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from a behavior analysis it looks like an " escape " & " frustration " behavior.

So what is she trying to escape? (causing her to go limp, generally not

cooperated) What is making her frustrated? (causing her to throw pumpkin guts at

the teacher).

For one thing, I think I detect that she needs help with transitions. She

probably resents being dragged from activity-to-activity with no warning and no

say-so on her part.

Have you tried a picture schedule with prompts so she knows what to expect

throughout the day? If you only have 10 minutes for an activity, can you

provide a time for her to watch so she can anticipate when the activity will

end?

As for communication, sometimes it's hard for a child under stress to

communicate exactly what is stressing her. Does Sydnie have other ways of

communicating? Signing or a card she can hand over with concepts like " I need a

break " " I

don't want to " " that's not fair " " I need 5 more minutes " " I want to do

something else " or anything else she might want to communicate?

With my daughter, these kinds of behaviors cropped up in 3rd grade when she

was treated with disrespect (by peers & teachers), talked down to (by

teachers), made demands of (by teachers). Treating her as an equal, requesting

rather

than demanding, and being given an opportunity to shine went a long way to

turning things around. So did carefully monitoring of the other children, and

coaching by the teachers so that the other students were supportive of her. Her

functional analysis proved that visual modelling (rather than just auditory

instruction) and tone of voice where important when teaching her new tasks.

This happened in third grade, everything was pretty good for years, now the

behaviors are starting to crop up in High School (where her Life Skills class

is doing a lot of useless, unconnected things).

- Becky

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In a message dated 10/25/2006 12:54:17 P.M. Eastern Daylight Time,

huie@... writes:

Sounds like the ST was right on the money when she said what she would do if

she had to do it all over again. Her ST should be scheduled so that Sydnie

is leaving the classroom at the end of an activity, before the next activity

starts. It can be done, the schedules can mesh like that.

Nick's ST has often viewed the situation before making a decision to remove

him from what he is doing to go to her office for a session. I think that is

one of the benefits of him having her for the last 7 years; she understands

him and can recognize when to stand her ground and when to compromise. If he

is actively participating in a class, she will often either try to work with

him in that class or reschedule him for a later time. One example, recently

Nick has worked hard to finish something so he could have 10 minutes of

computer time (he loves the computer); unfortunately, by the time he finished it

was time for speech. His ST realized that she would have an uncooperative

kid on her hands if she insisted so she told him she'd be back in 10 minutes and

then they'd have speech.

Cari

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<<< I'd have sat with her in the classroom and talked with her during that

activity, rather than bringing her out for her usual session. >>>>

DUH!! What do they expect! They need to plan more carefully if they need

to remove her.

BUT GEEEEEZ, what a novel idea, doing speech in her inclusive setting??????

" Regardless of how good of a swim instructor you are, you can't teach a

person to swim in the parking lot of a swimming pool. "

Norman Kunc

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So Syndie was doing well, cooperating, taking her turns, listening to the

teacher, doing as she was asked, and was pulled out for something else? Made to

stop a fun activity, one that she was doing well in, to leave for ST? I

wouldn't have liked it either. When I look at this description, I see a child

who was relaxed, doing well, cooperating, just like everyone was telling her

too. She was made to leave an activity before she was done, and didn't know how

to express her anger or frustration, so she acted out. Sounds like the ST was

right on the money when she said what she would do if she had to do it all over

again. Her ST should be scheduled so that Sydnie is leaving the classroom at

the end of an activity, before the next activity starts. It can be done, the

schedules can mesh like that.

I don't know how verbal Sydnie is, and in any case, even if she is verbal, she

may not understand or know how to verbally express herself in this situation, so

she is doing what she knows. My advice, don't get horribly upset about this one

incident, just make sure the teacher and ST understand that they are not acting

in Sydnie's best interests by pulling her out in the middle of an activity.

Make sure they understand why, and ask that her ST be scheduled more

appropriately. After they comply, let it go.

Heck, the ST could have turned that into a great group session, and kept Sydnie

in the classroom. Although as I say that, I am not an ST, and I don't know what

Sydnie's ST schedule, goals, etc., are. Although, if this was a special event

in the classroom, would it kill her to miss one session of individual therapy?

