Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 am i doing wrong? Ive always felt like our life has been fairly 'easy' without any major upsets.......and now Syd is growing up and I feel Im losing control...... am i doing something wrong (see Mo I told you I didnt have all the answers)???? I really feel like Im not doing enough. Sydnie hasnt ever had a problem with communicating her needs...she's always found a way...so these boards are new to me...not new as in not heard of them butnew as in not needed them....fortunately her resource teacher is working on something. I am so happy once I have Sydnie home........I know here things can be dealt with...I dread school every day....makes me sick... Cant really read the teachers in what they are thinking...or truly feeling about things. Where is our county support?!!!! ~Angie Research Associate of Child Development and Human Relations to Sydnie (5/26/00) and Saylor (4/30/04) www.babiesonline.com/babies/s/sydniebrooke *updated 10/01/06* www.babiesonline.com/babies/b/babytate *updated 10/01/06* " May God Bless You As He Has Us " An extra little chromosome, that's all it is, you see. Where all of you were born with two, I was blessed with three " My Children are God's gift to me. How I raise them, is my gift to God. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 Angie, It is not you and it is not Syndie it is them that are the problem. As hard as it is, you have to take deep breaths and fight like hell to get them working appropriately for her. When Trent started school, the aid that was appointed for the position was not the one of my choice (the first argument I lost). She was appointed as she had a nursing background and there was another student who was to attend for 1/2 day a week who had severe needs, who ended up attending a nearby school. This lady was not the right person, a gut feeling I had at the interview. Every night when I collected Trent, I would be told something negative that had happened that day - never anything good. I then started waiting for him in the carpark to come out with his brother and sister, messages then came to me via them. She told the kids to tell me to cut Trents fringe as it was obviously annoying him as he kept brushing it back. This is something he would do when nervous, but she wouldn't see that. The best thing she blamed on him (in reality it was the worst and really had me upset), one day she came to me and told me that Trent smelt and that each morning I should wash his backside and use powder! As you can imagine I was horrified. Next morning I visited his kindergarten teacher and asked her, she also was astounded and assured me that Trent was fine though some of the kids in his group weren't. A few nights later at a school council meeting a discussion was held in regards to the school toilets and the smell from them!!!! His classroom was next to the toilets, how anyone could blame one child in a classroom of 20 beats me. With that I contacted the Region and told them I was very unhappy, as they do they past it back to me to sort out. This was when I decided a special setting would be more appropriate for him and me, though keeping him at our local school 1 day of the week for social reasons rather than educational. Whether I made the right decision then I am not sure, but it certainly saved my sanity. The point of my story Angie is so you can see you are not alone, we have all been through similar hurdles, at times it is a breeze other times you feel like you are hitting your head against a brick wall. Besides internet groups are you a part of any other groups. I have been part of a group of mum's with kids with disabilities since Trent was 3, who go out for lunch once a month - a great place to vent and a great place to get info along with great friendship with people who understand where you are coming from. The difference between real life groups and internet is you are having a two way conversation rather than waiting for replies. In saying that I love this group as there is a wealth of information and friendship here. Yes, as Sydnie grows up you are losing control as we do with all our children. In Sydnies case though you have to stand back let her grow but be there to make sure all is going well and be ready to jump in and fight her case. I am guessing as Sydnie is your eldest dealing with schools is as new to you as it is to Sydnie, by the time Trent started school I had two already there, I was also Secretary of the Parents Association and Secretary of School Council so had a good working knowledge of the school and a good relationship with the teachers. Stay strong as Sydnie needs you in the background to advise and teach the school on the best way to deliver the best educational outcomes for her. It isn't easy and when you think you have everything goes just right something else will come up. Keep smiling Jan, mother of Trent 22yo w/DS from the LandDownunder what...... am i doing wrong? Ive always felt like our life has been fairly 'easy' without any major upsets.......and now Syd is growing up and I feel Im losing control...... am i doing something wrong (see Mo I told you I didnt have all the answers)???? I really feel like Im not doing enough. Sydnie hasnt ever had a problem with communicating her needs...she's always found a way...so these boards are new to me...not new as in not heard of them butnew as in not needed them....fortunately her resource teacher is working on something. I am so happy once I have Sydnie home........I know here things can be dealt with...I dread school every day....makes me sick... Cant really read the teachers in what they are thinking...or truly feeling about things. Where is our county support?!!!! ~Angie Research Associate of Child Development and Human Relations to Sydnie (5/26/00) and Saylor (4/30/04) www.babiesonline.com/babies/s/sydniebrooke *updated 10/01/06* www.babiesonline.com/babies/b/babytate *updated 10/01/06* " May God Bless You As He Has Us " An extra little chromosome, that's all it is, you see. Where all of you were born with two, I was blessed with three " My Children are God's gift to me. How I raise them, is my gift to God. " Quote Link to comment Share on other sites More sharing options...
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