p " portion that gives the child Down syndrome

features/issues.

Laurie

[Guest guest]

In a message dated 9/25/2006 10:36:03 A.M. Pacific Daylight Time,

jbocci55@... writes:

is faking the syndrome so he can flirt with womenand get away

LOL..........he sounds adorable!! How old is ?

Laurie

[Guest guest]

In a message dated 9/25/2006 10:46:49 A.M. Pacific Daylight Time,

jbocci55@... writes:

adorable!! How old is ?

Really? When did this all start? Laurie

[Guest guest]

In a message dated 9/25/2006 12:55:50 P.M. Eastern Standard Time,

bamaroberts@... writes:

I say that extra chromosome is the physical marker of God's divine favor on

my child.

BEAUTIFUL ANDREA< AMEN!!!! LOREE

[Guest guest]

Had a friend that the same thing happened to. She had an amnio and discovered

baby had an extra 13th chromosome and was only 1 of 10 children ever to have

this disorder. The outcome would certainly be death within the first few weeks

after being born, blah, blah, blah.

My friends decided to see it through and not terminate, but were scared to death

of the future. Turns out the child is perfectly normal! Now, as far as the

daughter having children in her future, the extra chromosome thing may come into

play then. She definately has the extra chromosome.

Jackie

-------------- Original message --------------

From: trier9@...

Also wanted to mention that TESTS CAN be wrong. I was in contact with

pregnant Mom that was SURE she was going to have a baby with Down syndrome. All

tests indicated... from what I recall, even the amnio! Mom had a 2 vessel cord

and was over age 40. She spent the entire pregnancy devastated. She was looking

for an adoptive home.

Low and behold...........baby girl arrived..........no chromosome issues.

Wonder how many babies are aborted and the tests were wrong? Just breaks my

heart.

Laurie

[Guest guest]

That AFP test is only 60% accurate. Mine came back normal and of course, Reece

has DS. My cousin, and many other women I know, had elevated AFP levels and

their child does not have DS.

Re: DS babies and Abortion

Also wanted to mention that TESTS CAN be wrong. I was in contact with

pregnant Mom that was SURE she was going to have a baby with Down syndrome.

All

tests indicated... from what I recall, even the amnio! Mom had a 2 vessel cord

and was over age 40. She spent the entire pregnancy devastated. She was

looking

for an adoptive home.

Low and behold...........baby girl arrived..........no chromosome issues.

Wonder how many babies are aborted and the tests were wrong? Just breaks my

heart.

Laurie

[Guest guest]

my afp was neg with sydnie as well.

Re: DS babies and Abortion

Also wanted to mention that TESTS CAN be wrong. I was in contact with

pregnant Mom that was SURE she was going to have a baby with Down syndrome.

All

tests indicated... from what I recall, even the amnio! Mom had a 2 vessel cord

and was over age 40. She spent the entire pregnancy devastated. She was

looking

for an adoptive home.

Low and behold...........baby girl arrived..........no chromosome issues.

Wonder how many babies are aborted and the tests were wrong? Just breaks my

heart.

Laurie

[Guest guest]

I say that extra chromosome is the physical marker of God's divine favor on my

child.

Re: DS babies and Abortion

In a message dated 9/25/2006 9:27:14 A.M. Pacific Daylight Time,

jbocci55@... writes:

extra 13th chromosome and was only 1 of 10

Sorry, genetics is amazing to me.....but SO darned confusing. Can let this

one go yet....I think chromosome number 13 is one that does not carry any

significant genetic info on the 'q' portion.....the bottom half?? Just like

Trisomy 21...it is only the " p " portion that gives the child Down syndrome

features/issues.

Laurie

[Guest guest]

My AFP was negative also with , this happens A LOT...my neighbor said

with her 3rd child she was told he had DS but was born only because they

didn't believe in terminating - he did not have DS as the AFP showed...I

know someone else that went by an Ultrasound saying their child had DS and

terminated and have often wondered why they terminated with just an

ultrasound and a doctor's word that the child had DS - she was only about 14

weeks along also...she said the doctor said the child had a crease at their

neck and short legs which meant DS...I thought he was a quack and her for

taking the doctor's word on a test that no matter how many " dimensions " it

can show is only 70% accurate when determining the sex of a child much less

a fetus that looks like a " teddy bear " at 14 weeks...

It seems that society can no longer handle " differences " and has to be

perfect...if you listen to parents talk about their kids they are " perfect "

at everything they do an never have any disappointments...heaven help them

when they become an adult and their boss fires/yells at them...where will

they be then? Run home to mommy for a hug!

Sometimes I think we are going back words as a society!

Re: DS babies and Abortion

my afp was neg with sydnie as well.

Re: DS babies and Abortion

Also wanted to mention that TESTS CAN be wrong. I was in contact with

pregnant Mom that was SURE she was going to have a baby with Down

syndrome. All

tests indicated... from what I recall, even the amnio! Mom had a 2 vessel

cord

and was over age 40. She spent the entire pregnancy devastated. She was

looking

for an adoptive home.

Low and behold...........baby girl arrived..........no chromosome issues.

Wonder how many babies are aborted and the tests were wrong? Just breaks

my

heart.

Laurie

[Guest guest]

That is so funny !! My son is almost nine and he talks constantly about his

" 10 " girlfriends!! . He takes an adaptive dance class at Boston Ballet and

cant wait till after his class because he " flies: " to the other end of the

building to blow kisses to the older ballerinas! His buddy at challenger

soccer also has to be a girl!!