And another thought. Can you or the teacher do a picture board that has

Sydnie's daily schedule on it? One that can be kept in the classroom, and that

the teacher, or assistant can use frequently to show Sydnie so she knows what is

going on, when, and what is coming next? Ever since she has been able to,

has always asked what is next, what are we doing after dinner, tomorrow, after

school. Drives me batty, but that is a need has.

Sharon H.

Mom to , (15, DS) and , (11)

South Carolina

" Be kinder than necessary, for everyone you meet is fighting some kind of

battle. "

from ST

See guys what Im saying....where is this coming from????? Could it be her

molar?????? That is the only thing we've discovered is going on....so much for

sleep ppl cause she slept...didnt get up and come to our room or anything! I

know I know theres still the deep deep sleep....but what is happening?!!!

I'm not sure where to start. Today was different, Angie - I'm not sure why. I

went to get Sydnie. She didn't want to come today - she was doing a pumpkin

activity with Mrs. Ledford, and that very well may be why she didn't want to

come - she was involved in that activity, and seemed to be enjoying it. If I had

it to do over today, I'd have sat with her in the classroom and talked with her

during that activity, rather than bringing her out for her usual session. Mrs.

Ledford let her go ahead and have her turn to dig out of the pumpkin, and she

threw her pumpkin filling on Mrs. Ledford's shirt. I just picked Sydnie up and

carried her over to the sink (she wouldn't come when told to wash her hands). I

couldn't get her down the hallway today - first time since the beginning of the

school year. She would just lie down and make herself impossible to stand on her

feet. I ended up having no other choice than to carry her if I wanted to ever

get her to my room. Once we got in my roo

~Angie

Research Associate of Child Development and Human Relations to Sydnie

(5/26/00) and Saylor (4/30/04)

www.babiesonline.com/babies/s/sydniebrooke

*updated 10/01/06*

www.babiesonline.com/babies/b/babytate

*updated 10/01/06*

" May God Bless You As He Has Us "

An extra little chromosome,

that's all it is, you see.

Where all of you were born with two,

I was blessed with three

" My Children are God's gift to me.

How I raise them, is my gift to God. "

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SHARON SHARON SHARON....you are so right!!! Yes Jama fully knows she shouldnt

have pulled her away and certainly wishes she would have done things right then

and there...incorporated it in what she was doing.

She is great....communicates with me very well...that email was not to be mean

or telling on Sydnie.....trust me I get these after each session its great...I

shoudl have been more clear about that!!!

and yes....CENTERS ???? centers are after lunch is the question of the

day....all day!!!!!!

Should I get her resource teacher to do that for her class or her teacher

herself?

from ST

See guys what Im saying....where is this coming from????? Could it be her

molar?????? That is the only thing we've discovered is going on....so much for

sleep ppl cause she slept...didnt get up and come to our room or anything! I

know I know theres still the deep deep sleep....but what is happening?!!!

I'm not sure where to start. Today was different, Angie - I'm not sure why.

I went to get Sydnie. She didn't want to come today - she was doing a pumpkin

activity with Mrs. Ledford, and that very well may be why she didn't want to

come - she was involved in that activity, and seemed to be enjoying it. If I had

it to do over today, I'd have sat with her in the classroom and talked with her

during that activity, rather than bringing her out for her usual session. Mrs.

Ledford let her go ahead and have her turn to dig out of the pumpkin, and she

threw her pumpkin filling on Mrs. Ledford's shirt. I just picked Sydnie up and

carried her over to the sink (she wouldn't come when told to wash her hands). I

couldn't get her down the hallway today - first time since the beginning of the

school year. She would just lie down and make herself impossible to stand on her

feet. I ended up having no other choice than to carry her if I wanted to ever

get her to my room. Once we got in my roo

~Angie

Research Associate of Child Development and Human Relations to Sydnie

(5/26/00) and Saylor (4/30/04)

www.babiesonline.com/babies/s/sydniebrooke

*updated 10/01/06*

www.babiesonline.com/babies/b/babytate

*updated 10/01/06*

" May God Bless You As He Has Us "

An extra little chromosome,

that's all it is, you see.

Where all of you were born with two,

I was blessed with three

" My Children are God's gift to me.

How I raise them, is my gift to God. "

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I agree with the others. In a nutshell (NIc has had all of these behaviors

too so you are not alone!!)

Picture schedule a MUST! When a task is finished, let Syd remove the icon

(or PECS picture) and say something like, " Ok Syd, what's next? "

She needs to be given a " warning " like, " OK Syd, 3 more minutes and we have

to.... " set an AUDIBLE timer.

Nic was (ands still is sometimes) notorious for doing the " wet noodle "

thing. Do not give in if they have to sit there for 5 minutes or more.

Maybe Syd likes the attention of being carried by the staff.

Definitely praise the positives, ignore the negatives (unless it could hurt

her or others, then it has to be addressed.

See if Syd can tell them when she needs a break (maybe have a " I need a

break " card she can hand them just until the teacher is predict when Syd may

be in need of a break soon.(does that make sense?)

As for ST, let Syd choose from 2 or 3 activities instead of the ST dictating

what game to play-it gives Syd some control.

Did you say they are using the token system? What is the reward if she gets

X amount of tokens? Does Syd choose what her reward will be before she

starts earning them? Nic works towards a pre-selected activity (painting,

playdo time, computer time etc) He has a reward board that looks like a

slice of pizza with 6 or 8 pieces of Velcro on it. The tokens are mushrooms

and pepperoni pieces. He earns a token after X amount of minutes of being on

task (the times starts out short and gradually gets longer). He puts the

token on the board himself (when told) and when the slice is full, he gets

his reward. Sometimes when he's getting off task, they have to remind him of

what he's working for. This really has worked well for him.

The school should have a BS coming in to consult with the teachers and other

staff members who work with her so everyone is on the same page.

Di

from ST

>

>

> See guys what Im saying....where is this coming from????? Could it be

> her molar?????? That is the only thing we've discovered is going on....so

> much for sleep ppl cause she slept...didnt get up and come to our room or

> anything! I know I know theres still the deep deep sleep....but what is

> happening?!!!

>

> I'm not sure where to start. Today was different, Angie - I'm not sure

> why. I went to get Sydnie. She didn't want to come today - she was doing a

> pumpkin activity with Mrs. Ledford, and that very well may be why she

> didn't want to come - she was involved in that activity, and seemed to be

> enjoying it. If I had it to do over today, I'd have sat with her in the

> classroom and talked with her during that activity, rather than bringing

> her out for her usual session. Mrs. Ledford let her go ahead and have her

> turn to dig out of the pumpkin, and she threw her pumpkin filling on Mrs.

> Ledford's shirt. I just picked Sydnie up and carried her over to the sink

> (she wouldn't come when told to wash her hands). I couldn't get her down

> the hallway today - first time since the beginning of the school year. She

> would just lie down and make herself impossible to stand on her feet. I

> ended up having no other choice than to carry her if I wanted to ever get

> her to my room. Once we got in my roo

> ~Angie

> Research Associate of Child Development and Human Relations to Sydnie

> (5/26/00) and Saylor (4/30/04)

> www.babiesonline.com/babies/s/sydniebrooke

> *updated 10/01/06*

> www.babiesonline.com/babies/b/babytate

> *updated 10/01/06*

>

> " May God Bless You As He Has Us "

>

> An extra little chromosome,

> that's all it is, you see.

> Where all of you were born with two,

> I was blessed with three

>

> " My Children are God's gift to me.

> How I raise them, is my gift to God. "

>

>

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It might work to work on transitioning at home, too, if that hasn't been done.

Rather than just

letting her do an activity for as long as she wants, give a time frame and then

a 5 minute

warning and a 2 minute warning and then the activity ends.

Whenever we had undesirable behaviors happen, we 'practiced' in this way and it

really

worked with our typical kids, it seems like it could be helpful with a special

needs child as

well.

Sue

On 25 Oct 2006 at 12:36, RSYOSH@... wrote:

> from a behavior analysis it looks like an " escape " & " frustration "

> behavior.

>

> So what is she trying to escape? (causing her to go limp, generally

> not

> cooperated) What is making her frustrated? (causing her to throw

> pumpkin guts at

> the teacher).

>

> For one thing, I think I detect that she needs help with

> transitions. She

> probably resents being dragged from activity-to-activity with no

> warning and no

> say-so on her part.