[Guest guest]

I had the AFP and it came back negative, but I had Ry! LOL. Donny always says

is faking the syndrome so he can flirt with womenand get away with it!

Jackie

--------- Re: DS babies and Abortion

Also wanted to mention that TESTS CAN be wrong. I was in contact with

pregnant Mom that was SURE she was going to have a baby with Down syndrome. All

tests indicated... from what I recall, even the amnio! Mom had a 2 vessel cord

and was over age 40. She spent the entire pregnancy devastated. She was looking

for an adoptive home.

Low and behold...........baby girl arrived..........no chromosome issues.

Wonder how many babies are aborted and the tests were wrong? Just breaks my

heart.

Laurie

[Guest guest]

it would be very hard to think back what if ...wonder if.....if you made a

decision based on the dr and the blood test...that would be hard to get over.

Re: DS babies and Abortion

Also wanted to mention that TESTS CAN be wrong. I was in contact with

pregnant Mom that was SURE she was going to have a baby with Down

syndrome. All

tests indicated... from what I recall, even the amnio! Mom had a 2 vessel

cord

and was over age 40. She spent the entire pregnancy devastated. She was

looking

for an adoptive home.

Low and behold...........baby girl arrived..........no chromosome issues.

Wonder how many babies are aborted and the tests were wrong? Just breaks

my

heart.

Laurie

[Guest guest]

is 18...soon to be 19 and he loooooooooves women!

Jackie

-------------- Original message --------------

From: TRIER9@...

In a message dated 9/25/2006 10:36:03 A.M. Pacific Daylight Time,

jbocci55@... writes:

is faking the syndrome so he can flirt with womenand get away

LOL..........he sounds adorable!! How old is ?

Laurie

[Guest guest]

Hi Jackie!

Only know 'some' stuff because I have some wonderful contact! And I ask

doctors a lot of question!! =)

Laurie

[Guest guest]

Hi Jackie!

Only know 'some' stuff because I have some wonderful contacts! And I ask

doctors a lot of question!! =)

Laurie

[Guest guest]

In a message dated 9/25/2006 2:33:08 P.M. Pacific Daylight Time,

Little1sdaycare writes:

We also had to change our pedi when he was born because on the second visit

all he would talk about was what he " would not do " Basically wrote him off

at 6 wks~!

Good for you and YEAH for ! I would love to hear more about

him!!

Laurie

[Guest guest]

My typical son had a low AFP my son with DS had a normal AFP.

Jean

[Guest guest]

Jackie,

This is so cute!! 's new thing when he sees a group of teen girls

together, is he will smile at them and actually say, " Hi, girls " practically

winking at them, clicking his tongue and doing the pointer finger thing.

So, I guess DS also has the flirt gene?!?! And btw, the teen girls love

it because he is only 9 and wears size 6 clothes...so he is this " miniature

man " , it's cute for now...

Kym

>I had the AFP and it came back negative, but I had Ry! LOL. Donny always

>says is faking the syndrome so he can flirt with womenand get away

>with it!

>

> Jackie

[Guest guest]

AND I must add........this is a beautiful web site and you have to go to see

it!!

Thanks for all your work, ! The world needs more like you!!

Laurie

[Guest guest]

Oh gosh, we know a kid ( a kid, he's 24!) whose favorite restaurant is HOOTERS

and it isn't for the chicken wings! His mother told me he has had several

" typical " girlfriends!

My little monkey is only 4 1/2! It is so hard to imagine him with hormones!

lol

Re: DS babies and Abortion

Jackie,

This is so cute!! 's new thing when he sees a group of teen girls

together, is he will smile at them and actually say, " Hi, girls " practically

winking at them, clicking his tongue and doing the pointer finger thing.

So, I guess DS also has the flirt gene?!?! And btw, the teen girls love

it because he is only 9 and wears size 6 clothes...so he is this " miniature

man " , it's cute for now...

Kym

>I had the AFP and it came back negative, but I had Ry! LOL. Donny always

>says is faking the syndrome so he can flirt with womenand get away

>with it!

>

> Jackie

[Guest guest]

Wow, Laurie, you know your stuff!

Jackie

-------------- Original message --------------

From: trier9@...

In a message dated 9/25/2006 9:27:14 A.M. Pacific Daylight Time,

jbocci55@... writes:

extra 13th chromosome and was only 1 of 10

Sorry, genetics is amazing to me.....but SO darned confusing. Can let this

one go yet....I think chromosome number 13 is one that does not carry any

significant genetic info on the 'q' portion.....the bottom half?? Just like

Trisomy 21...it is only the " p " portion that gives the child Down syndrome

features/issues.

Laurie

[Guest guest]

Probably about the time he hit puberty.....around 12.

Jackie, Mom to 18ds, 16, and Bradley 12

-------------- Original message --------------

From: TRIER9@...

In a message dated 9/25/2006 10:46:49 A.M. Pacific Daylight Time,

jbocci55@... writes:

adorable!! How old is ?

Really? When did this all start? Laurie

[Guest guest]

Also wanted to mention that TESTS CAN be wrong.

From memory and I can't remember the statistics - all of these tests are

not 100% accurate. Probably like 98% accurate but not sure.

So there would be a very small percentage of babies aborted because of a

false result. In reality when a negative result comes back a Dr. should do

a follow up - though I'm not sure if the negative results has something to

do with the testing or the 'make-up' of the mother/child.

Jan, mother of Trent 22yo w/DS from the LandDownUnder