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I think the st (as many are, as mine is) are too caught up in the service

being provided in their space instead of thinking outside the box and

actually doing the therapy in the classroom.. Since it sounds like it was an

one on one case. then think of all the spoken words and sounds that could

have been worked on doing that kind of hands on activity..

That said.. What your little girl did is what so many other children do

including those in the typical age of kindy.. It happens.. Teachers are used

to it especially in the younger grades..

I don't necessarily think what is happening is the result of an internal

change (molars, virus, etc) happening in Sydnie. I think the people are

expecting her to act like a typical 6 year old child in this case having

speech therapy.. When actually she has more going on governing her actions

and reactions then just a need for speech therapy. they have to work with

those issues also.. sometimes an OT or ST is so caught up in their specialty

more so in school age then preschool, that they sometimes forget to adapt

for other areas of delay that may impact the child's cooperation.. then a

whole big deal is started

Have a good day

_____

From: [mailto: ] On Behalf

Of Angie Tate

Sent: Wednesday, October 25, 2006 12:13 PM

down_syndrome ;

Subject: from ST

See guys what Im saying....where is this coming from????? Could it be her

molar?????? That is the only thing we've discovered is going on....so much

for sleep ppl cause she slept...didnt get up and come to our room or

anything! I know I know theres still the deep deep sleep....but what is

happening?!!!

I'm not sure where to start. Today was different, Angie - I'm not sure why.

I went to get Sydnie. She didn't want to come today - she was doing a

pumpkin activity with Mrs. Ledford, and that very well may be why she didn't

want to come - she was involved in that activity, and seemed to be enjoying

it. If I had it to do over today, I'd have sat with her in the classroom and

talked with her during that activity, rather than bringing her out for her

usual session. Mrs. Ledford let her go ahead and have her turn to dig out of

the pumpkin, and she threw her pumpkin filling on Mrs. Ledford's shirt. I

just picked Sydnie up and carried her over to the sink (she wouldn't come

when told to wash her hands). I couldn't get her down the hallway today -

first time since the beginning of the school year. She would just lie down

and make herself impossible to stand on her feet. I ended up having no other

choice than to carry her if I wanted to ever get her to my room. Once we got

in my room, she did come to her seat and start to participate in our game -

we tried to play " Monkeying Around " - this game allows students to hang

monkeys on a tree and try to keep the tree from " f-f-falling " . We, of

course, drilled the " f " sound in this activity and she was bombarded with

the sound through words that described instructions in the game. She did

well for a few minutes, and then, just would not play appropriately. She

wanted to knock the game off the table and be rough with it. She wouldn't

practice her " f " sound at all - which is not typical - she usually tries

VERY hard to do that for me. So, I asked her - " Sydnie, do we need to do

another game " - she said " yes " with her cute little smile. I got an " Old

Mac " game off my shelf - memory cards/finger puppets. She loved this.

For the last 10 minutes - she did wonderfully - she helped me sing the song

and listened intently as I embedded the " f " sound. We even played a little

matching game at the end. We were able to address her goal for categories -

she named as many farm animals as she could and helped me make animal

noises. I felt this game was a little " easy " for her, but it got her back on

task. Then, we went back out in the hallway. She threw herself to the ground

again and made herself so limp that I couldn't get her to stand. I would

pick her up and put her feet on the ground, and she'd just fall forward. We

did this quite a few times, and I ended up having to carry her back to class

- she lost her sticker, but didn't seem to mind today. I'm just not sure

what happened. She has really been doing well for me in the hallway - I do

think, too, though, that she was upset to quit that game because we only got

to play it for about 10 minutes (since that was the original plan for the

session). I've learned that next time she's really into an activity in the

classroom, I won't remove her. I'll stay and when the activity ends try the

transition to my room. It probably doesn't seem fair to her that other kids

get to do the pumpkin activity when she has to leave. At the same time, even

if she's upset, it's not acceptable for her to throw pumpkin filling on Mrs.

Ledford. We want to teach her to communicate her feelings - even if they are

feelings of anger - in an appropriate way - by telling us. I think that is

sometimes difficult for Sydnie - and for MANY young children. We know that

they act out because they are upset/angry and they don't know how to

communicate that the right way. I know for next time, to try to help Sydnie

ask me if she can stay for the activity rather than me pulling her away and

her get upset.

~Angie

Research Associate of Child Development and Human Relations to Sydnie

(5/26/00) and Saylor (4/30/04)

www.babiesonline.com/babies/s/sydniebrooke

*updated 10/01/06*

www.babiesonline.com/babies/b/babytate

*updated 10/01/06*

" May God Bless You As He Has Us "

An extra little chromosome,

that's all it is, you see.

Where all of you were born with two,

I was blessed with three

" My Children are God's gift to me.

How I raise them, is my gift to God. "

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we taught to sign " yes " and " no " in American Sign Language. She'll use

it even when not in the mood to talk to us.

- Becky

In a message dated 10/25/2006 8:28:23 PM Eastern Daylight Time,

janmarie21@... writes:

Can she give you a simple yes/no answer?

Trent won't but can do so, but will answer by touching a hand presented to

him. Ie. I will ask a question then present my LH for no, RH for yes and

he will touch/point to his answer

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Don't know what others think, but I really don't think it was appropriate

for the ST to have picked Sydnie up, would she have done that with any of

the typical kids - I don't think so.

So Angie I am guessing that is another issue you will have to address -

I believe, like someone else has mentioned, that she was a very happy young

lady enjoying the activity and did not want to leave it - without the speech

ability to say 'why do I have to go, why can't I stay here and finish this'

her only recourse was to act in the manner she did.

One thing I did neglect to do with Trent over the years and something I do

frequently now, is to ask him. Can she give you a simple yes/no answer?

Trent won't but can do so, but will answer by touching a hand presented to

him. Ie. I will ask a question then present my LH for no, RH for yes and

he will touch/point to his answer. This time, the situation is probably too

long ago to expect her to answer but may be worth a try.

Questions such as -

Where you enjoying the pumpkin cutting? Yes/no

Did you want to stay in the class? Yes/no

Where you sad when you were made to leave? Yes/no

If that sort of question/answer thing works you will get a good idea of

where she was coming from. I personally get very annoyed and frustrated at

times as I believe too much is expected from our kids and sometimes to be

accepted they have to be 100% perfect all the time.

One thing to remember though Angie, many of us have been there done that

although probably with different issues, remember you will get through it

and more so don't let the school put it all back on you, they are

responsible for making sure that Sydnie is happy, safe, learning and

growing. Depending on the circumstance I have been known to say, this is

your problem deal with it appropriately. Though heaven forbid if they

address the situation in a manner I do not agree with! :)

When you finally get to sit down and have a wine have an extra one for

me!!!!

Keep smiling

Jan, mother of Trent 22yo w/DS from the LandDownUnder

from ST

See guys what Im saying....where is this coming from????? Could it be her

molar?????? That is the only thing we've discovered is going on....so much

for sleep ppl cause she slept...didnt get up and come to our room or

anything! I know I know theres still the deep deep sleep....but what is

happening?!!!

I'm not sure where to start. Today was different, Angie - I'm not sure why.

I went to get Sydnie. She didn't want to come today - she was doing a

pumpkin activity with Mrs. Ledford, and that very well may be why she didn't

want to come - she was involved in that activity, and seemed to be enjoying

it. If I had it to do over today, I'd have sat with her in the classroom and

talked with her during that activity, rather than bringing her out for her

usual session. Mrs. Ledford let her go ahead and have her turn to dig out of

the pumpkin, and she threw her pumpkin filling on Mrs. Ledford's shirt. I

just picked Sydnie up and carried her over to the sink (she wouldn't come

when told to wash her hands). I couldn't get her down the hallway today -

first time since the beginning of the school year. She would just lie down

and make herself impossible to stand on her feet. I ended up having no other

choice than to carry her if I wanted to ever get her to my room. Once we got

in my room, she did come to her seat and start to participate in our game -

we tried to play " Monkeying Around " - this game allows students to hang

monkeys on a tree and try to keep the tree from " f-f-falling " . We, of

course, drilled the " f " sound in this activity and she was bombarded with

the sound through words that described instructions in the game. She did

well for a few minutes, and then, just would not play appropriately. She

wanted to knock the game off the table and be rough with it. She wouldn't

practice her " f " sound at all - which is not typical - she usually tries

VERY hard to do that for me. So, I asked her - " Sydnie, do we need to do

another game " - she said " yes " with her cute little smile. I got an " Old

Mac " game off my shelf - memory cards/finger puppets. She loved this.

For the last 10 minutes - she did wonderfully - she helped me sing the song

and listened intently as I embedded the " f " sound. We even played a little

matching game at the end. We were able to address her goal for categories -

she named as many farm animals as she could and helped me make animal

noises. I felt this game was a little " easy " for her, but it got her back on

task. Then, we went back out in the hallway. She threw herself to the ground

again and made herself so limp that I couldn't get her to stand. I would

pick her up and put her feet on the ground, and she'd just fall forward. We

did this quite a few times, and I ended up having to carry her back to class

- she lost her sticker, but didn't seem to mind today. I'm just not sure

what happened. She has really been doing well for me in the hallway - I do

think, too, though, that she was upset to quit that game because we only got

to play it for about 10 minutes (since that was the original plan for the

session). I've learned that next time she's really into an activity in the

classroom, I won't remove her. I'll stay and when the activity ends try the

transition to my room. It probably doesn't seem fair to her that other kids

get to do the pumpkin activity when she has to leave. At the same time, even

if she's upset, it's not acceptable for her to throw pumpkin filling on Mrs.

Ledford. We want to teach her to communicate her feelings - even if they are

feelings of anger - in an appropriate way - by telling us. I think that is

sometimes difficult for Sydnie - and for MANY young children. We know that

they act out because they are upset/angry and they don't know how to

communicate that the right way. I know for next time, to try to help Sydnie

ask me if she can stay for the activity rather than me pulling her away and

her get upset.

~Angie

Research Associate of Child Development and Human Relations to Sydnie

(5/26/00) and Saylor (4/30/04)

www.babiesonline.com/babies/s/sydniebrooke

*updated 10/01/06*

www.babiesonline.com/babies/b/babytate

*updated 10/01/06*

" May God Bless You As He Has Us "

An extra little chromosome,

that's all it is, you see.

Where all of you were born with two,

I was blessed with three

" My Children are God's gift to me.

How I raise them, is my gift to God. "

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Share on other sites

Angie,

As a mom who has been there and as an occupational therapist (pediatric), a

visual or picture schedule does sound to be what might be called for. One of the

biggest things I've found that helps kids like Sydnie and Karrie is allowing

them to have a choice. For example, if I put Karrie's clothes out for school,

she will automatically refuse to wear them. If I put 2 outfits out for her to

choose between, she chooses one and gets dressed. She feels she is more is

control, which is very important to our little ones. Think how it would feel to

not have control over your world??!! :)

I also agree that unless she is in danger, placing another in danger, ignore the

negative behavior and praise the good. All kids this age know is that they are

getting attention, whether it's negative or positive doesn't really matter.

Hang in there. You will make it through.

Sue mom to Kate 17 and Karrie 10 w/ds and mild autism (who actually had a

nickname at the DS Clinic as being " The Wild Child " ).

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<<<<Don't know what others think, but I really don't think it was appropriate

for the ST to have picked Sydnie up, would she have done that with any of

the typical kids - I don't think so.

So Angie I am guessing that is another issue you will have to address ->>>>

Angie,

I was thinking this same thing. What is the strategy for when Sydnie won't

come with a teacher? I have a kindergartener without ds. His teacher wouldn't

pick up one of the kids if they were being non-compliant.

As a matter of fact the other day I saw the early childhood teacher out at

recess with one of her students along with the kindergarteners. The child she

was working with wasn't coming in when the bell rang. He hid under the slide.

She was very quiet as not to attract attention to them. She would stay by

him and quietly talked to him. In a few minutes he walked into the school with

her.

JMO,

Karyn

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You make a good point, Jan.

Many many times people will ask me things instead of asking Nic himself.

When he's standing right there. ( I have to admit my husband sometimes does

this at the dinner table too.)

Would Nic like a drink? I don't know, you'll have to ask him.

Does Nic like pizza? Why don't you ask him?

Of course if you ask him a question and he doesn't answer appropriately,

then you'll know to ask me. For example

" Nic, how was the Y today? " " Nuffin " (nothing) or he'll say

" Nervermind mom. "

yes or no questions are best-kids know what they want. 80)

Di

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